Need help!

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Dear Listmates,

We continue to struggle with horrible self-injury and our daughter's

aggression towards others is escalating. I have removed all

supplements now, except VSL#3.

She has been on metronidazole/Flagyl since August for Gamma Strep in

the gut. She is almost 16 yrs. old, and this is only the sixth

course of antibiotics we've had her on, even though she has had

repeated ear infections. Every time she's been on antibiotics, no

matter which on, her ears still are running pus out of them. I hate

having her on antibiotics. I do not feel the Flagyl has helped her

OCD symptoms, which is partly why we started it. In the meantime,

she still has draining ears.

She is non verbal so I have no idea what is causing her head-

banging, body slamming behaviors.

I can guess that it's either/or her gut, her ears, a headache, a

nightmare in the night, barometric pressure changes, moon changes,

temperature changes, odors, a supplement, a food, a lack of

minerals, you name it. It's a real guessing game.

She has been on every known diet. The only diet that cleared up her

ears was SCD, but she still had terrible behaviors. I abandoned SCD

because of being accused of child abuse over it. Obviously her ears

are not the only possible issue with the self-injury and aggression.

We have done chelation, with poor results. We have been attempting

to do Dr. Yasko's protocol, but never get very far because the

supplements seem to make her worse. All supplements seem to be a

problem. I believe she is Vitamin B deficient, yet she reacts to

those, too. I started giving her just a half a dropperful of liquid

Bs a few weeks ago---am not sure if that's part of the escalation of

behavior or not, so have removed them, along with Vit K. She was

only getting one drop of Vit K per day.

We have begun the process of looking for an institution for her.

This is a painful decision to make, believe me. One option given me

this morning was to send her to the Behavioral Health Center where

she would be an inpatient for two to four months while they try to

figure out what medications would work to control her. This, too,

is not a happy option for me, but I am not sure our family and

school personnel can take much more of what she is dishing out. Her

classmates are terrified of her at this point. Her aide is

threatening to quit. Her little brothers have both asked me why she

can't go live somewhere else.

If anyone has a child like this and could shed some light on what

has worked for you, please contact me off list. I cannot take the

volume of emails that are generated by the lists. And sorry for the

cross post. I am hoping to find a gem of information that until now

I haven't had. And thanks for the help.

Marina marina@...