Re: Re: Scare me about stachy ...

[Guest guest]

(Dr.) ,

I hate to sound too stupid -- Asmanex -- is that a steroid?? Other than that

I think the rest are for pain and general breathing stuff -- flonaise, zyrtec,

etc... the list is a little long for me and at times scares me (and my liver).

Very interesting note about colds -- I surely thought that was a good sign.

I am working with local dr's and have not really been encouraged by them to

seek outside help (surprise????).

I am particularly worried about very high C Pnu titers -- way off the chart

and have been for nearly 6 months -- and then the relationship to heart disease.

I am learning as I go along with this group and will (strongly) consider some

new items to do (and not do) in the future.

Thanks for the response -- Dave.

kl_clayton <kl_clayton@...> wrote:

I guess it would help to have more info, like what kind of dr, maybe some

other stuff.

IgG is a kind of immune response test my allergist runs on blood, one of them.

I'm not

sure what the number signifies. I am not sure what the reference to memory

means.

Not having a cold is common for us- our system gets revved up so much that the

regular

colds don't get us. That is not a good sign, it is a sign that your system is

still too revved.

When we start getting over the mold exposures, we tend to start catching colds,

at least

that is what many people here have reported in the past.

Have you been prescribed any antifungals? Many people end up with infections,

some in

ALL kinds of organs, GI tract, etc. the antifungals can help beat them down to a

mild roar.

The antifungals are reported to help with some of the asthma and other breathing

problems common in some exposed to mold (esp with concurrent sinus problems).

Have you been prescribed Cholestyramine? it is a cholesterol drug that is used

by

Shoemaker,etc, for removing the mold toxins from the body so they are not

continuously

recycled inside the body.

Are you taking steroids, even inhaled steriods? they can depress the body's

responses

even more, giving the mold a greater foothold than ever, also increasing the

chances of a

fungal or bacterial infection.

I am not a dr, nor am I any kind of medical person. I'm not giving medical

advice, just

some clues I have gleaned here.

Best Wishes,

> Thanks Carl. I think I will do experiment below. It would be

> interesting to see what grew if I didn't ever take the lid off of

> it!!! I knew there was a problem with testing Stachy but I didn't know

> what it was.

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[Guest guest]

kathryn (dr, just kidden)

I have in the past looked up most (but NOT all) of my meds -- if I recall -- I

was told that even though there may be some adverse effects there might be

benefits to outweigh. I have been told I have some lung scarring from Stachy,

and who knows what else -- as many molds were found at work. I think Zyrtec is

being targeted for removal from my list -- along with Duo Neb(sp) -- really

causes my BP to soar.

My lung dr (I have about 6 dr's for you name its) wants me to try the inhalers

to try and reduce scarring -- if possible -- just had another CAT scan -- will

know results in a few days and am schedule for bronchoscopy (sp) soon for strain

vocal cords and cough in same area -- most noted AFTER I come of a/b's for C Pnu

-- very disconcerting.

I agree -- I think some of these might be contributors -- but am putting trust

in a dr that has some good credentials -- so I am told.

Thanks for the input -- and will be glad to discuss more later -- have a safe

trip.

Dave (ya, I am cute -- it's the meds.........they have me on flirt pills).

kl_clayton <kl_clayton@...> wrote:

,

You are cute. You don't sound stupid, just as confused as the rest of us, we

maybe have

just been here a little longer.

anything with nase (or cort) in the name has some steroid in it, most likely,

like flonase,

which is an inhaled nasal steroid. I am looking up asmanex now........and it is,

yep, a

corticosteroid. Drs in this day and age really love those drugs. It is used as

an

antiinflammatory drug for asthma, on the reasoning that it cools off the

inflammation that

might just cause asthma.

From the website: http://www.drugs.com/asmanex.html

" What should I discuss with my healthcare provider before using Asmanex?

• Before using this medication, tell your doctor if you have a serious

viral, bacterial, or

fungal infection or if you have. The absorption of this drug into the system can

inhibit the

body's ability to fight off infections. You may not be able to use Asmanex if

you have an

infection.

also:

• To reduce the chance of developing a yeast infection in your mouth,

rinse the mouth

with water without swallowing after using Asmanex. "

***************

note: a yeast infection IS a fungal infection.

All in all so far, it sounds like you have an infection, pneumonia, and that

contraindicates

the use of steroids. So, maybe you should tell your dr, and decide if you really

need those

steroids. They could be making that infection worse.

Zyrtec is an antihistimine. Used for allergies. If you have allergies, and they

help you, well

and good, but if you are reactive from the mold only, they might not help. They

do help

me, I have many allergies. But some mold exposed people have no reactions to

allergy

skin tests, or allergy blood screens, and it would not help if that is the case.

You have to be the one to see what helps. Trial and error. If you do have

allergies, getting

a good allergy text from the library and starting to keep an allergy diary can

be very

valuable information. Like what reactions you have, what causes them. What time

of day,

year, etc. Also, you can learn about the medications you are taking, what they

are for, and

what categories they are. Like antihistimine, decongestant, steroid, inhaled,

nasal, oral.

I prefer to control my asthma by controlling my environement whenever possible.

EG, I

wheezed every time I went into the bedroom. after awhile, I decided to get rid

of the

carpet (also allergists say carpets in the bedroom are a no-no). Amazing. No

carpet, no

wheezing. And that is besides the mold thing.

I still have asthma from time to time, but not chronically, like before.

There is usually a way to get rid of the cause, if you can figure out what is

causing it. One

lady was allergic to salicylates, but her doc forgot to tell her about all the

salicylates in

foods. So she ended up with some pretty bad osteoporosis, and had asthma every

time

she tried to get off them. She changed drs, the new one wanted to know what she

was

allergic to, and helped her figure out what was setting her off. She stopped

eating foods

with salicylates, and was able to wean off the oral steroids over time, and her

asthma

didn't come back.

Well, this is too long (yawn). But one more thing. The mold can cause the

allergies to get

into high gear by itself. So if it is the mold you are allergic to, well, let me

know. I can tell

you what happened with me later. I am going to be out of town for a couple of

days, and

not checking email until the end of the week. You can back channel me if you

want.

(Not a Dr)

kathryn

PS- please tell me you will look up the stuff you are taking, so you have some

idea of what

med is for what part of this.

>

> (Dr.) ,

>

> I hate to sound too stupid -- Asmanex -- is that a steroid?? Other than

that I think the

rest are for pain and general breathing stuff -- flonaise, zyrtec, etc... the

list is a little long

for me and at times scares me (and my liver).

>

> Very interesting note about colds -- I surely thought that was a good sign.

>

> I am working with local dr's and have not really been encouraged by them to

seek

outside help (surprise????).

>

> I am particularly worried about very high C Pnu titers -- way off the chart

and have

been for nearly 6 months -- and then the relationship to heart disease.

>

> I am learning as I go along with this group and will (strongly) consider

some new items

to do (and not do) in the future.

>

> Thanks for the response -- Dave.

>

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