Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 , Have you seen a Pediatric Neurologist yet? We saw a Neurologoist to rule out Neuromuscular disease when was 2 1/2 months old. When was your little girl diagnosed and what was her degree at that time? Is she talking yet? Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 The doctors never said anything about abnormalities of the spine. She is not walking at this time. She's been crawling since Christmas 2003. She is very unstable that sitting for periods of time is uncomfortable for her and she prefers to lay down. I don't like the fact that with the halo she will not be able to crawl, this little girl is a mover. ansiosamjm <usameza@...> wrote: Hi ,Does Cassie have any abnormalities in the bones of the spine? How is her spinal cord? I hope the MRI goes smoothly on Friday. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Cassie's seen a pediatric neurologis at age 3months off and on until 1year old and we tried to tell them (we saw 3) that Cassie's spine was curving but they insisted that kids spines flex. It wasn't until about 1 1/2 years old when her physical therapist contacted our pediatrician that an X-ray was taken and sure enough they saw that Cassie had scoliosis. I can't recall at this moment what the curve was but I do remember that from 1 1/2 years old to 3 years old it probably curved 60 to 70 degrees. In a six month period it curved about 6-10 degrees to where she is at now(87). Cassie is not talking or eating by herself. She is on pureed food. She is totally dependent on our care. cristab@... wrote: ,Have you seen a Pediatric Neurologist yet? We saw a Neurologoist to rule out Neuromuscular disease when was 2 1/2 months old. When was your little girl diagnosed and what was her degree at that time? Is she talking yet?Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2004 Report Share Posted September 22, 2004 Hi , Early treatment with serial corrective plaster jackets/casts can correct non structural curves, if applied early. They can help maintain severe curves. Please let me send you the video/info. If you decide that you want to keep the video, you can pay ISOP for it. If not, send it back so I can recirculate it to other parents. Casting may be an option after you get her curve down with the halo. Thats the course of treatment that Olivias doc and I think is best for her. I realize that every child is different, and Cassie may not be candidate for this gentle treatment. Though providing you with this info may help you make the most appropriate care plan for your daughter. E-mail me privately if you would like me to send the info. Sincerely, HRH Quote Link to comment Share on other sites More sharing options...
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