Re: Re: OK, NOW IT'S TIME FOR MY FIT

[Guest guest]

You are very smart and perhaps your persistance eventually did some good. arl

erikmoldwarrior <erikmoldwarrior@...> wrote:

Gingersnap1964@... wrote:

> You are where I was at six months to a year ago. I was so pissed

off I even yelled at senators who wouldn't do anything. >

Yeah! That's where I was around eight years ago when I went

ballistic in Dr s office. I couldn't believe that after all

these years of asking, he was just going to keep stringing me along

and never even give me a definite answer as to whether he was EVER

going to investigate mold as I had asked at the very beginning of the

CFS epidemic when my illness started after I inhaled a crapload of

mold and fell flat on the ground.

So I slammed my fist on his desk and yelled " Just at least tell me

YES OR NO! "

And, of course - the answer was " no " .

His receptionists just glared at me with expressions of pure hatred.

They thought I was completely insane for daring to take issue with the

world famous doctor who was one of the heroes of the CFS epidemic.

But after I left his practice and started " extreme avoidance " , I

would stop by and drop off information about mold with one of the

receptionists, and I know that Dr read it, for although he

refused to ever speak to me again, when two of his patients that had

recovered on ampligen relapsed again, he told them to move out of

their moldy houses: a major difference from when he was telling me

that he thought that this strategy wouldn't help and mold wasn't the

problem.

Moving helped to prevent these two patients from getting worse, but

since they know nothing of making a more concerted effort at avoidance

as I had done, they moved their possessions with them, and they

haven't improved much since then.

I can't totally put all the blame on doctors for refusing to listen

to something that might help, because I spent years going to CFS

support groups and finding people expressing " The Right Clues " for

mold reactivity, and when I told them how much avoidance had helped

me - they would rhetorically demand " Who the Hell do you think you

are? " which is a far stronger expression of disinterest than I got

from doctors. It's ironic that my sensitivity would tell me that they

were covered with mold and yet they vehemently denied it because their

doctors had told them that mold reactivity is impossible.

Many had suspected it, but they believed their doctors and totally

denounced the concept and didn't want to hear a word about it.

So if I seem a bit arrogant at times, it's because I not only got

slammed from doctors, but was treated even worse by sick people

reeking with mold who thought it was arrogant and presumptuous of me

to think that I could tell them anything or knew something that

doctors did not.

Years of being treated this way tends to make a person somewhat

defensive. I probably just should have given up and not wasted my

time as Rick advised me to, but I really wanted this phenomenon

to be investigated, there is no one else who was in my position can

say the things I can about the origins of CFS, and I just couldn't

believe CFSers looking desperately for anything at all that might help

would continue to treat me this way.

Also it's because what I am thinking is " Who am I? I'm the CFS and

mold survivor who got to go out and climb mountains thanks to mold

avoidance, and you're a damned fool to be so quick to flush this

information down the toilet " .

-

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[Guest guest]

Barb,

The matter goes much deeper and is much more insidious than what you

describe. Since about the year 2000, industry has been given free reign over

many

aspects of our lives. By only having one party controlling the Presidency, the

House and the Senate, the checks and balances of government are not there.

There is too much power by one school of thought. And that school of thought

strongly supports commerce and industry.

As it pertains to the mold issue, the concept of " not plausible " is based on

a foundation that any high school student would be able to see through as not

sound science.

Yet, it was endorsed by major medical associations, primarily ACOEM. It was

then given the blessing of industry with the assistance of the US Chamber of

Commerce. The primary reason why you can't medical treatment is because to

acknowledge these illnesses as legitimate, would increase financial liability

for stakeholders.

The way it is controlled is by expert defense witnesses in mold litigation

being given carte blanche to write national medical protocol. Thus " not

plausible " . Many of these national policy writers involved in the mold issue

have

never even touched mold or mycotoxins within a lab setting. They have never

treated a patient as they are PhDs. They not even qualified to exam humans,

or even animals. All they really do is write review papers that they call

state of the art, but they really are not state of the art. They only cite

what they want to be seen that supports their point of view.

But the problem goes even deeper than this. In trying to understand how

this deceit could occur within medicine, I began to speak to doctors. By and

large, the doctors are also being victimized by the situation. Regarding mold,

they are being specifically fed propaganda that all you really want is to go

to court and get money from some poor building owner.

The medical associations, that write medical protocol have written in a

manner that is friendly to the insurance industry and hostile to you. Not just

regarding mold, but many illnesses. Workers comp is a primary area that has

been subjected to much questionable guidelines.

Doctors can't treat their patients under these guidelines and those who do,

become harassed and ostracized. Some have had their licenses challenged or

even taken away. The process is called " sham peer review " . It is happening

all across the country with increasing frequency. And oddly, but probably not

oddly, the documents of complaint against many of these doctors look very

similar. They vary little from state to state.

What appears to be happening is that there is benefit to being within the

inner circle of medical associations. And everyone else can go to hell.

In Ca, the guidelines for workers' comp that were written by ACOEM, have

caused such a problem, there was a state Senate meeting on the matter about a

month ago. Dcotors brought in their patients and spoke together of how industry

is limiting proper care.

In Washington, there was a large group of doctors that held a Congressional

briefing (primarily surgeons that could not operate because insurance said it

would not cover it - they challenged and were harassed).

In Mass, just last week there was an article in Boston Globe of a doctor

complaining of this. He is actually doing things that are illegal in order to

treat his patients. This is not a quack doctor, he is Harvard educated. And

yes, many of our mold doctors are feeling the heat.

So, when you get right to it, it is not merely rude doctors that treat you

like dirt because of misinfomation. It is not lack of understanding of these

illnesses. It is not even the mold itself that is a problem.

It is the underlying cause of greed and corruption allowed to run rampant in

this country since about the year 2000. I am not a Republican or a

Democrat. But, I think Bush is either an idiot or a very evil man.

Under his

stewardship, the rats have taken over the ship.

Sharon

Although I know a lot of doctors probably went into the field due

hoping to make a good living rather than because they wanted to " take

care of people " , I really think the fault lies in medical schools.

This is the way they are taught. Line these symptoms up with this

pill and those symptoms up with that pill, period. I've heard the

pharmaceutical industry picks up the bill for a lot of medical

education, providing the medical books, with glossy pictures of their

pills. I've talked to some doctors who don't even seem to know how

the body works.

[Guest guest]

Barb,

I know exactly what you mean. When we first started down this path, I felt

like Alice in Wonderland. What I was witnessing to be the truth, somehow was

not perceived as the truth. " What is isn't and what isn't is " .

It was from so many different angles it was hard to keep up with. Like, if

mold exposure within an indoor environment can cause absolutely no harm to my

family and myself, then why is it so dangerous for the workers that they

have to wear HazMat suits?

And if mold can grow within 48 hours, yet the remediation company let water

sit in the flooring for six weeks before drying, then why would the insurer

think mold could have been there before the leak?

If my daughter, who is immunocompromised, and I, who is not, have similar

symptoms after mold exposure then why is it logical to treat her symptoms with

antifungals, but I am just making mine up?

So yes, you are right, the doctors are a problem. But the question is Why

are they a problem. To find the answer to all of the above lunacy situations,

one simple has to follow the money. Its quite disgusting where the trail

leads. All roads end up in Washington DC.

Sharon

Hi Sharon,

I know you have been very involved in this and know about what you are

speaking out. I realized my explanation was over simplified and

situation was much more complicated. I guess what I wanted to say is

that I don't think the problem is at the doctor level. However I did

believe that at one time. Certainly there are too many doctors who

just don't care very much. However I seen that there are also many

caring doctors are being led to believe that mold is not a problem for

people's health and as you pointed out by a number of evil practices

going on.