Re: Re: Vax's & STuff (was:Great On Line Video )

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In a message dated 11/06/2006 10:20:19 GMT Daylight Time, rexel45@... writes:

The doctor told me that since he'd contracted pox before 6 months, I must have not had the pox! I can remember having them.

>>Sam had them really bad at 5 months, I rember having them like it was yesterday

I'm just rambling...it all makes me so angry and what makes it even worse is that I have a lot of "alternative" parenting aquaintances who are non-vaxer's, I KNEW that there were risks involved. But I was tired and the only stuff I could find to read felt so biased in one way or the other. Damn. I hate having regrets. I wish he'd never had those vax. I know there's no way to take it back and the regrets don't help me now but I guess with this still being so new it's a time to reflect and reorganise my thoughts about what happened then. In so many instances what I thought was happening WAS happening.

>>You have permission to be mad and sad and then mad again. Then you have to channel that energy into getting your boy healthy again so some gopdo comes out of the bad thing they did to our kids

I remember going to my GP when he was 12 mos old and telling him that he still had the startle reflex, and a list of other strange things...I also remember that he never once peed when his nappy was taken off. His primary interest was turning the VCR on and off, looking out the window, on and on...he didn't "get" peek a boo (or whatever you call it). He was scared of being moved backwards, he had no idea that I was giving him milk, he never once tried to hold his bottle...he didn't cry for his food, I just had to feed him. He ALWAYS cried when he heard singing in unison or joint laughter or nursery rhymes being spoken in unison. (he still does cry at this) The GP told me that nothing was wrong with him, he was fine, his reflexes were fine, blah, blah blah....so I went home thinking I was nuts.

>>>Sam is doing very well with brushing therapy to address retained immature reflexes - he has one that shodl have disappeared in the womb and still the baby hand grasp one. The chap is super - practises out of feild and Windsor I higly recommend him, I forget his name but Tina knows it because it was her that put me on to him. We are hoping he will do article explaining what he does for Treating Autism members newsletter.

Just a few weeks ago, on the 18th of May we went for his usual reflux clinic appt with his Ped, a SLT, a dietician and a second consulting ped. (That's FOUR pediatric consultants all at once!) I said to them that he was loosing his upper lip strength, that I was shocked at this and that now when a spoon came to his mouth he would tip his head back in some sort of weird response (I also mentioned that he was doing lots of repetitive stuff.) He had forgotten how to take food from a spoon!!!! They completely slaughtered me saying that he was drinking fine from his bottle and that required upper lip strength...blah blah blah....I'M SO FUCKING ANGRY THAT THEY DIDN'T LISTEN TO ME. NO ONE WOULD LISTEN TO ME.

>>Thats requires more toingue strength than lips I think, what twats they all are

THANK GOD for an *unethical* SLT who phoned me after a separate consultation (which was a mere TWO WEEKS after the above appointment) to tell me "off the record" that my son has autism and that I should get him help as soon as possible. We wrote her a letter of thanks and I wrote one to her supervisor praising her...

>>>Well done for doing that at a time you are going through the trauma of Dx.

One of my parent guides when I started out on this journey had an 'unethical' Health Visitor tell her at 19 months, so profound formal Dx at 20 months, spoke his words 3 days into GFCF, most everything they tried worked, supps, chelation, floortime, diet - mum worked like a trooper and held my hand for years - that boy entered school indistinguishable from peers, smartest one there, mum got her life back, disappeared back into cyberspace and I miss her, but thats a fine example of what early detection and intervention can do - keep the faith!

and now...all the things that were cute are bitterly painful. His funny little ways are all now stabbing reminders that something isn't ok. His funny way of walking, the little jig he does before he takes steps, his humming, his little rituals, his spinning and laughing...now they are all something that they weren't just a mere two weeks ago. It's still him of course....and my patience with him has increased 100 fold now that I understand him better.

>>>Yep that happened here too, not only with Sam but with DH too, he was so relieved to have an explanation about the tough times he had growing up and he self restricted his diet to dairy free (except for eggs) at age 4.5..........................

Hang in there, you remind me of me (no offence intended)

Mandi x

I have to stop now, so many things to do.