Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Hi . Is your ortho Dr. Katz in Syracuse? My daughter is 2 1/2 and is being treated by Dr. Katz. In February 2004, Dr. Katz recommended the calibus brace. However, we learned by the orthotics woman that the calibus brace was really intended for an infant, not a toddler. My daughter wears a boston brace. I was told that the calibus brace is made of leather straps. We never got it, so I never saw one. The boston brace is made of plastic. You should definatly get a second and third opinion. Make sure that you get copies of all x-rays, MRI films and all reports. I would also suggest seeing a neurologist. I know an excellent neurologist in Rochester, New York. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 , I had a Dr. in San diego who I should add was very arrogant and very well known in the medical community. I think arrogance and popularity go hand in hand in that profession. Anyways....our Dr. had agreed to cast for me but after my husband and I went to consult with him about the cast I was horribied. He wanted to cast him in fiberglasss with an arm and a leg in it. I asked how will he learn to crawl and his response was he won't. Now...I think this is the barbaric casts that these Dr.'s are talking about. My son doesn't have a barbaric cast, but he would have had we let someone cast him who already isn't involved in this type of treatment. If you do decide to cast I would definately go to see Dr. , he is fairly close and from what alot of Mom's have told me he has an amazing bedside manner. Very caring. I am not saying Dr, Katz isn't good but she hasn't casted an infant before. There is definately a tecnique involved in this type of treatment. I live in Southern California, right in between Los Angeles and San Diego in Orange County. We have very well known and respected Dr.'s not to mention Hospitals within 60 miles of me north and south. No one in this state could cast , no one had done it. I did give our Dr. credit for agreeing to do it for us but in the end I decided that Utah was the place we needed to be. We see Dr. D'Astous at Shriners Hospital in SLC. I just felt good because he has been doing this for quite some time, along with Dr. . Both Dr.'s have been getting great results. Just wanted to share my thoughts with you. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 and , I was reading all of the posts getting familiar with all of this and noticed you mentioned Syracuse and Dr. Katz. My son (7 months) is a patient of Dr. Katz. We are new to all of this just being diagnosed idiopathic in June. Where do you all live? I didn't realize there was someone on this site who lived near us. We are in Watertown, NY. My son has a 30 degree curve with an RV of 21. We go back to Dr. Katz on Aug. 20 for a second set of xrays and a decision on progressiveness. I would love to talk to you and hear your stories. My personal email address is jheiler@... and daytime number is 315/785-5745. Home is 315/773-1442. If you wouldn't mind, please post back or write to me persoanlly. I would also be interestd in how you think Dr. Katz feels about plaster casting. I've brought it up to her but didn't get a great feeling about her openness to it. Thanks. (Colton's mom) > > > > Hi . Is your ortho Dr. Katz in Syracuse? My daughter is 2 1/2 and > is being treated by Dr. Katz. In February 2004, Dr. Katz recommended the > calibus brace. However, we learned by the orthotics woman that the calibus > brace was really intended for an infant, not a toddler. My daughter wears a > boston brace. > > I was told that the calibus brace is made of leather straps. We never got > it, so I never saw one. The boston brace is made of plastic. > > You should definatly get a second and third opinion. Make sure that you get > copies of all x-rays, MRI films and all reports. I would also suggest > seeing a neurologist. I know an excellent neurologist in Rochester, New > York. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Thanks Crista. That's what I was worried about. Dr. Katz described her casting as an arma and leg in too. When I described the casting we are talking about, she said that will never hold a curve in place. I was hoping after reading these posts that I may have found a new young doc who may be open enough to learn something new and that these children would eventually have a doc in NY that would POP cast. Don't think so though. We are not that far from Erie, PA and I will travel wherever I need to to help him. We'll know soon if he is progressing at all and we'll make our decision then. I just couldn't believe what a small world this is that two other people knew our ortho doc. That's reassuring. (Colton's mom) > > > , > I had a Dr. in San diego who I should add was very arrogant and very well > known in the medical community. I think arrogance and popularity go hand in hand > in that profession. > Anyways....our Dr. had agreed to cast for me but after my husband > and I went to consult with him about the cast I was horribied. He wanted to > cast him in fiberglasss with an arm and a leg in it. I asked how will he learn > to crawl and his response was he won't. > Now...I think this is the barbaric casts that these Dr.'s are talking about. > My son doesn't have a barbaric cast, but he would have had we let someone > cast him who already isn't involved in this type of treatment. If you do decide > to cast I would definately go to see Dr. , he is fairly close and from > what alot of Mom's have told me he has an amazing bedside manner. Very > caring. I am not saying Dr, Katz isn't good but she hasn't casted an infant before. > There is definately a tecnique involved in this type of treatment. I live > in Southern California, right in between Los Angeles and San Diego in Orange > County. We have very well known and respected Dr.'s not to mention Hospitals > within 60 miles of me north and south. No one in this state could cast > , no one had done it. I did give our Dr. credit for agreeing to do it for us > but in the end I decided that Utah was the place we needed to be. We see Dr. > D'Astous at Shriners Hospital in SLC. I just felt good because he has been > doing this for quite some time, along with Dr. . Both Dr.'s have been > getting great results. Just wanted to share my thoughts with you. > > Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2004 Report Share Posted August 6, 2004 hey patricia Did your MD say why he recommened the kalibus brace for you babe? it is from the 1940's I am interested in what he said i posted a pic of Adan in it if your intrested ...I don't really know what to expect but ........ Why did your doc suggest a neurologist? I am in Boston not NY although I grew up in Long Island and miss it alot... Chrisitne > > > > Hi . Is your ortho Dr. Katz in Syracuse? My daughter is 2 1/2 and > is being treated by Dr. Katz. In February 2004, Dr. Katz recommended the > calibus brace. However, we learned by the orthotics woman that the calibus > brace was really intended for an infant, not a toddler. My daughter wears a > boston brace. > > I was told that the calibus brace is made of leather straps. We never got > it, so I never saw one. The boston brace is made of plastic. > > You should definatly get a second and third opinion. Make sure that you get > copies of all x-rays, MRI films and all reports. I would also suggest > seeing a neurologist. I know an excellent neurologist in Rochester, New > York. Quote Link to comment Share on other sites More sharing options...
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