Re: HI EVEYONE!!! I'M BACK!!!

[Guest guest]

Hey there Helen

Glad to see you are back and doing well.....all is ok here....I just had another colonoscopy done and the doc has decided to remove 1 foot of my colon, so I go Tues to talk to the surgeon to schedule....so please everyone say a prayer for me and my children...it would be so much appreciated as I am very nervous about this surgery......well Im off and running.....glad your home Helen take good care....

Liz

[Guest guest]

> ROLL CALL!!!) Newbies too!!! )

Hi, I'm Jenn, age 35. I've been married 15 years this June

and have two daughters, ages 8 and 12. I have a form

of Muscular Dystrophy called Spinal Muscular Atrophy

type 2. Because of this, I am basically a quadriplegic, with

limited use of my right arm, and use an electric wheelchair

to chase folks around. I also have clinical depression and

anxiety, which often is harder on my family than my

physical disabilities.

[Guest guest]

Hi Liz,

I'll definitely keep you and your family in my Prayers!!! Are you going to have a resection done or a colonoscopy bag put on??? And could you remind me why you have to have this done if you don't mind??? Kee p us informed...

((( Prayerful Hugs )))Helen

Hey there Helen Glad to see you are back and doing well.....all is ok here....I just had another colonoscopy done and the doc has decided to remove 1 foot of my colon, so I go Tues to talk to the surgeon to schedule....so please everyone say a prayer for me and my children...it would be so much appreciated as I am very nervous about this surgery......well Im off and running.....glad your home Helen take good care.... Liz

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

Hi Jenn,

Hmmm Chasing folks with the wheelchair? That would be some entertainment!!! )

Sorry you have to deal with this... Have you had this your entire life??? Is your family supportive??? Do you have in home help??? Vent away, write when your up to it... Someone is usually around...

((( Sunshine Hugs )))Helen

Hi, I'm Jenn, age 35. I've been married 15 years this Juneand have two daughters, ages 8 and 12. I have a formof Muscular Dystrophy called Spinal Muscular Atrophytype 2. Because of this, I am basically a quadriplegic, withlimited use of my right arm, and use an electric wheelchairto chase folks around. I also have clinical depression andanxiety, which often is harder on my family than myphysical disabilities.

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

I'm still here. I have Dystonia.Its affected my jaws, ability to do things such as eat, and drink. check out http://www.dystonia-foundation.org Suejennifer <nekrosys@...> wrote: > ROLL CALL!!!) Newbies too!!! )Hi, I'm Jenn, age 35. I've been married 15 years this Juneand have two daughters, ages 8 and 12. I have a formof Muscular Dystrophy called Spinal Muscular Atrophytype 2. Because of this, I am basically a quadriplegic, withlimited use of my right arm, and use an electric wheelchairto chase folks around. I also have clinical depression andanxiety, which often is harder on my family than myphysical

disabilities.~~~~ *** ~~~ *** ~~~ *** ~~~~The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe

please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborahangelbear1129@... wrote: Hi Everyone!!! Have Really missed ya!!! Computer is hopefully fixed... Have been ill, but doing alright... The heat was unbearable last week... We do not have central air, it reached 93*F ( 33.8C )for us that's hot this early in the season... For 10 days before that we had nothing but rain, we got 6.5 inches here, with the low pressure sitting on top of us, that made it very painful to deal with as a lot of you know... I'm not even

going to try and read back email, I've glanced through it, so please update me... Hopefully you are all doing as well as can be... I see we have a Lot of new folks on here ) I will introduce myself to them... as for the Oldsters! ROLL CALL!!!) Newbies too!!! ) I'm Helen, 55 from NW Ohio... Have a few ailments to deal with, I'm the nosey one, but really do care for all... Been married 38 years, Had 3 children, Have 3 Grand Daughters... A Big doggie, Rusty, 2 parakeets, and a cockatoo (Very Noisy ) That's me in a nutshell! ) ((( Big Summertime Hugs ))) Helen/Mom/Momma Bear ) My Ailments:1-F.M.S.--Fibromyalgia 2-C.F.S--Chronic Fatigue Syndrome 3-S.L.E.--Systematic Lupus Erthematosis 4-M.V.P.--Mitral Valve Prolapse 5-Hypothyroidism/Graves Disease 6-Hyatal Hernia 7-Acid Reflux--(Gerd) 8-Migrains 9-Poly Neuropathy 10-Osteoporosis 11-Osteoarthritis 12-Hypertension 13-Degenerative Arthritis in head,neck, shoulders, spinal column, arms 14-R.L.S.--Restless Leg Syndrome 15-Hypoglycemia 16-I.B.S.--Irritable Bowel Syndrome 17-Arrthymia's--P.B.Cs--P.A.Cs--Ventricular Tachycardia-One other I don't remember the name of 18-Emphysema19-M.P.S.--Myofacial Pain Syndrome20-Polymyalgia21-T.M.J.--Temporomandibular Joint Disorder22-Corneal

Leukoma23-Chronic Sinusitis24-Idiopathic Edema25-PSVT--Paroxysmal-Supraventricular Tachycardia WHAT HAS HAPPENED: Blind in Left Eye--eye accident-age 3 Rheumatic Fever--almost died-age 17 Pericarditis--almost died-age 17Light Stroke-age 27Goiter Bad/Graves Disease--almost died-age 28Full Hysterectomy-age 40 Gall Bladder out Diseased--almost died-age 48 Anemic twice real bad "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and

receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

> Hmmm Chasing folks with the wheelchair? That would be

> some entertainment!!! )

It does make for some humorous moments. Unfortunately, my

kids learned at a very early age how to get into corners where

I couldn't get to them. My oldest, as a toddler, would run to

these places and giggle at me.

> Have you had this your entire life???

Yes, I was born with it and never walked. I used to be stronger

when I was younger. It is a progressive illness, but

thankfully it seems to progress very slowly.

> Is your family supportive???

It took my biological family some time to come around,

especially about me becoming independent and then

getting married. My husband is very supportive. I think

my depression/anxiety bothers him more than my MD.

Do you have in home help???

Not really. My husband is my sole caregiver, but he

works 40 hours a week, takes night classes twice a

week, and has to work on a house we inherited about

an hour away from us every Saturday. My kids do

a lot of chores and are very independent, but they are

kids and have their moments, especially with my

oldest turning 12 soon. I have a very good friend that

comes every Saturday to do housecleaning. She keeps

me sane. Currently, we also have a friend, whom my

husband calls " the homeless lass, " that has been

sleeping in our living room for the last 6 months. She

helps me run errands. And finally, friends rent the

upstairs apartment of our duplex, and the husband,

who is writing his thesis, is often around in case of

emergencies. But consistent help for physical care

besides my husband, no.

Jenn

[Guest guest]

Hi Deborah,

How you doing??? Will have to fill me in on your condition, can't remember anything at the moment... ) Old age creeping in I guess... :o/

((( Caring hugs )))Helen

I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborah

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

Wow Jenn,

You have a house full!!! Little ones learn early how to get around the parents! But it is amazing some of their little tricks too...

Its hard on parents letting the children leave the nest, and with you being medical I can see where their fear would come from... But you sure sound like you have it all together!!! )

Sounds like your hubby has his hands full... Tell him I give him a Big Gold Star!!! Is there any services in your area that can help you out when there are no family or friends available that day???

My grand daughters turning 12 next week, she of course thinks she knows Everything!!! But she's a sweetie, she helps grama out a lot...

((( Helping Hugs )))Helen

> Hmmm Chasing folks with the wheelchair? That would be > some entertainment!!! ) It does make for some humorous moments. Unfortunately, mykids learned at a very early age how to get into corners whereI couldn't get to them. My oldest, as a toddler, would run tothese places and giggle at me.> Have you had this your entire life??? Yes, I was born with it and never walked. I used to be strongerwhen I was younger. It is a progressive illness, butthankfully it seems to progress very slowly.> Is your family supportive??? It took my biological family some time to come around,especially about me becoming independent and then getting married. My husband is very supportive. I thinkmy depression/anxiety bothers him more than my MD.Do you have in home help??? Not really. My husband is my sole caregiver, but heworks 40 hours a week, takes night classes twice aweek, and has to work on a house we inherited aboutan hour away from us every Saturday. My kids doa lot of chores and are very independent, but they arekids and have their moments, especially with my oldest turning 12 soon. I have a very good friend thatcomes every Saturday to do housecleaning. She keepsme sane. Currently, we also have a friend, whom myhusband calls "the homeless lass," that has beensleeping in our living room for the last 6 months. Shehelps me run errands. And finally, friends rent theupstairs apartment of our duplex, and the husband,who is writing his thesis, is often around in case of emergencies. But consistent help for physical carebesides my husband, no.Jenn

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

[Guest guest]

Hi Helen! Glad you are back!!!!! Ok for Role Call.....I am Rose and I

live in Portland OR with my sweetie , my 18 year old son

who graduated early from High School and will walk with his

class from Weston High School in Arlington WA on June 14th. s

two boys who I consider my sons, 19 and 17 live in Oregon

also but not with us at the moment...long stressful story there.

Anyway I am 49, a native of Chicago IL. I have Rheumatoid arthritis of

the cervical spine, agoraphobia with panic attacks, and bi-lateral

epilepsy that I have had since I was 17. I don't post much because my

neurologist wants me to limit my time on the computer. I have been

seizure free for 15 months now due in large part to a study I was in

that uses behavior modification to control seizures. I enjoy

crocheting when my hands allow it, reading and watching shows like Law

and Order SVU, Forensic Files, Cold Case, The Closer and Criminal

Minds

Welp taht is it for me....

Huggles,

Rose

[Guest guest]

Deborah Do you have a VICTIMS ASSISTANCE PROGRAM in your area? They will beable to help you with counseling for the POST TRAUMATIC STRESS . SueDEBORAH TOME <d.tome@...> wrote: Hello angelbear! Great to hear from you..well, I suffer from memory problems, too, so no problem with forgetting my condition. Basically, I am in a "wait and see" status. I have now been diagnosed with a brain tumor in the hypothalmus and somewhat going midline. They say it is highly rare ...they do not see anything like this but every 5 to 6 years at M.D. . They can not biopsy or operate. So, I am just hoping that this thing does not grow!!!! But, I am very busy with going to the doctor for related symptoms 3 or 4 times a week. I have incontinence now..not sure what that is about?? And

I many other problems including the severe PTSD, from an assault and being robbed at gunpoint at Christmas. But, I am focusing today on good coming out of all things bad. I am hoping to start a foundation, my disabled neice is creating a web page, and I will be writing to companies to try to gather support. My focus will be on rewarding people who are good...it could be a store clerk that helps you, someone that just stops to chat with you and gives you a wonderful day for it....anyone being "good". I believe that goodness begets goodness! I have a name which I will not share at this point, but I have already begun rewarding people that I catch being good with a gift of some sort...only costing me a max of $1.00. I figure I throw that away on a coke or something else everyday, so I might as well help to change the world to be a better place, by rewarding people that are good! I am very excited about this and am very hopeful

that it will catch on. Problem is that I have never started a foundation and I need help with that. So, if anyone reading this can help me with this, I will put you on my web page as a donater of help in setting up the foundation. Anyway, I am glad you are back! Deborahangelbear1129@... wrote: Hi Deborah, How you doing??? Will have to fill me in on your condition, can't remember anything at the moment... ) Old age creeping in I guess... :o/ ((( Caring hugs )))Helen I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborah "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com

[Guest guest]

> Sounds like your hubby has his hands full... Tell him I give him a Big

> Gold Star!!!

Yes, he's a great guy. He thinks I'm great for putting

up with *him*!

> Is there any services in your area that can help you out when

> there are no family or friends available that day???

Not really. Since I'm not looking for a job, I'm pretty

much on the bottom of every service list there is. My

Medicare HMO doesn't cover it, and my husband's

work insurance won't cover me *at all*, and even if

they did, they don't cover home health aides either.

> My grand daughters turning 12 next week, she of course thinks she knows

> Everything!!! But she's a sweetie, she helps grama out a lot...

My 12 year old knows everything too, or so she thinks.

Jenn

[Guest guest]

Yes, I am in the Victims Assistance Program. They pay for all my therapy and medical bills related to the crimes, after insurance pays. Thanks for your help! DebSue <sweetsueohio2002@...> wrote: Deborah Do you have a VICTIMS ASSISTANCE PROGRAM in your area? They will beable to help you with counseling for the POST TRAUMATIC STRESS . SueDEBORAH TOME <d.tome@...> wrote: Hello angelbear! Great to hear from you..well, I suffer from memory problems, too, so no problem with forgetting my condition. Basically, I am in a "wait and see" status. I have now been diagnosed with a brain tumor in the hypothalmus and somewhat going

midline. They say it is highly rare ...they do not see anything like this but every 5 to 6 years at M.D. . They can not biopsy or operate. So, I am just hoping that this thing does not grow!!!! But, I am very busy with going to the doctor for related symptoms 3 or 4 times a week. I have incontinence now..not sure what that is about?? And I many other problems including the severe PTSD, from an assault and being robbed at gunpoint at Christmas. But, I am focusing today on good coming out of all things bad. I am hoping to start a foundation, my disabled neice is creating a web page, and I will be writing to companies to try to gather support. My focus will be on rewarding people who are good...it could be a store clerk that helps you, someone that just stops to chat with you and gives you a wonderful day for it....anyone being "good". I believe that goodness begets goodness! I have a name which I will not share at

this point, but I have already begun rewarding people that I catch being good with a gift of some sort...only costing me a max of $1.00. I figure I throw that away on a coke or something else everyday, so I might as well help to change the world to be a better place, by rewarding people that are good! I am very excited about this and am very hopeful that it will catch on. Problem is that I have never started a foundation and I need help with that. So, if anyone reading this can help me with this, I will put you on my web page as a donater of help in setting up the foundation. Anyway, I am glad you are back! Deborahangelbear1129@... wrote: Hi Deborah, How you doing??? Will have to fill me in on your condition, can't remember anything at the moment... ) Old age creeping in I guess... :o/ ((( Caring hugs )))Helen I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborah "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com

[Guest guest]

Call them and ask about some counseling programs.

Sue

For a REALLY HOT time check out http://www.peternoone.com and

http://www.mikesmith1964.com

Re: HI EVEYONE!!! I'M BACK!!!

Yes, I am in the Victims Assistance Program. They pay for all my therapy and medical bills related to the crimes, after insurance pays. Thanks for your help! DebSue <sweetsueohio2002@...> wrote:

Deborah

Do you have a VICTIMS ASSISTANCE PROGRAM in your area? They will beable to help you with counseling for the POST TRAUMATIC STRESS .

SueDEBORAH TOME <d.tome@...> wrote:

Hello angelbear! Great to hear from you..well, I suffer from memory problems, too, so no problem with forgetting my condition. Basically, I am in a "wait and see" status. I have now been diagnosed with a brain tumor in the hypothalmus and somewhat going midline. They say it is highly rare ...they do not see anything like this but every 5 to 6 years at M.D. . They can not biopsy or operate. So, I am just hoping that this thing does not grow!!!! But, I am very busy with going to the doctor for related symptoms 3 or 4 times a week. I have incontinence now..not sure what that is about?? And I many other problems including the severe PTSD, from an assault and being robbed at gunpoint at Christmas. But, I am focusing today on good coming out of all things bad. I am hoping to start a foundation, my disabled neice is creating a web page, and I will be

writing to companies to try to gather support. My focus will be on rewarding people who are good...it could be a store clerk that helps you, someone that just stops to chat with you and gives you a wonderful day for it....anyone being "good". I believe that goodness begets goodness! I have a name which I will not share at this point, but I have already begun rewarding people that I catch being good with a gift of some sort...only costing me a max of $1.00. I figure I throw that away on a coke or something else everyday, so I might as well help to change the world to be a better place, by rewarding people that are good! I am very excited about this and am very hopeful that it will catch on. Problem is that I have never started a foundation and I need help with that. So, if anyone reading this can help me with this, I will put you on my web page as a donater of help in setting up the foundation. Anyway, I am glad you are

back! Deborahangelbear1129@... wrote:

Hi Deborah,

How you doing??? Will have to fill me in on your condition, can't remember anything at the moment... ) Old age creeping in I guess... :o/

((( Caring hugs )))Helen

I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborah

"When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate."

For a REALLY HOT time check out http://www.peternoone.com and

http://www.mikesmith1964.com

[Guest guest]

Thank you, Sue. Have not been on for a few days. As always, I appreciate you. Probably a good idea to find out about other possible groups available. I see someone individually that does EMDR, but as I keep getting retraumatized with new crimes and diagnoses, we have determined I am too fragile for it right now. We will begin it as soon as I am emotionally stronger. We do not want to take the risk of bringing up any trauma from the past..I have too much in the present. But, a group might help. I had not really thought of that. Thanks. DeborahSue <sweetsueohio2002@...> wrote: Call them and ask about some counseling programs. Sue For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com Re: HI EVEYONE!!! I'M BACK!!! Yes, I am in the Victims Assistance Program. They pay for all my therapy and medical bills related to the crimes, after insurance pays. Thanks for your help! DebSue <sweetsueohio2002@...> wrote: Deborah Do you have a VICTIMS ASSISTANCE PROGRAM in your area? They will beable to help you with counseling for the POST TRAUMATIC STRESS . SueDEBORAH TOME <d.tome@...> wrote: Hello angelbear! Great to hear from you..well, I suffer from memory problems, too, so no

problem with forgetting my condition. Basically, I am in a "wait and see" status. I have now been diagnosed with a brain tumor in the hypothalmus and somewhat going midline. They say it is highly rare ...they do not see anything like this but every 5 to 6 years at M.D. . They can not biopsy or operate. So, I am just hoping that this thing does not grow!!!! But, I am very busy with going to the doctor for related symptoms 3 or 4 times a week. I have incontinence now..not sure what that is about?? And I many other problems including the severe PTSD, from an assault and being robbed at gunpoint at Christmas. But, I am focusing today on good coming out of all things bad. I am hoping to start a foundation, my disabled neice is creating a web page, and I will be writing to companies to try to gather support. My focus will be on rewarding people who are good...it could be a store clerk that helps you, someone that just

stops to chat with you and gives you a wonderful day for it....anyone being "good". I believe that goodness begets goodness! I have a name which I will not share at this point, but I have already begun rewarding people that I catch being good with a gift of some sort...only costing me a max of $1.00. I figure I throw that away on a coke or something else everyday, so I might as well help to change the world to be a better place, by rewarding people that are good! I am very excited about this and am very hopeful that it will catch on. Problem is that I have never started a foundation and I need help with that. So, if anyone reading this can help me with this, I will put you on my web page as a donater of help in setting up the foundation. Anyway, I am glad you are back! Deborahangelbear1129@... wrote: Hi Deborah, How you doing??? Will have to fill me in on your condition, can't remember anything at the moment... ) Old age creeping in I guess... :o/ ((( Caring hugs )))Helen I can see you are back!!! Great!!! You are very busy helping others, giving them important information. Thanks for all your hard work!!! Deborah "When life's problems seem overwhelming, look around and see what other people are coping with. You may consider yourself fortunate." For a REALLY HOT time check out http://www.peternoone.com and http://www.mikesmith1964.com