Re: LINDA__what is the answer???

[Guest guest]

,

I wouldn't even begin to try and know what is going on with you... But by the sounds of things when the docs can Finally get the cause it will most likely tie everything together for you... Good Luck on your upcoming surgery, you will be in my Prayers...

((( Prayerful Hugs )))Helen

Ok Guys I know I asked this and everyone got quiet about it. I know later I will try to go for genetic testing anyway but what would cause Arnold Chiari I, Acoustic Neuroma, Tethered Cord and like 30 different neurological diseases. What do you think I could be facing here.

Originally the docs at the Chiari Institute said my second operation was it now they say they can make no promises since we are into the third operation.

Hugs

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

Thank you Helen yes they told me the same thing that it would tie everything together for me. I wish I did know what it was however since it is effecting not only myself but my youngest as well. Laughing yep I know I know my family says there is no problem with the genetics in my family. Funny how these things keep popping up on me and Derrick as well. And my oldest you would be amazed how he can literally flap his hands and was always somewhat double jointed. Yep nothing in our family tree lol. The doctor feels the three rare diseases I have is like something is definitely under that. Hugs

angelbear1129@... wrote: , I wouldn't even begin to try and know what is going on with you... But by the sounds of things when the docs can Finally get the cause it will most likely tie everything together for you... Good Luck on your upcoming surgery, you will be in my Prayers... ((( Prayerful Hugs )))Helen Ok Guys I know I asked this and everyone got quiet about it. I know later I will try to go for genetic testing anyway but what would cause Arnold Chiari I, Acoustic Neuroma, Tethered Cord and like 30 different neurological diseases. What do you think I could be facing here. Originally the docs at the Chiari Institute said my second operation was it now they say they can make no promises since we are into the third operation. Hugs "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

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