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The American Pain Foundation

I myself live in so much pain.

Elvira

June Pain Monitor

Home | About Us | Contact Us | Support Us

Pain Monitor

June 2006

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THE NEWS

Food and Drug Administration Licenses New Vaccine to Reduce Older

Americans' Risk of Shingles

The FDA has licensed Zostavax, a new vaccine to reduce the risk of

shingles (herpes zoster) for use in people 60 years of age and older.

Novel Research Points to Promising Relief Target for Chronic Pain

New research appearing in the Journal of Neurophysiology reported

that the place to look is between the nerves that are producing the pain and the

spine, rather than from the spine to the brain.

Chronic Pain Hurts Both Workers and Employers

Wayne Hochwarter, an associate professor of management in Florida

State University's College of Business, has conducted several studies to examine

the role of chronic pain on work factors such as job stress, employee

performance and organizational profitability. He found that social stigmas and

job fears help mask the true size of the problem.

Global Problem Of Adherence To Osteoporosis Treatment Puts Lives At

Risk And Costs Billions

A new report from the International Osteoporosis Foundation (IOF)

details for the first time the global implications and significant personal,

social and economic costs associated with women not staying on their

osteoporosis treatment.

Combining Mainstream, Alternative Therapies Brings Back Pain Relief

Used together, conventional and complementary/alternative treatments

help patients ease their low back pain better than using mainstream treatment

alone.

Knee Replacement: Surgery Can Relieve Pain

Knee replacement surgery can help relieve pain and restore function

in severely diseased knee joints.

Study Suggests Tension Headache May Actually Be TMJD

People whose recurrent headaches have been diagnosed as

tension-related actually may be suffering from temporomandibular muscle and

joint disorder, or TMJD.

People Who Have Trigeminal Neuralgia Know the Depths of Chronic Pain

A little known disorder called trigeminal neuralgia causes severe

facial pain.

Military Online Program Screens for Mental Health Problems

The Department of Defense launched an online Mental Health

Self-Assessment Program four months ago to help service members and their

families screen for mental health conditions, such as post-traumatic stress

disorder. The confidential program, which is available 24/7 at no cost, is

divided into subsections for depression, post-traumatic stress, anxiety, bipolar

disorder and alcohol abuse. The program reviews answers to questions about

recent behavior and mood, and if a user's answers indicate a possible problem,

it suggests options for seeking help.

Scientists Look at Genetic Cause for IBS

Researchers found that nearly half of the close relatives of people

suffering from irritable bowel syndrome also said they were affected by the

disorder.

Chronic Pain Syndrome Hits Women Harder

Being in pain isn't easy and can place serious obstacles in your

path. But for hundreds of thousands of Americans, mostly women, who suffer from

a chronic pain syndrome known as reflex sympathetic dystrophy syndrome (RSD),

the pain can be constant and excruciating, making it difficult to even get

through the day.

Managing Chronic Pain Helps Arthritis Sufferers Stay Active

As joints deteriorate over time, it becomes more important for

arthritis sufferers to learn how best to manage chronic pain.

Youth Overweight Increases Risk of Bone Fractures, Muscle and Joint

Pain

Children and adolescents who are overweight are more likely to

suffer bone fractures and have joint and muscle pains, according to a study

conducted at the National Institutes of Health.

Canadian RSD/CRPS Survey

Our pain community friends in Canada need help in finding out about

reflex sympathetic dystophy syndrome (RSD), also known as complex regional pain

syndrome (CRPS). If you are Canadian and have been diagnosed with CRPS/RSD,

suspect you may have CRPS/RSD, have been diagnosed with fibromyalgia in the

upper extremities or if you have similar symptoms and no diagnosis, please go to

http://www.rsdcananda.org/ and complete their online survey.

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LEGISLATIVE UPDATE

Congressional Briefing On Pain Was A Success!!!

The Congressional Briefing on Pain, held June 13, 2006 on Capitol

Hill, was attended by over 100 congressional staffers and pain advocates. The

room was packed and over-flowing into the hall, as Rep. Mike , Rep.

Charlie Norwood and featured speakers passionately shared the facts about pain,

the personal and economic impact of this " silent epidemic, " and the critical

need for federal pain policy and legislation. Click here for a full report.

THANK YOU to each and every one of you who responded to the

Congressional Pain Briefing Alert! Over 2,000 of you responded and encouraged

your Representatives to attend the briefing. BRAVO!

We want to know! Share with us how you'd like to get involved and

ways you might be able to contribute your voice and skills to our joint efforts

by completing our online Advocacy Survey. By completing the Advocacy Survey,

your information will: provide valuable guidance for our efforts, let us know

how you might like to be involved and assist in determining how to best target

your advocacy interest and experience as it is needed on important issues. We

welcome your participation and look forward to working with you!

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APF NEWS

Pain has taken away all of my independence.

We understand how much pain has affected your life whether you are

the one with pain, the caregiver, family member or friend. Over a year ago we

asked the question, " how has pain affected your independence? " and got many

powerful replies (click here to read some of them). We think of this again as

we approach Independence Day and reflect on the injustice of the undertreatment

of pain in this country. At APF, we are not just reflecting however, we are

taking action! In collaboration with others, we orchestrated a Congressional

Briefing on June 13 to educate Congress on the impact of pain in this country,

the loss of independence, the financial toll, the human toll. We brought your

stories and explained the barriers to effective pain treatment, the research

that needs to be done, and the education that needs to happen.

Support this and other efforts to take action against pain by

donating to the American Pain Foundation. Secure online donations can be made

by clicking here. If you prefer, you can mail your donation to: American Pain

Foundation, 201 N. Street, Suite 710, Baltimore, MD 21201.

Contributions to the American Pain Foundation are tax-deductible. Look here for

many more ways that you can help us in our efforts to eliminate the

undertreatment of pain and help someone you love.

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SCIENCE & MEDICINE

Journal of Pain Medicine

The Journal of Pain Medicine is offering free access for a limited

time to its May 2006 supplement focusing on neuromodulation/spinal cord

stimulation for chronic pain conditions, including interstitial cystitis, pelvic

pain, low back pain, facial pain, headaches and RSD. The issue also includes

psychological considerations and the History of Electrical Neuromodulation for

Chronic Pain.

Pain Management for Sickle Cell Disease (Abstract)

The primary aim of the article review was to assess the

effectiveness of pharmacological analgesic interventions for pain management in

sickle cell disease, including the treatment of acute and chronic pain in

children and adults.

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APF Hosts Information Series in APF Pain Monitor

APF started its question and answer section in January 2004 with

articles addressing frequently asked questions about pain, answered by Dr.

Fishman. These articles originally appeared on the DiscoveryHealth web site.

Dr. Fishman has updated three documents, originally published on the

APF website in 2004. Please review the new versions:

#12 -2 Inhibitors

#17 Neurontin

#18 Glucosamine and Chondroitin

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COMPLEMENTARY/ALTERNATIVE MEDICINE

Music May Reduce Chronic Pain

Research published in the Journal of Advanced Nursing has confirmed

that listening to music can have a significant positive impact on perception of

chronic pain. The study also found that music helped people feel less disabled

by their condition.

Hypnosis, Therapy May Help Irritable Bowel Syndrome

A new study indicates that short courses of hypnosis or cognitive

therapy may help to reduce the symptoms of irritable bowel syndrome.

Mastering Migraines

Can gentle, holistic healing methods really control a disease that

affects 28 million Americans and costs their employers 13 billion dollars

annually in lost worker productivity?

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EN ESPANOL

Preguntas Frecuentes Acerca de Cistitis Intersticial

La cistitis intersticial es un problema cronico de la vejiga. Cerca

de 750,000 estadounidenses tienen cistitis intersticial. La mayoria son

mujeres...

FamilyDoctor.org http://familydoctor.org/e717.xml

Women's Health.gov http://womenshealth.gov/faq/spanish/intcyst.htm

Asociacion de Cistitis Intersticial

http://www.ichelp.com/xit-es/LaCistitisIntersticialYLaDieta.html

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WEBSITE OF THE MONTH

The town University Health Policy Institute has written A

Consumer Guide For Getting and Keeping Health Insurance for each state and the

District of Columbia. The consumer guides are available online and will be

updated periodically as changes in federal and state policy warrant. The website

offers links to news, reports and information resources to help handle disputes

with health plans.

http://www.healthinsuranceinfo.net.

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UPCOMING EVENTS

August 17-19, 2006

The American Academy of Hospice and Palliative Medicine

Current Concepts in Palliative Care: Update and Review Course

Las Vegas, NV

September 7-10, 2006

17th Annual Clinical Meeting American Academy of Pain Management

Orlando, FL

September 11-12, 2006

The Fourth Scientific Meeting of The TMJ Association: A Systems

Approach to the Understanding of TMJ as a Complex Disease

Bethesda, MD

September 14-16, 2006

Trigeminal Neuralgia Association 6th National Conference

Portland, OR

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RESOURCES

Reflex Sympathetic Dystrophy Syndrome Association Resources

RSDSA Support Group Newsletter, May/June 2006 Issue

Resource Directory: In Pain, Out of Work and Can't Pay the Bills

PDF version and Web version

The Handbook of Health Social Work Published by Wiley & Sons

The Handbook of Health Social Work, a professional textbook,

provides a comprehensive and evidence-based overview of contemporary social work

practice in health care. Written from a wellness perspective, the chapters cover

the spectrum of health social work settings including with contributions on pain

management and palliative care (written by Terry Altilio, MSW, ACSW, Shirley

Otis-Green, MSW, ACSW, Hedlund, MSW and Iris Cohen-Fineberg, PhD) and end

of life care (written by Yvette Col?n, MSW, APF's Director of Education &

Internet Services). The textbook offers both a foundation for social work

practice in health care and a guide for strategy, policy, and program

development. Order a copy now!

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VOICES OF PEOPLE WITH PAIN

PainAid Online Support

Join our vibrant community and share discussion and your personal

stories with others affected by pain. Here you will find: Conference Rooms

(regularly scheduled chats on a range of issues); Discussion Boards (threaded

message boards on a broad range of topics); and Ask the Expert feature (pose

questions to licensed healthcare professionals). PainAid is staffed by highly

qualified volunteers with a range of backgrounds, all of whom either live with

chronic pain or care for people who do. Visit PainAid!

Be sure to check out the VOICES section of our website! New

personal stories are added weekly!

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Thank you to our medical/science editor, J. Vicente Ph.D.,

ABPP.

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It's not too late to join our mailing list by completing our " Get

Involved " form. Please forward this to a friend who might be interested in our

publications and projects.

Share with us how you'd like to get involved and ways you might be

able to contribute your voice and skills to our joint efforts by completing our

online Advocacy Survey. We welcome your participation and look forward to

working with you!

The American Pain Foundation is an independent, nonprofit

organization that relies upon private donations to fund its programs, services,

and distribution of educational materials. There are millions of people who live

with unrelieved chronic pain. If you can help, please make a donation to the

American Pain Foundation. For other ways you can support APF's work, please

visit our website at www.painfoundation.org.

To make sure you continue to receive our newsletters and alerts,

please add AmericanPainFounda@... to your address book or

approved sender list.

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© 2002 - 2006 American Pain Foundation

201 North Street, Suite 710, Baltimore, land 21201-4111

A 501©3 nonprofit organization.

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