Re: Hello, I am new member of group

[Guest guest]

Wow what a list! We can definately share info like I'm sure some others can on

this list with us! And yeah,my son also takes Clonidine to go to bed.It's helped

before with his anxiety. As for the Buspar,I would say it didn't take long(a day

or two) to see effects.It says to give it a few weeks for full effect.I noticed

no side effects from it either so that was a good difference from everything

else.

And yes,outside of the groups like this one ..I'm seeking out local parent

support groups..Its time.

Stacey

From: GEM5860@...

Date: Wed Jul 05 20:14:58 CDT 2006

autism

Subject: Re: Hello, I am new member of group

,  has been on Clonidine, Risperdal, Seroquil, Zyprexa, Ativan,

Naltrexone, Prozac,Valium, Depakene, Trileptal, Abilify and many others I don't

remember. Risperdal can aggravate seizures in those with a history of it, so it

is a good thing your son is not on that still. The Zoloft which is an

antidepressant seems to help the most for him. Prozac helped him too but gave

him terrible diarrhea. Yes, a lot of these drugs as similar to your son's

case, caused constipation which made 's behaviors worsen. Nobody dose

understand unless you go thru it day to day. I hope you have the time and energy

to find some local support groups in your area to meet folks with the same

issues. Please feel free to e mail me with advice or needed support. Also, I was

thinking of getting Matt started on Buspar. Any advice on this medicine in

relation to how it helps or does not help your son. And also there is no reason

why Valium can not be prescribed for your son. It is in the same category as

Klonopin being an anti-anxiety medicine.  Regards, Barry  

[Guest guest]

I agree ,

I can see that in my son.When he's agitated he has such an intense " need " to

pull over something heavy(my nightstand,his dresser,tv's)After he's done being

destructive ..he's fine..like he feels better.There's no way to disrupt or

redirect him to another form of " releasing " his frustration/anger unfortunately

at this time,but I hope in due time that it will.The reference to the chemicalls

being released in the brain,that's exactly what I was trying to communicate to

his psychologist,there's something about it that gives him relief(endorphines or

somthing?)

Stacey

From: Bill Nason <nasonbill@...>

Date: Wed Jul 05 21:37:11 CDT 2006

autism

Subject: Re: Hello, I am new member of group

Most agitated behavior (self abuse, hitting, kicking, throwing

things, head banging, etc.) provides very strong proprioceptive

stimulation (resistance to joints and muscles). This tends to

release stress chemicals from the nervous system, helping it rebound

and organize. For many children, once the stress chemicals

accumulate to the point of melt down, they seek out behavior that

will help release the stress chemicals. It is very important that

children on the spectrum are given frequent up and moving, push/pull,

lift/carry, any gross motor activity, throughout the day.

This helps to release stress chemicals before they accumulated to

boiling point.

It is also very important to observe what communicative function the

behavior serves. What is the child trying to communicate. Once you

understand that, than we need to provide an alternative way to

communicate. However, that is easier said than done.

Good Luck,

Bill

>

> Barry,

> My son also gets self injurous once he's really agitated and also

has " mysterious " triggers for his behavior which is so

frustrating.I'm sure you,like me,try to avoid those triggers but when

you don't even know what some of them are it's just impossible,my son

being limited verbally just compounds the situation too. You said

your son swallows air,I was just curious..does he make

a " gulping " sound when he does it?

>

> My son had been diagnosed with Gastric Reflux and he used to make

this gulping sound..like swallowing air .Our kids tend to have

very " atypical " sypmtoms when something is ary medically/physically

and that just adds to our frustration as parents trying to figure

what or where the pain or discomfort is coming from and why.The

pressure vest sounds like a good idea ..I hope that works for him.

>

> Stacey

>

>

> From: GEM5860@...

> Date: Mon Jul 03 21:10:56 CDT 2006

> autism

> Subject: Re: Hello, I am new member of group

>

>

> Yes , 's behaviors do worsen when he gets upset or

agitated which almost always leads to him hurting himself in some

way. But what the cause of the agitation is can sometimes be a

mystery. Lately, I just think it is something physical like gas or

cramping pains in his belly. He does swallow air too and started this

odd behavior a couple of years ago which of course gives him more

bloating in his belly. seems to require deep pressure as

well. We just got a pressure vest today that I ordered so I will see

if that helps with 's need for deep pressure. Regards, Barry

>

[Guest guest]

Janet, Karac has been on .25 Zanax for over a year and it has been a wonderful mood stabilizer. It is trial and error. I think we have tried everything. The worst for us was Geodon and Risperdal. Oh, yes, and Ritalin! Pat K

[Guest guest]

Thanks, Barry, I'll look into it. Pat K

[Guest guest]

Stacey: Email me privately Ehrlichm@... Thanks. .

Re: Hello, I am new member of group

My 12 year old has had sudden dramatic increase in SIB - hand-biting,

hitting his head, leg and chest. In the past most of his SIB was related to

stomachahces and constipation. Now, it appears to be related to frustration,

not pain. He is off school for a few weeks and is not tolerant of any

demands.His hands are a mess and I've decided I need to get this under

control.As well, last night I gave him melatonin for the first time and he

got a headache. Has anyone had this problem? I could actually see his

temples were red and his ears were red. He often gets hot ears when he has

pain.Also, I am curious as to success with medications. I tried respiridol

and it just made him fat. I still have him on it at night but it does

nothing to reduce aggression and SIB. Janet Re: Hello, I am

new member of group

Hi and thank you for the kind welcome.   We live in South Florida.

Our son sounds quite a lot like your son with self injury

behaviors, reflux and vomiting and being destructive to property in our

home. is now on Zoloft and Klonopin for behaviors and Zantac for

his stomach problems. He also is prescribed Atarax syrup which is an

antihistamine that helps calm him down during his rampages and tantrums

which he seems to have on a daily basis.   Regards, Barry

[Guest guest]

Pat,

If you don't mind me asking,what behavior/mood issues did Karac have? Does Zanax

help with aggression? We too have tried Risperdal(weight gain)never did ritalin

but did adderal.

Stacey

From: pkuenstler@...

Date: Thu Jul 06 08:12:33 CDT 2006

autism

Subject: Re: Hello, I am new member of group

Janet, Karac has been on .25 Zanax for over a year and it has been a wonderful

mood stabilizer.  It is trial and error.  I think we have tried everything.  The

worst for us was Geodon and Risperdal. Oh, yes, and Ritalin!  Pat K

[Guest guest]

Stacey,

I developed a four page document that explains the meltdown process

(build up of stress chemicals), as well as identifies the different

areas of stressors (sensory, cognitive, social, emotional,

communicative,etc.)that these child experience every day. It is four

diagrams that summarize the information that I provide in a

presentation about stress and autism. Although it is not meant to be

a stand alone document, many parents have found it useful to give

teachers and relatives a document that provides awareness of how the

child experiences the world. Unfortunately I don't know how to

attach a document to this post. However, if you are interested in

the document, email me and I will attach the document to the email

and send it back.

Bill

nasonbill@...

Bill

> >

> > Barry,

> > My son also gets self injurous once he's really agitated and also

> has " mysterious " triggers for his behavior which is so

> frustrating.I'm sure you,like me,try to avoid those triggers but

when

> you don't even know what some of them are it's just impossible,my

son

> being limited verbally just compounds the situation too. You said

> your son swallows air,I was just curious..does he make

> a " gulping " sound when he does it?

> >

> > My son had been diagnosed with Gastric Reflux and he used to

make

> this gulping sound..like swallowing air .Our kids tend to have

> very " atypical " sypmtoms when something is ary medically/physically

> and that just adds to our frustration as parents trying to figure

> what or where the pain or discomfort is coming from and why.The

> pressure vest sounds like a good idea ..I hope that works for him.

> >

> > Stacey

> >

> >

> > From: GEM5860@

> > Date: Mon Jul 03 21:10:56 CDT 2006

> > autism

> > Subject: Re: Hello, I am new member of group

> >

> >

> > Yes , 's behaviors do worsen when he gets upset or

> agitated which almost always leads to him hurting himself in some

> way. But what the cause of the agitation is can sometimes be a

> mystery. Lately, I just think it is something physical like gas or

> cramping pains in his belly. He does swallow air too and started

this

> odd behavior a couple of years ago which of course gives him more

> bloating in his belly. seems to require deep pressure as

> well. We just got a pressure vest today that I ordered so I will

see

> if that helps with 's need for deep pressure. Regards, Barry

> >

>

[Guest guest]

I agree with you. After my son's outbursts, he usually cries.

Donna

Re: Hello, I am new member of group

>

>

> Yes , 's behaviors do worsen when he gets upset or

agitated which almost always leads to him hurting himself in some

way. But what the cause of the agitation is can sometimes be a

mystery. Lately, I just think it is something physical like gas or

cramping pains in his belly. He does swallow air too and started this

odd behavior a couple of years ago which of course gives him more

bloating in his belly. seems to require deep pressure as

well. We just got a pressure vest today that I ordered so I will see

if that helps with 's need for deep pressure. Regards, Barry

>

[Guest guest]

, what does the Buspar do? Pat K

[Guest guest]

The Zanax almost completely stopped the aggression, and doesn't seem to have any side affects. It seems to make him happy and compliant; also with Clonidine he sleeps all night. He has been on .25 at night for over a year. The ped. psy. prescribed it for 3 times a day, but so far we haven't had to increase it to that. I think the less meds the better. I remember that someone else on the list had good luck with it for a while and then it stopped working for them; so I'm aware that it may not be a permanent answer. Pat K

[Guest guest]

Wow ,that Zanax is really something! that's great there were no side effects

either for him,thats always always a concern.And yeah,I agree..less is better

especially if they're doing well on it.It's something how meds will work for our

kids for a period of time and then it's like they build up a resistance to it

and it stops working for them.

Stacey

From: pkuenstler@...

Date: Thu Jul 06 23:14:27 CDT 2006

autism

Subject: Re: Hello, I am new member of group

The Zanax almost completely stopped the aggression, and doesn't seem to have any

side affects. It seems to make him happy and compliant; also with Clonidine he

sleeps all night. He has been on .25 at night for over a year.  The ped. psy.

prescribed it for 3 times a day, but so far we haven't had to increase it to

that.  I think the less meds the better.  I remember that someone else on the

list had good luck with it for a while and then it stopped working for them; so

I'm aware that it may not be a permanent answer. Pat K

[Guest guest]

It is an anti-anxiety med.here's a link if you or anyone else wants to check it

out.He's not had any side effects on this either..

http://www.medicinenet.com/buspirone/article.htm

Stacey

From: pkuenstler@...

Date: Thu Jul 06 22:54:23 CDT 2006

autism

Subject: Re: Hello, I am new member of group

, what does the Buspar do?  Pat K

[Guest guest]

Great suggestions ! Thanks for sharing.

Bill

> > >

> > > Barry,

> > > My son also gets self injurous once he's really

> > agitated and also

> > has " mysterious " triggers for his behavior which is

> > so

> > frustrating.I'm sure you,like me,try to avoid those

> > triggers but when

> > you don't even know what some of them are it's just

> > impossible,my son

> > being limited verbally just compounds the situation

> > too. You said

> > your son swallows air,I was just curious..does he

> > make

> > a " gulping " sound when he does it?

> > >

> > > My son had been diagnosed with Gastric Reflux and

> > he used to make

> > this gulping sound..like swallowing air .Our kids

> > tend to have

> > very " atypical " sypmtoms when something is ary

> > medically/physically

> > and that just adds to our frustration as parents

> > trying to figure

> > what or where the pain or discomfort is coming from

> > and why.The

> > pressure vest sounds like a good idea ..I hope that

> > works for him.

> > >

> > > Stacey

> > >

> > >

> > > From: GEM5860@

> > > Date: Mon Jul 03 21:10:56 CDT 2006

> > > autism

> > > Subject: Re: Hello, I am new member

> > of group

> > >

> > >

> > > Yes , 's behaviors do worsen when he

> > gets upset or

> > agitated which almost always leads to him hurting

> > himself in some

> > way. But what the cause of the agitation is can

> > sometimes be a

> > mystery. Lately, I just think it is something

> > physical like gas or

> > cramping pains in his belly. He does swallow air too

> > and started this

> > odd behavior a couple of years ago which of course

> > gives him more

> > bloating in his belly. seems to require deep

> > pressure as

> > well. We just got a pressure vest today that I

> > ordered so I will see

> > if that helps with 's need for deep pressure.

> > Regards, Barry

> > >

> >

> >

[Guest guest]

Yes, I know that Zanax is addictive. Most of the antianxiety meds are, but we have been very careful to start Karac on the lowest dosage, and he has been on it just at night for over a year and so far we haven't had a problem with it. It is certainly important to be aware of all the side effects of any of the drugs that are prescribed for these kids. If Karac builds up a tolerance for it, I'm sure we will have to find something else. Pat K

[Guest guest]

> > >

> > > Barry,

> > > My son also gets self injurous once he's really agitated and also

> > has " mysterious " triggers for his behavior which is so

> > frustrating.I'm sure you,like me,try to avoid those triggers but

> when

> > you don't even know what some of them are it's just impossible,my

> son

> > being limited verbally just compounds the situation too. You said

> > your son swallows air,I was just curious..does he make

> > a " gulping " sound when he does it?

> > >

> > > My son had been diagnosed with Gastric Reflux and he used to

> make

> > this gulping sound..like swallowing air .Our kids tend to have

> > very " atypical " sypmtoms when something is ary medically/physically

> > and that just adds to our frustration as parents trying to figure

> > what or where the pain or discomfort is coming from and why.The

> > pressure vest sounds like a good idea ..I hope that works for him.

> > >

> > > Stacey

> > >

> > >

> > > From: GEM5860@

> > > Date: Mon Jul 03 21:10:56 CDT 2006

> > > autism

> > > Subject: Re: Hello, I am new member of group

> > >

> > >

> > > Yes , 's behaviors do worsen when he gets upset or

> > agitated which almost always leads to him hurting himself in some

> > way. But what the cause of the agitation is can sometimes be a

> > mystery. Lately, I just think it is something physical like gas or

> > cramping pains in his belly. He does swallow air too and started

> this

> > odd behavior a couple of years ago which of course gives him more

> > bloating in his belly. seems to require deep pressure as

> > well. We just got a pressure vest today that I ordered so I will

> see

> > if that helps with 's need for deep pressure. Regards, Barry

> > >

> >

>

[Guest guest]

> > >

> > > Barry,

> > > My son also gets self injurous once he's really agitated and also

> > has " mysterious " triggers for his behavior which is so

> > frustrating.I'm sure you,like me,try to avoid those triggers but

> when

> > you don't even know what some of them are it's just impossible,my

> son

> > being limited verbally just compounds the situation too. You said

> > your son swallows air,I was just curious..does he make

> > a " gulping " sound when he does it?

> > >

> > > My son had been diagnosed with Gastric Reflux and he used to

> make

> > this gulping sound..like swallowing air .Our kids tend to have

> > very " atypical " sypmtoms when something is ary medically/physically

> > and that just adds to our frustration as parents trying to figure

> > what or where the pain or discomfort is coming from and why.The

> > pressure vest sounds like a good idea ..I hope that works for him.

> > >

> > > Stacey

> > >

> > >

> > > From: GEM5860@

> > > Date: Mon Jul 03 21:10:56 CDT 2006

> > > autism

> > > Subject: Re: Hello, I am new member of group

> > >

> > >

> > > Yes , 's behaviors do worsen when he gets upset or

> > agitated which almost always leads to him hurting himself in some

> > way. But what the cause of the agitation is can sometimes be a

> > mystery. Lately, I just think it is something physical like gas or

> > cramping pains in his belly. He does swallow air too and started

> this

> > odd behavior a couple of years ago which of course gives him more

> > bloating in his belly. seems to require deep pressure as

> > well. We just got a pressure vest today that I ordered so I will

> see

> > if that helps with 's need for deep pressure. Regards, Barry

> > >

> >

>

[Guest guest]

I would be interested in the document. Thank you for putting it together.

Re: Hello, I am new member of group

> > >

> > >

> > > Yes , 's behaviors do worsen when he gets upset or

> > agitated which almost always leads to him hurting himself in some

> > way. But what the cause of the agitation is can sometimes be a

> > mystery. Lately, I just think it is something physical like gas or

> > cramping pains in his belly. He does swallow air too and started

> this

> > odd behavior a couple of years ago which of course gives him more

> > bloating in his belly. seems to require deep pressure as

> > well. We just got a pressure vest today that I ordered so I will

> see

> > if that helps with 's need for deep pressure. Regards, Barry

> > >

> >

>

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

I would be interested in the document. Thank you for putting it together.

Re: Hello, I am new member of group

> > >

> > >

> > > Yes , 's behaviors do worsen when he gets upset or

> > agitated which almost always leads to him hurting himself in some

> > way. But what the cause of the agitation is can sometimes be a

> > mystery. Lately, I just think it is something physical like gas or

> > cramping pains in his belly. He does swallow air too and started

> this

> > odd behavior a couple of years ago which of course gives him more

> > bloating in his belly. seems to require deep pressure as

> > well. We just got a pressure vest today that I ordered so I will

> see

> > if that helps with 's need for deep pressure. Regards, Barry

> > >

> >

>

Check out the new AOL. Most comprehensive set of free safety and security tools, free access to millions of high-quality videos from across the web, free AOL Mail and more.

[Guest guest]

I need that documant too!! Somehow I missed Bill's post. I have an 18 year old son with agression too! He never had it before puberity. Bill-Can you send it thru e-mail or need a snail mail address? Thanks!!!! Lois

Re: Hello, I am new member of group> > > > > > > > > Yes , 's behaviors do worsen when he gets upset or > > agitated which almost always leads to him hurting himself in some > > way. But what the cause of the agitation is can sometimes be a > > mystery. Lately, I just think it is something physical like gas or > > cramping pains in his belly. He does swallow air too and started > this > > odd behavior a couple of years ago which of course gives him more > > bloating in his belly. seems to require deep pressure as > > well. We just got a pressure vest today that I ordered so I will > see > > if that helps with 's need for deep pressure. Regards, Barry> > >> >>

[Guest guest]

I need that documant too!! Somehow I missed Bill's post. I have an 18 year old son with agression too! He never had it before puberity. Bill-Can you send it thru e-mail or need a snail mail address? Thanks!!!! Lois

Re: Hello, I am new member of group> > > > > > > > > Yes , 's behaviors do worsen when he gets upset or > > agitated which almost always leads to him hurting himself in some > > way. But what the cause of the agitation is can sometimes be a > > mystery. Lately, I just think it is something physical like gas or > > cramping pains in his belly. He does swallow air too and started > this > > odd behavior a couple of years ago which of course gives him more > > bloating in his belly. seems to require deep pressure as > > well. We just got a pressure vest today that I ordered so I will > see > > if that helps with 's need for deep pressure. Regards, Barry> > >> >>

[Guest guest]

>

> I would be interested in the document. Thank you for putting it

together.

>

>

So would I.

Thank you,

Irma

icanfield@...

[Guest guest]

>

> I would be interested in the document. Thank you for putting it

together.

>

>

So would I.

Thank you,

Irma

icanfield@...