Guest guest Posted October 25, 2004 Report Share Posted October 25, 2004 Bert, Bridget sounds like she is doing great in her cast! I would have let her go out too. No sense in preventing normal stuff if it doesn't need to be. Can you send us a pic of Bridget in her cast? You can send it to me at gmkimball@... if it needs to be resized. Give Bridget a hug from . Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 We go back July 16th It can be soon enough..The heat is killing him now . We cut and taped back the shirt now which gives him much more ventilation. I did not do that before because the I would pull the shirt to move around the skin so he would not get pressure sores but he got a rash on his lower back I think for either the heat or I left soap on his skin when trying to clean him. I hope it goes away and doesn't open that would stink but it is at the lower portion of his back so I think ait get to it. I have been letting him run around without a diaper which has been VERY interesting, and using the Calundela gel 3 times a day starting yesterday I hope it works.....or I have to have the cast back trimmed high till we go back to get constant air to it I am going to check it when he wakes today If you find out about the measurement of rotation let me know I which I could have gone to the ETTP and had Miss Metha evaluate Adan and his movements I am pretty sad about that. He sits on small stools ( child step stools) to keep him from sitting in the W my Physical Therapist had told me about that but it is hard to follow a 2 year old around all day to correct his sitting posture but we do what we can Nice to hear from you What are Bridges new measurements? Hope she is doing well bert lehane <bert_lehane@...> wrote: Hi , Sorry I didn't get back straight away but I am happy to answer any questions as best I can. Miss Mehta doesn't use the shirt. I don't know why but I suppose it could be to give the skin some air. I actually didn't ask about it because our previous casts in England didn't use a shirt either so it was no change for us. She recommended Bridget sit on a chair so that her feet can touch the floor. Her usual sitting pattern was to sit with her right hip tilted up and with her feet pointed right. This meant she was actually perpetuating her left lumbar curve every time she sat. It is difficult to tip one hip up if you are sitting with feet touching the floor. For Nick, (from memory) she recommended he sit with his legs pointed to the left to help unwind his left lumbar curve. (Please correct me if I am wrong Janette or Ray) Isuppose the sitting position relates more to the kids with flexible lumbar curves but she had recommendations for all the kids including Siobhan based on her observations of their movements. Good question on how to measure the rotation. That's one I should have asked. I know you can observe the rotation on the xrays by looking at the little Eyes on the vertebrae. I don't know their correct term. When do you go for your next cast? It must be soon. good luck and let us know the outcome. Bert and Bridget <christinehrph@...> wrote: Hi Bert and friends I wish I had more time......don't we all Great news from Salt Lake so sad we could not join you all We are the only ones due for a cast change (i think) we go in the next month.... Did you guys find out why they are not using the shirts underneath??anymore. ALSO: {{{{{"She was also very specific in looking at the child moving and at play so that she could see how their movements, posture, sitting position etc contributes to the curve. In both Bridget's and Nick Martell's case and also the Sprigg boys (I think) she recommended trying to break their habits of sitting in a W and in Bridget's case sitting with her legs pointed to the right."}}}}} So how do they sit now or how did she recommend they sit or hold their posture? Did they talk about the mothods of derotation or how to measure how well each cast was hold the rotation or correcting it???? I have alot of questions I wish I could have heard the lecture.......Did they give out papers or handouts?? Anyway sorry so many ?? Hope bridge is doing great what color did she pick? Is the cast alot different than the others she received???? bert lehane <bert_lehane@...> wrote: Hi Deshea, I am just catching up with everyone's posts. Congrats on the new cast for Lucus. I know that Dr Mehta has found that you need to derotate before you can achieve permanent correction out of the cast. She has told me that if you just flatten out the curves without derotating the spine, the curves will not be permanently corrected and will curve again as the child grows without the cast to hold it in place. She was also very specific in looking at the child moving and at play so that she could see how their movements, posture, sitting position etc contributes to the curve. In both Bridget's and Nick Martell's case and also the Sprigg boys (I think) she recommended trying to break their habits of sitting in a W and in Bridget's case sitting with her legs pointed to the right. This could be because their primary curves are lumbar or thoracolumbar and because they have hypermobile joints. (Again not sure about the 2 boys) but true for Nick and Bridget. She stressed a couple of times that the derotation is the key to permanent correction for us and also breaking the sitting and movement habits of her short lifetime. So far Bridget's curve has gone from 38 to 21 to 29 and now 24 in her three casts. It's hard not to get bogged down in the numbers isn't it. Bert and Bridget Deshea <deshea@...> wrote: hi everyone,lucas and my husband flew to erie, pa early, early on tues morning toget lucas' third cast removed. he really enjoyed the entire day outof cast taking a very long bath and playing like a crazy man at alocal playground. his skin looked a lot better than the last time infeb. also, my husband put calendula cream on the only red part asrecommended by another mom by miss mehta. by the next morning, thered spot was gone! we highly recommend this cream.lucas' fourth cast was put on first thing wed morning by dr. sanders.it is different from his previous casts that had been under the armsto his waist. this looks more like the casts that were put on duringthe ettp in slc -- over the arms (like a tank top) and the cut out inthe stomach isn't a big circle, but more like a mushroom (sort of). of course, my husband did not take many pictures while in erie so iwill have to post pictures when i can get lucas to hold still longenough. unfortunately, we have gotten no further correction with thiscast than the last. he is being held at 15o/10o rvad ?. he does havean out of cast x-ray prior to the cast being applied, and he is thesame as in feb 25o/10o rvad ?. we wish that he could have gottenbetter correction (as does every parent), but he is not worse andbeing held at a low degree, especially important in allowing the heartand lungs to grow to the normal capacity. we can not really ask foranything more considering we started out at 68o/45o. i believe thatdr. sanders is hoping that this cast addresses rotation a bit more.i had a ton of questions that my husband was supposed to ask dr.sanders, but with the way things turned out with angel flight flyingthem back on wed around 1p, geordie only saw dr. sanders right beforeand after the casting. lucas was a trooper and did much better comingout of the anaesthesia. no verset (sp?) beforehand. what a big boybeing wheeled into the or on his own! so that might have done thetrick. his cast is blue (finally a boy color! only kidding - i kindof liked pink and purple), and he got a tonka truck as his surgerygift and is in love with it. he keeps showing off his cast toeveryone, all pleased with himself. i was a bit worried with the overthe straps, but as usual, lucas can do everything he did before andhas not mentioned anything about being uncomfortable. just goes toshow you, the mom worries more than the child!i will be e-mailing dr. sanders soon to ask him more details regardingthe #s, including rotation, why he chose to change the cast, etc. weare scheduled to go back sept. 20th for a cast change (~3 1/2 months).lucas is starting preschool in sept so we're thinking that we mightask to reschedule it before preschool starts or in oct depending onhow this cast holds up. his past between casting times have been 3months, 4 months, and then 4 months. we'll see what they say.overall, we are very happy with these results and are grateful thatdr. sanders continues to cast lucas and was able to discuss thismethod at the ettp in slc and possibly merge some of his ideas withthose of dr. d'astous and miss mehta.desheanorth of bostonmom to lucas (3 1/2 yrs old) - in casts for almost 1 yr! & ruby (11 months old) Discover Get on-the-go sports scores, stock quotes, news & more. 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Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 , It is very hard to follow a two year old around! When was wearing her brace 23 hours a day, we too had "W" sitting issues. Actually, we still do. The child sits that way because it offers a stable base to them. The problem is that it is not good for their posture or their hips. So we just got to the point of saying ", no w's!" and moving her legs into either a straight out position or criss crossed (aka: "Indian" style - I know, not PC) Now we just have to say "no w's" and she moves her legs. It is one of the hardest things staying on top of her about it. I hope he does ok in the cast and does not get any sores. Those are horrible. Gail Re: bert We go back July 16th It can be soon enough..The heat is killing him now . We cut and taped back the shirt now which gives him much more ventilation. I did not do that before because the I would pull the shirt to move around the skin so he would not get pressure sores but he got a rash on his lower back I think for either the heat or I left soap on his skin when trying to clean him. I hope it goes away and doesn't open that would stink but it is at the lower portion of his back so I think ait get to it. I have been letting him run around without a diaper which has been VERY interesting, and using the Calundela gel 3 times a day starting yesterday I hope it works.....or I have to have the cast back trimmed high till we go back to get constant air to it I am going to check it when he wakes today If you find out about the measurement of rotation let me know I which I could have gone to the ETTP and had Miss Metha evaluate Adan and his movements I am pretty sad about that. He sits on small stools ( child step stools) to keep him from sitting in the W my Physical Therapist had told me about that but it is hard to follow a 2 year old around all day to correct his sitting posture but we do what we can Nice to hear from you What are Bridges new measurements? Hope she is doing well bert lehane <bert_lehane@...> wrote: Hi , Sorry I didn't get back straight away but I am happy to answer any questions as best I can. Miss Mehta doesn't use the shirt. I don't know why but I suppose it could be to give the skin some air. I actually didn't ask about it because our previous casts in England didn't use a shirt either so it was no change for us. She recommended Bridget sit on a chair so that her feet can touch the floor. Her usual sitting pattern was to sit with her right hip tilted up and with her feet pointed right. This meant she was actually perpetuating her left lumbar curve every time she sat. It is difficult to tip one hip up if you are sitting with feet touching the floor. For Nick, (from memory) she recommended he sit with his legs pointed to the left to help unwind his left lumbar curve. (Please correct me if I am wrong Janette or Ray) Isuppose the sitting position relates more to the kids with flexible lumbar curves but she had recommendations for all the kids including Siobhan based on her observations of their movements. Good question on how to measure the rotation. That's one I should have asked. I know you can observe the rotation on the xrays by looking at the little Eyes on the vertebrae. I don't know their correct term. When do you go for your next cast? It must be soon. good luck and let us know the outcome. Bert and Bridget <christinehrph@...> wrote: Hi Bert and friends I wish I had more time......don't we all Great news from Salt Lake so sad we could not join you all We are the only ones due for a cast change (i think) we go in the next month.... Did you guys find out why they are not using the shirts underneath??anymore. ALSO: {{{{{"She was also very specific in looking at the child moving and at play so that she could see how their movements, posture, sitting position etc contributes to the curve. In both Bridget's and Nick Martell's case and also the Sprigg boys (I think) she recommended trying to break their habits of sitting in a W and in Bridget's case sitting with her legs pointed to the right."}}}}} So how do they sit now or how did she recommend they sit or hold their posture? Did they talk about the mothods of derotation or how to measure how well each cast was hold the rotation or correcting it???? I have alot of questions I wish I could have heard the lecture.......Did they give out papers or handouts?? Anyway sorry so many ?? Hope bridge is doing great what color did she pick? Is the cast alot different than the others she received???? bert lehane <bert_lehane@...> wrote: Hi Deshea, I am just catching up with everyone's posts. Congrats on the new cast for Lucus. I know that Dr Mehta has found that you need to derotate before you can achieve permanent correction out of the cast. She has told me that if you just flatten out the curves without derotating the spine, the curves will not be permanently corrected and will curve again as the child grows without the cast to hold it in place. She was also very specific in looking at the child moving and at play so that she could see how their movements, posture, sitting position etc contributes to the curve. In both Bridget's and Nick Martell's case and also the Sprigg boys (I think) she recommended trying to break their habits of sitting in a W and in Bridget's case sitting with her legs pointed to the right. This could be because their primary curves are lumbar or thoracolumbar and because they have hypermobile joints. (Again not sure about the 2 boys) but true for Nick and Bridget. She stressed a couple of times that the derotation is the key to permanent correction for us and also breaking the sitting and movement habits of her short lifetime. So far Bridget's curve has gone from 38 to 21 to 29 and now 24 in her three casts. It's hard not to get bogged down in the numbers isn't it. Bert and Bridget Deshea <deshea@...> wrote: hi everyone,lucas and my husband flew to erie, pa early, early on tues morning toget lucas' third cast removed. he really enjoyed the entire day outof cast taking a very long bath and playing like a crazy man at alocal playground. his skin looked a lot better than the last time infeb. also, my husband put calendula cream on the only red part asrecommended by another mom by miss mehta. by the next morning, thered spot was gone! we highly recommend this cream.lucas' fourth cast was put on first thing wed morning by dr. sanders.it is different from his previous casts that had been under the armsto his waist. this looks more like the casts that were put on duringthe ettp in slc -- over the arms (like a tank top) and the cut out inthe stomach isn't a big circle, but more like a mushroom (sort of). of course, my husband did not take many pictures while in erie so iwill have to post pictures when i can get lucas to hold still longenough. unfortunately, we have gotten no further correction with thiscast than the last. he is being held at 15o/10o rvad ?. he does havean out of cast x-ray prior to the cast being applied, and he is thesame as in feb 25o/10o rvad ?. we wish that he could have gottenbetter correction (as does every parent), but he is not worse andbeing held at a low degree, especially important in allowing the heartand lungs to grow to the normal capacity. we can not really ask foranything more considering we started out at 68o/45o. i believe thatdr. sanders is hoping that this cast addresses rotation a bit more.i had a ton of questions that my husband was supposed to ask dr.sanders, but with the way things turned out with angel flight flyingthem back on wed around 1p, geordie only saw dr. sanders right beforeand after the casting. lucas was a trooper and did much better comingout of the anaesthesia. no verset (sp?) beforehand. what a big boybeing wheeled into the or on his own! so that might have done thetrick. his cast is blue (finally a boy color! only kidding - i kindof liked pink and purple), and he got a tonka truck as his surgerygift and is in love with it. he keeps showing off his cast toeveryone, all pleased with himself. i was a bit worried with the overthe straps, but as usual, lucas can do everything he did before andhas not mentioned anything about being uncomfortable. just goes toshow you, the mom worries more than the child!i will be e-mailing dr. sanders soon to ask him more details regardingthe #s, including rotation, why he chose to change the cast, etc. weare scheduled to go back sept. 20th for a cast change (~3 1/2 months).lucas is starting preschool in sept so we're thinking that we mightask to reschedule it before preschool starts or in oct depending onhow this cast holds up. his past between casting times have been 3months, 4 months, and then 4 months. we'll see what they say.overall, we are very happy with these results and are grateful thatdr. sanders continues to cast lucas and was able to discuss thismethod at the ettp in slc and possibly merge some of his ideas withthose of dr. d'astous and miss mehta.desheanorth of bostonmom to lucas (3 1/2 yrs old) - in casts for almost 1 yr! & ruby (11 months old) Discover Get on-the-go sports scores, stock quotes, news & more. Check it out! Discover Get on-the-go sports scores, stock quotes, news & more. Check it out! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2005 Report Share Posted August 13, 2005 Bert, Thanks always for your genuine support. I will light a candle for London Bridge and Siobhan this week. So glad they get to "hang-out". Sincerely, HRH Re: Vote for really important!!!!! Hi everyone I have lodged my vote for . I am truly inspired by the way she has pursued this treatment solely to help others like us. (well me and Bridget certainly) Bridget gets her new cast Wednesday mid morning. She is really looking forward to the day being over and being able to catch up with her friend Siobhan. I am waiting anxiously for the results and feedback of course. Good luck all Bert and Bridget <christinehrph@...> wrote: Hi all this is the site to give the story I really think the world should know how much hetaher has done for the casue fo early tratment of progressive scoloisis <christinehrph@...> wrote: Good luck Jacki and Elaina and Adan <cjhnelson@...> wrote: > Hi All> > Just sitting here in an Internet Cafe catching up on all the > news.... We are in the middle of an unscheduled stop in a cute > little place called Moab, Utah! The car is in the repair shop across > the street, so I thought I'd check in on my friends in "ScolioLand"!> > Shellie, I'm so glad tha Mo continues to get stronger everyday - > What a little trooper she is!> > Carmell - It was great finally meeting, and I'm sorry we didn't get > longer, though with all the kids crashed out around us, we really > had to call it a night!> > - It looks like we'll just miss you and that gorgeous little > Eliana too! We are planning on being back in SLC ("car-willling" > LOL) for Siobhan's next series of casts on August 10th - 12th.> > , I'll look forward to talking again when we get home.> > - We are all so excited to be seeing you and Kylie again! > Siobhan hasn't stopped asking about Kylie!> > Bert - Looking forward to meeting Daz, and seeing your little London > Bridge again (not as much as Siobhan though!!!)> > Well, I'll update again when Siobhan is 'casted'....> > Love Jacki __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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