Guest guest Posted April 19, 2006 Report Posted April 19, 2006 ! So glad to hear things are going so incredibly well!! I as well got goose bumps when you talked about hardly being able to see it. That is so fantastic, im just thrilled for Olivia, what a little fighter girl, or should I say big girl, 4 inches!! OMG! Thats incredible!! Hugs to you both, so lovely to hear from you! I havent posted alot as of late, been kinda crazy for us. Eliana didn't do well under anesth. last time, she went into bronchial spasms, and her sat levels plumeted into respiratory arrest. She is fine, but had to come home in a brace this time as they were unable to apply her fifth cast. Her tether cord surgery went well at Primary and the brace appears to be holding her at 50 deg. in the x-ray. She wears it 23 hours a day, and is loving being out for that hour!! BATHS! They dont want her out of the casts more than two months though. They diagnosed reactive airway disease this time caused by her BPD (preemie issue), so she is on steroid therapy and high quarantine right now. We all have cabin fever, and this is off topic, but I had an unexpected pregnancy that I lost in misscarriage a few months ago, so I was kinda " out of it " for a while when Dr. Schaffer was killed. I didnt even realize, and when I hadnt talked to him yet about Eliana's upcoming procedure, beforehand like he always did, I asked one of the nurses if he had Eliana's case this time and she froze and then teared up and told me!! OMG! His pictures are still up everywhere there, I felt so terrible!! Several of the nurses got a little emotional and filled me in later, I couldnt believe it!! I am still shocked. My thoughts have drifted to his family alot since, bless their hearts. Eliana, unfotunately is considered high risk anesthesia now, but shes been under 8 times with no issues, so were hoping last trip was a small viral bug complicating things making it a fluke. We HOPE!! Anyway, I better go, (((hugs))) to you both! And to your mom, how is she doing? All our best, and Eliana p.s. I let u know when I get a firm date set back at SLC and hope for a layover in Denver! Take care! Quote
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