Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Thank you so much to everyone who has offered compliments! It truly means the world to me. I haven't followed the BFL book exactly, but I keep it pretty darn close. The only things I do differently are: 1. I keep going for at least an extra 10 minutes in cool-down mode (level 5 intensity) after my HIIT cardio. I have a tendency toward migraines if I don't do this. 2. I go for a brisk 45 minute walk as many days as I can, in addition to the standard BFL workouts. I consider this " extra daily movement " rather than " extra cardio " since I sit most of the day and rarely leave the house (I work at home). 3. I take my free day for food on Saturday, but my free day from exercise on Sunday. As far as eating, I'm not the picture of perfection, but here's a typical day: Meal 1: 2/3 Myoplex, small banana, flax oil, creatine Meal 2: Egg Beaters, mixed veggies Meal 3: light yogurt, cottage cheese Meal 4: chicken breast, pinto beans Meal 5: protein powder, oatmeal Meal 6: cottage cheese, apple Meal 1 is a little high on carbs, but I've found I need that after a workout. Meal 2 makes up for it with a little less carbs. Ideally flax oil and creatine wouldn't be in the same meal, but this is most convenient for me. I also need to eat more vegetables but I can't stand them. Learning to like (or at least tolerate) them is one of my goals for challenge 2 ;-) On most days I have around 1600 calories. A lot of people eat less, but that just leaves me exhausted and grumpy. I worked hard to not go overboard on free days; usually just went crazy for one meal, and ate well the rest of the day. One of my most important goals was/is to help others. I'm not an expert and I hate to post too much, but I'm more than happy to help anybody with anything I can! > > > Hello everyone! > > > > I have read this board on and off for about a year > > and a half, but > > have never posted. All of the people who recently > > joined and the > > fellow lurkers who made posts have inspired me to > > escape from > > lurkdom. > > > > I'm currently in week 10 of my challenge. For some > > reason I have a > > lot of bravery today, and I actually posted pictures > > as well (see > > the folder). I have started at least a > > handful of challenges > > in the past, but this will be the first one I > > finish. > > > > For the people just starting the challenge, please > > don't > > underestimate the mental aspect. In another post, > > pointed out > > some articles on her site that cover this better > > than I could ever > > hope to (e.g., " This is Your Brain on Body For Life " > > > > http://www.skwigg.com/id60.html) My past challenges > > failed because > > I didn't have good reasons. Simply " to be thin " or > > " to be in good > > shape " wasn't enough. I had to figure out the > > compelling, emotional > > reasons I can't live anymore in the shape that I've > > been in. > > > > I was always the biggest cynic of the mental > > transformation that > > Bill discusses in the BFL book. I thought, " Yeah, > > right. Eating > > this way and working out is really going to change > > my life and my > > brain. Don't give me that touchy-feely crud. " But > > when you open > > yourself up it really does happen! If you commit to > > BFL and really > > dedicate yourself to making changes, you will not > > believe the > > changes inside and out. I am a 100% different > > person than I was > > before, and am inspired to make major changes in my > > life in other > > areas. > > > > This is an awesome group to be a part of. Thank you > > to everyone who > > offers their support, advice, and insight. > > Hopefully I can offer > > some help in the future! Thanks for listening > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Good luck with your challenge! Weeks 3 and 4 were always the ones where I derailed in the past, because the results at that point are so out of proportion with the effort you're making. Keep the faith that your changes will come! I'm 5'7 " , and lost 15 pounds so far (from 175.5 to 160.5). At the end of week 4, I had only lost 4 lbs and my pictures looked almost identical to my befores. The pics really started to show a change in week 6. Once that happens, it all gets a lot easier P.S. Thanks for the compliments! > > Hello everyone! > > > > I have read this board on and off for about a year and a half, but > > have never posted. All of the people who recently joined and the > > fellow lurkers who made posts have inspired me to escape from > > lurkdom. > > > > I'm currently in week 10 of my challenge. For some reason I have > a > > lot of bravery today, and I actually posted pictures as well (see > > the folder). I have started at least a handful of > challenges > > in the past, but this will be the first one I finish. > > > > For the people just starting the challenge, please don't > > underestimate the mental aspect. In another post, pointed > out > > some articles on her site that cover this better than I could ever > > hope to (e.g., " This is Your Brain on Body For Life " > > http://www.skwigg.com/id60.html) My past challenges failed > because > > I didn't have good reasons. Simply " to be thin " or " to be in good > > shape " wasn't enough. I had to figure out the compelling, > emotional > > reasons I can't live anymore in the shape that I've been in. > > > > I was always the biggest cynic of the mental transformation that > > Bill discusses in the BFL book. I thought, " Yeah, right. Eating > > this way and working out is really going to change my life and my > > brain. Don't give me that touchy-feely crud. " But when you open > > yourself up it really does happen! If you commit to BFL and > really > > dedicate yourself to making changes, you will not believe the > > changes inside and out. I am a 100% different person than I was > > before, and am inspired to make major changes in my life in other > > areas. > > > > This is an awesome group to be a part of. Thank you to everyone > who > > offers their support, advice, and insight. Hopefully I can offer > > some help in the future! Thanks for listening > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Did you start taking creatine right from the beginning or later on in your challenge? --- nheyrman <nheyrman@...> wrote: > Good luck with your challenge! Weeks 3 and 4 were > always the ones > where I derailed in the past, because the results at > that point are > so out of proportion with the effort you're making. > Keep the faith > that your changes will come! > > I'm 5'7 " , and lost 15 pounds so far (from 175.5 to > 160.5). At the > end of week 4, I had only lost 4 lbs and my pictures > looked almost > identical to my befores. The pics really started to > show a change > in week 6. Once that happens, it all gets a lot > easier > > > > P.S. Thanks for the compliments! > > > > > Hello everyone! > > > > > > I have read this board on and off for about a > year and a half, > but > > > have never posted. All of the people who > recently joined and > the > > > fellow lurkers who made posts have inspired me > to escape from > > > lurkdom. > > > > > > I'm currently in week 10 of my challenge. For > some reason I > have > > a > > > lot of bravery today, and I actually posted > pictures as well > (see > > > the folder). I have started at least a > handful of > > challenges > > > in the past, but this will be the first one I > finish. > > > > > > For the people just starting the challenge, > please don't > > > underestimate the mental aspect. In another > post, pointed > > out > > > some articles on her site that cover this better > than I could > ever > > > hope to (e.g., " This is Your Brain on Body For > Life " > > > http://www.skwigg.com/id60.html) My past > challenges failed > > because > > > I didn't have good reasons. Simply " to be thin " > or " to be in > good > > > shape " wasn't enough. I had to figure out the > compelling, > > emotional > > > reasons I can't live anymore in the shape that > I've been in. > > > > > > I was always the biggest cynic of the mental > transformation that > > > Bill discusses in the BFL book. I thought, > " Yeah, right. > Eating > > > this way and working out is really going to > change my life and > my > > > brain. Don't give me that touchy-feely crud. " > But when you > open > > > yourself up it really does happen! If you > commit to BFL and > > really > > > dedicate yourself to making changes, you will > not believe the > > > changes inside and out. I am a 100% different > person than I was > > > before, and am inspired to make major changes in > my life in > other > > > areas. > > > > > > This is an awesome group to be a part of. Thank > you to everyone > > who > > > offers their support, advice, and insight. > Hopefully I can > offer > > > some help in the future! Thanks for listening > > > > > > > > > > __________________________________ Discover Get on-the-go sports scores, stock quotes, news and more. Check it out! http://discover./mobile.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 I took creatine right away. I found that it really helped with my muscle soreness compared with the times that I didn't take it (though that could be all in my head). I'm cutting it out for my last 2 weeks. > > > > Hello everyone! > > > > > > > > I have read this board on and off for about a > > year and a half, > > but > > > > have never posted. All of the people who > > recently joined and > > the > > > > fellow lurkers who made posts have inspired me > > to escape from > > > > lurkdom. > > > > > > > > I'm currently in week 10 of my challenge. For > > some reason I > > have > > > a > > > > lot of bravery today, and I actually posted > > pictures as well > > (see > > > > the folder). I have started at least a > > handful of > > > challenges > > > > in the past, but this will be the first one I > > finish. > > > > > > > > For the people just starting the challenge, > > please don't > > > > underestimate the mental aspect. In another > > post, pointed > > > out > > > > some articles on her site that cover this better > > than I could > > ever > > > > hope to (e.g., " This is Your Brain on Body For > > Life " > > > > http://www.skwigg.com/id60.html) My past > > challenges failed > > > because > > > > I didn't have good reasons. Simply " to be thin " > > or " to be in > > good > > > > shape " wasn't enough. I had to figure out the > > compelling, > > > emotional > > > > reasons I can't live anymore in the shape that > > I've been in. > > > > > > > > I was always the biggest cynic of the mental > > transformation that > > > > Bill discusses in the BFL book. I thought, > > " Yeah, right. > > Eating > > > > this way and working out is really going to > > change my life and > > my > > > > brain. Don't give me that touchy-feely crud. " > > But when you > > open > > > > yourself up it really does happen! If you > > commit to BFL and > > > really > > > > dedicate yourself to making changes, you will > > not believe the > > > > changes inside and out. I am a 100% different > > person than I was > > > > before, and am inspired to make major changes in > > my life in > > other > > > > areas. > > > > > > > > This is an awesome group to be a part of. Thank > > you to everyone > > > who > > > > offers their support, advice, and insight. > > Hopefully I can > > offer > > > > some help in the future! Thanks for listening > > > > > > > > > > > > > > > > > > > > > __________________________________ > Discover > Get on-the-go sports scores, stock quotes, news and more. Check it out! > http://discover./mobile.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 i took it at the beginning and it definitly helped with soreness, but now that isn't too much of a problem, so, i'm quitting b/c of " the bloat " and other debated health reasons...I may go back on it someday if i ever lose all this fat nheyrman wrote: > I took creatine right away. I found that it really helped with my > muscle soreness compared with the times that I didn't take it > (though that could be all in my head). I'm cutting it out for my > last 2 weeks. > > > > > > > Hello everyone! > > > > > > > > > > I have read this board on and off for about a > > > year and a half, > > > but > > > > > have never posted. All of the people who > > > recently joined and > > > the > > > > > fellow lurkers who made posts have inspired me > > > to escape from > > > > > lurkdom. > > > > > > > > > > I'm currently in week 10 of my challenge. For > > > some reason I > > > have > > > > a > > > > > lot of bravery today, and I actually posted > > > pictures as well > > > (see > > > > > the folder). I have started at least a > > > handful of > > > > challenges > > > > > in the past, but this will be the first one I > > > finish. > > > > > > > > > > For the people just starting the challenge, > > > please don't > > > > > underestimate the mental aspect. In another > > > post, pointed > > > > out > > > > > some articles on her site that cover this better > > > than I could > > > ever > > > > > hope to (e.g., " This is Your Brain on Body For > > > Life " > > > > > http://www.skwigg.com/id60.html) My past > > > challenges failed > > > > because > > > > > I didn't have good reasons. Simply " to be thin " > > > or " to be in > > > good > > > > > shape " wasn't enough. I had to figure out the > > > compelling, > > > > emotional > > > > > reasons I can't live anymore in the shape that > > > I've been in. > > > > > > > > > > I was always the biggest cynic of the mental > > > transformation that > > > > > Bill discusses in the BFL book. I thought, > > > " Yeah, right. > > > Eating > > > > > this way and working out is really going to > > > change my life and > > > my > > > > > brain. Don't give me that touchy-feely crud. " > > > But when you > > > open > > > > > yourself up it really does happen! If you > > > commit to BFL and > > > > really > > > > > dedicate yourself to making changes, you will > > > not believe the > > > > > changes inside and out. I am a 100% different > > > person than I was > > > > > before, and am inspired to make major changes in > > > my life in > > > other > > > > > areas. > > > > > > > > > > This is an awesome group to be a part of. Thank > > > you to everyone > > > > who > > > > > offers their support, advice, and insight. > > > Hopefully I can > > > offer > > > > > some help in the future! Thanks for listening > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________ > > Discover > > Get on-the-go sports scores, stock quotes, news and more. Check it > out! > > http://discover./mobile.html > > > > > ------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 My name is , and I live in Sweden. I have six children aged 15 years down to 7 years. Our youngest daughter, Kajsa, has since she was 3 months old in periods had high fever, pain in her throat, neck and stomac. Now our paediatrician thinks she has RFAPA. I've heard from another mother here in Sweden with a child with RFAPA, that by a age of 7-8 years, it will " grow away " . Hope this will help you al litte, ce. (and Kajsa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hello . I am also a mother from Sweden with a 3 year old daughter that suffers from . This is the first time I've heard from anyone else in Sweden with the same concern. Do you know how many children in Sweden that has this syndrome? May I ask which paediatrician your daughter goes to? Sincerely, -Karin - -- In , Schönström <maria.schonstrom@t...> wrote: > My name is , and I live in Sweden. I have six children aged 15 years down to 7 years. Our youngest daughter, Kajsa, has since she was 3 months old in periods had high fever, pain in her throat, neck and stomac. Now our paediatrician thinks she has RFAPA. > I've heard from another mother here in Sweden with a child with RFAPA, that by a age of 7-8 years, it will " grow away " . Hope this will help you al litte, ce. > (and Kajsa) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hello -Karin has a swedish mailinglist for parents to children with RFAPA. It seems like most of the parents have been in contact with a doctor in Gothenburg, but Kajsa goes to a paediatrician in Lund. I recommend you to sign up on the swedish mailinglist. Our family are still new on this problem with RFAPA, so I'm learning every day about this diagnosis, and the swedish list have helped me a lot. Good luck, and maybe we can talk in swedish soon (and Kajsa) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2005 Report Share Posted July 5, 2005 Hello ce, I am sorry to hear that both your girls suffer from the fevers. I also have 2 little girls with fevers. They were diagnosed with HIDS at the National Institute of Health (NIH) in the U.S. last year. The difference between and the genetic fevers is that does go away after about 6-10 years. Genetic Fevers are life long diseases. They do not go away. Your doctor is correct in saying that not all the mutations for the genetic fevers have been discovered, so your children could still have a genetic fever and test negative for it. You or your doctor can get in touch with Dr. Kastner the lead doctor of the NIH study. He may have further ideas for your doctor or may welcome your daughters into his periodic fever study. That way, if a new mutation is found, it may help to diagnose your daughters. (There is current information in the Files section of this website, or you can look up the NIH website too. While anything is possible, most cases of sibling with periodic fevers usually turn up with genetic causes, not . My daughters are 2 years apart in age, but when the youngest started fevering too, she often fevered with her older sister. I know it is very difficult to take care of 2 sick children at the same time. Wilke Mom to HIDs kids Hana 4 and Georgia 2 Vancouver BC Canada > Good morning, > > My name is ce and I am the mother of two little girls and > Lea (will be 3 on September). > > They both suffer of periodic fever since 18 months. > > They have a brother , 6 years old which is a nice boy healthy. > > The fever has start in January 2004 by a huge stomatitis with a fever > higher than 40°C (both girls in the same time) > > Then they have a fever crisis each 3 weeks (fever higher than 40°C > during 4 days) without other symptom, only a " rosy " throat and sometimes > some aphtous in the mouth. > > After 6 months I asked the paediatrician to make all tests required in > order to find what they were suffer of. > > We have found that during the crisis they have a very high inflammatory > disease (CRP). > > This " CRP " level becomes normal after the crisis. > > Then we made genetic tests: FMF, TRAPS and HIDS. > > All results are negative. > > The new Paediatrician who is now in charge of my little girls thinks > that they have . > > This Paediatrician is in France the specialist for periodic fever. > > He explained to me that even if the genetic tests are negative we can > not be sure at 100% because the scientists don't know yet all the > mutations of these genes. > > At each crisis I give them prednisone during 3 days. > > The cortisone makes the fever down within one hour. > > Since 4 months they have also abdominal paints. > > I would like to know from your experience when this disease will > stop????? > > Thanks for your help, hope to hear from you soon > > > ce > Mom of and Lea (3 years) both > And 6 years > From Paris > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 HI there. I'm new here, too, and hope to do well with this program. Good luck! > Hey everybody! > I'm new here and glad to have found this group. I have had all my BFL > stuff for a very long time,,,,,and every week I " THINK " about starting > and every week I don't! > That is about to change. I am starting tomorrow,,,mid week. I have not > been successful dieting or exercising in the past but I feel ready > NOW! I am 47 (my birthday is Oct 15) and I want to, no, I am GOING to > lose 20 pounds by then. I have alot more than that to lose, but I want > to be realistic. > I'm looking forward to getting to know you all for the long haul! > > Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Cheryl! I am also new to this forum. I am starting the challenge tomorrow. My goal is to lose 30 pounds. I have also had the book for a few weeks and had every intention of starting. But this is the time. I am looking forward to getting on with this and seeing some good results. Good luck. We can do this together! Jules Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Cheryl! I am also new to this forum. I am starting the challenge tomorrow. My goal is to lose 30 pounds. I have also had the book for a few weeks and had every intention of starting. But this is the time. I am looking forward to getting on with this and seeing some good results. Good luck. We can do this together! Jules Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Hi Cheryl! I am also new to this forum. I am starting the challenge tomorrow. My goal is to lose 30 pounds. I have also had the book for a few weeks and had every intention of starting. But this is the time. I am looking forward to getting on with this and seeing some good results. Good luck. We can do this together! Jules Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2005 Report Share Posted July 6, 2005 Thanks for the welcome! I'm really excited to start! It sounds like we have alot in common! Cheryl > > From: Borgfeldt <hb1007hb@...> > Date: 2005/07/05 Tue PM 09:52:41 EDT > > Subject: Re: introduction > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 Hi Kriss. Try keeping track of the fever cycles. They are not always exact, but close. At first my son did not exhibit any other symptoms, then he started with the very swollen lymph nodes on his neck, vomiting, canker sores and lethargy. A lot of times doctors like to try prednisone treatment ( 1 dose at onset of fever ) to rule out . If after the dose his fever stops, this is a good sign. With an infection the fever will come back right away. In most cases with the fever stops completely. Although the prednisone can make the fevers come closer together. Keep researching. Kriss Winchester <bizwords@...> wrote:My name is Kriss, and I have three sons. Tyler, 14; Colin, 12; and Caleb, who turned 3 in April. Caleb's had a fever at least once or twice a month since January with no other symptoms (at least that he could articulate!) other than refusal to eat (spitting out his food) and once in a while vomiting. Three times this year the doctor's said it's a virus after not finding any other sort of infection of ears or sinuses, and after he's tested negative for strep. This last Monday we noticed lesions on his tongue during the exam, which the doctor said was common with a viral infection in young children. I asked to do a blood work-up; they did, doctor called and left a message that everything was normal. I don't know exactly what tests were ordered; I will find out when I return to the doctor with Caleb next week. I believe he may have . Daycare doesn't like him there when he has a fever; as a single mom with no support from his father, it's tough to miss work. Ibuprofen usually, but not always, brings the fever down. His older brothers never had anything like this; they have a different father. The episodes don't seem to have a set number of days between them, but I really haven't been counting. As a third-time mom, I've learned not to let fevers set off alarm bells. But it seems like he's had fevers with no other symptoms fairly frequently, although I would just feel his forehead and give him Ibuprofen and he'd be fine in a day or two. Fevers seem to be getting higher and more often. What should I do/say/ask when I return to the doctor's office next week? I'm looking forward to learning more through the resources here. All the best, Kriss --------------------------------- Start your day with - make it your home page Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 Thank you for your personal post. It is so painful, sad, and then infuriating to learn what has happened to our children. We seek political answers to find what exactly is happening medically to them, how to heal them, and finally to bring to all parties justice. There are almost 1000 people on this list -- a list of a thousand heartaches and a thousand stars of hope. Welcome. Lenny Schafer EOHarm list Host. > Hello to all! I am a new member here and would like to introduce myself. My > name is and I am the mother of a 4 year old son with diagnosis > PDD/Autism and a 2 year old " neurotypical " daughter. > My son was diagnosed on May 24, 2004. It was the hardest day of my life. I > have since studied all that I can find on autism. I do believe that the > cause of my son's autism was one of two things: mercury from vaccines (have > sent baby hair of, just haven't received results yet) or the twelve bouts of > antibiotics that he received in the second year of his life. We have been on > the GFCF diet for about 3 months now and are starting to see wonderful > results. > I bought the book Evidence of Harm on June 8th since that was the day that a > lot of groups had asked for a mass sell of this book so that it could go > into the best sellers list. I am only on page 250 after a month and a half. > I would usually read a book in just a couple of weeks even though I am the > mother of two and work 40 hours a week, but this book has been different. I > can only read a little bit at a time before having to put it down! It makes > me so mad that they knew about all this way before my son received his first > injection on the day of his birth, March 2, 2001 (One of the greatest days > of my life. Tied only with the birth of his sister.) They could have avoided > so much pain and suffering for the parents of these children. The burden > that we have to go through to get our children back no parent should ever > have to bear. I know it will all be worth it in the end. One day my son will > be able to understand all that I am doing and I hope that through my actions > he can see how truly deep my love runs for him. There is nothing that I > wouldn't do for either of my children. I would lay down my life for them > without a moments hesitation. Because without them I would have no life! > Sorry I have gone on and on, but I am so proud to be part of this group and > I look forward to learning more from each of you! > Sincerely, > H. > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.338 / Virus Database: 267.9.8/61 - Release Date: 8/1/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 OOps I meant decrease the number of bad days-sorry. Deb Deb Olon-West 716-672-5678 e-mail: bunnylady@... www.double-d-ranch.net http://groups.msn.com/DoubleDRanchAnimalShelter www.petfinder.org/shelters/NY595.html 112 bunnies placed since 8-02 Dale Olon-West Mad Scientist Web Design madscientist@... http://www.madscientistwebdesign.com/ Introduction Hi, I started with the Kombucha about 5 years ago and can't remember why I stopped, but have been looking for another source to start again. I found the source and will be picking it up this weekend. The reason I started in the first place is because I have MS and thought it would help to bring the energy level up, which it did for the first month. What I did not know was that I was supposed to increase the dosage and was in the process of moving in the city, etc. so I gave it away. Now that I have moved the the country in NY, I would like to start again. The country air and relative quiet has already helped, but I want to continue this upswing and improvement. I guess the goal is to increase the number of 'bad' days and keep myself out of the wheelchair. I am already been running a rabbit shelter for 3 years and am working a 'farmette', but am hoping that the tea will help me with the energy level. I am looking forward to anything this group has to offer and am excited to be a part of it. Deb aka bunnylady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2005 Report Share Posted August 22, 2005 Hi Deb, There is no doubt in my mind that the KT will give you more energy and overall health benefits. You don't by any chance drink diet soda do you? If so, stop, it mimics MS and other various diseases. Have you tried a naturopathic physician for your MS? They can usually help you. They will give you herbs that will help your body heal itself. If your doctor told you there is no cure for MS don't believe it, there is, just not with drugs. Judy > Hi, > I started with the Kombucha about 5 years ago and can't remember why > I stopped, but have been looking for another source to start again. > I found the source and will be picking it up this weekend. > > The reason I started in the first place is because I have MS and > thought it would help to bring the energy level up, which it did for > the first month. What I did not know was that I was supposed to > increase the dosage and was in the process of moving in the city, > etc. so I gave it away. > > Now that I have moved the the country in NY, I would like to start > again. The country air and relative quiet has already helped, but I > want to continue this upswing and improvement. I guess the goal is > to increase the number of 'bad' days and keep myself out of the > wheelchair. I am already been running a rabbit shelter for 3 years > and am working a 'farmette', but am hoping that the tea will help me > with the energy level. > > I am looking forward to anything this group has to offer and am > excited to be a part of it. > > Deb aka bunnylady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2005 Report Share Posted October 19, 2005 Hi , My name is Gretchen and My son is 12 1/2 with Pfapa. was diagnosed 3 years ago and he is cycling every 3 weeks since May. We tried the prednisone last cycle it took the fever away but not the other symptoms so he still felt crummy and not good enough to go to school. The fever does'nt bother him as much as the other stuff so he does'nt care for the prednisone. It is hard for to miss school but we are so glad he is a good student and keeping up almost straight A's. Hang in there. I'll talk to you soon? Gretchen <ke821david@...> wrote: Hi all: I am mom of an 11 yr old boy with new diagnosis of . He has had symptoms for 9 months. We have just tried prednisone and it seems to be reducing fever this time. Anyone else have a child this old? --------------------------------- Music Unlimited - Access over 1 million songs. Try it free. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 WELCOME, Ali ! I'm glad you joined, and I hope you find this list as helpful as I have. There are SO many nice folks here! Love, ~Mom ;o) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Ali, It is nice that you joined this list! Welcome! Congrats on your new marriage. greendaygirl39 <nimrod2985@...> wrote: Hey all, just thought I would quickly introduce myself. My name is Ali, I'm 20 and my husband, has SMA type 2. My mother is on this list, Chrisn1220@... and I recieve no PCA help or anything like that, anyone else like us? Love to all, Ali and Ali July 30th 2005 Forever and Beyond A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Hi Ali, I have SMA type 2 also, married for 4 years. I also live in Massachusetts, and we also do not recieve PCA help or anything. Take Care, Simone --- greendaygirl39 <nimrod2985@...> wrote: > Hey all, just thought I would quickly introduce > myself. > My name is Ali, I'm 20 and my husband, has > SMA type 2. > My mother is on this list, Chrisn1220@... > > and I recieve no PCA help or anything like > that, anyone else > like us? > > Love to all, > Ali > > and Ali > July 30th 2005 > Forever and Beyond > > > > Album: http://community.webshots.com/user/ssegerter Website: http://www.geocities.com/sunshine9573 " Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved. " __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Nice! Has your spouce recieved any special training? I have not, all the things I know has taught me. I was thinking though if it couldnt hurt to get some training. Love, Peace and Green Day, Ali + Re: Introduction Hi Ali, I have SMA type 2 also, married for 4 years. I also live in Massachusetts, and we also do not recieve PCA help or anything. Take Care, Simone --- greendaygirl39 <nimrod2985@...> wrote: > Hey all, just thought I would quickly introduce > myself. > My name is Ali, I'm 20 and my husband, has > SMA type 2. > My mother is on this list, Chrisn1220@... > > and I recieve no PCA help or anything like > that, anyone else > like us? > > Love to all, > Ali > > and Ali > July 30th 2005 > Forever and Beyond > > > > Album: http://community.webshots.com/user/ssegerter Website: http://www.geocities.com/sunshine9573 " Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved. " __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2005 Report Share Posted November 3, 2005 Ali, I agree that it would be best to have some training. Every one of us is different in the care that we need and I'm sure is great about communicating his needs and explaining to you how to do things the way he needs them done, but it can never hurt to learn basics regarding sanitation and especially proper lifting procedures so as not to hurt yourself. <3 Kendra > > > Hey all, just thought I would quickly introduce > > myself. > > My name is Ali, I'm 20 and my husband, has > > SMA type 2. > > My mother is on this list, Chrisn1220@a... > > > > and I recieve no PCA help or anything like > > that, anyone else > > like us? > > > > Love to all, > > Ali > > > > and Ali > > July 30th 2005 > > Forever and Beyond > > > > > > > > > > > > Album: http://community.webshots.com/user/ssegerter > Website: http://www.geocities.com/sunshine9573 > " Character cannot be developed in ease and quiet. Only through experience of > trial and suffering can the soul be strengthened, vision cleared, ambition > inspired, and success achieved. " > > > > > __________________________________ > FareChase: Search multiple travel sites in one click. > http://farechase. > > > > A FEW RULES > > * The list members come from many backgrounds, ages and beliefs So all > members most be tolerant and respectful to all members. > > * Some adult language and topics (like sexual health, swearing..) may > occur occasionally in emails. Over use of inappropriate language will > not be allowed. If your under 16 ask your parents/gaurdian before you > join the list. > > * No SPAMMING or sending numerous emails unrelated to the topics of > spinal muscular atrophy, health, and the daily issues of the disabled. > > Post message: > Subscribe: -subscribe > Unsubscribe: -unsubscribe > > List manager: (Sexy Mature Artist) Email: Esma1999@a... > > > > > oogroups.com > > List manager: (Sexy Mature Artist) Email: Esma1999@a... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2005 Report Share Posted November 4, 2005 Nope, no training at all, all of the things he does, I've basically taught him. You do have one thing that we don't though, your mom is here and she's very supportive. Steve and I have no family here, none of his are in this country and my closest is my sister in Florida. Anyway, if you want to chat offlist feel free to email me. Love, Simone --- nimrod2985@... wrote: > Nice! Has your spouce recieved any special > training? I have not, all the things I know > has taught me. I was thinking though if it couldnt > hurt to get some training. > > Love, Peace and Green Day, > Ali + Album: http://community.webshots.com/user/ssegerter Website: http://www.geocities.com/sunshine9573 " Character cannot be developed in ease and quiet. Only through experience of trial and suffering can the soul be strengthened, vision cleared, ambition inspired, and success achieved. " __________________________________ FareChase: Search multiple travel sites in one click. http://farechase. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.