RESTLESS LEGS SYNDROME

[Guest guest]

Lynn,

You are not alone. Others say the same thing.

http://www.talkaboutsleep.com/news/rls_vitaminE.htm

http://neuro-www.mgh.harvard.edu/forum_2/TouretteSyndromeF/1.8.0010.16AMRest

lessLegS.html

a

> Hi Betty,

> I have this problem as does my mom. She told me to take vitamin E

> everyday. This works so well. As long as I take the vitamin E I have no

> problem. It has also corrected my mom leg problem. But you do have to take

> it everyday because if you miss a few days it will come back. All I know is

> this works for us.

> Lynn (MeMom)

[Guest guest]

Hi Lynn...I have this, too. The Klonopin I take at bedtime does help.

Love & Hugs...

Tess

[Guest guest]

People with restless legs syndrome (RLS) often feel an intense urge to move

their legs, particularly when sitting still or trying to fall asleep. Unlike

people with a different condition called night-time leg cramps the people

with restless legs syndrome don't experience pain. Instead, they may

describe a strange " creepy crawly " feeling inside their legs. Walking

normally relieves the symptoms, but as soon as people quit moving, the need

to move occurs.

http://www.rls.org/

http://restlesslegs.com/

You¹re not alone Tena. Many members have doctors that don¹t prescribe

adequate pain medications. Some will change doctors and find more

compassionate ones.

a

> Please tell me...what is Restless Leg Syndrome? I can't sleep at night from

> all the pain, and my doctor acts like I'm making it up to get pain meds! I

> can't believe him. My poor husband often sleeps in our guest room, or I sleep

> somewhere else. It's torture. Thanks for the info, and good luck with your

> search. I hope you find the peace you need.

> Tena

[Guest guest]

Tena,

The cause of RLS is unknown but is linked to rheumatoid arthritis as well

as pregnancy, diabetes, kidney failure, or peripheral neuropathy (nerve

damage in the hands and feet). In some people anemia or vitamin deficiency

may be a contributing factor. Since most people with RA also have anemia,

that could be a contributing link. The fact that you also have a decreased

blood flow to the muscles in your leg due to inflammation could also

contribute. The first thing I would try is the vitamin E that Lynn and

others have suggested. Many people without a weight problem also have RLS.

Far to many doctors have told overweight patients that all their problems

are weight related and to just loose weight. That isn¹t so easy for a RA

patient. It¹s not like we can go jog around the block.

a

> Hi a,

> thank you for your reply. ly, this has all had me wondering if I'm

> losing it. The dr., I see now, hasn't been understanding or helpful enough.

> Why don't we trust ourselves more?

> Does RLS have anything to do with the arthritis, is it a part of it, or a

> separate item? I have degenerative osteroarthritis in my knees, and also

> have a circulatory problem (I Ican't recall the proper medical name) where

> the valves in the lower leg break deteriorate, causing fluid retention in the

> legs. My dr. tries to make me feel that if I would only lose weight, this

> would all be miraculously, well, he hasn't exactly said. I told him I know

> losing weight would help, but I can barely walk after I return from work as a

> teacher. If I stand in one place very long, I cannot hardly walk then,

> either. I am so frustrated. Why should the patient have to tell the dr. that

> the extra weight I carry did not cause it and losing it won't cure it, though

> it would ease it somewhat. I still have both problems, and now the RLS to

> boot.

> Please tell me...do I sound like I'm making sense? Thank you so much.

> Tena

[Guest guest]

Hi a,

thank you for your reply. ly, this has all had me wondering if I'm

losing it. The dr., I see now, hasn't been understanding or helpful enough.

Why don't we trust ourselves more?

Does RLS have anything to do with the arthritis, is it a part of it, or a

separate item? I have degenerative osteroarthritis in my knees, and also have

a circulatory problem (I Ican't recall the proper medical name) where the valves

in the lower leg break deteriorate, causing fluid retention in the legs. My dr.

tries to make me feel that if I would only lose weight, this would all be

miraculously, well, he hasn't exactly said. I told him I know losing weight

would help, but I can barely walk after I return from work as a teacher. If I

stand in one place very long, I cannot hardly walk then, either. I am so

frustrated. Why should the patient have to tell the dr. that the extra weight I

carry did not cause it and losing it won't cure it, though it would ease it

somewhat. I still have both problems, and now the RLS to boot.

Please tell me...do I sound like I'm making sense? Thank you so much.

Tena

Re: [ ] Restless Legs Syndrome

People with restless legs syndrome (RLS) often feel an intense urge to move

their legs, particularly when sitting still or trying to fall asleep. Unlike

people with a different condition called night-time leg cramps the people

with restless legs syndrome don't experience pain. Instead, they may

describe a strange " creepy crawly " feeling inside their legs. Walking

normally relieves the symptoms, but as soon as people quit moving, the need

to move occurs.

http://www.rls.org/

http://restlesslegs.com/

You¹re not alone Tena. Many members have doctors that don¹t prescribe

adequate pain medications. Some will change doctors and find more

compassionate ones.

a

> Please tell me...what is Restless Leg Syndrome? I can't sleep at night from

> all the pain, and my doctor acts like I'm making it up to get pain meds! I

> can't believe him. My poor husband often sleeps in our guest room, or I sleep

> somewhere else. It's torture. Thanks for the info, and good luck with your

> search. I hope you find the peace you need.

> Tena

[Guest guest]

http://www.mdvu.org/library/disease/rls/

Restless Legs Syndrome

This ailmentoccurs most often when the legs get warm in bed, and prevents going

to sleep. A curious unlocalized restlessness is

felt in one or both legs. It is not quite a pain, but is distinctly

unpleasant. A combination of voluntary movement and involuntary

jerks of the affected limb fails to find rest. In ten minutes to an

hour the " jitters " depart and sleep comes. The disagreeable

sensation stops at once on chewing 1/100 grain of nitroglycerine,

suggesting that the cause is vascular.1

Introduction

Known in the common vernacular as the heebie jeebies, Elvis legs,

the fidgets, and simply the leg thing, restless legs syndrome (RLS)—

a term coined by Swedish neurologist Karl-Axel Ekbom2—is a sensory

and movement disorder with a profound impact on sleep. The pulling,

tugging, creepy-crawly, electric shock-like, bubbling, or jittery

and not infrequently painful sensations are often difficult for

patients to describe, leading to reports of sometimes bizarre-

sounding symptoms such as Coca-Cola in the veins, insects crawling

deep in the tissue, and itching bones. Relief with movement of the

affected limb—typically the legs and, not uncommonly, the arms—is

one of the distinguishing features. Because of the exacerbation in

symptoms with quiescence and the circadian properties of the

condition, when people with RLS do seek medical attention, it is

often because of their difficulty initiating and maintaining sleep.

It is common for people with RLS—after enduring the symptoms for

many years—to hear about the disorder in the media and recognize for

the first time that their odd sensations indeed constitute a real

and treatable condition.

Please see the following topics related to restless legs syndrome

below, and available on the left side of this page.

» Primary and Secondary RLS

» Diagnostic Criteria

» Pathophysiology

» Epidemiology

» Diagnosis

» Treatment

» Nonpharmacologic Treatment

» Pharmacologic Treatment

» Dopaminergic Agents

» Dopamine Receptor Agonists

» Dopamine Precursor

» Benzodiazepines

» Opioids

» Anticonvulsants

» Other Medications

» Pharmacologic Therapy During Pregnancy

» Pharmacologic Therapy for Children with RLS

» Citations

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Therefore, the authors, editors, and publisher do not warrant that

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physician.

Writer: Friederich Murray, NASW, CSE

Editor: Joy B. Leffler, NASW, AMIA

Medical Reviewers: G. Ondo, MD; W. Winkelman, MD, PhD

[Guest guest]

about ldn someone else might answer.what he can try is 2x200 mg

helated magnesium.it might be good also to see if he is not low on

iron .

>

> my dad has restless legs syndrome

> currently taking siminet

> wants to try ldn

> any advise

> thanks

>

> J. Onifer, III

> 147 E. Main St.

> Elkton, MD 21921

> 410-398-3075

> onif8645@...

> www.oniferlaw.com

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[Guest guest]

I have used a homeopathic remedy that I buy at vitacost.com called

restful legs. Sometimes I take one dose after the other if one dose

not stop it. It usually happens at night and I find that if I have to

use the bathroom or if I am hot my legs get restless too.

Carole