Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Great news, Gail! I bet is a little relieved, too. Hurray, & Jake Gail Kimball <patsmum2000@...> wrote: Went well. We were scheduled for 12:40, but got a call asking if we could come in earlier. Got there at 10:30, by the time we were seen and left, it was 12:40. Hmmmm... Anyway, her xrays look good. And her next surgery date will be....in 2007! If we go by the " every 4-6 months " standard, her surgery should have been next month. However, the last surgery did so well, that her shoulders are symetrical and she is balanced at this point, so there is no point in expanding the VEPTR right now. She is up to 41.1 inches tall (or 104.3 cm up from 101) so she is gaining height - of course I could have told you that since all her long pants are now capri length! So we can get through the holidays without worrying about a surgery and we will see Dr. C in 2007! Gail Crafting Blog: http://itsmineitsallmine.blogspot.com/ ************************************************ Mom to , 11/28/98 - ADHD/ODD/SID and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 & 04/20/06 Put a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor http:\\www.topline-creations.com\gail --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Yes, I am cross posting this - easier to type it once. We got kinda good news and kinda bad news. The kinds good news is that doesn't need an expansion again. So this means it has been a year (in April) since her last expansion. Her " surgery side " (the left) is still a bit higher than the " non-surgery side " so we don't want to make it more out of sync. So that is one reason for not having the expansion done. Another reason for not having it done is the kinda bad news. She is developing some (and I hope I have the terminology correct - I have asked Dr. Crawford's nurse to confirm it for me) structural kyphosis. What this means is that some of her discs (not the vertabrae, she does have some hemivertabrae, but this is different) are not staying " squared " as they should. They are becoming more of a wedged shape where one part is narrowing and the other is enlarging. He assured me that her spine, itself, is in no way compromised, so that is good. As he put it, with , as we work on one issue, another issue pops up. He is going to be talking about her at another symposium in the next couple of weeks. I would love to know just how many she has been brought up at, I can guess at about 8-10. So, I know he is ALWAYS working towards the best treatment plan for her. We will see him again in June. Now, the cool part of the visit. While sitting in the waiting room, there was an older girl - probably 16 or 17, and her mom asked me if had scoliosis - I said yes and explained that had had the VEPTR etc. Her daughter had had fusion surgery at about the same time that had her VEPTR and she said that she remembered reading about in the paper. And that looked great and how did it go etc. Well, another mom, with a girl about 3 or 4 came over and said, " I hate to be nosy, but I heard you talking about the VEPTR, could I ask you some questions? They are talking about that surgery for my daughter and I have no idea what to expect etc. " Of course, right then they called 's name. So while we were waiting in the exam room, I ran out and gave that mom my email address and told her to contact me. Her daughter was so cute and just a bundle of energy - much like . , Dr. Crawford's nurse, saw me and asked " Are you passing out your name again? " So hopefully, I can help them a bit. And there we are. Gail Crafting Blog: http://itsmineitsallmine.blogspot.com/ ************************************************ Mom to , 11/28/98 - ADHD/ODD/SID and , 02/02/02 - Congenital Scoliosis, VATER Association (vertebral and renal anomalies), Torticollis, Klippel Feil Syndrome, Fused Ribs, First VEPTR Recipient at Cincinnati Children's Hospital 3/21/05, VEPTR Expansions: 11/05 & 04/20/06 Put a little 'TLC' into your scrapbook! Independent TLC Scrapbooking Instructor http:\\www.topline-creations.com\gail --------------------------------- Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
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