Guest guest Posted March 16, 2006 Report Posted March 16, 2006 I really appreciate this discussion on cast problems and their possible solutions. We are scheduled to go in for Alison’s first cast on March 27th in SLC. (it was either that or June 27th) I’m hoping that since she’s been in a brace for the past month, that she’ll be able to adapt more quickly to the cast. Is there a place that all these cast tips could be posted so that I don’t have to go back through my email when I need them? Can I request that the armpits and ‘hip corners’ be trimmed so that those won’t bother her and she can sit? How long have you had to stay at the hospital with your first cast? Do they ever really keep you 5 days? Thanks & Alison (5/21/05) From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Deshea L. Sent: Thursday, March 16, 2006 8:43 AM infantile scoliosis treatment Subject: Re: Evan & in Erie Today i thought i would jump in and say that lucas has always had issues with his armpits with every cast (and i believe that this is his 7th? -- i've lost track). it's always one side more than the other. i wash them every night with a gentle soap, and lately i've been trying some calendula gel which is something that miss mehta recommended when the casts are taken off to put on any red spots after that first bath. lucas' armpits are red on both sides, but on one, there were some pen tip size blisters which i put the gel on, and they are slowly getting better. lucas never complains about his armpits so i just assume that even though they are red, they don't bother him. oh, one more thing -- with the shirt, i like to pull it up and out and try to protect his armpits more. the shirt always seems to fall down throughout the day. sometimes replacing the petals under the armpits help with the irritation as well. that's my 2 cents! deshea ---- Original message ---- >Date: Thu, 16 Mar 2006 06:39:07 -0800 (PST) >From: <basketsnboyds@...> >Subject: Re: Evan & in Erie Today >infantile scoliosis treatment > > Evan's actually comes down not to a point but almost > and prevents him from sitting. They said they > couldn't trim anymore b/c it would be too thin b/t > that point and the hole that's cut out in the tummy > area. Also, under his chin, the cast comes up so > high that he can't turn his head b/c his little chin > is so fat. That's going to be a big prob. with his > torticollis as well. I know its the best in the > longrun, but sometimes it's so hard day to day, > isn't it? > and Evan > > Claflin <noellesmommy@...> wrote: > > He didn't get it trimmed as well as the first one > - diapering is troublesome because cast is much > lower and tighter on the hips/pelvis than before, > and his poor armpits are rubbed raw. > > ! > This is the SAME issues we are having! I am going > to really be cognizant of these areas when > trimming this time. > > Wow! Jake is so verbal! That is awesome that he > can tell you what hurts, but on the other hand > knowing that would break my heart!!! > > I am going to ask Dr. K if he thinks Ian needs > PT. Seems like he should have figured out sitting > on the floor by now. I dunno....perhaps it is > just too uncomfortable for him. > > > Noelle (12-2-01) > Ian (8-15-04) > > ----- Original Message ----- > From: Viveiros > infantile scoliosis treatment > Sent: Wednesday, March 15, 2006 9:49 PM > Subject: Re: Evan & > in Erie Today > Jake can and does sit on the floor in his cast. > He didn't get it trimmed as well as the first > one - diapering is troublesome because cast is > much lower and tighter on the hips/pelvis than > before, and his poor armpits are rubbed raw. > The diapering I can handle, but I will > definitely make sure the underarms are trimmed > down further. I will say that he can now > verbalize quite a bit, and he lets me know > nearly every night that " tummy hurts " and > " tight " . Breaks my heart.</DIV! > > > > mom to and Jake > > Claflin <noellesmommy@...> > wrote: > > I can't check for pressure sores at all now > that he has the shirt on. Before the shirt, I > always checked when he was laying down. I > could press on his abdomen and be able to get > a peek in there. > > Also, Ian STILL can't sit on the floor with > his cast...this one has actually been harder > for him in terms of sitting and other motor > skills than the first one, but I think it is > because they didn't trim it nearly enough. > > Noelle (12-2-01) > Ian (8-15-04) > > > > Cough and cast > question > I know that ! this has > been asked before but > I was just wondering > your > experience with prior > to casting if your > child had any upper > respiratory infection, > I know that they won't > cast. Evan has a cough > a > few times a day and > that is it, I would > assume that he's ok, > I'm > supposed to call on > Monday if he's running > a temp or sick by then > to > re-schedule. I'm just > praying he stays well > until we get him > casted > and then can avoid > getting sick again all > togther. I was just > wanting > your thoughts and > experiences with any > coughs or slight > congestion and > casting. > Thanks you all. > > > Evan 8/7/05 > > ------------------------------------------------ > > Relax. virus > scanning helps detect > nasty viruses! > > ------------------------------------------------ > > > Bring photos to life! New > PhotoMail makes sharing a > breeze. > > ------------------------------------------------ > > Brings words and photos > together (easily) with > PhotoMail - it's free and > works with . > > ------------------------------------------------ > > > Bring photos to life! New > PhotoMail makes sharing a > breeze. > > ------------------------------------------------ > > > Bring photos to life! New > PhotoMail makes sharing a breeze. > > ------------------------------------------------ > > > Bring photos to life! New PhotoMail > makes sharing a breeze. > > ------------------------------------------------ > > Relax. virus scanning helps > detect nasty viruses! > > ------------------------------------------------ > > > Bring photos to life! New PhotoMail makes > sharing a breeze. > > ------------------------------------------------ > > > Use Photomail to share photos without > annoying attachments. > > ------------------------------------------------ > > Mail > Use Photomail to share photos without annoying > attachments. > > ------------------------------------------------ > > Travel > Find great deals to the top 10 hottest destinations! > > Quote
Guest guest Posted March 16, 2006 Report Posted March 16, 2006 hi andrea, there is a list of diapering tips on the infantile scoliosis website, here: http://www.infantilescoliosis.org/diapering_tips.htm but it doesn't include everything. also, my suggestion would be if you find something in an e-mail post that might be useful, cut and paste it into a word document and save a running list of tips for later reference. that's come in handy for me a number of times instead of trying to search through e-mails or the site directly. are you going to slc or erie? also, are you traveling far to get there? it has been suggested by many, especially with the first cast, to stay overnight the day of the casting at least just in case there is any problem. now that lucas, my husband and i are old hands at this (started casting in july of 2004), we arrive in the afternoon the day prior to the casting, cast the next morning, and leave around 5-6p that same day. we fly from the boston area to erie. it's very stressful no matter what, but we all like to get home. good luck! deshea ---- Original message ---- >Date: Thu, 16 Mar 2006 08:55:05 -0700 >From: " " <urbanmattandrea@...> >Subject: first cast ><infantile scoliosis treatment > > > I really appreciate this discussion on cast problems > and their possible solutions. We are scheduled to > go in for Alison's first cast on March 27th in SLC. > (it was either that or June 27th) I'm hoping that > since she's been in a brace for the past month, that > she'll be able to adapt more quickly to the cast. > Is there a place that all these cast tips could be > posted so that I don't have to go back through my > email when I need them? > > Can I request that the armpits and `hip corners' be > trimmed so that those won't bother her and she can > sit? > > How long have you had to stay at the hospital with > your first cast? Do they ever really keep you 5 > days? > > > > Thanks > > & Alison (5/21/05) > > > > ---------------------------------------------------- > > From: infantile scoliosis treatment > [mailto:infantile scoliosis treatment ] On > Behalf Of Deshea L. > Sent: Thursday, March 16, 2006 8:43 AM > infantile scoliosis treatment > Subject: Re: Evan & in > Erie Today > > > > i thought i would jump in and say that lucas has > always had > issues with his armpits with every cast (and i > believe that > this is his 7th? -- i've lost track). it's always > one side > more than the other. i wash them every night with a > gentle > soap, and lately i've been trying some calendula gel > which is > something that miss mehta recommended when the casts > are taken > off to put on any red spots after that first bath. > lucas' > armpits are red on both sides, but on one, there > were some pen > tip size blisters which i put the gel on, and they > are slowly > getting better. lucas never complains about his > armpits so i > just assume that even though they are red, they > don't bother > him. oh, one more thing -- with the shirt, i like > to pull it > up and out and try to protect his armpits more. the > shirt > always seems to fall down throughout the day. > sometimes > replacing the petals under the armpits help with the > irritation as well. > > that's my 2 cents! > > deshea > > ---- Original message ---- > >Date: Thu, 16 Mar 2006 06:39:07 -0800 (PST) > >From: <basketsnboyds@...> > >Subject: Re: Evan & in > Erie Today > >infantile scoliosis treatment > > > > Evan's actually comes down not to a point but > almost > > and prevents him from sitting. They said they > > couldn't trim anymore b/c it would be too thin > b/t > > that point and the hole that's cut out in the > tummy > > area. Also, under his chin, the cast comes up so > > high that he can't turn his head b/c his little > chin > > is so fat. That's going to be a big prob. with > his > > torticollis as well. I know its the best in the > > longrun, but sometimes it's so hard day to day, > > isn't it? > > and Evan > > > > Claflin <noellesmommy@...> > wrote: > > > > He didn't get it trimmed as well as the first > one > > - diapering is troublesome because cast is > much > > lower and tighter on the hips/pelvis than > before, > > and his poor armpits are rubbed raw. > > > > ! > > This is the SAME issues we are having! I am > going > > to really be cognizant of these areas when > > trimming this time. > > > > Wow! Jake is so verbal! That is awesome that > he > > can tell you what hurts, but on the other hand > > knowing that would break my heart!!! > > > > I am going to ask Dr. K if he thinks Ian needs > > PT. Seems like he should have figured out > sitting > > on the floor by now. I dunno....perhaps it is > > just too uncomfortable for him. > > > > > > Noelle (12-2-01) > > Ian (8-15-04) > > > > > > > > > Cough and cast > > question > > I know that ! this > has > > been asked before > but > > I was just > wondering > > your > > experience with > prior > > to casting if your > > child had any > upper > > respiratory > infection, > > I know that they > won't > > cast. Evan has a > cough > > a > > few times a day > and > > that is it, I > would > > assume that he's > ok, > > I'm > > supposed to call > on > > Monday if he's > running > > a temp or sick by > then > > to > > re-schedule. I'm > just > > praying he stays > well > > until we get him > > casted > > and then can avoid > > getting sick again > all > > togther. I was > just > > wanting > > your thoughts and > > experiences with > any > > coughs or slight > > congestion and > > casting. > > Thanks you all. > > > > > > Evan 8/7/05 > > > > > ------------------------------------------------ > > > > Relax. > virus > > scanning helps detect > > nasty viruses! > > > > > ------------------------------------------------ > > > > > > Bring photos to life! > New > > PhotoMail makes sharing > a > > breeze. > > > > > ------------------------------------------------ > > > > Brings words and photos > > together (easily) with > > PhotoMail - it's free and > > works with . > > > > > ------------------------------------------------ > > > > > > Bring photos to life! New > > PhotoMail makes sharing a > > breeze. > > > > > ------------------------------------------------ > > > > > > Bring photos to life! New > > PhotoMail makes sharing a > breeze. > > > > > ------------------------------------------------ > > > > > > Bring photos to life! New > PhotoMail > > makes sharing a breeze. > > > > > ------------------------------------------------ > > > > Relax. virus scanning > helps > > detect nasty viruses! > > > > > ------------------------------------------------ > > > > > > Bring photos to life! New PhotoMail > makes > > sharing a breeze. > > > > > ------------------------------------------------ > > > > > > Use Photomail to share photos without > > annoying attachments. > > > > > ------------------------------------------------ > > > > > > Use Photomail to share photos without > annoying > > attachments. > > > > > ------------------------------------------------ > > > > Travel > > Find great deals to the top 10 hottest > destinations! > > > > Quote
Guest guest Posted March 16, 2006 Report Posted March 16, 2006 If you haven't read the ISOP web site ( http://www.infantilescoliosis.org/) entirely, now would be a good time before you get your first cast applied. Cast care tips are located at the following link: http://www.infantilescoliosis.org/care.htm . This is really an invaluable source of information and the ISOP board have compiled for us. You can find everything from stories and diapering tips to a glossary of terms and ETTP information. This can really help answer a lot of your questions, especially when used in conjunction with all of the links available on CASTS. Hope this helps you out! Jen <urbanmattandrea@...> wrote: I really appreciate this discussion on cast problems and their possible solutions. We are scheduled to go in for Alison’s first cast on March 27th in SLC. (it was either that or June 27th) I’m hoping that since she’s been in a brace for the past month, that she’ll be able to adapt more quickly to the cast. Is there a place that all these cast tips could be posted so that I don’t have to go back through my email when I need them? Can I request that the armpits and ‘hip corners’ be trimmed so that those won’t bother her and she can sit? How long have you had to stay at the hospital with your first cast? Do they ever really keep you 5 days? Thanks & Alison (5/21/05) From: infantile scoliosis treatment [mailto:infantile scoliosis treatment ] On Behalf Of Deshea L. Sent: Thursday, March 16, 2006 8:43 AMinfantile scoliosis treatment Subject: Re: Evan & in Erie Today i thought i would jump in and say that lucas has always hadissues with his armpits with every cast (and i believe thatthis is his 7th? -- i've lost track). it's always one sidemore than the other. i wash them every night with a gentlesoap, and lately i've been trying some calendula gel which issomething that miss mehta recommended when the casts are takenoff to put on any red spots after that first bath. lucas'armpits are red on both sides, but on one, there were some pentip size blisters which i put the gel on, and they are slowlygetting better. lucas never complains about his armpits so ijust assume that even though they are red, they don't botherhim. oh, one more thing -- with the shirt, i like to pull itup and out and try to protect his armpits more. the shirtalways seems to fall down throughout the day. sometimesreplacing the petals under the armpits help with theirritation as well.that's my 2 cents!deshea---- Original message ---->Date: Thu, 16 Mar 2006 06:39:07 -0800 (PST)>From: <basketsnboyds@...> >Subject: Re: Evan & in Erie Today >infantile scoliosis treatment >> Evan's actually comes down not to a point but almost> and prevents him from sitting. They said they> couldn't trim anymore b/c it would be too thin b/t> that point and the hole that's cut out in the tummy> area. Also, under his chin, the cast comes up so> high that he can't turn his head b/c his little chin> is so fat. That's going to be a big prob. with his> torticollis as well. I know its the best in the> longrun, but sometimes it's so hard day to day,> isn't it?> and Evan>> Claflin <noellesmommy@...> wrote:>> He didn't get it trimmed as well as the first one> - diapering is troublesome because cast is much> lower and tighter on the hips/pelvis than before,> and his poor armpits are rubbed raw.> > !> This is the SAME issues we are having! I am going> to really be cognizant of these areas when> trimming this time.> > Wow! Jake is so verbal! That is awesome that he> can tell you what hurts, but on the other hand> knowing that would break my heart!!! > > I am going to ask Dr. K if he thinks Ian needs> PT. Seems like he should have figured out sitting> on the floor by now. I dunno....perhaps it is> just too uncomfortable for him.> > > Noelle (12-2-01)> Ian (8-15-04)>> > > Cough and cast> question> I know that ! this has> been asked before but> I was just wondering> your> experience with prior> to casting if your> child had any upper> respiratory infection,> I know that they won't> cast. Evan has a cough> a> few times a day and> that is it, I would> assume that he's ok,> I'm> supposed to call on> Monday if he's running> a temp or sick by then> to> re-schedule. I'm just> praying he stays well> until we get him> casted> and then can avoid> getting sick again all> togther. I was just> wanting> your thoughts and> experiences with any> coughs or slight> congestion and> casting.> Thanks you all.>> > Evan 8/7/05>> ------------------------------------------------>> Relax. virus> scanning helps detect> nasty viruses!>> ------------------------------------------------>> > Bring photos to life! New> PhotoMail makes sharing a> breeze.>> ------------------------------------------------>> Brings words and photos> together (easily) with> PhotoMail - it's free and> works with .>> ------------------------------------------------>> > Bring photos to life! New> PhotoMail makes sharing a> breeze.>> ------------------------------------------------>> > Bring photos to life! New> PhotoMail makes sharing a breeze.>> ------------------------------------------------>> > Bring photos to life! New PhotoMail> makes sharing a breeze.>> ------------------------------------------------>> Relax. virus scanning helps> detect nasty viruses!>> ------------------------------------------------>> > Bring photos to life! New PhotoMail makes> sharing a breeze.>> ------------------------------------------------>> > Use Photomail to share photos without> annoying attachments.>> ------------------------------------------------>> > Use Photomail to share photos without annoying> attachments.>> ------------------------------------------------>> Travel> Find great deals to the top 10 hottest destinations!>> Quote
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