Introduction

[Guest guest]

Orit,

 

The prednisone does usually stop the fevers, but they also tend to come more

frequently.  Many parents on here have tried prednisone but ultimately had to

take their children off as they were giving doses of it so frequently. 

 

Has your daughter (princess - I like that) had her tonsils removed?  Have you

heard about the success rates for tonsillectomy in children?  I don't know

if you are open to having this surgery done, but the success rate is in the 90

percentile according to a study that was done.  It doesn't always work, and

sometimes it only works temporarily. 

 

It may be something to discuss with your doctors if you are open to having it

done.  There was just a post about a little girl who has been fever free for a

year, and our son had his T & A in August and has been fever free so far, along

with others on this site who have had success.  Again, some it did not work for,

but with your daughters throat involvement I wonder. 

 

Best Wishes,

Pruden

[Guest guest]

Orit,

 

The prednisone does usually stop the fevers, but they also tend to come more

frequently.  Many parents on here have tried prednisone but ultimately had to

take their children off as they were giving doses of it so frequently. 

 

Has your daughter (princess - I like that) had her tonsils removed?  Have you

heard about the success rates for tonsillectomy in children?  I don't know

if you are open to having this surgery done, but the success rate is in the 90

percentile according to a study that was done.  It doesn't always work, and

sometimes it only works temporarily. 

 

It may be something to discuss with your doctors if you are open to having it

done.  There was just a post about a little girl who has been fever free for a

year, and our son had his T & A in August and has been fever free so far, along

with others on this site who have had success.  Again, some it did not work for,

but with your daughters throat involvement I wonder. 

 

Best Wishes,

Pruden

[Guest guest]

Hi Steve,

We have thought about the tonsillectomy (sp), but I am not sure I

want to put my son through that since the fevers go away with the

prednisone. Much easier to take a dose of medicine then have

surgery, but if his fevers continue with the prednisone, I will have

to think long and hard about it. I just don't feel that it is an

option right now since his fevers are managable.

I am going to see his specialist next month, so I will ask her then

about lowering the dosage. Last visit she wanted to raise it

though. I am going to bring up this group and let her know what

others are going through. I think this is a wonderful site and wish

I would have seen it 3 years ago!

I totally do not envy your snow shoveling for 3 days!!! I was born

and raised in Louisiana and I think I have only seen snow 3 times in

my 34 years! And those 3 times it snowed, it was less than an inch

of snow. And, everything would shut down and people would lock

themselves in their houses because no one knew how to drive in it!!!

LOL. I wouldn't know what to do with that much snow. When we get ice

here in Texas, I am scared to death to drive! Guess I am getting

used to it now, but the first year I was here, I was like " What!!!

They don't close the schools! " I guess i am just a wimp - LOL!

Anyway, gotta go pick up my son from school. On his current fever

schedule, he should be getting one around Thanksgiving. I sure hope

he doesn't!!!

Sharon

[Guest guest]

Hi Steve,

We have thought about the tonsillectomy (sp), but I am not sure I

want to put my son through that since the fevers go away with the

prednisone. Much easier to take a dose of medicine then have

surgery, but if his fevers continue with the prednisone, I will have

to think long and hard about it. I just don't feel that it is an

option right now since his fevers are managable.

I am going to see his specialist next month, so I will ask her then

about lowering the dosage. Last visit she wanted to raise it

though. I am going to bring up this group and let her know what

others are going through. I think this is a wonderful site and wish

I would have seen it 3 years ago!

I totally do not envy your snow shoveling for 3 days!!! I was born

and raised in Louisiana and I think I have only seen snow 3 times in

my 34 years! And those 3 times it snowed, it was less than an inch

of snow. And, everything would shut down and people would lock

themselves in their houses because no one knew how to drive in it!!!

LOL. I wouldn't know what to do with that much snow. When we get ice

here in Texas, I am scared to death to drive! Guess I am getting

used to it now, but the first year I was here, I was like " What!!!

They don't close the schools! " I guess i am just a wimp - LOL!

Anyway, gotta go pick up my son from school. On his current fever

schedule, he should be getting one around Thanksgiving. I sure hope

he doesn't!!!

Sharon

[Guest guest]

Hi Steve,

We have thought about the tonsillectomy (sp), but I am not sure I

want to put my son through that since the fevers go away with the

prednisone. Much easier to take a dose of medicine then have

surgery, but if his fevers continue with the prednisone, I will have

to think long and hard about it. I just don't feel that it is an

option right now since his fevers are managable.

I am going to see his specialist next month, so I will ask her then

about lowering the dosage. Last visit she wanted to raise it

though. I am going to bring up this group and let her know what

others are going through. I think this is a wonderful site and wish

I would have seen it 3 years ago!

I totally do not envy your snow shoveling for 3 days!!! I was born

and raised in Louisiana and I think I have only seen snow 3 times in

my 34 years! And those 3 times it snowed, it was less than an inch

of snow. And, everything would shut down and people would lock

themselves in their houses because no one knew how to drive in it!!!

LOL. I wouldn't know what to do with that much snow. When we get ice

here in Texas, I am scared to death to drive! Guess I am getting

used to it now, but the first year I was here, I was like " What!!!

They don't close the schools! " I guess i am just a wimp - LOL!

Anyway, gotta go pick up my son from school. On his current fever

schedule, he should be getting one around Thanksgiving. I sure hope

he doesn't!!!

Sharon

[Guest guest]

Hi ,

Thanks for your thoughts on the support group topics. I wish you well in private practice. I too am an independent contractor. I have not let go completely of full time employment for several reasons. But, hopefully one day I'll be able to. Please take advantage of every opportunity to learn about the business aspect of private practice - it will only enhance your practice. Also be prepared to lose some sleep as you continue with both avenues. Good luck! KaToya Neville-, RD, LDDirector for CDMCell:(504) 250-3407kcarter@...

From: <nicole.chase12@...> Sent: Tuesday, December 9, 2008 11:37:22 PMSubject: Introduction

Hi everyone,I just wanted to introduce myself to the group. I am a fairly newBariatric dietitian. I currently work at a hospital in Fort Worth,Texas as both an inpt and outpt Bariatric dietitian, mostly on theinpt side. However I am currently negotiating a contract with thehospital to work with only the Bariatric patients which is excitingfor me as this is my true passion and I also have the desire to pursueprivate practice.I am really looking forward to from others in the group as well assharing my insight both as a Bariatric dietitian and as newlyself-employed contractor. Healthy Regards, Chase, RD, LD

[Guest guest]

Our support group topics this year have

included:

Spring into Exercise

Protein Tasting

Plastic Surgery Options

Summer Picnic

Staying on Track- A Nutrition

Update

Pitfalls of Emotional Eating

Recipe Exchange (with samples)

Christmas Party

Our psychologist and liscenced social

worker usually lead the support groups, however, we do some of the nutrition

topics and our EP’s do the Exercise topic.

Missy Bizzarro RD, LD

Weight Loss Surgery

Kettering Medical Center

Miamisburg, OH

From:

[mailto: ] On Behalf Of Ka Toya Neville

Sent: Wednesday, December 10, 2008

9:53 AM

To:

Subject: Re:

Introduction

Hi ,

Thanks for your thoughts on the support group topics. I wish you

well in private practice. I too am an independent

contractor. I have not let go completely of full time employment

for several reasons. But, hopefully one day I'll be able to.

Please take advantage of every opportunity to learn about the business aspect

of private practice - it will only enhance your practice. Also be

prepared to lose some sleep as you continue with both avenues. Good

luck!

KaToya Neville-, RD, LD

Director for CDM

Cell:(504) 250-3407

kcarterasp-email

From:

<nicole.chase12 >

Sent: Tuesday, December 9, 2008

11:37:22 PM

Subject:

Introduction

Hi everyone,

I just wanted to introduce myself to the group. I am a fairly new

Bariatric dietitian. I currently work at a hospital in Fort Worth,

Texas as both

an inpt and outpt Bariatric dietitian, mostly on the

inpt side. However I am currently negotiating a contract with the

hospital to work with only the Bariatric patients which is exciting

for me as this is my true passion and I also have the desire to pursue

private practice.

I am really looking forward to from others in the group as well as

sharing my insight both as a Bariatric dietitian and as newly

self-employed contractor.

Healthy Regards,

Chase, RD, LD

[Guest guest]

Thank you for your thoughts Ka Toya. I can definitely use that kind of support as I am just starting.From: Ka Toya Neville <kgnevil6801@...>Subject: Re: Introduction Date: Wednesday, December 10, 2008, 8:52 AM

Hi ,

Thanks for your thoughts on the support group topics. I wish you well in private practice. I too am an independent contractor. I have not let go completely of full time employment for several reasons. But, hopefully one day I'll be able to. Please take advantage of every opportunity to learn about the business aspect of private practice - it will only enhance your practice. Also be prepared to lose some sleep as you continue with both avenues. Good luck! KaToya Neville-, RD, LDDirector for CDMCell:(504) 250-3407kcarter@asp- email.com

From: <nicole.chase12>BariatricNutritionD ietitiansSent: Tuesday, December 9, 2008 11:37:22 PMSubject: [bariatricNutrition Dietitians] Introduction

Hi everyone,I just wanted to introduce myself to the group. I am a fairly newBariatric dietitian. I currently work at a hospital in Fort Worth,Texas as both an inpt and outpt Bariatric dietitian, mostly on theinpt side. However I am currently negotiating a contract with thehospital to work with only the Bariatric patients which is excitingfor me as this is my true passion and I also have the desire to pursueprivate practice.I am really looking forward to from others in the group as well assharing my insight both as a Bariatric dietitian and as newlyself-employed contractor. Healthy Regards, Chase, RD, LD

[Guest guest]

Hi ,

Welcome to the group. I am fairly new too in working with Bariatric patients. I work one day a week in a Bariatric Surgeon's office in land. I have read lots of great infiormation of this listserv and hope you will find the same value in it!

Again, welcome!

Tammy Hutchisen RD, LDN, CPT

Mid-land Bariatrics

From: <nicole.chase12@...>Subject: Introduction Date: Wednesday, December 10, 2008, 12:37 AM

Hi everyone,I just wanted to introduce myself to the group. I am a fairly newBariatric dietitian. I currently work at a hospital in Fort Worth,Texas as both an inpt and outpt Bariatric dietitian, mostly on theinpt side. However I am currently negotiating a contract with thehospital to work with only the Bariatric patients which is excitingfor me as this is my true passion and I also have the desire to pursueprivate practice.I am really looking forward to from others in the group as well assharing my insight both as a Bariatric dietitian and as newlyself-employed contractor. Healthy Regards, Chase, RD, LD

[Guest guest]

Thank you Tammy!

From: <nicole.chase12>Subject: [bariatricNutrition Dietitians] IntroductionBariatricNutritionD ietitiansDate: Wednesday, December 10, 2008, 12:37 AM

Hi everyone,I just wanted to introduce myself to the group. I am a fairly newBariatric dietitian. I currently work at a hospital in Fort Worth,Texas as both an inpt and outpt Bariatric dietitian, mostly on theinpt side. However I am currently negotiating a contract with thehospital to work with only the Bariatric patients which is excitingfor me as this is my true passion and I also have the desire to pursueprivate practice.I am really looking forward to from others in the group as well assharing my insight both as a Bariatric dietitian and as newlyself-employed contractor. Healthy Regards, Chase, RD, LD

[Guest guest]

Welcome Judy! I have 2 children - 22 (nt) and 13 (autism, apraxia).

Nice to meet you!

autism From: jacyone@...Date: Wed, 8 Jul 2009 11:29:26 -0400Subject: Introduction

Hello! I'm Judy, a married mom of two from Richmond, VA. My son will be 12 next week (how the hell did that happen?!) and is neurotypical, though wonderfully goofy and individualistic. My son Jake is 10.5 and is profoundly autistic, also brilliantly goofy and hilarious in his own right.

My membership to this group was approved a couple of days ago but I've been lurking, trying to get a feel for the group and waiting for things to settle down a bit before speaking up. In the meantime, I've been reading some past discussions, trying to guage where everyone else's kids fall, both on the spectrum and in terms of ages, interests, challenges, etc. I recognize quite a few of the behaviors that have been discussed, both charming and challenging, and have already read a few suggestions and strategies that were new to me.

Jake's been quite the handful recently and we're floundering a bit here, unsure what to do with him really at this point. We've just recently tweaked his meds so we're waiting to see if that's going to help while we continue to collect data and try to figure out the behavioral stuff. I'm looking forward to getting to know y'all and hopefully being able to offer as well as receive support and advice!

Judy

Windows Live™ SkyDrive™: Get 25 GB of free online storage. Get it on your BlackBerry or iPhone.

[Guest guest]

Welcome Judy! My son is named Ricky and he is 11 1/2. We live in NW Ohio.

[Guest guest]

Welcome to the group Judy,

My name is Lesley and I have 3 kids 2 girls and a son. My girls are 10 and soon to be 14 and my son is 6 and has Classic Autism..

Again glad you said hello.

Lesley

-- Introduction

Hello! I'm Judy, a married mom of two from Richmond, VA. My son will be 12 next week (how the hell did that happen?!) and is neurotypical, though wonderfully goofy and individualistic. My son Jake is 10.5 and is profoundly autistic, also brilliantly goofy and hilarious in his own right.

My membership to this group was approved a couple of days ago but I've been lurking, trying to get a feel for the group and waiting for things to settle down a bit before speaking up. In the meantime, I've been reading some past discussions, trying to guage where everyone else's kids fall, both on the spectrum and in terms of ages, interests, challenges, etc. I recognize quite a few of the behaviors that have been discussed, both charming and challenging, and have already read a few suggestions and strategies that were new to me.

Jake's been quite the handful recently and we're floundering a bit here, unsure what to do with him really at this point. We've just recently tweaked his meds so we're waiting to see if that's going to help while we continue to collect data and try to figure out the behavioral stuff. I'm looking forward to getting to know y'all and hopefully being able to offer as well as receive support and advice!

Judy

[Guest guest]

Hi Judy!!! I'm sooooooooooo glad you posted after yesterday!!!! Oh, my, my heart ached last night over some of the conversations...but we move on.

I have nothing to offer you LOL --- Nothing...as you know from reading "the history" I have a 2.5 yr old, who is beautiful and challenging, but he's not 10.5. You will find support, and kindness, and suggestions

Blessings,

e

(Wife to (19 yrs coming up:), mom to Lily 6, NT, and sweet baby -- 2.5 ASD)

From: J Acciarito <jacyone@...>autism Sent: Wednesday, July 8, 2009 10:29:26 AMSubject: Introduction

Hello! I'm Judy, a married mom of two from Richmond, VA. My son will be 12 next week (how the hell did that happen?!) and is neurotypical, though wonderfully goofy and individualistic.. My son Jake is 10.5 and is profoundly autistic, also brilliantly goofy and hilarious in his own right.

My membership to this group was approved a couple of days ago but I've been lurking, trying to get a feel for the group and waiting for things to settle down a bit before speaking up. In the meantime, I've been reading some past discussions, trying to guage where everyone else's kids fall, both on the spectrum and in terms of ages, interests, challenges, etc. I recognize quite a few of the behaviors that have been discussed, both charming and challenging, and have already read a few suggestions and strategies that were new to me.

Jake's been quite the handful recently and we're floundering a bit here, unsure what to do with him really at this point. We've just recently tweaked his meds so we're waiting to see if that's going to help while we continue to collect data and try to figure out the behavioral stuff. I'm looking forward to getting to know y'all and hopefully being able to offer as well as receive support and advice!

Judy

[Guest guest]

Hi Judy,

Welcome to the group. I have been lurking for some time now. I always read the

post's. There are some great folks here. I have a 13yr Aspie and we live in VA.

>

> Hello! I'm Judy, a married mom of two from Richmond, VA. My son

will be 12 next week (how the hell did that happen?!) and is neurotypical,

though wonderfully goofy and individualistic. My son Jake is 10.5 and is

profoundly autistic, also brilliantly goofy and hilarious in his own right.

>

> My membership to this group was approved a couple of days ago but I've been

lurking, trying to get a feel for the group and waiting for things to settle

down a bit before speaking up. In the meantime, I've been reading some past

discussions, trying to guage where everyone else's kids fall, both on the

spectrum and in terms of ages, interests, challenges, etc. I recognize quite a

few of the behaviors that have been discussed, both charming and challenging,

and have already read a few suggestions and strategies that were new to me.

>

> Jake's been quite the handful recently and we're floundering a bit here,

unsure what to do with him really at this point. We've just recently tweaked

his meds so we're waiting to see if that's going to help while we continue to

collect data and try to figure out the behavioral stuff. I'm looking forward to

getting to know y'all and hopefully being able to offer as well as receive

support and advice!

>

> Judy

>

[Guest guest]

Hi, Judy, I'm the grandmother on the group. I diagnosed my autistic grandson and have run an ABA program with him until he started to school, but still have worked with him every day since, and he is now soon to be 17.

You name it and I have probably experienced it. Besides working with my grandson ,I teach psy. and soci. part time for the community college. I'm married and have 4 grown children who make me proud..

Welcome to the group. We are caring and will always give you our best even if it is misstated or not needed, but our hearts are always loving and caring. If the tone sounds otherwise,it is wrong. LOL,LOL. blessings, Pat K

Introduction

Hello! I'm Judy, a married mom of two from Richmond, VA. My son will be 12 next week (how the hell did that happen?!) and is neurotypical, though wonderfully goofy and individualistic. My son Jake is 10.5 and is profoundly autistic, also brilliantly goofy and hilarious in his own right.

My membership to this group was approved a couple of days ago but I've been lurking, trying to get a feel for the group and waiting for things to settle down a bit before speaking up. In the meantime, I've been reading some past discussions, trying to guage where everyone else's kids fall, both on the spectrum and in terms of ages, interests, challenges, etc. I recognize quite a few of the behaviors that have been discussed, both charming and challenging, and have already read a few suggestions and strategies that were new to me.

Jake's been quite the handful recently and we're floundering a bit here, unsure what to do with him really at this point. We've just recently tweaked his meds so we're waiting to see if that's going to help while we continue to collect data and try to figure out the behavioral stuff. I'm looking forward to getting to know y'all and hopefully being able to offer as well as receive support and advice!

Judy

Finding the best videos just got easier. Try the NEW Truveo.com.

[Guest guest]

Hi Judy,

Welcome to the group. I have a 9 year old son on the spectrum and a 4 year old (in 2 weeks) daughter Paige. I have been a stay at home Mom since was born (going pretty crazy about now) and I hope you find the help and support you need here. Kellie

From: J Acciarito <jacyone@...>autism Sent: Wednesday, July 8, 2009 10:29:26 AMSubject: Introduction

Hello! I'm Judy, a married mom of two from Richmond, VA. My son will be 12 next week (how the hell did that happen?!) and is neurotypical, though wonderfully goofy and individualistic. My son Jake is 10.5 and is profoundly autistic, also brilliantly goofy and hilarious in his own right.

My membership to this group was approved a couple of days ago but I've been lurking, trying to get a feel for the group and waiting for things to settle down a bit before speaking up. In the meantime, I've been reading some past discussions, trying to guage where everyone else's kids fall, both on the spectrum and in terms of ages, interests, challenges, etc. I recognize quite a few of the behaviors that have been discussed, both charming and challenging, and have already read a few suggestions and strategies that were new to me.

Jake's been quite the handful recently and we're floundering a bit here, unsure what to do with him really at this point. We've just recently tweaked his meds so we're waiting to see if that's going to help while we continue to collect data and try to figure out the behavioral stuff. I'm looking forward to getting to know y'all and hopefully being able to offer as well as receive support and advice!

Judy

[Guest guest]

Hi Judy! I am Mom to JJ (jacob) age 21 with autism. I ran the washington county ASA for 13 years. I also have a son (jason) age 37 and 2 grandsons age 13 and 3. Your son most likley is starting puberity. That is when J started having problems. Welcome! Lois

Introduction

[Guest guest]

Hi Marie,

Welcome to the group! Kellie

From: marie_elaine1357 <marie_elaine1357@...>autism Sent: Wednesday, September 2, 2009 8:26:26 AMSubject: Introduction

Hi. I'm Marie. I am a single mother and have a 21 month old daughter I adopted from Vietnam last year at 9.5 months old. She has developmental delays and is in therapy. She had a social/cognitive evaluation by a special ed teacher a few months ago and she thinks she has autism but her ped. never suggested it. We are going to a developmental pediatrician in Dec. to see what he thinks. Her autistic tendencies are decreased eye contact, lack of initiating play, doesn't point to things, speech delay and taps her head with fingers on her left hand. She has a new special ed teacher who said she is not convinced she has autism. I took her to an autism screening at the university and they said she was a complicated case because of her orphanage background and diagnosed mild attachment disorder and she couldn't hear until she was 15 months old after she had tubes put in her ears. They recommended further evaluation. The guy was a psychologist, not a doctor.

She has an attachment therapist who says the lack of eye contact (which has since improved) and decreased social initiative (which has also improved) can be explained by the attachment disorder. The strange hand mannerism has also decreased. She used to do it constantly and now every so often. This may be an anxiety thing. I am going to start her on TAAT (targeted amino acid therapy). People in my attachment group use that and it has made many children more engaging. If I don't see a difference I am going to try high dose vitamin B6 with magnesium. I am a medical librarian and have read several articles on the benefits of that for autistic behaviors. Sorry for such a long post! Thank you for letting me join the group. I am looking forward to learning all I can.Mariemom to Jasmine

[Guest guest]

Hi Marie,

Welcome to the group! Kellie

From: marie_elaine1357 <marie_elaine1357@...>autism Sent: Wednesday, September 2, 2009 8:26:26 AMSubject: Introduction

Hi. I'm Marie. I am a single mother and have a 21 month old daughter I adopted from Vietnam last year at 9.5 months old. She has developmental delays and is in therapy. She had a social/cognitive evaluation by a special ed teacher a few months ago and she thinks she has autism but her ped. never suggested it. We are going to a developmental pediatrician in Dec. to see what he thinks. Her autistic tendencies are decreased eye contact, lack of initiating play, doesn't point to things, speech delay and taps her head with fingers on her left hand. She has a new special ed teacher who said she is not convinced she has autism. I took her to an autism screening at the university and they said she was a complicated case because of her orphanage background and diagnosed mild attachment disorder and she couldn't hear until she was 15 months old after she had tubes put in her ears. They recommended further evaluation. The guy was a psychologist, not a doctor.

She has an attachment therapist who says the lack of eye contact (which has since improved) and decreased social initiative (which has also improved) can be explained by the attachment disorder. The strange hand mannerism has also decreased. She used to do it constantly and now every so often. This may be an anxiety thing. I am going to start her on TAAT (targeted amino acid therapy). People in my attachment group use that and it has made many children more engaging. If I don't see a difference I am going to try high dose vitamin B6 with magnesium. I am a medical librarian and have read several articles on the benefits of that for autistic behaviors. Sorry for such a long post! Thank you for letting me join the group. I am looking forward to learning all I can.Mariemom to Jasmine

[Guest guest]

HI, and welcome to a VERY supportive and friendly group of

people!

I am the mother of three ( none on the spectrum) but I am a se

aide and this past 2 yrs worked with a young man on the spectrum. Sinse have

found a deep interest in things pertaining to asd.

Can you tell me more about TAAT and b6

Reply personally if you want

byrne2@...

Thank-you

Debra

nj

From: autism

[mailto:autism ] On Behalf Of marie_elaine1357

Sent: Wednesday, September 02, 2009 9:26 AM

autism

Subject: Introduction

Hi. I'm Marie. I am a single mother and have a

21 month old daughter I adopted from Vietnam last year at 9.5 months old. She

has developmental delays and is in therapy. She had a social/cognitive

evaluation by a special ed teacher a few months ago and she thinks she has

autism but her ped. never suggested it. We are going to a developmental

pediatrician in Dec. to see what he thinks. Her autistic tendencies are

decreased eye contact, lack of initiating play, doesn't point to things, speech

delay and taps her head with fingers on her left hand. She has a new special ed

teacher who said she is not convinced she has autism. I took her to an autism

screening at the university and they said she was a complicated case because of

her orphanage background and diagnosed mild attachment disorder and she

couldn't hear until she was 15 months old after she had tubes put in her ears.

They recommended further evaluation. The guy was a psychologist, not a doctor.

She has an attachment therapist who says the lack of eye contact (which has

since improved) and decreased social initiative (which has also improved) can

be explained by the attachment disorder. The strange hand mannerism has also

decreased. She used to do it constantly and now every so often. This may be an

anxiety thing. I am going to start her on TAAT (targeted amino acid therapy).

People in my attachment group use that and it has made many children more

engaging. If I don't see a difference I am going to try high dose vitamin B6

with magnesium. I am a medical librarian and have read several articles on the

benefits of that for autistic behaviors. Sorry for such a long post! Thank you

for letting me join the group. I am looking forward to learning all I can.

Marie

mom to Jasmine

[Guest guest]

HI, and welcome to a VERY supportive and friendly group of

people!

I am the mother of three ( none on the spectrum) but I am a se

aide and this past 2 yrs worked with a young man on the spectrum. Sinse have

found a deep interest in things pertaining to asd.

Can you tell me more about TAAT and b6

Reply personally if you want

byrne2@...

Thank-you

Debra

nj

From: autism

[mailto:autism ] On Behalf Of marie_elaine1357

Sent: Wednesday, September 02, 2009 9:26 AM

autism

Subject: Introduction

Hi. I'm Marie. I am a single mother and have a

21 month old daughter I adopted from Vietnam last year at 9.5 months old. She

has developmental delays and is in therapy. She had a social/cognitive

evaluation by a special ed teacher a few months ago and she thinks she has

autism but her ped. never suggested it. We are going to a developmental

pediatrician in Dec. to see what he thinks. Her autistic tendencies are

decreased eye contact, lack of initiating play, doesn't point to things, speech

delay and taps her head with fingers on her left hand. She has a new special ed

teacher who said she is not convinced she has autism. I took her to an autism

screening at the university and they said she was a complicated case because of

her orphanage background and diagnosed mild attachment disorder and she

couldn't hear until she was 15 months old after she had tubes put in her ears.

They recommended further evaluation. The guy was a psychologist, not a doctor.

She has an attachment therapist who says the lack of eye contact (which has

since improved) and decreased social initiative (which has also improved) can

be explained by the attachment disorder. The strange hand mannerism has also

decreased. She used to do it constantly and now every so often. This may be an

anxiety thing. I am going to start her on TAAT (targeted amino acid therapy).

People in my attachment group use that and it has made many children more

engaging. If I don't see a difference I am going to try high dose vitamin B6

with magnesium. I am a medical librarian and have read several articles on the

benefits of that for autistic behaviors. Sorry for such a long post! Thank you

for letting me join the group. I am looking forward to learning all I can.

Marie

mom to Jasmine

[Guest guest]

Hi Debra,

A summary of B6 studies can be found at

http://www.autism.com/treatable/supplement/b6studies.htm

Also, if you google " PubMed " (it has a really long url that I can't remember)

you will find the citations to more articles. PubMed is the bibliographic

database maintained by the National Library of Medicine. On the left hand column

select " single citation matcher " . Type in B6 autism in the title box.

TAAT is more of an " alternative treatment " and I can't find any published

material on it. The only thing I am going on is word of mouth (all positive). I

am using a company called Neurogistics. (www.neurogistics.com) I have to send in

a urine sample and they are going to test her neurotransmitter levels. Based on

the results they will recommend supplements that I can buy from them. The nice

thing about this is that eventually the neurotransmitters will balance out,

whereas with the B6 I think you always have to take it. Some of the studies

showed behaviors coming back once stopped.

Another thing a lot of parents do on the attachment group is use NR

(neuro-reorganization). It is a series of exercises that " re-wire " the brain. My

daughter is too young for that but everyone has had positive results. You can

find out more on the attach-china group. It's a group for children adopted from

China with attachment disorder. Attachment disorder is primarily found in

adopted kids but the behaviors are similar to autism.

HTH,

Marie

-- In autism , " Debra Byrne " <patrickbyrne2@...>

wrote:

>

> HI, and welcome to a VERY supportive and friendly group of people!

>

>

>

> I am the mother of three ( none on the spectrum) but I am a se aide and this

> past 2 yrs worked with a young man on the spectrum. Sinse have found a deep

> interest in things pertaining to asd.

>

>

>

> Can you tell me more about TAAT and b6

>

>

>

> Reply personally if you want

>

> byrne2@...

>

>

>

> Thank-you

>

> Debra

>

> nj

>

>

>

> From: autism

> [mailto:autism ] On Behalf Of

> marie_elaine1357

> Sent: Wednesday, September 02, 2009 9:26 AM

> autism

> Subject: Introduction

>

>

>

>

>

> Hi. I'm Marie. I am a single mother and have a 21 month old daughter I

> adopted from Vietnam last year at 9.5 months old. She has developmental

> delays and is in therapy. She had a social/cognitive evaluation by a special

> ed teacher a few months ago and she thinks she has autism but her ped. never

> suggested it. We are going to a developmental pediatrician in Dec. to see

> what he thinks. Her autistic tendencies are decreased eye contact, lack of

> initiating play, doesn't point to things, speech delay and taps her head

> with fingers on her left hand. She has a new special ed teacher who said she

> is not convinced she has autism. I took her to an autism screening at the

> university and they said she was a complicated case because of her orphanage

> background and diagnosed mild attachment disorder and she couldn't hear

> until she was 15 months old after she had tubes put in her ears. They

> recommended further evaluation. The guy was a psychologist, not a doctor.

> She has an attachment therapist who says the lack of eye contact (which has

> since improved) and decreased social initiative (which has also improved)

> can be explained by the attachment disorder. The strange hand mannerism has

> also decreased. She used to do it constantly and now every so often. This

> may be an anxiety thing. I am going to start her on TAAT (targeted amino

> acid therapy). People in my attachment group use that and it has made many

> children more engaging. If I don't see a difference I am going to try high

> dose vitamin B6 with magnesium. I am a medical librarian and have read

> several articles on the benefits of that for autistic behaviors. Sorry for

> such a long post! Thank you for letting me join the group. I am looking

> forward to learning all I can.

>

> Marie

> mom to Jasmine

>

[Guest guest]

Hi Debra,

A summary of B6 studies can be found at

http://www.autism.com/treatable/supplement/b6studies.htm

Also, if you google " PubMed " (it has a really long url that I can't remember)

you will find the citations to more articles. PubMed is the bibliographic

database maintained by the National Library of Medicine. On the left hand column

select " single citation matcher " . Type in B6 autism in the title box.

TAAT is more of an " alternative treatment " and I can't find any published

material on it. The only thing I am going on is word of mouth (all positive). I

am using a company called Neurogistics. (www.neurogistics.com) I have to send in

a urine sample and they are going to test her neurotransmitter levels. Based on

the results they will recommend supplements that I can buy from them. The nice

thing about this is that eventually the neurotransmitters will balance out,

whereas with the B6 I think you always have to take it. Some of the studies

showed behaviors coming back once stopped.

Another thing a lot of parents do on the attachment group is use NR

(neuro-reorganization). It is a series of exercises that " re-wire " the brain. My

daughter is too young for that but everyone has had positive results. You can

find out more on the attach-china group. It's a group for children adopted from

China with attachment disorder. Attachment disorder is primarily found in

adopted kids but the behaviors are similar to autism.

HTH,

Marie

-- In autism , " Debra Byrne " <patrickbyrne2@...>

wrote:

>

> HI, and welcome to a VERY supportive and friendly group of people!

>

>

>

> I am the mother of three ( none on the spectrum) but I am a se aide and this

> past 2 yrs worked with a young man on the spectrum. Sinse have found a deep

> interest in things pertaining to asd.

>

>

>

> Can you tell me more about TAAT and b6

>

>

>

> Reply personally if you want

>

> byrne2@...

>

>

>

> Thank-you

>

> Debra

>

> nj

>

>

>

> From: autism

> [mailto:autism ] On Behalf Of

> marie_elaine1357

> Sent: Wednesday, September 02, 2009 9:26 AM

> autism

> Subject: Introduction

>

>

>

>

>

> Hi. I'm Marie. I am a single mother and have a 21 month old daughter I

> adopted from Vietnam last year at 9.5 months old. She has developmental

> delays and is in therapy. She had a social/cognitive evaluation by a special

> ed teacher a few months ago and she thinks she has autism but her ped. never

> suggested it. We are going to a developmental pediatrician in Dec. to see

> what he thinks. Her autistic tendencies are decreased eye contact, lack of

> initiating play, doesn't point to things, speech delay and taps her head

> with fingers on her left hand. She has a new special ed teacher who said she

> is not convinced she has autism. I took her to an autism screening at the

> university and they said she was a complicated case because of her orphanage

> background and diagnosed mild attachment disorder and she couldn't hear

> until she was 15 months old after she had tubes put in her ears. They

> recommended further evaluation. The guy was a psychologist, not a doctor.

> She has an attachment therapist who says the lack of eye contact (which has

> since improved) and decreased social initiative (which has also improved)

> can be explained by the attachment disorder. The strange hand mannerism has

> also decreased. She used to do it constantly and now every so often. This

> may be an anxiety thing. I am going to start her on TAAT (targeted amino

> acid therapy). People in my attachment group use that and it has made many

> children more engaging. If I don't see a difference I am going to try high

> dose vitamin B6 with magnesium. I am a medical librarian and have read

> several articles on the benefits of that for autistic behaviors. Sorry for

> such a long post! Thank you for letting me join the group. I am looking

> forward to learning all I can.

>

> Marie

> mom to Jasmine

>

[Guest guest]

Thank-you for your time and help I will go do the research as

soon as I get the kitchen back together.. lol.. summer is too long some days..

Take care and god bless

Debra

nj

From: autism

[mailto:autism ] On Behalf Of marie_elaine1357

Sent: Wednesday, September 02, 2009 10:19 AM

autism

Subject: Re: Introduction

Hi Debra,

A summary of B6 studies can be found at http://www.autism.com/treatable/supplement/b6studies.htm

Also, if you google " PubMed " (it has a really long url that I can't

remember) you will find the citations to more articles. PubMed is the

bibliographic database maintained by the National Library of Medicine. On the

left hand column select " single citation matcher " . Type in B6 autism

in the title box.

TAAT is more of an " alternative treatment " and I can't find any

published material on it. The only thing I am going on is word of mouth (all

positive). I am using a company called Neurogistics. (www.neurogistics.com) I

have to send in a urine sample and they are going to test her neurotransmitter

levels. Based on the results they will recommend supplements that I can buy

from them. The nice thing about this is that eventually the neurotransmitters

will balance out, whereas with the B6 I think you always have to take it. Some

of the studies showed behaviors coming back once stopped.

Another thing a lot of parents do on the attachment group is use NR (neuro-reorganization).

It is a series of exercises that " re-wire " the brain. My daughter is

too young for that but everyone has had positive results. You can find out more

on the attach-china group. It's a group for children adopted from China with

attachment disorder. Attachment disorder is primarily found in adopted kids but

the behaviors are similar to autism.

HTH,

Marie

-- In autism ,

" Debra Byrne " <patrickbyrne2@...> wrote:

>

> HI, and welcome to a VERY supportive and friendly group of people!

>

>

>

> I am the mother of three ( none on the spectrum) but I am a se aide and

this

> past 2 yrs worked with a young man on the spectrum. Sinse have found a

deep

> interest in things pertaining to asd.

>

>

>

> Can you tell me more about TAAT and b6

>

>

>

> Reply personally if you want

>

> byrne2@...

>

>

>

> Thank-you

>

> Debra

>

> nj

>

>

>

> From: autism

> [mailto:autism ]

On Behalf Of

> marie_elaine1357

> Sent: Wednesday, September 02, 2009 9:26 AM

> autism

> Subject: Introduction

>

>

>

>

>

> Hi. I'm Marie. I am a single mother and have a 21 month old daughter I

> adopted from Vietnam last year at 9.5 months old. She has developmental

> delays and is in therapy. She had a social/cognitive evaluation by a

special

> ed teacher a few months ago and she thinks she has autism but her ped.

never

> suggested it. We are going to a developmental pediatrician in Dec. to see

> what he thinks. Her autistic tendencies are decreased eye contact, lack of

> initiating play, doesn't point to things, speech delay and taps her head

> with fingers on her left hand. She has a new special ed teacher who said

she

> is not convinced she has autism. I took her to an autism screening at the

> university and they said she was a complicated case because of her

orphanage

> background and diagnosed mild attachment disorder and she couldn't hear

> until she was 15 months old after she had tubes put in her ears. They

> recommended further evaluation. The guy was a psychologist, not a doctor.

> She has an attachment therapist who says the lack of eye contact (which

has

> since improved) and decreased social initiative (which has also improved)

> can be explained by the attachment disorder. The strange hand mannerism

has

> also decreased. She used to do it constantly and now every so often. This

> may be an anxiety thing. I am going to start her on TAAT (targeted amino

> acid therapy). People in my attachment group use that and it has made many

> children more engaging. If I don't see a difference I am going to try high

> dose vitamin B6 with magnesium. I am a medical librarian and have read

> several articles on the benefits of that for autistic behaviors. Sorry for

> such a long post! Thank you for letting me join the group. I am looking

> forward to learning all I can.

>

> Marie

> mom to Jasmine

>