Re: New diagnosis-Welcome (sorry so long)--trying to answer as accurately as pos

[Guest guest]

Hello again. I copied the questions you posed and the answers

follow below. Thanks...

What kind of physician gave you the diagnosis of MCS and what kind of

diagnostic tests were done to come to this conclusion?

I saw doctors for 5 months, two ear doctors, two allergists, and a

neurologist to no avail. My dizziness and lightheadedness were my

main issues at the time and they could find no vertigo or other

ear/neurological issues to attribute to my problems. After we found

the mold at home and I smelled it at work, I saw new doctors. Two

internists. One doctor works with seratonin & stress issues. They

looked at my symptoms & tested my seratonin level, it is 71 and

should be between 175-225.

Did this doctor consider toxic mold as a causative factor in your

symptoms? I discovered mold at work and home and since my allergy

tests show I am allergic they attribute my problems to enviromental

exposures.

Is your current physician suggesting chelation? One doctor has

referred me to a new doctor in the city, and suggested I look into

chelation.

If so, what is the purpose of the chelation? To remove heavy

metals? And would this be I.V. or oral chelation? I'm not sure, I

have an appointment for a consultation on the 20th of April.

Have you had a hair analysis preformed by a good laboratory along

with perhaps a urine provocation test? I asked the seratonin doctor

about hair testing for exposure and he cited studies where it was

shown to be unreliable. He took a blood test to check for heavy

metals which I should get results from within about 10 days.

Did you have your home tested to determine the type of mold which

you had remediated? Yes, we stayed in a hotel for a month after the

house tested positive since I have been sick for so long. It tested

positive for low (bathroom)/moderate (basement) levels of

Penicullium/asperigillus, cladosporium, and basidiospores.

Do you feel you are reacting in your home and feel better away

from the home or was this a complete remediation without any

cross-contamination? We tried hard not to contaminate the hotel,

washing all clothes when my husband went to the house, etc. I felt

worst at work, feeling some (but not enough) relief at home. I left

the house and after a weekend in the hotel, felt some relief from

the feverishness/sleeplessness/racing pulse/exhaustion. That Monday

after work it all came back to me and each day got worse. I finally

called in sick and after not working for awhile the f/s/r/e symptoms

subsided. Now I feel them once in awhile-when in a place

w/chemicals or mold (I think), and if I am in areas of my house

still chemical-smelling (from the remediation). Dizziness is off

and on, definitely stronger when near the basement.

>

> > From: cat082574 <crmorrone@...>>

> > Hi All. I have just discovered this website group and am glad

to know

> > that there are others who have delt with this kind of stuff and

I am

> > not crazy. I was recently diagnosed with MCS. I'm not sure if

it is

> > from just mold exposure or what. I am looking for any resources

in

> > the way of doctors, etc in the Chicago area. Have you heard of

> > Chelation therapy? The one doctor I am seeing now is just

giving me

> > Seratonin level raising supplements and they do not seem to be

> > helping. I have had my house remediated (only contained a small

amt)

> > and am currently on unpaid leave from work (the place I beleive

I have

> > been exposed to mold & whatever else they have there). My

workplace,

> > of course has been unwilling to do any type of testing (air or

> > otherwise) to substantiate my claims and said that since I am

the only

> > one complaining they shouldn't have to " re-do their entire

builing "

> > for one person. My symptoms range from lightheadedness,

feverishness,

> > joint pain, and numbness in my extremeties. Any info, advise,

would

> > be greatly appreciated. God Bless.

>

> Hi and Welcome to Sickbuildings. I'm sorry you had to find us

being ill;

> however I know many will try to assist you on this group.

>

> I don't know of a qualified physician in Chicago; however I do

have a few

> questions for you which may help us to give you better answers.

>

> What kind of physician gave you the diagnosis of MCS and what kind

of

> diagnostic tests were done to come to this conclusion? Did this

doctor

> consider toxic mold as a causative factor in your symptoms?

>

> Is your current physician suggesting chelation? If so, what is

the purpose

> of the chelation? To remove heavy metals? And would this be I.V.

or oral

> chelation? Have you had a hair analysis preformed by a good

laboratory

> along with perhaps a urine provocation test?

>

> Before you try any chelation; even oral or something simple as

some cyber

> recommended " natural " treatments, please make sure you understand

totally

> their actions. For example, cilantro has been show to mobilize

mercury and

> possibly other heavy metals from the tissues; however it has not

been shown

> to bind the now released heavy metals in the GI tract preventing

> reabsorption. If the now released mercury and other heavy metals

are not

> bound and excreted in the GI tract, this would present a problem

as you can

> imagine. This is why studies of single herbs in heavy metal detox

> protocols often yield disappointing results when used alone.

Attempting to

> use " natural " and at home protocols for heavy metal chelation needs

> supervision of a trained professional.

>

> We have a Schaller, M.D. on this group who was very generous

to give

> us a free download link to his e-book called Mold Illness Made

Simple. The

> same sells on Amazon in paperback form. If you are not yet

familiar with

> toxic mold illness and the mycotoxins I would suggest you download

the

> e-book and read. It's easy reading and very informative; makes a

wonderful

> primer. Dr. Schaller is also revising this e-book and has given

us a link

> to download the first 80 pages of the revised edition. Below are

both links

> for your information:

>

> http://www.gombach.com/schaller/SimpleMoldSample.pdf

> This is the first 80 pages in the newer design

>

> http://www.gombach.com/schaller/SimpleMoldEBook.pdf

>

> Did you have your home tested to determine the type of mold which

you had

> remediated? Do you feel you are reacting in your home and feel

better away

> from the home or was this a complete remediation without any

> cross-contamination?

>

> You have already been given the link to the http://www.mold-

help.org/ which

> has much data for you to read.

>

> We all care and feel free to ask as many questions as you need and

we'll try

> our best to answer them.

> Rosie

>

[Guest guest]

I forgot to add something...In an MRI the neurologist ordered, they

found inflammation of a nerve in my ear. I think this is the source

of my dizziness/lightheadedness--since a brief round of anti-

inflammitories seemed to curb the symptom--fo a little while

.. My workplace had a leaky pipe in the ceiling for over a year.

They ignored it for a long time...finally " fixing " it after they had

to replace several ceiling tiles and leaving a garbage can under it

to collect the moldy-smelling water (which I dumped out--since no

one else would).

I just looked over the sample from the book

http://www.gombach.com/schaller/SimpleMoldSample.pdf

and noted that the doctor notec there are spceial treatments to turn

off excess inflammation and mold toxin binders, any info on these

would be greatly appreciated...thanks...

> >

> > > From: cat082574 <crmorrone@>>

> > > Hi All. I have just discovered this website group and am glad

> to know

> > > that there are others who have delt with this kind of stuff

and

> I am

> > > not crazy. I was recently diagnosed with MCS. I'm not sure

if

> it is

> > > from just mold exposure or what. I am looking for any

resources

> in

> > > the way of doctors, etc in the Chicago area. Have you heard of

> > > Chelation therapy? The one doctor I am seeing now is just

> giving me

> > > Seratonin level raising supplements and they do not seem to be

> > > helping. I have had my house remediated (only contained a

small

> amt)

> > > and am currently on unpaid leave from work (the place I

beleive

> I have

> > > been exposed to mold & whatever else they have there). My

> workplace,

> > > of course has been unwilling to do any type of testing (air or

> > > otherwise) to substantiate my claims and said that since I am

> the only

> > > one complaining they shouldn't have to " re-do their entire

> builing "

> > > for one person. My symptoms range from lightheadedness,

> feverishness,

> > > joint pain, and numbness in my extremeties. Any info, advise,

> would

> > > be greatly appreciated. God Bless.

> >

> > Hi and Welcome to Sickbuildings. I'm sorry you had to find us

> being ill;

> > however I know many will try to assist you on this group.

> >

> > I don't know of a qualified physician in Chicago; however I do

> have a few

> > questions for you which may help us to give you better answers.

> >

> > What kind of physician gave you the diagnosis of MCS and what

kind

> of

> > diagnostic tests were done to come to this conclusion? Did this

> doctor

> > consider toxic mold as a causative factor in your symptoms?

> >

> > Is your current physician suggesting chelation? If so, what is

> the purpose

> > of the chelation? To remove heavy metals? And would this be

I.V.

> or oral

> > chelation? Have you had a hair analysis preformed by a good

> laboratory

> > along with perhaps a urine provocation test?

> >

> > Before you try any chelation; even oral or something simple as

> some cyber

> > recommended " natural " treatments, please make sure you

understand

> totally

> > their actions. For example, cilantro has been show to mobilize

> mercury and

> > possibly other heavy metals from the tissues; however it has not

> been shown

> > to bind the now released heavy metals in the GI tract preventing

> > reabsorption. If the now released mercury and other heavy metals

> are not

> > bound and excreted in the GI tract, this would present a problem

> as you can

> > imagine. This is why studies of single herbs in heavy metal

detox

> > protocols often yield disappointing results when used alone.

> Attempting to

> > use " natural " and at home protocols for heavy metal chelation

needs

> > supervision of a trained professional.

> >

> > We have a Schaller, M.D. on this group who was very

generous

> to give

> > us a free download link to his e-book called Mold Illness Made

> Simple. The

> > same sells on Amazon in paperback form. If you are not yet

> familiar with

> > toxic mold illness and the mycotoxins I would suggest you

download

> the

> > e-book and read. It's easy reading and very informative; makes

a

> wonderful

> > primer. Dr. Schaller is also revising this e-book and has given

> us a link

> > to download the first 80 pages of the revised edition. Below

are

> both links

> > for your information:

> >

> > http://www.gombach.com/schaller/SimpleMoldSample.pdf

> > This is the first 80 pages in the newer design

> >

> > http://www.gombach.com/schaller/SimpleMoldEBook.pdf

> >

> > Did you have your home tested to determine the type of mold

which

> you had

> > remediated? Do you feel you are reacting in your home and feel

> better away

> > from the home or was this a complete remediation without any

> > cross-contamination?

> >

> > You have already been given the link to the http://www.mold-

> help.org/ which

> > has much data for you to read.

> >

> > We all care and feel free to ask as many questions as you need

and

> we'll try

> > our best to answer them.

> > Rosie

> >

>