Guest guest Posted February 25, 2006 Report Posted February 25, 2006 Jen, Pam, Thanks for the legwork, and the link! I'll send this to the board, too....So, maybe they can worry about it for me....lol! talk soon, HRH > and Carmell, > > I found the following from a link to the New York Times; > > & quot;During a rarely performed operation to implant an expandable > prosthesis made of titanium into the chest of Keller, the > toddler with scoliosis, he faces the possibility of paralysis. > Earlier in the program he is seen with his family at the zoo, where > he says that a giraffe & quot;has a bump like me. & quot; > > Hope this helps . > > Pam > > > > > > > > Hi , > > > > I don't know the specifics about this show on March > > 6th or not. However, the people from Miracle Workers > > talked to me about doing a segment on Braydon. He > > didn't qualify for the show because he already had his > > VEPTR implants done. I'm assuming (and this is a big > > assumption) that the show is going to be about a VEPTR > > implant, since they were searching for someone who was > > facing this procedure and willing to have it public. > > I'll be anxious to hear if anyone knows the specifics. > > > > I've been thinking about you and Liv and and > > Kylie, et al, all week. I'll be thinking of you even > > more as the coming days pass. We'll be back in SLC on > > the 28th. I'll stop by and see if you guys are around > > and need some distraction (surgery will only be > > days/hours away). I hope we won't be bothering you > > too much. > > > > Take care and big hugs to all > > Carmell > > > > > > mom to Kara 19, idiopathic scoliosis, Blake 15, GERD and Braydon > 10, VACTERL, GERD, DGE, Titanium Rib Project patient #137 (dbl > implant 8/01), thoracic insufficiency, rib anomalies, congenital > scoliosis (fusion surgery 5/96), missing coccyx, fatty filum/TC > (released 4/99), anal stenosis, chronic constipation, horseshoe > (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized > 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, > bilateral hip dysplasia, right leg/foot dyplasia, tibial torsion, > clubfoot with 8 toes (reconstructed 2/96, 3/96, 1/97, 3/04), pes > cavus, single umblilical artery, tonsil-adnoidectomy and ear tubes > (3/98), etc. http://carmellb-ivil.tripod.com/myfamily/ > > > > __________________________________________________ > > Quote
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