Re: Anyone else with neuropathic facial& head pain?

[Guest guest]

I also have what they call nuralgia in my face but my mri came out ok.

[Guest guest]

Janet,

Sharon's MRI's came out normal also, as far as we are aware.But they

didn't do them with contrast, which does make a difference. The post

that AngelMCS put up on Dr. Singer explains alot of this.

Sharon was diagnosed with trigeminal neuralogia and at that time the

doctor wanted to setup surgery and cut the trigeminal nerve on her rt

side to stop the head and facial pain. This scared the hell out of us

and trying to get a second opinion, we couldn't get another doctor to

agree with that procedure. That's the old way for people with this

condition. I'm glad we didn't go through with it.

KC

>

> I also have what they call nuralgia in my face but my mri came out

ok.

>

>

>

[Guest guest]

We've had the same thing Janet. Only one side of Sharon's face would

be numb and most of the time very painful. Her temple would swell and

discolor also. And finally the doctor saw and acknowledge this, only

to tell us it was normal. Yeah right.... We knew the facial pain and

the head pain would not subside until we removed some of the toxins.

The CSM has helped some. This type of pain even morphine doesn't help

and I have been told that by several doctors. Which I already knew

because they (the pain) are not vascular. They are toxins attacking

the nerves.

Ok, if anybody else can explain what viral meds are, I would be

interested. I've always been told that a virus has to run its course.

KC

>

> KC

> They did the MRI with contrast. My allergist thinks its a viral

thing with

> my trigenimal nerve and puts me on viral meds when it acts up. Only

one right

> side of face. Even half my toungue will go numd.

> Janet

>

>

>

[Guest guest]

neurontin helps.......

victoria

[] Anyone else with neuropathic facial & head pain?

>I have been trying various protocols for about 9 months and just

> recently have finally have begun to notice some clearing of the

> cobwebs in my head after not being able to think for 15 years! The

> fatigue is still very bad but most painful is the facial and head

> neuropathic pain. Does anyone else suffer with this? What has helped

> with this?

>

> nne

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> FAIR USE NOTICE:

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[Guest guest]

RIBAVIRIN IS A VIRUS MED, KC......OFTEN GIVEN TO KIDS WITH RESPIRATORY

PROBLEMS, IF I REMEMBER RIGHT. SPECIFICALLY, RSV VIRUS.

VICKI

[] Re: Anyone else with neuropathic facial & head pain?

> We've had the same thing Janet. Only one side of Sharon's face would

> be numb and most of the time very painful. Her temple would swell and

> discolor also. And finally the doctor saw and acknowledge this, only

> to tell us it was normal. Yeah right.... We knew the facial pain and

> the head pain would not subside until we removed some of the toxins.

> The CSM has helped some. This type of pain even morphine doesn't help

> and I have been told that by several doctors. Which I already knew

> because they (the pain) are not vascular. They are toxins attacking

> the nerves.

>

> Ok, if anybody else can explain what viral meds are, I would be

> interested. I've always been told that a virus has to run its course.

>

> KC

>

>

>>

>> KC

>> They did the MRI with contrast. My allergist thinks its a viral

> thing with

>> my trigenimal nerve and puts me on viral meds when it acts up. Only

> one right

>> side of face. Even half my toungue will go numd.

>> Janet

>>

>>

>>