Re: Re: ia (pretty name)

[Guest guest]

ia,

I wish I could comment on her hemivertebrae, and Chiari Malformation, but I cant...

I truly am not familiar with congenital diagnosis.

Maybe there is someone on the list who is familiar?

ia, I think I need to add a definition page to this site...Would you have the definitions of both? & nbsp;

Also, Have you been able to get a second, or third opinion? & nbsp; Is the doc a pediatric spinal specialist?

Whats the docs recomendation? & nbsp;

sincerely,

[Guest guest]

What is a Chiari malformation?A Chiari malformation is a congenital (present at birth) defect in the area of the back of the head where the brain and spinal cord connect. The condition is also called Arnold Chiari malformation. There are four types of Chiari malformations, including the following:

type I - commonly goes unnoticed until problems arise in the adolescent or adult years of life. In this condition, the base of the skull and the upper spinal area are not formed properly.

type II - this is the most common type of Chiari malformation. In this condition, part of the back of the brain shifts downward through the bottom of the skull area.

Type II Chiari malformations are typically seen in infants who are born with spina bifida, a neurological condition that causes a portion of the spinal cord and the surrounding structures to develop outside, instead of inside, the body.

Type II Chiari malformations can also be associated with a condition known as hydrocephalus. Hydrocephalus is a condition in which there is an overproduction or lack of absorption of the cerebral spinal fluid (CSF) that is found inside of the ventricles (fluid-filled areas) inside of the brain. The increased fluid causes the pressure inside of the head to increase and the skull bones to expand to a larger-than-normal appearance.

type III - the back of the brain protrudes out of an opening in the back of the skull area.

type IV - the back of the brain fails to develop normally.

Mia is between a I & II...She has Spinal Bifida Occulta SBO, which is closed instead od exposed.

A Hemivertebrae is when you are looking at the spine from the back. It should look like a stack of poker chips. A hemivertebrae looks like one or more vertebrae are wedge shaped. It kind of throws the whole "stack" out of balance.

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I hope this little thingy works out... LOL ia

[Guest guest]

ia,

(congenital scoliosis, VATER, Klippel Feil, torticollis) has the hemivertabrae as well! She has 2 "sections" one on the left and one on the right that are about 4-5 vertebrae apart.

How is Mia doing? (feel free to email me off list gkimball@...)

Gail

Re: Re: ia (pretty name)

What is a Chiari malformation?A Chiari malformation is a congenital (present at birth) defect in the area of the back of the head where the brain and spinal cord connect. The condition is also called Arnold Chiari malformation. There are four types of Chiari malformations, including the following:

type I - commonly goes unnoticed until problems arise in the adolescent or adult years of life. In this condition, the base of the skull and the upper spinal area are not formed properly.

type II - this is the most common type of Chiari malformation. In this condition, part of the back of the brain shifts downward through the bottom of the skull area.

Type II Chiari malformations are typically seen in infants who are born with spina bifida, a neurological condition that causes a portion of the spinal cord and the surrounding structures to develop outside, instead of inside, the body.

Type II Chiari malformations can also be associated with a condition known as hydrocephalus. Hydrocephalus is a condition in which there is an overproduction or lack of absorption of the cerebral spinal fluid (CSF) that is found inside of the ventricles (fluid-filled areas) inside of the brain. The increased fluid causes the pressure inside of the head to increase and the skull bones to expand to a larger-than-normal appearance.

type III - the back of the brain protrudes out of an opening in the back of the skull area.

type IV - the back of the brain fails to develop normally.

Mia is between a I & II...She has Spinal Bifida Occulta SBO, which is closed instead od exposed.

A Hemivertebrae is when you are looking at the spine from the back. It should look like a stack of poker chips. A hemivertebrae looks like one or more vertebrae are wedge shaped. It kind of throws the whole "stack" out of balance.

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I hope this little thingy works out... LOL ia

[Guest guest]

ia,

Thank you very much for those detailed definitions..I should have a glossary page up, soon. (within the week)

sincerely,