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Posted

Loved reading that story - HRH is an inspiration to so many, but so

are you!

hooked us up with the wonderful Dr D, who was the only doc

willing at that time to cast Siobhan. He then sent us for a VEPTR

evaluation, and hey presto, I have a little girl who is doing

fabulously with the VEPTR (she just had her first expansion last

week.)

Hugs to Mo from Siobhan xx

Jacki

> > Hi everyone, it's from the land down under. Great

> news!

> > I have successfully brought the early treatment process to

> Australia.

> > Dr Angus Gray, from Sydney, has agreed to accept my donation of

an

> AMIL

> > frame and has spoken to Dr Min Mehta about how to cast children

> > correctly. Dr Mehta is happy to come to Australia next year,

where

> an

> > ETTP will take place in Sydney. I have some major fundraising to

> do.

> > has been cast correctly for the first time. His curve was

> back

> > up to 57 degrees, which for a child with half a heart, is huge.

His

> > curve is now at 39 degrees. s story went Nationwide on

> channel

> > seven, and it has apparantly drawn a huge amount of interest

from

> > parents in Australia wanting to know where to go to get their

> children

> > treated. (So I found out today) There's a lot of work ahead of

me,

> I've

> > campaigned like crazy, confronting the top professors in Oz, and

> they

> > had no where to go! Parent power is so amazing. Thankyou to

> everyone

> > who sent me testimonials, I used them for my information pack.

I'll

> let

> > you all know the outcome of the ETTP! Take care everyone. I'll

try

> and

> > catch up on the posts when I get a spare second!

> >

> >

> >

> > ---------------------------------

> > Access over 1 million songs - Music Unlimited.

> >

> >

Posted

I think I've always had it in me to step up, but hanging out with has

brought it out. It's amazing what you can do with the right information,

someone standing beside you supporting you, and a whole bunch of faith. WE just

all love and Olivia!!! Of course my sweet hubby and great kids are what

keep me going as well.

Hugs to you and Siohban and family. Let us know how the expansions go. Mo

thinks their easy!! A far cry from 2 years ago.

Shellie

jabostock <jabostock@...> wrote:

Loved reading that story - HRH is an inspiration to so many, but so

are you!

hooked us up with the wonderful Dr D, who was the only doc

willing at that time to cast Siobhan. He then sent us for a VEPTR

evaluation, and hey presto, I have a little girl who is doing

fabulously with the VEPTR (she just had her first expansion last

week.)

Hugs to Mo from Siobhan xx

Jacki

> > Hi everyone, it's from the land down under. Great

> news!

> > I have successfully brought the early treatment process to

> Australia.

> > Dr Angus Gray, from Sydney, has agreed to accept my donation of

an

> AMIL

> > frame and has spoken to Dr Min Mehta about how to cast children

> > correctly. Dr Mehta is happy to come to Australia next year,

where

> an

> > ETTP will take place in Sydney. I have some major fundraising to

> do.

> > has been cast correctly for the first time. His curve was

> back

> > up to 57 degrees, which for a child with half a heart, is huge.

His

> > curve is now at 39 degrees. s story went Nationwide on

> channel

> > seven, and it has apparantly drawn a huge amount of interest

from

> > parents in Australia wanting to know where to go to get their

> children

> > treated. (So I found out today) There's a lot of work ahead of

me,

> I've

> > campaigned like crazy, confronting the top professors in Oz, and

> they

> > had no where to go! Parent power is so amazing. Thankyou to

> everyone

> > who sent me testimonials, I used them for my information pack.

I'll

> let

> > you all know the outcome of the ETTP! Take care everyone. I'll

try

> and

> > catch up on the posts when I get a spare second!

> >

> >

> >

> > ---------------------------------

> > Access over 1 million songs - Music Unlimited.

> >

> >

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