Re: Can you believe it?Resperdal.........

[Guest guest]

Pat, thank you so much for your lovely reply. I am so glad things have improved for you. I am due to see docs again tomorrow to see whether they have changed their minds about SSRis. I do not know much about Xanax but will certainly research it later on this evening. If only the aggression and paranoia were not there it would be so much easier. What troubles me is that I am unable to teach Sonny at all. He is so paranoid that he fires questions at me if I so much as try to advise him about something. So we are stuck in a time warp until something is done.

He has Melatonin (6mg) at night which helps him sleep. He is also sleeping better since the increase of Risperidone - but I am just very uncomfortable about this drug.

Love and best wishes,

Re: Re: Can you believe it?Resperdal.........

, we had Karac on Resperdal and he responded to it about like your son. He developed tardis dyskenisia and we took him off of it. We went through months of hell too. I am the grandmother and I had to keep him during that time because it wasn't safe for him to be at home with his two younger siblings. Fortunately he got over the TD; his mother just decided one night to give him one of her Zanax tablets and I think that stopped the TD and the aggression. Karac is 14 and is 5'8 and weighs 150 lbs. He has been on Zanax now for over a year and it has been a Godsend. He takes .1mg. Clonidine at night and a half of a .25 mg. Zanax. Karac has had some OCD issues too, but they seem to come and go. Right now things are good. I don't know if any of this is of any help to you, but I do know what you are going through, and I have scars on my arms to prove it. LOL, Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Pat, thank you so much for your lovely reply. I am so glad things have improved for you. I am due to see docs again tomorrow to see whether they have changed their minds about SSRis. I do not know much about Xanax but will certainly research it later on this evening. If only the aggression and paranoia were not there it would be so much easier. What troubles me is that I am unable to teach Sonny at all. He is so paranoid that he fires questions at me if I so much as try to advise him about something. So we are stuck in a time warp until something is done.

He has Melatonin (6mg) at night which helps him sleep. He is also sleeping better since the increase of Risperidone - but I am just very uncomfortable about this drug.

Love and best wishes,

Re: Re: Can you believe it?Resperdal.........

, we had Karac on Resperdal and he responded to it about like your son. He developed tardis dyskenisia and we took him off of it. We went through months of hell too. I am the grandmother and I had to keep him during that time because it wasn't safe for him to be at home with his two younger siblings. Fortunately he got over the TD; his mother just decided one night to give him one of her Zanax tablets and I think that stopped the TD and the aggression. Karac is 14 and is 5'8 and weighs 150 lbs. He has been on Zanax now for over a year and it has been a Godsend. He takes .1mg. Clonidine at night and a half of a .25 mg. Zanax. Karac has had some OCD issues too, but they seem to come and go. Right now things are good. I don't know if any of this is of any help to you, but I do know what you are going through, and I have scars on my arms to prove it. LOL, Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Kathy, Karac has been on .1 Clonidine at night and half of .25 Zanax, and he is doing the best he has ever done. Karac has been on this for over a year and it has been awesome. Today I took him to the fair; we were there for about four hours. He was calm and happy. I don't think anyone would have even known that he was autistic. Of course I took a snack bag full of his favorite things: apple, strawberries, grapes, water, and a cinnamon raisin bagel. I knew the only thing he would want to eat at the fair would be a hot dog and some cotton candy. Needless to say, he isn't on a diet. smile . Pat K

[Guest guest]

Kathy, Karac has been on .1 Clonidine at night and half of .25 Zanax, and he is doing the best he has ever done. Karac has been on this for over a year and it has been awesome. Today I took him to the fair; we were there for about four hours. He was calm and happy. I don't think anyone would have even known that he was autistic. Of course I took a snack bag full of his favorite things: apple, strawberries, grapes, water, and a cinnamon raisin bagel. I knew the only thing he would want to eat at the fair would be a hot dog and some cotton candy. Needless to say, he isn't on a diet. smile . Pat K

[Guest guest]

I know how it can be with blood draws,my son (10yrs) been doing so since he was

4(due to being on seizure meds)We learned to deal with certain tech's that were

good(patient,understanding)and use them regularly.We also made sure he ate/drank

well before going and we also used " warmers " they're these little packs that

labs usually have for infants/toddlers ,you can pop the clear plastic pack and

it warms up..you apply it to their arm/hand wherever theres a good vein and it

helps the vein to be easier to get.I'd also sing to my son to help distract him

from things.

HTH,

Stacey

From: Kat <beedo4me@...>

Date: 2006/10/07 Sat PM 09:45:22 CDT

autism

Subject: Re: Can you believe it?Resperdal.........

Timmy's been on it for about a year now. He hasn't had a problem with

weight gain and it's really helped with his agressive behavior. His doc

wrote him a script last week to get lipid panel, insulin level and

fasting glucose tests run. They have to run these regularly because

Risperdal has been known to cause Diabetes. Interesting that that " side

effect " wasn't mentioned in the article.

I'm dreading him going through this blood test. His last one was so

horrible for him.

[Guest guest]

I know how it can be with blood draws,my son (10yrs) been doing so since he was

4(due to being on seizure meds)We learned to deal with certain tech's that were

good(patient,understanding)and use them regularly.We also made sure he ate/drank

well before going and we also used " warmers " they're these little packs that

labs usually have for infants/toddlers ,you can pop the clear plastic pack and

it warms up..you apply it to their arm/hand wherever theres a good vein and it

helps the vein to be easier to get.I'd also sing to my son to help distract him

from things.

HTH,

Stacey

From: Kat <beedo4me@...>

Date: 2006/10/07 Sat PM 09:45:22 CDT

autism

Subject: Re: Can you believe it?Resperdal.........

Timmy's been on it for about a year now. He hasn't had a problem with

weight gain and it's really helped with his agressive behavior. His doc

wrote him a script last week to get lipid panel, insulin level and

fasting glucose tests run. They have to run these regularly because

Risperdal has been known to cause Diabetes. Interesting that that " side

effect " wasn't mentioned in the article.

I'm dreading him going through this blood test. His last one was so

horrible for him.

[Guest guest]

Lois,

I wish I knew the answer to that! But it seems to be to be about control and therefore predicting everything that might happen, therefore lessening any possible anxiety. Sometimes, I have to be honest, it feels like utter tyrannism. My son will ask a question up to 80 times and will repeat the question until he gets the answer he expects to hear.

Hope things get a little better for you.

Love,

x

Re: Can you believe it?Resperdal.........

Hi, my son has been on Risperdal (Risperidone in U.K.) since he was eight, on and off. Admittedly it helped as my son has very unpredictable mood swings and can be violent, especially towards me. However, I was never happy with him taking Risperdal and took him off of it (under medical supervision about a year ago). There followed probably the worst six months of my life as my son is almost 14 and a strong boy. When I thought he was violent before I had no idea of how bad it could get. We tried Ritalin for a while which just kept him awake at night and stopped him from eating. Finally, he went back on the Risperdal and has calmed a great eal although we recently had to increase the dose as docs felt 1mg a day was no longer holding him. The docs have suggested another anti-psychotic because of the possible side effects of long term use of Risperdal but I am at a complete loss. I think Sertraline or another SSRi would help him, coupled with the Risperdal for a while (and then perhaps I could try withdrawing the Risperdal gradually) because I read this was very good for obsessional behaviour and most of my sons tantrums are due to his OCD which completely dominates our lives. Has anyone else tried this? I am getting a second opinion because current docs will not even try it in case it makes his violence worse but I feel that although Risperdal has helped with the severity of meltdowns, it by no means stops them and therefore Sonny has no quality of life as he is ruled by his obsessions.Someone help! Opinions and advice very much needed.Thanks, >> > > > http://news./s/nm/20061006/hl_nm/jnj_risperdal_dc_3> > Lois Noland 240-420-3692> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

__________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Lois,

I wish I knew the answer to that! But it seems to be to be about control and therefore predicting everything that might happen, therefore lessening any possible anxiety. Sometimes, I have to be honest, it feels like utter tyrannism. My son will ask a question up to 80 times and will repeat the question until he gets the answer he expects to hear.

Hope things get a little better for you.

Love,

x

Re: Can you believe it?Resperdal.........

Hi, my son has been on Risperdal (Risperidone in U.K.) since he was eight, on and off. Admittedly it helped as my son has very unpredictable mood swings and can be violent, especially towards me. However, I was never happy with him taking Risperdal and took him off of it (under medical supervision about a year ago). There followed probably the worst six months of my life as my son is almost 14 and a strong boy. When I thought he was violent before I had no idea of how bad it could get. We tried Ritalin for a while which just kept him awake at night and stopped him from eating. Finally, he went back on the Risperdal and has calmed a great eal although we recently had to increase the dose as docs felt 1mg a day was no longer holding him. The docs have suggested another anti-psychotic because of the possible side effects of long term use of Risperdal but I am at a complete loss. I think Sertraline or another SSRi would help him, coupled with the Risperdal for a while (and then perhaps I could try withdrawing the Risperdal gradually) because I read this was very good for obsessional behaviour and most of my sons tantrums are due to his OCD which completely dominates our lives. Has anyone else tried this? I am getting a second opinion because current docs will not even try it in case it makes his violence worse but I feel that although Risperdal has helped with the severity of meltdowns, it by no means stops them and therefore Sonny has no quality of life as he is ruled by his obsessions.Someone help! Opinions and advice very much needed.Thanks, >> > > > http://news./s/nm/20061006/hl_nm/jnj_risperdal_dc_3> > Lois Noland 240-420-3692> Always in search for the "cure"> > > > > Lois Noland> 240-420-3692> I don't give in> I don't give up> And I don't take no for an answer> Always looking for the "Cure"> > > > > > I don't give in> I don't give up> And I don't take NO for an answer.> > If God Brings you to it,> He will Bring you though it.>

__________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Both of my guys are on clonidine (for different reasons. My older guy

who has Asperger's takes Abilify as well, and it has helped his

explosivity IMMENSELY. He has tried ADHD meds but they make him manic.

My younger one who is agressive is just on clonidine. We are using

intensive behavioral Therapy for him and he goes to a private school for

kids with Autism.

They both take melatonin.

Oh my youngest (PDD) is allergic to red dye, it makes him off the wall

hyper and out of control.

Jen in MD

pkuenstler@... wrote:

> Kathy, Karac has been on .1 Clonidine at night and half of .25 Zanax,

> and he is doing the best he has ever done. Karac has been on this for

> over a year and it has been awesome. Today I took him to the fair; we

> were there for about four hours. He was calm and happy. I don't think

> anyone would have even known that he was autistic. Of course I took a

> snack bag full of his favorite things: apple, strawberries, grapes,

> water, and a cinnamon raisin bagel. I knew the only thing he would

> want to eat at the fair would be a hot dog and some cotton candy.

> Needless to say, he isn't on a diet. smile . Pat K

>

> __

[Guest guest]

We've been seeing DAN doctors the past three years, but will go to Cleveland Clinic

in January to see Dr. Natowich (neurologist, metabolic specialist dealing with autism).

I want to see things from a new perspective since the DAN protocols have not helped

her much. I would hope to get her off Zyprexa in the future and maybe try something

for anxiety and sleep like Zanax and maybe Clonidine (she used that in the past but it

quit working all night). So happy for you that your child is doing better and you have

found something that finally works.

Blessings,

Kathy H.

Re: Re: Can you believe it?Resperdal.........

Kathy, Karac has been on .1 Clonidine at night and half of .25 Zanax, and he is doing the best he has ever done. Karac has been on this for over a year and it has been awesome. Today I took him to the fair; we were there for about four hours. He was calm and happy. I don't think anyone would have even known that he was autistic. Of course I took a snack bag full of his favorite things: apple, strawberries, grapes, water, and a cinnamon raisin bagel. I knew the only thing he would want to eat at the fair would be a hot dog and some cotton candy. Needless to say, he isn't on a diet. smile . Pat K

[Guest guest]

, Xanax (Alprazolam) is an antianxiety drug. It is used to treat anxiety disorder, panic disorder, OCD, PTSD, and any other disorders with priminent anxiety or agitation. I have come to the conclusion that Karac's aggression and OCD was because of anxiety. The tricky thing with Karac is having the right amount of the drug. If his mother gives him too much it has an opposite affect. Blessings, Pat K

[Guest guest]

Well, it works for now, and I am so thankful. It sort of reminds me of labor pains; I enjoy the rest inbetween. smile. Pat K

[Guest guest]

Pat, so glad you found something that works for you.

Thanks for all your help and advice. Sonny now been prescribed

Sertraline. I hope it helps him become a little more relaxed so that

he can access all the things that young people take for granted.

Hugs, x

>

> , Xanax (Alprazolam) is an antianxiety drug. It is used to

treat

> anxiety disorder, panic disorder, OCD, PTSD, and any other

disorders with priminent

> anxiety or agitation. I have come to the conclusion that Karac's

aggression

> and OCD was because of anxiety. The tricky thing with Karac is

having the right

> amount of the drug. If his mother gives him too much it has an

opposite

> affect. Blessings, Pat K

>

[Guest guest]

Let me know how the Zoloft works for you. It's an antidepressant, very much like Prozac, it increases Serotonin. Blessings, Pat K

[Guest guest]

Hi Pat - yes I will let you know. He had his first dose yesterday morning and was violently sick last night. Don't know if there is any connection! Possibly not as we went to see my sister for her birthday and he ate loads of chocolate cake. I will see how he is over the next few days. Leaflet says one common side effect is sickness!

Hugs,

cc

Re: Re: Can you believe it?Resperdal.........

Let me know how the Zoloft works for you. It's an antidepressant, very much like Prozac, it increases Serotonin. Blessings, Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Hi Pat - yes I will let you know. He had his first dose yesterday morning and was violently sick last night. Don't know if there is any connection! Possibly not as we went to see my sister for her birthday and he ate loads of chocolate cake. I will see how he is over the next few days. Leaflet says one common side effect is sickness!

Hugs,

cc

Re: Re: Can you believe it?Resperdal.........

Let me know how the Zoloft works for you. It's an antidepressant, very much like Prozac, it increases Serotonin. Blessings, Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Well, loads of chocolate cake would make me sick. How long does the doctor say that it takes for Zoloft to have an affect? Pat K

[Guest guest]

Hi Pat, well yes he did have rather a lot but because we were out and not at home I daren't tell him to stop eating it or all hell could break loose. At home it isn't so bad because I feel I can control the situation a little more. This is why things are so difficult - I can hardly say anything to him. So in some situations when I have to say something because it involves his safety (i.e. being careful of roads, etc) things can be very hard. This is part of what I am hoping the Sertraline will help. Docs say it will take 3-4 weeks to get into his system, although some side effects may show before then.

Love,

Re: Re: Can you believe it?Resperdal.........

Well, loads of chocolate cake would make me sick. How long does the doctor say that it takes for Zoloft to have an affect? Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Hi Pat, well yes he did have rather a lot but because we were out and not at home I daren't tell him to stop eating it or all hell could break loose. At home it isn't so bad because I feel I can control the situation a little more. This is why things are so difficult - I can hardly say anything to him. So in some situations when I have to say something because it involves his safety (i.e. being careful of roads, etc) things can be very hard. This is part of what I am hoping the Sertraline will help. Docs say it will take 3-4 weeks to get into his system, although some side effects may show before then.

Love,

Re: Re: Can you believe it?Resperdal.........

Well, loads of chocolate cake would make me sick. How long does the doctor say that it takes for Zoloft to have an affect? Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

Hi Pat, well yes he did have rather a lot but because we were out and not at home I daren't tell him to stop eating it or all hell could break loose. At home it isn't so bad because I feel I can control the situation a little more. This is why things are so difficult - I can hardly say anything to him. So in some situations when I have to say something because it involves his safety (i.e. being careful of roads, etc) things can be very hard. This is part of what I am hoping the Sertraline will help. Docs say it will take 3-4 weeks to get into his system, although some side effects may show before then.

Love,

Re: Re: Can you believe it?Resperdal.........

Well, loads of chocolate cake would make me sick. How long does the doctor say that it takes for Zoloft to have an affect? Pat K __________ NOD32 1.1454 (20060321) Information __________This message was checked by NOD32 antivirus system.http://www.nod32.com

[Guest guest]

, I know what you mean about telling them "no". Sometimes it isn't worth risking the meltdown. So it is going to take awhile before you have any results. Let me know if it helps. Love and blessings, Pat K

[Guest guest]

, I know what you mean about telling them "no". Sometimes it isn't worth risking the meltdown. So it is going to take awhile before you have any results. Let me know if it helps. Love and blessings, Pat K

[Guest guest]

, I know what you mean about telling them "no". Sometimes it isn't worth risking the meltdown. So it is going to take awhile before you have any results. Let me know if it helps. Love and blessings, Pat K