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EMILY

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  • 2 weeks later...

Its my son that has cyclic vomiting and chronic vomiting syndrome! Maybe you

can borrow him for a few weeks! Its great! Once he starts throwing up..he

just can't stop. He will throw up every 15 minutes until we get him to the

hospital to sedate him. He could provide great exposure therapy! Ha Ha!

Amy in ohio

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Dear Amy,

Thank you for the kind offer, but I think we'll stick to cat hair

balls for now. Your poor son. I really can't imagine anything worse for him

(and you) to go through. I guess I've learned to dread throwing up so much

because of my daughter - the whole subject makes all of us tense now!!

Has your son always had this? Is it related to stress? I'm just

curious. When Annie was four we drove halfway across the country with my

sister and her five year old son (what were we thinking?? For the last 12

hours her son kept repeating " I can't take it anymore! " ...) A few hours after

we arrived at my sister's house, Annie started throwing up. She continued to

throw up for five days there and all the way home. I remember calling her

pediatrician from a rest stop on the Ohio turnpike to discuss whether to stop

somewhere for a quick I.V. Great fun. Once we got home she stopped. Then the

next weekend her dad went away on a business trip and guess what? She threw

up again. Now when she is nervous she thinks she will throw up , but doesn't

(knock on wood).

You have been through some unbelievably hard times - I admire your

spirit.

Hang in there!

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Hello! Thanks for the words of encouragement!

Tom's vomiting disorder is related to migraines. Its the same part of the

brain that has that problem. A lot of the kids who start out with cyclic

vomiting end up with migraines instead when they are in their tens. It is

definately related to stress! In fact, Tom has been hospitalized with it 6

times this year and every time he has been there, it has been a Monday!

School is really stressful for him like it is for so many other kids on this

list. I am happy to say that I finally got him in to see a specialist on

this syndrome. I am hoping that we can cut down on the number of

hospitalizations by working with this new doc. We have to drive 45 minutes

away to the Children's hospital instead of right down the street, but I

think it will be worth it if they can cut back even one episode a year!

God luck with your fur balls!

Amy in Ohio

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  • 3 years later...

I have only had one done so far and that was enough... My tolerance to medication is so high that they never did knock me out and I did watch the monitor... They couldn't believe I was still awake, so they kept giving me more and more meds until the Dr. said we can't give her anymore, I had reached the limit... I didn't feel any pain, just the embarrassment of it all... But once it was all over with, and I was in recovery, I finally was able to nap a little...

Even though its not a test too many like to have done, it is a Nessasary test to stay safe...

((( Caring Hugs )))

Mom

Thank you for this information. The only point I would like to make is HOW IT FEELS. After having 12 scopes done to me, my doctor knows how scared I am so she makes sure I fell nothing at all during the test. Let you doctor understand, you have no need to watch the monitor and have it all explained if you would rather sleep. I like to sleep during mine and remember nothing! LOL...So as far as feeling the procedure, that can be nipped in the bud!

Or, if during the exam,tell you dr you want more medication and they will usually give you a higher dose. Easier that having your teeth cleaned!

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