Guest guest Posted February 3, 2007 Report Share Posted February 3, 2007 Hi Aekta, Thanks so much.............I think our boys are pretty sweet too. So how is Max's curve now? Do you have any pictures of him posted? How long does he usually go in each cast? We go on the 22nd for 's 4th cast. is in each cast about 10 weeks. Oh by the way...........he was wet again this morning. I went to the store today and got the Poise pads and water proof tape. I am anxious to try them tonight. Take care and I hope you hear from Shriner's soon for Max's next cast. Remind me of where you guys live. Tasha/ babymaxpd <babymaxpd@...> wrote: Hi Tasha, I was looking thru the photos of (you have very sweet boys) and noticed the date of 's 3rd cast. It was the same date Max got his 3rd cast. We're still waiting to here from Shriner's on the next cast change date which will be this month. Just thought that was interesting. Aekta > > > > Hi all and TGIF! > > I need some tips for a wet cast. Just here lately is waking > up with a wet cast. Boy does it stink. Luckily he has a cast > change in just a few weeks. > > I use a pad at night in the front of his diaper and put an outer > diaper on top of the inner diaper. > > Until his new cast any other ideas to help with the wetness at > night. > > We have never had this problem before. > > Thanks for any suggestions. > > Tasha/ > > > > > > Tasha > > Mommy to twin boys- and 21 months > > Fort Worth, Texas > > > > --------------------------------- > > It's here! Your new message! > > Get new email alerts with the free Toolbar. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2007 Report Share Posted February 4, 2007 Hi Tasha, We live 2 hours north of Madison, WI. My home town in Chicago. Max gets his casting doen at Shriners-Chicago. What area you located? We usually go every 8-10 weeks for a cast change, but we still have yet heard when the next cast change is. We get anxious and eagerly wait for their phone calls. Fortunately Dave & I both have jobs that are aware of Max's situation and let us leave at a drop of a hat's notice. We do not have pictures of him posted, yet. But I'll work on that. was wet again this morning? Can I ask what brand diapers you use? We had a hard time initially with a few brands. But with the LUVs Max's diaper is full-nearly exploding every moring, but a dry cast. Give Luvs a try at night-the a guaranteed to not to leak. Or try Huggies over night. I use a different brand during the day. The training pants are a good idea. We haven't tried them, but I think we found our niche! Max's curve is still prgressing in the cast-the disappointing news we found out 3 weeks ago for his 4 week post-op x-ray. His curve in cast #1 was 35, cast #2 18, cast #3 back upto 28, and at 3 weeks ago in the same cast #3 it was between 40 & 50 degrees. I was extremely shocked to say the least. But I know we are doing everything we can to delay/prevent the growing rod surgery since Max is so young. I am just grateful to have found a doctor in the midwest willing to cast him as the other orthopedists wanted growing rod surgery at 12 months of age. As his orthopedist said, without the castings Max's curve could currently be in the 80's. The progression of the curve is a similar pattern we saw when he was in his TLSO brace(his first treatment at 8 months). All the orthopedists from day one has said that Max's curve is rigid and surgery is his only option if a brace didn't work. I am heartbroken about the curve progression, but we are doing everything we can for him and he has been great throughout this challenge. I hope you better luck with the Poise pads tonight-let us know! I may have a pair of brand new plastic pants still in the package my sister sent for Max when he was leaking, we never used them as the nursing pads were working, I can check on the size. I know Babies R Us have the training pants as well. Aekta > > > > > > Hi all and TGIF! > > > I need some tips for a wet cast. Just here lately is > waking > > up with a wet cast. Boy does it stink. Luckily he has a cast > > change in just a few weeks. > > > I use a pad at night in the front of his diaper and put an > outer > > diaper on top of the inner diaper. > > > Until his new cast any other ideas to help with the wetness at > > night. > > > We have never had this problem before. > > > Thanks for any suggestions. > > > Tasha/ > > > > > > > > > Tasha > > > Mommy to twin boys- and 21 months > > > Fort Worth, Texas > > > > > > --------------------------------- > > > It's here! Your new message! > > > Get new email alerts with the free Toolbar. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Aekta, I am sorry to hear about the curve progression. You are doing a great job keeping it down though and buying him time before any surgeries. Keep it up. Also, have you researched the VEPTR as an option over the growing rods. Moriah has fusion in which makes her rigid in points. The Veptr has been doing great for her for two years. Just something to consider. That way you can keep the anchoring away the spine but still have the ability to expand the devices while he grows. shellie babymaxpd <babymaxpd@...> wrote: Hi Tasha, We live 2 hours north of Madison, WI. My home town in Chicago. Max gets his casting doen at Shriners-Chicago. What area you located? We usually go every 8-10 weeks for a cast change, but we still have yet heard when the next cast change is. We get anxious and eagerly wait for their phone calls. Fortunately Dave & I both have jobs that are aware of Max's situation and let us leave at a drop of a hat's notice. We do not have pictures of him posted, yet. But I'll work on that. was wet again this morning? Can I ask what brand diapers you use? We had a hard time initially with a few brands. But with the LUVs Max's diaper is full-nearly exploding every moring, but a dry cast. Give Luvs a try at night-the a guaranteed to not to leak. Or try Huggies over night. I use a different brand during the day. The training pants are a good idea. We haven't tried them, but I think we found our niche! Max's curve is still prgressing in the cast-the disappointing news we found out 3 weeks ago for his 4 week post-op x-ray. His curve in cast #1 was 35, cast #2 18, cast #3 back upto 28, and at 3 weeks ago in the same cast #3 it was between 40 & 50 degrees. I was extremely shocked to say the least. But I know we are doing everything we can to delay/prevent the growing rod surgery since Max is so young. I am just grateful to have found a doctor in the midwest willing to cast him as the other orthopedists wanted growing rod surgery at 12 months of age. As his orthopedist said, without the castings Max's curve could currently be in the 80's. The progression of the curve is a similar pattern we saw when he was in his TLSO brace(his first treatment at 8 months). All the orthopedists from day one has said that Max's curve is rigid and surgery is his only option if a brace didn't work. I am heartbroken about the curve progression, but we are doing everything we can for him and he has been great throughout this challenge. I hope you better luck with the Poise pads tonight-let us know! I may have a pair of brand new plastic pants still in the package my sister sent for Max when he was leaking, we never used them as the nursing pads were working, I can check on the size. I know Babies R Us have the training pants as well. Aekta > > > > > > Hi all and TGIF! > > > I need some tips for a wet cast. Just here lately is > waking > > up with a wet cast. Boy does it stink. Luckily he has a cast > > change in just a few weeks. > > > I use a pad at night in the front of his diaper and put an > outer > > diaper on top of the inner diaper. > > > Until his new cast any other ideas to help with the wetness at > > night. > > > We have never had this problem before. > > > Thanks for any suggestions. > > > Tasha/ > > > > > > > > > Tasha > > > Mommy to twin boys- and 21 months > > > Fort Worth, Texas > > > > > > --------------------------------- > > > It's here! Your new message! > > > Get new email alerts with the free Toolbar. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi Aekta, We live in Fort Worth, Texas. is treated at ish Rite Hospital for Children in Dallas. About 30-45 minutes away. You are extremely fortunate to work for nice people that will allow you guys to take off when needed. I stay at home and my husband owns his own business so we are blessed to be able to pick up and go also. DAY 2..........NO WETNESS!!!!!! We actually use Sam's brand diapers. When the boys were much younger I HAD to have the very BEST, but buying for 2 becomes expensive so I learned real fast to try cheaper brands. Unfortunately I didn't figure this out until they were about 15 months old. The past couple of nights I used a bigger size diaper. I was able to pull it up through the tummy hole and had a Poise pad inside his diaper. Just like a women would wear a sanitary pad. WOW is it ever full in the morning. Poor little guy I think he just needed a bigger diaper. Plus the Poise pads are great! I think we found our niche. Thank God! Aekta, you are doing everything possible for little Max. You should feel good about that. God willing his little spine will get better during casting and surgery can wait or never have to be done. You sound like a very strong person so just hang in there Mom. Little Max is very blessed. Take care, Tasha/ babymaxpd <babymaxpd@...> wrote: Hi Tasha, We live 2 hours north of Madison, WI. My home town in Chicago. Max gets his casting doen at Shriners-Chicago. What area you located? We usually go every 8-10 weeks for a cast change, but we still have yet heard when the next cast change is. We get anxious and eagerly wait for their phone calls. Fortunately Dave & I both have jobs that are aware of Max's situation and let us leave at a drop of a hat's notice. We do not have pictures of him posted, yet. But I'll work on that. was wet again this morning? Can I ask what brand diapers you use? We had a hard time initially with a few brands. But with the LUVs Max's diaper is full-nearly exploding every moring, but a dry cast. Give Luvs a try at night-the a guaranteed to not to leak. Or try Huggies over night. I use a different brand during the day. The training pants are a good idea. We haven't tried them, but I think we found our niche! Max's curve is still prgressing in the cast-the disappointing news we found out 3 weeks ago for his 4 week post-op x-ray. His curve in cast #1 was 35, cast #2 18, cast #3 back upto 28, and at 3 weeks ago in the same cast #3 it was between 40 & 50 degrees. I was extremely shocked to say the least. But I know we are doing everything we can to delay/prevent the growing rod surgery since Max is so young. I am just grateful to have found a doctor in the midwest willing to cast him as the other orthopedists wanted growing rod surgery at 12 months of age. As his orthopedist said, without the castings Max's curve could currently be in the 80's. The progression of the curve is a similar pattern we saw when he was in his TLSO brace(his first treatment at 8 months). All the orthopedists from day one has said that Max's curve is rigid and surgery is his only option if a brace didn't work. I am heartbroken about the curve progression, but we are doing everything we can for him and he has been great throughout this challenge. I hope you better luck with the Poise pads tonight-let us know! I may have a pair of brand new plastic pants still in the package my sister sent for Max when he was leaking, we never used them as the nursing pads were working, I can check on the size. I know Babies R Us have the training pants as well. Aekta > > > > > > Hi all and TGIF! > > > I need some tips for a wet cast. Just here lately is > waking > > up with a wet cast. Boy does it stink. Luckily he has a cast > > change in just a few weeks. > > > I use a pad at night in the front of his diaper and put an > outer > > diaper on top of the inner diaper. > > > Until his new cast any other ideas to help with the wetness at > > night. > > > We have never had this problem before. > > > Thanks for any suggestions. > > > Tasha/ > > > > > > > > > Tasha > > > Mommy to twin boys- and 21 months > > > Fort Worth, Texas > > > > > > --------------------------------- > > > It's here! Your new message! > > > Get new email alerts with the free Toolbar. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2007 Report Share Posted February 5, 2007 Hi Aekta, Sorry to jump in. had a similar experience with casting the first two times. His curve would not hold. We were told it was because had a malignant from of scoliosis and had a rigid curve. His first two casts went from 60 to 32 degrees, then jumped to 55 degrees in CAST. His second: 55 to 39, then jumped to 56 degrees in CAST. Aekta, we found Dr Angus Gray, told him we would donate a frame if he agreed to cast using Dr Mehtas method. He did agree, and now s curve is as follows: First cast: 56 to 39, then second cast: 39 to 32. Dr Gray calles s curve a flexible curve. That AMIL frame is amazing and allows for MAXIMUM correction. I just wanted you to know that a different method for has changed his world, and a cast really should hold a curve in it's tracks, not get worse. I've learnt this first hand. Perhaps you could suggest this to your amazing doctor who is casting. Would he like to learn from Dr Mehta? Put it to him and see what he says. It could only benefit your child!!! It has certainly benefited mine! Love Shellie Grant <shelliegrant@...> wrote: Aekta, I am sorry to hear about the curve progression. You are doing a great job keeping it down though and buying him time before any surgeries. Keep it up. Also, have you researched the VEPTR as an option over the growing rods. Moriah has fusion in which makes her rigid in points. The Veptr has been doing great for her for two years. Just something to consider. That way you can keep the anchoring away the spine but still have the ability to expand the devices while he grows. shellie babymaxpd <babymaxpd@...> wrote: Hi Tasha, We live 2 hours north of Madison, WI. My home town in Chicago. Max gets his casting doen at Shriners-Chicago. What area you located? We usually go every 8-10 weeks for a cast change, but we still have yet heard when the next cast change is. We get anxious and eagerly wait for their phone calls. Fortunately Dave & I both have jobs that are aware of Max's situation and let us leave at a drop of a hat's notice. We do not have pictures of him posted, yet. But I'll work on that. was wet again this morning? Can I ask what brand diapers you use? We had a hard time initially with a few brands. But with the LUVs Max's diaper is full-nearly exploding every moring, but a dry cast. Give Luvs a try at night-the a guaranteed to not to leak. Or try Huggies over night. I use a different brand during the day. The training pants are a good idea. We haven't tried them, but I think we found our niche! Max's curve is still prgressing in the cast-the disappointing news we found out 3 weeks ago for his 4 week post-op x-ray. His curve in cast #1 was 35, cast #2 18, cast #3 back upto 28, and at 3 weeks ago in the same cast #3 it was between 40 & 50 degrees. I was extremely shocked to say the least. But I know we are doing everything we can to delay/prevent the growing rod surgery since Max is so young. I am just grateful to have found a doctor in the midwest willing to cast him as the other orthopedists wanted growing rod surgery at 12 months of age. As his orthopedist said, without the castings Max's curve could currently be in the 80's. The progression of the curve is a similar pattern we saw when he was in his TLSO brace(his first treatment at 8 months). All the orthopedists from day one has said that Max's curve is rigid and surgery is his only option if a brace didn't work. I am heartbroken about the curve progression, but we are doing everything we can for him and he has been great throughout this challenge. I hope you better luck with the Poise pads tonight-let us know! I may have a pair of brand new plastic pants still in the package my sister sent for Max when he was leaking, we never used them as the nursing pads were working, I can check on the size. I know Babies R Us have the training pants as well. Aekta > > > > > > Hi all and TGIF! > > > I need some tips for a wet cast. Just here lately is > waking > > up with a wet cast. Boy does it stink. Luckily he has a cast > > change in just a few weeks. > > > I use a pad at night in the front of his diaper and put an > outer > > diaper on top of the inner diaper. > > > Until his new cast any other ideas to help with the wetness at > > night. > > > We have never had this problem before. > > > Thanks for any suggestions. > > > Tasha/ > > > > > > > > > Tasha > > > Mommy to twin boys- and 21 months > > > Fort Worth, Texas > > > > > > --------------------------------- > > > It's here! Your new message! > > > Get new email alerts with the free Toolbar. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2007 Report Share Posted February 6, 2007 Congratulations! 2 days of being dry. I remember that feeling. We love the Sam's brand baby wipes which I have convinced my sister of a 21 month old and 7 week old twins to use instead of brand name. I haven't tried the diapers. We'llh ave to do that next time we're there. I know all we can do for Max which makes a tiny bit easier. We often have to look at the reality that these were the cards AMx was dealt and we as his parents have the job to get him the best healthcare possible. That's the least we can do. I'll keep you posted when we get Max's next cast change date and how everything goes. Aekta > > > > > > > > Hi all and TGIF! > > > > I need some tips for a wet cast. Just here lately is > > waking > > > up with a wet cast. Boy does it stink. Luckily he has a cast > > > change in just a few weeks. > > > > I use a pad at night in the front of his diaper and put an > > outer > > > diaper on top of the inner diaper. > > > > Until his new cast any other ideas to help with the wetness > at > > > night. > > > > We have never had this problem before. > > > > Thanks for any suggestions. > > > > Tasha/ > > > > > > > > > > > > Tasha > > > > Mommy to twin boys- and 21 months > > > > Fort Worth, Texas > > > > > > > > --------------------------------- > > > > It's here! Your new message! > > > > Get new email alerts with the free Toolbar. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2007 Report Share Posted February 7, 2007 Aekta, I am glad you finally got a call. Now you can make your plans as needed. 9 weeks is good. I think the longer they are in the cast the better. Keep us posted. Take care, Tasha/ babymaxpd <babymaxpd@...> wrote: I got a call from Shriner's chicago today. Max's cast change is scheduled for Thursday 2/15/07. They prefer to do the cast change every 8 weeks, but this time will have to be 9 weeks. I'll let you know how things go. Aekta Tasha Mommy to twin boys- and 21 months Fort Worth, Texas --------------------------------- Access over 1 million songs - Music Unlimited. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2007 Report Share Posted February 16, 2007 We hope it goes as smooth as possible, You will be in our thoughts. babymaxpd <babymaxpd@...> wrote: I got a call from Shriner's chicago today. Max's cast change is scheduled for Thursday 2/15/07. They prefer to do the cast change every 8 weeks, but this time will have to be 9 weeks. I'll let you know how things go. Aekta Quote Link to comment Share on other sites More sharing options...
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