Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 Hi Misty, Welcome I'm new to making toiletries and aromatherapy dept and welcome any and all advice you're willing to share. I've had a blast looking at web sites and ideas of others and have been doing a lot of research before I jump in with both feet. I do ask a lot of questions in the learning how to's but do take notes, and absorb all I can. <G> I'm glad to have you aboard. I've probably driven the others nuts with my questions. They're probably glad to have another experienced here too. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 10, 2002 Report Share Posted September 10, 2002 What type of aromatherapy arrangements to do make?? I am also open to new ideas!! Aromasentials introduction > Hi Im Misty-and i just joined this group. I live in Mass. married 14 > years today,and have 2 terrific sons. I do my ownAromatherapy and silk > floral arrangements at home and i sell quite abit ! Im hoping to make > some new friends here and exchange recipes /help members here who would > like to learn. I have much to offer so please dont hesitate to ask > questions etc;!!! Hugs-Misty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 HI Misty and welcome !!!! Everyone here is so helpful and friendly..I am relatively new-only been doing this for about a year now and I have learned SO much from the wonderful people on this site. I hope you enjoy it as much as I do !!! Vicki Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 thank you Vicki for the welcome. there is a problem my pposts that i writeto the group are not showing up---only my introduction post has shown up!!! Does anyone know why my posts arent being posted like the rest of the groups???? This probably wont get posted either!!! Thanks again Vicki ~Misty http://community.webtv.net/mpw98/doc http://community.webtv.net/mpw98/doc0 http://community.webtv.net/mpw98/ForeverYoursATouch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2002 Report Share Posted September 11, 2002 Hi Pam---thanks for the welcome---just remember one thing---you can never ask too many questions---this is how we learn!!!! So ask away and i'll do my best to answer yor questions Im so glad to be here---I think im really going to like it here! Hugs~Misty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 At 12:27 PM 3/9/03 +0000, you wrote: > > Hi ...used to be very involved with this list a long time ago ...and just > > couldn't stay away. So, I quietly came back. Glad to see a couple of > > familiar names! (waving hi.) what a treat to see your smiling typeface, Shoshana! Your source for superb Essential Oils, Aromatherapy Accessories, Information, Books and more! Visit us at: <http://www.naturesgift.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Hi Carol, welcome to the list. I am fairly new to making toiletries and am just about to jump into the soapmaking end of it. I am so pumped, just got to find the time! I am sure that you will be contributing a lot of knowledge to this list and I am looking forward to learning from you. I have learned soo much from the incredible people here and am very gratefull to have found it. Have fun! Oh yes, I love to sew and haven't had the time to do that either! Leanna in Alberta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 Hi Leanna, Thanks for the welcome. I remember back when I first started learning. I was so excited and devoured every piece of information I could find. Still do when I have the time to put into research. I'm a learning geek, which presents a problem with my homeschooled stepson because he's the exact opposite. *g* I haven't done any sewing since I was a teen, and had to do it in high school Home Ec. I am not a sewer. My " masterpiece " for the class was a full length skirt that somehow ended up with two waistbands, one above the other. Won't mention how my coordinating vest turned out. LOL I hope to be contributing more in the near future once I have my online shop finished (or at least to a level where it isn't occupying so much of my time). Most of the static pages are done or are under way, except for my library section called the Herb Garden. I'm currently working on getting Interchange set up for my catalog and cart, and it's taking up quite a bit of my time and brain power because of the way it works and is organized. Thankfully it's getting easier as I learn my way around it. Again, thanks for the welcome. Hope you have a great weekend. It's raining here. :-( But I think I'm going to take a brain break and play with M & P. Carol Dragon's Pearls http://www.dragonspearls.com > Hi Carol, welcome to the list. I am fairly new to making toiletries and am just about to jump into the soapmaking end of it. I am so pumped, just got to find the time! I am sure that you will be contributing a lot of knowledge to this list and I am looking forward to learning from you. I have learned soo much from the incredible people here and am very gratefull to have found it. Have fun! Oh yes, I love to sew and haven't had the time to do that either! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2003 Report Share Posted May 6, 2003 Hi , I'm in Alberta too, about 15 minutes south of Calgary. I've just made my 3rd batch of soap, crockpot method, and I am so pumped about this! I started with the bath salts, lip balms...lotions ...about a 1 1/2 years ago. Only wish I had more time, money, energy, room...LOL! Anyway, it's nice that you came out of lurkdom, I'm sure I can benefit from all of your knowledge. Ain't this " spring " weather great?! I am getting depressed. Guess I need to haul out my citrus e.o.'s! Have a great day. Leanna in Alberta. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2004 Report Share Posted January 19, 2004 Dear Michele, Glad to see you made it. I've been on this list (usually lurking) since the mid-90's, and there is always something new and interesting on it. You'll learn tons of stuff. Tina www.essentialherbal.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 > ....My name is Maya (female) and I suffer type 2, in my 22 year of living. I am in a electric chair and other than that I use no support devices or anything similar, never had surgery, but I do have back curvature... Weakness in progress but has been on more-less same level for a time. Right handed thus stronger on the whole right side. I can still function pretty well considering... Economics technician by degree but do nothing in the field. I spend time interacting with paper and pen or wood panel and paint brush. Read, music keeps me sane, contemplate... I had an older sister with SMA type 1 who died of lung disease at age 5. I am living with parents who take care of me in the countryside, Serbia & Montenegro (Yugoslavia). > > Maya > http://www.brightdarkness.webpicturebook.com/ Welcome Maya, Nice to see somebody from Serbia-Montenegro in the group. I used to be in Belgrade often and I really feel like home in your country. Your paintings are very beautiful and I think you could try to make a living out of that :-) I envy you for your creativity. I am from Holland and I am 37 years old. I have a lovely wife and a beautiful son of 16 months. I have SMA type3. Eddy > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Zdravo Maya! Welcome to the list! My name is Radmila and I live in Bosnia/Sarajevo. It's very close to you. I'm 21 years old and I have SMA 2. I was diagnosed when I was 1 and a half. I have been a member of this community for about 3 years already, though I don't post much. But this is a great group, very informative. I've learnt so many things from it... It's really great to see you joined the list, because I've never known anyone with SMA from Serbia. I have many relatives living in Serbia. My aunt, uncle and cousins live in Belgrade, and I have family in other parts of Serbia too. I went once to Belgrade and once to Smederevo, but that was when I was very young (about 2 years old), so, unfortunatelly, I don't rememeber much of that. If you wish to talk you can e-mail me privately, off list, on this e-mail: mrt@.... then we will talk in Serbian ) Radmila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Maya & Radmila! How very cool to find close neighbors on this list. It seems hard for many people outside the U.S. and Northern Europe to find others witth SMA around them. Glad you're both on the list! Alana Berkeley, California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2004 Report Share Posted February 12, 2004 - Hey, welcome! I'm 33 and have SMA II too. I'm also married (13 years this June) and have two daughters Emili (age 10) and Ravyn (age 6). Jenn Ronningen wrote: > Greetings all, > > I'm new to this message service. My name is and I have Type II > SMA. I'm 33 years old, married and enjoy playing chess. I just had > my first child, my son named Ethan. Check out his website: > http://home.mindspring.com/~boojiboy/ > <http://home.mindspring.com/%7Eboojiboy/> > > I've become much more involved with the SMA community once I learned > that my niece Lindsey was diagnosed with SMA Type I. Her is her > website: http://www.geocities.com/benefitlindsey/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Is there any information out there that shows when children typically outgrow this Syndrome? Our daughter is five and we feel that this () is what she has. Our pediatrician (God bless him) diagnosed this early. Believe me, we can work through anything as long as we still have Maggie in our lives. Introduction Hello Everyone, For over 5 months our daughter, who turned 2 in April, has been having regular fevers every 24-28 days which last for 3-5 days with fevers that reach up to 105 degrees. In February, she had her first febrile seizure. During the seizure she turned blue, stopped breathing and was foaming at the mouth. Of course, I performed CPR and called 911. We thought then how unfortunate it was for our family to have to be worried about this eventhough the doctors told us not to worry. It wasn't until a few weeks later when she had a another severe fever while our family was vacationing in Antigua and we spent a night in the hospital that we started to realize that her fevers were recurrent. Of course, our pediatrician kept telling us it was viral. Each time they would treat her with antibiotics just in case it wasn't viral. So all winter, my daughter has been on antibiotics once a month...this cannot be good for her. Knowing that, my husband and I started demanding this week that our pediatrician run blood tests and stop chalking it up to unexplainable viral infections. When my husband found this site it all sounded so familiar and started to really come together in our heads that might very well be what our daughter is experiencing. We have asked our pediatrician to consider this and he has accepted this possibility. He would like us to track the fevers...we are anticipating her next episode around July 4th. Based upon the blood tests, she does not have cyclical neutropenia. The last two episodes the doctors have noticed " ulcers " on the back of her throat near her tonsils and thought that it was tonsillitis...I am now thinking they are the " apthous ulcers " in . Her pediatrician says the only component that doesn't really match is the swollen glands, he says he doesn't find her to have swollen glands...hmmm? If she does have , this site will prove to be a wonderful coping tool. If she doesn't, I can still relate to all the parents who must sacrifice sleep and personal space to make their children comfortable every month. I truly feel for every single parent and child dealing with this. Best Regards, Phelps and Chip Hoag Sandwich, New Hampshire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Is there any information out there that shows when children typically outgrow this Syndrome? Our daughter is five and we feel that this () is what she has. Our pediatrician (God bless him) diagnosed this early. Believe me, we can work through anything as long as we still have Maggie in our lives. Introduction Hello Everyone, For over 5 months our daughter, who turned 2 in April, has been having regular fevers every 24-28 days which last for 3-5 days with fevers that reach up to 105 degrees. In February, she had her first febrile seizure. During the seizure she turned blue, stopped breathing and was foaming at the mouth. Of course, I performed CPR and called 911. We thought then how unfortunate it was for our family to have to be worried about this eventhough the doctors told us not to worry. It wasn't until a few weeks later when she had a another severe fever while our family was vacationing in Antigua and we spent a night in the hospital that we started to realize that her fevers were recurrent. Of course, our pediatrician kept telling us it was viral. Each time they would treat her with antibiotics just in case it wasn't viral. So all winter, my daughter has been on antibiotics once a month...this cannot be good for her. Knowing that, my husband and I started demanding this week that our pediatrician run blood tests and stop chalking it up to unexplainable viral infections. When my husband found this site it all sounded so familiar and started to really come together in our heads that might very well be what our daughter is experiencing. We have asked our pediatrician to consider this and he has accepted this possibility. He would like us to track the fevers...we are anticipating her next episode around July 4th. Based upon the blood tests, she does not have cyclical neutropenia. The last two episodes the doctors have noticed " ulcers " on the back of her throat near her tonsils and thought that it was tonsillitis...I am now thinking they are the " apthous ulcers " in . Her pediatrician says the only component that doesn't really match is the swollen glands, he says he doesn't find her to have swollen glands...hmmm? If she does have , this site will prove to be a wonderful coping tool. If she doesn't, I can still relate to all the parents who must sacrifice sleep and personal space to make their children comfortable every month. I truly feel for every single parent and child dealing with this. Best Regards, Phelps and Chip Hoag Sandwich, New Hampshire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi Jay Luther and ! From reading most of the literature regarding , it seems that most kids who actually have outgrow this at around 8 years from onset. Some deal with it til about pre-adolescence, it varies. Has your daughter been tested for all of the genetic diseases that greatly mimic , such as FMF, Traps, or Hids? Alot of kids on this site were originally diagnosed with only to be further tested and found to have one of the genetic disorders, my son included. Those disorders will not be out- grown and must be treated specifically depending on which one your dealing with. Some are alot rarer than others. In any case, it might be a good idea to discuss this with your pediatrician, to make sure he hasn't already done that testing. Fran has some great information in the files and links section that you could read and possibly share with your doc. Welcome to both of you. I hope this site grows to be as huge a support for you as it has been for myself and many others! Pat Bombardier mom to PJ, 11yo, Familial Mediterranean Fever,(FMF) Manassas,Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi Jay Luther and ! From reading most of the literature regarding , it seems that most kids who actually have outgrow this at around 8 years from onset. Some deal with it til about pre-adolescence, it varies. Has your daughter been tested for all of the genetic diseases that greatly mimic , such as FMF, Traps, or Hids? Alot of kids on this site were originally diagnosed with only to be further tested and found to have one of the genetic disorders, my son included. Those disorders will not be out- grown and must be treated specifically depending on which one your dealing with. Some are alot rarer than others. In any case, it might be a good idea to discuss this with your pediatrician, to make sure he hasn't already done that testing. Fran has some great information in the files and links section that you could read and possibly share with your doc. Welcome to both of you. I hope this site grows to be as huge a support for you as it has been for myself and many others! Pat Bombardier mom to PJ, 11yo, Familial Mediterranean Fever,(FMF) Manassas,Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 , We're going to biopsy her lymph nodes in her neck next week, the doctors want to rule out lymphobia. I don't think she has cancer, she is five and she's been running the fevers on a cycle for about 6 months. We had to admit her to the hospital two months ago when she ran extremely high fevers for 4 days and they couldn't figure out what was causing it. We tested her Gall Bladder, checked her spleen,liver etc.... nothing. She gets these fevers everymonth and is fine between episodes and even during episodes when her fever lowers. She got the canker sore under the tongue on her last outbreak, so I feel that we're close to diagnosing her with PFABA. Doctors are just concerned that her lymph node in her neck stays swollen, it gets much larger during her fever outbreaks. Jay Re: Introduction Hi Jay Luther and ! From reading most of the literature regarding , it seems that most kids who actually have outgrow this at around 8 years from onset. Some deal with it til about pre-adolescence, it varies. Has your daughter been tested for all of the genetic diseases that greatly mimic , such as FMF, Traps, or Hids? Alot of kids on this site were originally diagnosed with only to be further tested and found to have one of the genetic disorders, my son included. Those disorders will not be out- grown and must be treated specifically depending on which one your dealing with. Some are alot rarer than others. In any case, it might be a good idea to discuss this with your pediatrician, to make sure he hasn't already done that testing. Fran has some great information in the files and links section that you could read and possibly share with your doc. Welcome to both of you. I hope this site grows to be as huge a support for you as it has been for myself and many others! Pat Bombardier mom to PJ, 11yo, Familial Mediterranean Fever,(FMF) Manassas,Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 , We're going to biopsy her lymph nodes in her neck next week, the doctors want to rule out lymphobia. I don't think she has cancer, she is five and she's been running the fevers on a cycle for about 6 months. We had to admit her to the hospital two months ago when she ran extremely high fevers for 4 days and they couldn't figure out what was causing it. We tested her Gall Bladder, checked her spleen,liver etc.... nothing. She gets these fevers everymonth and is fine between episodes and even during episodes when her fever lowers. She got the canker sore under the tongue on her last outbreak, so I feel that we're close to diagnosing her with PFABA. Doctors are just concerned that her lymph node in her neck stays swollen, it gets much larger during her fever outbreaks. Jay Re: Introduction Hi Jay Luther and ! From reading most of the literature regarding , it seems that most kids who actually have outgrow this at around 8 years from onset. Some deal with it til about pre-adolescence, it varies. Has your daughter been tested for all of the genetic diseases that greatly mimic , such as FMF, Traps, or Hids? Alot of kids on this site were originally diagnosed with only to be further tested and found to have one of the genetic disorders, my son included. Those disorders will not be out- grown and must be treated specifically depending on which one your dealing with. Some are alot rarer than others. In any case, it might be a good idea to discuss this with your pediatrician, to make sure he hasn't already done that testing. Fran has some great information in the files and links section that you could read and possibly share with your doc. Welcome to both of you. I hope this site grows to be as huge a support for you as it has been for myself and many others! Pat Bombardier mom to PJ, 11yo, Familial Mediterranean Fever,(FMF) Manassas,Va. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Jay, In your email you mentioned lymph nodes that stay swollen. My son's lymph nodes (especially the one in the back of his neck on the right) but also under his chin to a lesser degree- always are a little swollen and get worse with the fevers. It feels like he has a little marble under his skin on the back of his neck. One doctor mentioned a biopsy, but then decided against it. Another doctor told us (after the blood tests came out ok) that when he first saw Drew he immediately thought cancer. It's such a scary possibility that after considering that, I agree with you, we can deal with whatever has thrown at us! My son is 2.5 yrs and has been cycling since 9 months of age, and we got a diagnosis at 18 months of age. mom to Drew, age 2 Coventry RI > , > We're going to biopsy her lymph nodes in her neck next week, the doctors > want to rule out lymphobia. I don't think she has cancer, she is five and > she's been running the fevers on a cycle for about 6 months. We had to admit > her to the hospital two months ago when she ran extremely high fevers for 4 > days and they couldn't figure out what was causing it. We tested her Gall > Bladder, checked her spleen,liver etc.... nothing. She gets these fevers > everymonth and is fine between episodes and even during episodes when her > fever lowers. She got the canker sore under the tongue on her last outbreak, > so I feel that we're close to diagnosing her with PFABA. Doctors are just > concerned that her lymph node in her neck stays swollen, it gets much larger > during her fever outbreaks. Jay > ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Jay, In your email you mentioned lymph nodes that stay swollen. My son's lymph nodes (especially the one in the back of his neck on the right) but also under his chin to a lesser degree- always are a little swollen and get worse with the fevers. It feels like he has a little marble under his skin on the back of his neck. One doctor mentioned a biopsy, but then decided against it. Another doctor told us (after the blood tests came out ok) that when he first saw Drew he immediately thought cancer. It's such a scary possibility that after considering that, I agree with you, we can deal with whatever has thrown at us! My son is 2.5 yrs and has been cycling since 9 months of age, and we got a diagnosis at 18 months of age. mom to Drew, age 2 Coventry RI > , > We're going to biopsy her lymph nodes in her neck next week, the doctors > want to rule out lymphobia. I don't think she has cancer, she is five and > she's been running the fevers on a cycle for about 6 months. We had to admit > her to the hospital two months ago when she ran extremely high fevers for 4 > days and they couldn't figure out what was causing it. We tested her Gall > Bladder, checked her spleen,liver etc.... nothing. She gets these fevers > everymonth and is fine between episodes and even during episodes when her > fever lowers. She got the canker sore under the tongue on her last outbreak, > so I feel that we're close to diagnosing her with PFABA. Doctors are just > concerned that her lymph node in her neck stays swollen, it gets much larger > during her fever outbreaks. Jay > ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi and Chip, It's good to remember that not every child exhibits every symptom of . It's a weird one! My son (thank GOD) never got mouth ulcers, but had all the other symptoms. Hang in there. It sounds like you're doing everything right. Rosemarie Mom to Danny age 10 (fever free for two years since tonsillectomy) Denver, CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 Hi and Chip, It's good to remember that not every child exhibits every symptom of . It's a weird one! My son (thank GOD) never got mouth ulcers, but had all the other symptoms. Hang in there. It sounds like you're doing everything right. Rosemarie Mom to Danny age 10 (fever free for two years since tonsillectomy) Denver, CO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2004 Report Share Posted June 22, 2004 I Tania and welcome. Is your doctor planning to do genetic testing for FMF, TRAPS and HIDS? Rosemarie Mom to Danny age 10 Denver, CO Quote Link to comment Share on other sites More sharing options...
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