Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Kelley, I would offer the video to whoever will watch it. The pediatrician, the neurologist, and the orthopaedic doc. The more you can educate them to get them on your side, the better. As far as neurologist questions, hmm... Has congenital scoliosis been ruled out? Do you know where Chestnuts curves are, and to what degree they have progressed? If at all? Is Chesnut wearing a brace? Sorry Kelley, can you refresh my memory? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 Hi Kelley, Why don't you call me before your appt. I have gone through all of the tests with both of my boys. No, I wouldn't offer the video. The Neurologist won't be doing anything with the Scoliosis, just trying to find a cause for the Scoliosis. I will email my # to you again. I can't find your # or I would call you. Crista Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2004 Report Share Posted March 14, 2004 , We don't know anything, except for the fact that it is scoliosis, and that its an S shaped curvature. She was just diagnosed 3 weeks ago. We see the neuro tommorow, the orthopaedic on the 25th. thanks, Kelley > Kelley, > I would offer the video to whoever will watch it. The pediatrician, the > neurologist, and the orthopaedic doc. The more you can educate them to get them > on your side, the better. > As far as neurologist questions, hmm... > Has congenital scoliosis been ruled out? > Do you know where Chestnuts curves are, and to what degree they have > progressed? If at all? > Is Chesnut wearing a brace? > > Sorry Kelley, can you refresh my memory? > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Kelley, Definately let the neurologist know what course of treatment you plan on pursuing with Chesney if it is found that he does have progressive infantile scoliosis. This doc will come across other children with progressive I.S. during the course of his carreer, and he/she may be able to point the family in the right direction. Other than that, see what this doc says. Let them know that you dont want to "wait and see," so an MRI is essential to determine what type of scoliosis this is. Have them refer Chesney to an pediatric, orthopaedic that specializes in scoliosis. Ask them if they're familiar with infantile scoliosis. Make sure that they know that there is a difference between infantile and congenital. Many dont know this. Let them know that you have done your research. Talk to them about the RVAD and serial corrective plaster casts. Give them an education, so they know that you are a pro-active mom who needs a pro-active orthopaedic doc to treat her baby. let us know what happens, and good luck! sincerely, Quote Link to comment Share on other sites More sharing options...
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