Re: RE: Kylie's Having Surgery today

[Guest guest]

Kylie & ,

Just wanted you to know that Olivia and I are thinking about you both, this a.m.

I have informed my mom, brother, E'la-la, etc.., about todays procedure, and

everyone sends their best wishes. I will call you later this afternoon.

Love,

Olivia &

Re: RE: Kylie's Having Surgery Monday

HI ,

Cormac thought it was hilarious that Pants had lost his pants!!!!

We will be at the hospital from the 22nd October until the 28th. In that time

they will make Bridget a new brace and do any necessary adjustments.

We would love to see you both, and anyone else who may be around then.

We will be wating to hear the good news about Kylie's adjustments.

Good luck

Love Bert and Bridget

Lether <nlether@...> wrote:

Hi Bert,

How are you all? We can't wait to see you and Bridget

in October. Do you know when in October?

Tell Cormac lost his pants!! I'll have to take

a picture of Pants and e-mail it to you.

I'll let you know how Kylie does.

Take care,

--- bert lehane <bert_lehane@...> wrote:

> Dear and Kylie,

>

> Good luck and our prayers will be with you on

> MOnday. Bridget and I can't wait to see you both at

> the end of October so we are looking forward to you

> being up and ready to party by then.

>

> I am sure the indomitable Kylie spirit will

> overcome this hurdle too.

>

> Much love

> Bridget and Bert

>

> PS Cormac says don't forget Pants, he will

> cheer you up.

>

> Lether <nlether@...> wrote:

> Hi everyone,

>

> I thought I'd let you all know that Kylie will be

> having surgery on Monday. As most of you know, Kylie

> received the VEPTR in April. She has hit her first

> complication with it, the top part that goes around

> the rib has completely opened up and is not hooked

> to

> the rib anymore. It is bulging so much, Dr. at

> Primary Children's said it wouldn't take long to

> break

> through the skin. We were told that the reason this

> happened was a combination of 2 things. The 1st

> thing

> is that Kylie's kyphosis is in that area and that

> alone puts a lot of tension on the device, 2nd,

> Kylie

> is very bent over due to her soft tissues that need

> to

> be released, this is caused from her muscle

> myopathy.

> This causes gravity to pull and put even more

> tension

> on it. It was more than the device could tolerate

> and

> it gave. Monday, Dr. will reattach that left

> side and do an expansion as well. On October 11th,

> at

> Shriner's, she will have her soft tissues behind

> both

> knees and hips released. This will allow her to

> straighten her legs all the way and stand up

> straight.

> Hopefully this will not happen again, but you never

> know with Kylie. She's always the exception to the

> rule!!

>

> I will let you know how things go!

>

>

>

> __________________________________________________

>