Duchyne's muscular dystrophy - Q

[Guest guest]

Hi

I am seeing a 9 year old boy with hereditary Ducheyne's muscular

dystrophy (his dad is French). He is smaller than most boys his age

(58lb) and has trouble walking up stairs, but otherwise still gets

around pretty well. He lives in my community and I see him almost

daily. The other boys don't always include him because he is more

fragile and not as strong.

He has been on 15mg of prednisone for 5 years. I have him on a

supportive herbal adrenal tincture. I will switch him to Ribes nigrum

25mg bid at our next visit. I also have him on cod liver oil and

creatine monohydrate. His liver enzymes are very elevated from the

disease process.

ALT 493 (17-63)

AST 213 (12-42)

His total protein and albumin are low.

His mom really trusts me and is looking for anything to help him. The

medical community has nothing to offer this sweet kid. I am not sure

where to start. I would like to do some drainage and gemmos, but

don't want to exacerbate anything. Should I start with 1, 20, 243?

Can I do anything to slow the muscle breakdown? Can I do numbers for

the M/S system?

His mom is not really open to diet changes, although I have had them

include lots of garlic and mushrooms in the diet.

Well, any advise would be appreciated. Does anyone have any

experience with this?

Thank you

Deanna Berman, ND,CM