Re: Losing my son..AGAIN!!

[Guest guest]

I am so sorry. I understand. Karac is 14. I am his grandmother. I had an ABA program for him and he was making great progress until he had a tetanus shot when he was 10; he has regressed since. I didn't know at the time that thimersol was in the tetanus shot or I would have never let him have it. I don't know what can be done.

I pick up Karac every day from school and I have a 22 year old young man to help me every day. We try to keep him interacting. He rides bikes with him; they go down to a neighbor boys to shoot basketballs; he rides a scooter to the park. I take him to gymnastics on Tuesdays and a free horse therapy place on Wednesdays. I do some printing, keyboarding, reading, and coloring with him to just force him to stay engaged. It is not easy and inspite of everything he seems to be losing what language he had. The good thing is that he isn't aggressive and he seems to be reasonably happy. Do you have any help? Pat K

[Guest guest]

I am so sorry. I understand. Karac is 14. I am his grandmother. I had an ABA program for him and he was making great progress until he had a tetanus shot when he was 10; he has regressed since. I didn't know at the time that thimersol was in the tetanus shot or I would have never let him have it. I don't know what can be done.

I pick up Karac every day from school and I have a 22 year old young man to help me every day. We try to keep him interacting. He rides bikes with him; they go down to a neighbor boys to shoot basketballs; he rides a scooter to the park. I take him to gymnastics on Tuesdays and a free horse therapy place on Wednesdays. I do some printing, keyboarding, reading, and coloring with him to just force him to stay engaged. It is not easy and inspite of everything he seems to be losing what language he had. The good thing is that he isn't aggressive and he seems to be reasonably happy. Do you have any help? Pat K

[Guest guest]

Just wondering if you have taken him to a ped.neurologist..I'd be concerned that

with each " movement " he makes he needs prompting .Possibly some neurological

issue going on..movement disorder..I don't know but the constant need for

" prompting " is a major concern especial since it didn't exist before.I've heard

of prompting for certain things but not every single body movement.Has he ever

had a CT scan or MRI?

Stacey

From: reverseautism <reverseautism@...>

Date: 2006/10/01 Sun PM 07:13:21 CDT

autism

Subject: Losing my son..AGAIN!!

My son is 15, diagnosed at age 22 months. has not spoken since he

got a tetanus shot at age 3. My dilemma is this: I feel as though I

am losing my son again, just like I did 13 years ago. He was near

normal at age 10, except for his inability io speak. He has become so

very severely prompt dependent in the last couple of years, that I

would call it his main disability at this time. He has lost 40 pounds

in the last 2 years because he waits for prompting for every single

movement he must make, from stabbing his food, lifting the fork to

mouth, placing fork in mouth, removing fork, chewing food, continue

chewing food, swallow, etc. He does the same thing with getting

dressed...step by step. He no longer has any interests, or

personality. He is STUCK on this prompt dependent-ness and OCD. I am

becoming severley depressed and also bitter. I used to enjoy spending

time with my son, now it seems more like pure hell. HELP!

[Guest guest]

Just wondering if you have taken him to a ped.neurologist..I'd be concerned that

with each " movement " he makes he needs prompting .Possibly some neurological

issue going on..movement disorder..I don't know but the constant need for

" prompting " is a major concern especial since it didn't exist before.I've heard

of prompting for certain things but not every single body movement.Has he ever

had a CT scan or MRI?

Stacey

From: reverseautism <reverseautism@...>

Date: 2006/10/01 Sun PM 07:13:21 CDT

autism

Subject: Losing my son..AGAIN!!

My son is 15, diagnosed at age 22 months. has not spoken since he

got a tetanus shot at age 3. My dilemma is this: I feel as though I

am losing my son again, just like I did 13 years ago. He was near

normal at age 10, except for his inability io speak. He has become so

very severely prompt dependent in the last couple of years, that I

would call it his main disability at this time. He has lost 40 pounds

in the last 2 years because he waits for prompting for every single

movement he must make, from stabbing his food, lifting the fork to

mouth, placing fork in mouth, removing fork, chewing food, continue

chewing food, swallow, etc. He does the same thing with getting

dressed...step by step. He no longer has any interests, or

personality. He is STUCK on this prompt dependent-ness and OCD. I am

becoming severley depressed and also bitter. I used to enjoy spending

time with my son, now it seems more like pure hell. HELP!

[Guest guest]

I would take him to a pediatric neurologist as quickly as possible. It sounds like you may have a medical issue going on.

Sara

Losing my son..AGAIN!!

My son is 15, diagnosed at age 22 months. has not spoken since hegot a tetanus shot at age 3. My dilemma is this: I feel as though Iam losing my son again, just like I did 13 years ago. He was nearnormal at age 10, except for his inability io speak. He has become sovery severely prompt dependent in the last couple of years, that Iwould call it his main disability at this time. He has lost 40 poundsin the last 2 years because he waits for prompting for every singlemovement he must make, from stabbing his food, lifting the fork tomouth, placing fork in mouth, removing fork, chewing food, continuechewing food, swallow, etc. He does the same thing with gettingdressed...step by step. He no longer has any interests, orpersonality. He is STUCK on this prompt dependent-ness and OCD. I ambecoming severley depressed and also bitter. I used to enjoy spendingtime with my son, now it seems more like pure hell. HELP!

[Guest guest]

I can sure relate. My son is now 19 and severley self-abusive. It's to the point now that I am considering residential placement for him. I have always said he was going to live at home but it's to the point I am about to fall apart myself. I have a 15 year old son and a 14 year old daughter (bipolar II, unmedicated and 35 weeks pregnant) living at home with me. I was up most of the night trying to keep Andy quiet and calmed so he wouldn't hit. He has given himself boxer's ears and has blackened both of his eyes because of the temporal hitting he does. He even wears a protective helmet and it's not protecting enough. reverseautism <reverseautism@...> wrote: My son is 15, diagnosed at age 22 months. has not spoken since hegot a tetanus shot at age 3. My dilemma is this: I feel as though Iam losing my son again, just like I did 13 years ago. He was nearnormal at age 10, except for his inability io speak. He has become sovery severely prompt dependent in the last couple of years, that Iwould call it his main disability at this time. He has lost 40 poundsin the last 2 years because he waits for prompting for every singlemovement he must make, from stabbing his food, lifting the fork tomouth, placing fork in mouth, removing fork, chewing food, continuechewing food, swallow, etc. He does the same thing with gettingdressed...step by step. He no longer has any interests, orpersonality. He is

STUCK on this prompt dependent-ness and OCD. I ambecoming severley depressed and also bitter. I used to enjoy spendingtime with my son, now it seems more like pure hell. HELP! __________________________________________________

[Guest guest]

Stacey, Thank you for your reply. has had 2 MRIs, at age 22 months and at age 5 Tney both appeared relatively normal. The need for prompts seems to be behaviour in nature, because sometimes he "forgets" to wait and then he will retrace his steps, go back and wait for the prompt, as in getting into the van without a prompt, and then getting a look on his face like, "Ooops, I forgot to wait." and then will get out and wait with one foot in the van, with an expectant look on his face , sometimes even a smile. Lindy

[Guest guest]

, Have you tried Magnesium, 5Htp, St. 's Wort or other calming supplements for your son? Lindy

[Guest guest]

, Have you tried Magnesium, 5Htp, St. 's Wort or other calming supplements for your son? Lindy

[Guest guest]

I learned the hard way about the Tetanus...my son stopped talking at age 3 immediately after a tetanus shot.

[Guest guest]

One more thought. If it were me, I would step back and think about taking care of myself first, so I could better handle my son's issues. Contact your clergyman/ rabbi, or someone who could be of some emotional support to you. As parents of extremely difficult children, it's a necessity not a luxury to seek out help for our kids AND ourselves.

Sara

Losing my son..AGAIN!!

My son is 15, diagnosed at age 22 months. has not spoken since hegot a tetanus shot at age 3. My dilemma is this: I feel as though Iam losing my son again, just like I did 13 years ago. He was nearnormal at age 10, except for his inability io speak. He has become sovery severely prompt dependent in the last couple of years, that Iwould call it his main disability at this time. He has lost 40 poundsin the last 2 years because he waits for prompting for every singlemovement he must make, from stabbing his food, lifting the fork tomouth, placing fork in mouth, removing fork, chewing food, continuechewing food, swallow, etc. He does the same thing with gettingdressed...step by step. He no longer has any interests, orpersonality. He is STUCK on this prompt dependent-ness and OCD. I ambecoming severley depressed and also bitter. I used to enjoy spendingtime with my son, now it seems more like pure hell. HELP!

[Guest guest]

I cannot relate to your feelings but I know what you mean. I do know now going on my son's 9th birthday I can tell you it is pure hell without him. He drown in a retention pond in May of last year. I cannot imagine ever thinking time with him would be so horrible compared to without. I am sorry you are near this point.

Todd

Re: Losing my son..AGAIN!!

I can sure relate. My son is now 19 and severley self-abusive. It's to the point now that I am considering residential placement for him. I have always said he was going to live at home but it's to the point I am about to fall apart myself. I have a 15 year old son and a 14 year old daughter (bipolar II, unmedicated and 35 weeks pregnant) living at home with me. I was up most of the night trying to keep Andy quiet and calmed so he wouldn't hit. He has given himself boxer's ears and has blackened both of his eyes because of the temporal hitting he does. He even wears a protective helmet and it's not protecting enough.

reverseautism <reverseautism > wrote:

My son is 15, diagnosed at age 22 months. has not spoken since hegot a tetanus shot at age 3. My dilemma is this: I feel as though Iam losing my son again, just like I did 13 years ago. He was nearnormal at age 10, except for his inability io speak. He has become sovery severely prompt dependent in the last couple of years, that Iwould call it his main disability at this time. He has lost 40 poundsin the last 2 years because he waits for prompting for every singlemovement he must make, from stabbing his food, lifting the fork tomouth, placing fork in mouth, removing fork, chewing food, continuechewing food, swallow, etc. He does the same thing with gettingdressed...step by step. He no longer has any interests, orpersonality. He is STUCK on this prompt dependent-ness and OCD. I ambecoming severley depressed and also bitter. I used to enjoy spendingtime with my son, now it seems more like pure hell. HELP!

__________________________________________________

[Guest guest]

Hi Lindy,

Is it ok for kids to take St. s Wort? I was thinking of giving it

to my son aged 13 - as the docs wil not prescribe SSRis.

Love,

>

> ,

> Have you tried Magnesium, 5Htp, St. 's Wort or other calming

supplements for your son?

>

Lindy

>

[Guest guest]

I have been giving my kids St. 's Wort for years, since around age 6-8 years. I have not seen any adverse affects. Lindy

[Guest guest]

I have been giving my kids St. 's Wort for years, since around age 6-8 years. I have not seen any adverse affects. Lindy

[Guest guest]

Where do you get it and what form does it come in? Can it be crushed? I'm taking

my son to texas sunday and he's not flown in years and not for 3hrs,so I'm

wondering if something non-prescription would be good for him.

Stacey

From: Lindy <reverseautism@...>

Date: 2006/10/09 Mon PM 02:57:54 CDT

autism

Subject: Re: Losing my son..AGAIN!!

I have been giving my kids St. 's Wort for years, since around age 6-8

years. I have not seen any adverse affects.

                                                     Lindy