Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Some added questions Do you eat licorice or use licorice flavored foods, candy or drinks or OTC products? If so these may be the cause of your HTN and low K. Has a Dr ever recommended the DASH diet as part of your therapy? When your low K was first discovered what was the reason you were told it was low? If you had high blood pressure before you were pregnant did it get better when you were pregnant? Do you ever have a metallic taste in your mouth? (indicates high K in saliva induced by high aldo). Have you ever gotten hand and finger cramps when using your hands such a with a screwdriver or holding cards or playing the piano or typing? yes no please describe. Do you take your BP at home? If not why not? There are many genetic causes of high blood pressure that run strongly in families. Please get as much information as you can about your family history and construct your family high blood pressure pedigree. As far back as you can go list the age and cause of death of everyone in your family. At the next family reunion ask all there to help with this as it will save many lives in some families. Ask if anyone has had a Hx of low K or has had to take K pills. Have you ever smoked cigarettes regularly? If so this increases your risk of having high blood pressure caused by a renal artery stenosis-one of the curable causes of high blood pressure. An easy way to make this Dx is to ask your Dr to listen carefully in the upper part of your stomach for a whooshing should like a blood pressure sound in the center about your belly button or to the sides under the rib cage. If your renin is low you do not have this kind of high blood pressure. If you developed high blood pressure suddenly this is one of the causes of high blood pressure your Dr must look for. You can go to NIH (I dont recall site) and do this using their family tree program. Many drugs do not work to lower BP in PA. What was the effect of ACEs on your BP? What was the effect of ARBs on your BP? What has been the effect of BB on your BP? What has been the effect of CCBs on your BP? What has been the effect of MCBs on your BP? Has an eye Dr ever told you had blood pressure damage in your eyes when he looked inside? Be sure your Dr at the first visit takes your BP (according to AHA guidelines) in both arms. One curable cause of high blood pressure , especially if you are young, is coarctation of the aorta and congenital heart defect in which BP in the left arm and in the legs, is much lower the BP in the right arm. In another version of this problem BP will be high in the arms but very low in the legs. This is the reason everyone with high blood pressure should have a BP taken in the legs or at least the Dr. feels for a radial-femoral pulse lag caused by the narrowing of the aorta above the femoral arteries. Clarence E. Grim, BS, MS, MD On Thursday, March 26, 2009, at 05:31PM, " a Hall " <shahall@...> wrote: > >Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? > >a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 > > > Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? > > a > Hope these questions may help Do you have fatigue Do you have muscle weakness and wasting Do you have muscle pain, twitching, prolonged spasm, cramping Do you have strange sensations on your skin Do you have tingling through your body Do you have sensations of ants crawling on your skin Do you have chest pain, that doesnt show anything on ECG Do you have palpitations esp at night when lying down, on left side Do you have dizzy episodes Do you have memory loss, confusion, brief episodes of disorientation Do you have constant episodes of sweating - full body, partial body, only one body part Do you have heat in one area of body, eg left arm, that builds up, then becomes itchy and a rash or lumps develop, then resolves itself Do you have tremors and shaking Do you have numbness in areas of body that change location Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Questions I would like to ask are What are the key symptoms that you felt? what speciality diagnozed your condition i.e nephrologist, internist How many specialists did you see before confirmation of diagnosis for me it is not questions that I wished the physcian has asked but more getting some information/resource at the start of the long road. From: a Hall <shahall@...> Subject: PA Survey Questions hyperaldosteronism Received: Thursday, March 26, 2009, 6:31 PM Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? a __________________________________________________________________ Connect with friends from any web browser - no download required. Try the new Canada Messenger for the Web BETA at http://ca.messenger../webmessengerpromo.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Hi a I'm very pleased you and others are taking these initiatives. Congratulations to all concerned! General questions 1. Can a person have low potassium levels sufficient to cause ill effects, even when the blood analysis indicates " within normal range " , and the blood has been taken according to the proper guidelines? 2. Are there any known links between PA and bowel polyposis? 3. Are there any known links between PA and spinal pain? 4.Are there any known links between PA and brain functioning? 5. Why is it that in some countries, doctors are wary of prescribing more than 50mg per day of spiro? Survey questions 1. Where you may have BP under control and potassium normalised through the use of spiro, what symptoms persist? 2. Have you had bowel polyps? 3. Do you have weakness in the back and legs such that unsupported walking is difficult? 4. Do you suffer from mental confusion/ foggy brain? 5. What dosage of spiro has proved most beneficial to you? 6. Have you ever been able to say, " At last, I'm feeling better " ? Carol a Hall wrote: > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish their > physician had asked them when they were searching for a diagnosis? > > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 There are a number of ways that drawing and handling blood that can falsely increase true low K to normal or even high K and these are detailed in one of our files. Read these and take to your health care team. What Sx are u talking about? Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@...> wrote: > Hi a > I'm very pleased you and others are taking these initiatives. > Congratulations to all concerned! > > General questions > 1. Can a person have low potassium levels sufficient to cause ill > effects, even when the blood analysis indicates " within normal range " , > and the blood has been taken according to the proper guidelines? > 2. Are there any known links between PA and bowel polyposis? > 3. Are there any known links between PA and spinal pain? > 4.Are there any known links between PA and brain functioning? > 5. Why is it that in some countries, doctors are wary of prescribing > more than 50mg per day of spiro? > > Survey questions > 1. Where you may have BP under control and potassium normalised > through > the use of spiro, what symptoms persist? > 2. Have you had bowel polyps? > 3. Do you have weakness in the back and legs such that unsupported > walking is difficult? > 4. Do you suffer from mental confusion/ foggy brain? > 5. What dosage of spiro has proved most beneficial to you? > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > Carol > > a Hall wrote: > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > survey that's being developed. Nobody here has questions they're > > curious about regarding PA? Nobody has questions that they wish > their > > physician had asked them when they were searching for a diagnosis? > > > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Some Dr don't Recall the old days (not born yet) when we would go to 400 my A Day Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@...> wrote: > Hi a > I'm very pleased you and others are taking these initiatives. > Congratulations to all concerned! > > General questions > 1. Can a person have low potassium levels sufficient to cause ill > effects, even when the blood analysis indicates " within normal range " , > and the blood has been taken according to the proper guidelines? > 2. Are there any known links between PA and bowel polyposis? > 3. Are there any known links between PA and spinal pain? > 4.Are there any known links between PA and brain functioning? > 5. Why is it that in some countries, doctors are wary of prescribing > more than 50mg per day of spiro? > > Survey questions > 1. Where you may have BP under control and potassium normalised > through > the use of spiro, what symptoms persist? > 2. Have you had bowel polyps? > 3. Do you have weakness in the back and legs such that unsupported > walking is difficult? > 4. Do you suffer from mental confusion/ foggy brain? > 5. What dosage of spiro has proved most beneficial to you? > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > Carol > > a Hall wrote: > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > survey that's being developed. Nobody here has questions they're > > curious about regarding PA? Nobody has questions that they wish > their > > physician had asked them when they were searching for a diagnosis? > > > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Did u see a specialist in hypertension? ie board certified by the American Soc of HTN? You can find a list of such aT their web Site. Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 26, 2009, at 8:20 PM, Sue james <semajsue1@...> wrote: > > Questions I would like to ask are > > What are the key symptoms that you felt? > what speciality diagnozed your condition i.e nephrologist, internist > How many specialists did you see before confirmation of diagnosis > > for me it is not questions that I wished the physcian has asked but > more getting some information/resource at the start of the long road. > > > > > From: a Hall <shahall@...> > Subject: PA Survey Questions > hyperaldosteronism > Received: Thursday, March 26, 2009, 6:31 PM > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish > their physician had asked them when they were searching for a > diagnosis? > > a > > __________________________________________________________ > Connect with friends from any web browser - no download required. > Try the new Canada Messenger for the Web BETA at http://ca.messenger > ../webmessengerpromo.php > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Might change first few words to have u ever had.... I think it would be useful to have a timeline from first high BP as zero time and then place each symptom or sign such as low K on the time line visits to Er etc Might also be useful to add $ spent by u or insurance till Dx Was Made. Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 26, 2009, at 7:43 PM, hdrewe <hdrewe@...> wrote: > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish > their physician had asked them when they were searching for a > diagnosis? > > > > a > > > Hope these questions may help > > Do you have fatigue > Do you have muscle weakness and wasting > Do you have muscle pain, twitching, prolonged spasm, cramping > Do you have strange sensations on your skin > Do you have tingling through your body > Do you have sensations of ants crawling on your skin > Do you have chest pain, that doesnt show anything on ECG > Do you have palpitations esp at night when lying down, on left side > Do you have dizzy episodes > Do you have memory loss, confusion, brief episodes of disorientation > Do you have constant episodes of sweating - full body, partial body, > only one body part > Do you have heat in one area of body, eg left arm, that builds up, > then becomes itchy and a rash or lumps develop, then resolves itself > Do you have tremors and shaking > Do you have numbness in areas of body that change location > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Hello a! You have already got many good questions. I wish my primary doctor, or any MD I have seen the last 20 years, had asked me about peeing habits and thirst. I am always thirsthy and have to pee every hour of the day. These are classical syptoms of PA, but I have had them for so long it feels normal to me. For the survey I am curious about other symtoms that can point to PA. What about a list off all the symptoms and other deseases the group have experienced, to be answered by yes, no, or dont know, to see some statistics off our problems? Ex: Low K; Low vitamin D; Other hormones tare not normal, like insulin or testosterone; fibroids; itching, bruising, sweating, hot flashes and all we can think off? Henriette ________________________________ From: a Hall <shahall@...> hyperaldosteronism Sent: Thursday, March 26, 2009 11:31:17 PM Subject: PA Survey Questions Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 These are all excellent questions, but they're based on the assumption that the doctor would know about PA and be open to the possibility that the patient could have it. And then, if the patient has never heard about PA, and the doctor who is asking the questions doesn't know diddly about PA, then the answers would mean nothing. You see, it's like the blind leading the blind. For example, I had never heard of PA, didn't even know where my adrenal gland was or what it did. For six years, I was treated by the same doctor for HBP. I told her about the low K, but she ignored it. She kept wanting me to go on a diuretic and I kept telling her that I peed enough as it is. She never asked the followup question, " How many times a day or night do you pee? " And I put down the excessive urination as a perimenopausal symptom. I didn't realize it, but I was sending her huge signals about what was wrong with me, which she didn't know what to do with. So, I guess my question is, how do you envision this survey being put to use? Will it be circulated to primary care doctors? Sorry if I missed the explanation on the purpose of this survey. I think it's a great idea to gather all of this information together, but not sure what the plan is? What are we going to do with it? > > > Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 , I agree with you 100%. I emailed Dr. Grim earlier and suggested that we split this into two different projects, the first being a survey for those of us already diagnosed with PA, with the resulting data to be used in a scientific paper about PA. The second document would be a joint effort between everyone here. We could formulate a questionaire in the " files " section of the group that would list questions that in retrospect we wished we'd asked our doctors and the questions we think our doctors should have asked us on the road to diagnosis. It could save new members who think they might have PA a lot of time, grief and money. a From: em5704 <em5704@...> Subject: Re: PA Survey Questions hyperaldosteronism Date: Friday, March 27, 2009, 8:00 PM These are all excellent questions, but they're based on the assumption that the doctor would know about PA and be open to the possibility that the patient could have it. And then, if the patient has never heard about PA, and the doctor who is asking the questions doesn't know diddly about PA, then the answers would mean nothing. You see, it's like the blind leading the blind. For example, I had never heard of PA, didn't even know where my adrenal gland was or what it did. For six years, I was treated by the same doctor for HBP. I told her about the low K, but she ignored it. She kept wanting me to go on a diuretic and I kept telling her that I peed enough as it is. She never asked the followup question, " How many times a day or night do you pee? " And I put down the excessive urination as a perimenopausal symptom. I didn't realize it, but I was sending her huge signals about what was wrong with me, which she didn't know what to do with. So, I guess my question is, how do you envision this survey being put to use? Will it be circulated to primary care doctors? Sorry if I missed the explanation on the purpose of this survey. I think it's a great idea to gather all of this information together, but not sure what the plan is? What are we going to do with it? > > > Again, I'd like to ask the group to contribute questions to the PA survey that's being developed. Nobody here has questions they're curious about regarding PA? Nobody has questions that they wish their physician had asked them when they were searching for a diagnosis? > > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I see two purposes. 1. A standardized set of history questions That after we have collected the Dar Data on say 500 cases we can come up with a key set of questions that would allow drs And pts to make the dx or lead to further testing. Of course anyone with Htn and low K should be tested Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 27, 2009, at 7:21 PM, a Hall <shahall@...> wrote: > , > I agree with you 100%. I emailed Dr. Grim earlier and suggested > that we split this into two different projects, the first being a > survey for those of us already diagnosed with PA, with the resulting > data to be used in a scientific paper about PA. The second document > would be a joint effort between everyone here. We could formulate a > questionaire in the " files " section of the group that would list > questions that in retrospect we wished we'd asked our doctors and > the questions we think our doctors should have asked us on the road > to diagnosis. It could save new members who think they might have > PA a lot of time, grief and money. > > a > > > > From: em5704 <em5704@...> > Subject: Re: PA Survey Questions > hyperaldosteronism > Date: Friday, March 27, 2009, 8:00 PM > > These are all excellent questions, but they're based on the > assumption that the doctor would know about PA and be open to the > possibility that the patient could have it. And then, if the patient > has never heard about PA, and the doctor who is asking the questions > doesn't know diddly about PA, then the answers would mean nothing. > You see, it's like the blind leading the blind. > > For example, I had never heard of PA, didn't even know where my > adrenal gland was or what it did. For six years, I was treated by > the same doctor for HBP. I told her about the low K, but she ignored > it. She kept wanting me to go on a diuretic and I kept telling her > that I peed enough as it is. She never asked the followup question, > " How many times a day or night do you pee? " And I put down the > excessive urination as a perimenopausal symptom. I didn't realize > it, but I was sending her huge signals about what was wrong with me, > which she didn't know what to do with. So, I guess my question is, > how do you envision this survey being put to use? Will it be > circulated to primary care doctors? Sorry if I missed the > explanation on the purpose of this survey. I think it's a great idea > to gather all of this information together, but not sure what the > plan is? What are we going to do with it? > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish > their physician had asked them when they were searching for a > diagnosis? > > > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 U would prefer to see a competent diagnostic protocol first. as On Mar 27, 2009, at 8:21 PM, a Hall wrote: > , > I agree with you 100%. I emailed Dr. Grim earlier and suggested > that we split this into two different projects, the first being a > survey for those of us already diagnosed with PA, with the resulting > data to be used in a scientific paper about PA. The second document > would be a joint effort between everyone here. We could formulate a > questionaire in the " files " section of the group that would list > questions that in retrospect we wished we'd asked our doctors and the > questions we think our doctors should have asked us on the road to > diagnosis. It could save new members who think they might have PA a > lot of time, grief and money. > > a > > > > From: em5704 <em5704@...> > Subject: Re: PA Survey Questions > hyperaldosteronism > Date: Friday, March 27, 2009, 8:00 PM > > These are all excellent questions, but they're based on the > assumption that the doctor would know about PA and be open to the > possibility that the patient could have it. And then, if the patient > has never heard about PA, and the doctor who is asking the questions > doesn't know diddly about PA, then the answers would mean nothing. You > see, it's like the blind leading the blind. > > For example, I had never heard of PA, didn't even know where my > adrenal gland was or what it did. For six years, I was treated by the > same doctor for HBP. I told her about the low K, but she ignored it. > She kept wanting me to go on a diuretic and I kept telling her that I > peed enough as it is. She never asked the followup question, " How many > times a day or night do you pee? " And I put down the excessive > urination as a perimenopausal symptom. I didn't realize it, but I was > sending her huge signals about what was wrong with me, which she > didn't know what to do with. So, I guess my question is, how do you > envision this survey being put to use? Will it be circulated to > primary care doctors? Sorry if I missed the explanation on the purpose > of this survey. I think it's a great idea to gather all of this > information together, but not sure what the plan is? What are we going > to do with it? > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish their > physician had asked them when they were searching for a diagnosis? > > > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Forgot about the second purpose To collect long term followip of the results of surgery, Chronic medical therapy in a large number of folks. This would include the effect the DASH diet on BP, K, symptoms, need for meds, change in nocturia etc The DASH effect will be one of the first things we can Write about in the Medical literature. Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 27, 2009, at 7:00 PM, em5704 <em5704@...> wrote: > These are all excellent questions, but they're based on the > assumption that the doctor would know about PA and be open to the > possibility that the patient could have it. And then, if the patient > has never heard about PA, and the doctor who is asking the questions > doesn't know diddly about PA, then the answers would mean nothing. > You see, it's like the blind leading the blind. > > For example, I had never heard of PA, didn't even know where my > adrenal gland was or what it did. For six years, I was treated by > the same doctor for HBP. I told her about the low K, but she ignored > it. She kept wanting me to go on a diuretic and I kept telling her > that I peed enough as it is. She never asked the followup question, > " How many times a day or night do you pee? " And I put down the > excessive urination as a perimenopausal symptom. I didn't realize > it, but I was sending her huge signals about what was wrong with me, > which she didn't know what to do with. So, I guess my question is, > how do you envision this survey being put to use? Will it be > circulated to primary care doctors? Sorry if I missed the > explanation on the purpose of this survey. I think it's a great idea > to gather all of this information together, but not sure what the > plan is? What are we going to do with it? > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish > their physician had asked them when they were searching for a > diagnosis? > > > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Absolutely. > > From: em5704 <em5704 (DOT) com> > Subject: [hyperaldosteronism ] Re: PA Survey Questions > hyperaldosteronism > Date: Friday, March 27, 2009, 8:00 PM > > These are all excellent questions, but they're based on the > assumption that the doctor would know about PA and be open to the > possibility that the patient could have it. And then, if the patient > has never heard about PA, and the doctor who is asking the questions > doesn't know diddly about PA, then the answers would mean nothing. You > see, it's like the blind leading the blind. > > For example, I had never heard of PA, didn't even know where my > adrenal gland was or what it did. For six years, I was treated by the > same doctor for HBP. I told her about the low K, but she ignored it. > She kept wanting me to go on a diuretic and I kept telling her that I > peed enough as it is. She never asked the followup question, " How many > times a day or night do you pee? " And I put down the excessive > urination as a perimenopausal symptom. I didn't realize it, but I was > sending her huge signals about what was wrong with me, which she > didn't know what to do with. So, I guess my question is, how do you > envision this survey being put to use? Will it be circulated to > primary care doctors? Sorry if I missed the explanation on the purpose > of this survey. I think it's a great idea to gather all of this > information together, but not sure what the plan is? What are we going > to do with it? > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish their > physician had asked them when they were searching for a diagnosis? > > > > a > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 For each lab test we will need to know what is normal in that lab For many hormone assays there are no international reference standards like there are for lipids. For each symptom we we need to know when did it start in your timeline. What made it better or worse etc did it get better with MCB or after surgery. As u can see this will be a fairly long questionnaire. Many may not want to spend the time to do it. One issue is how do u document when HTN WAS FIRST noted ? Key dates include BP for life insurance discharge from armed forces, pregnancies, work Exams etc. One message we need to be teaching in health/biology classes is that your BP is your most important vital sign. By this we mean BP is the best way we have to predict what u will get sick and disabled from and die from. Well we do need to include inthis Predictive value your age gender and if you smoke cigarettes. So for the rest of your life u want to pay close attention to your BP. Your goal is to keep it below 120/80 Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 27, 2009, at 4:11 PM, Henriette Birch <henriette.birch@...> wrote: > Hello a! > > You have already got many good questions. > > I wish my primary doctor, or any MD I have seen the last 20 years, > had asked me about peeing habits and thirst. > I am always thirsthy and have to pee every hour of the day. These > are classical syptoms of PA, but I have had them for so long it > feels normal to me. > > For the survey I am curious about other symtoms that can point to PA. > What about a list off all the symptoms and other deseases the group > have experienced, to be answered by yes, no, or dont know, to see > some statistics off our problems? > Ex: Low K; Low vitamin D; Other hormones tare not normal, like > insulin or testosterone; fibroids; itching, bruising, sweating, hot > flashes and all we can think off? > > Henriette > > ________________________________ > From: a Hall <shahall@...> > hyperaldosteronism > Sent: Thursday, March 26, 2009 11:31:17 PM > Subject: PA Survey Questions > > Again, I'd like to ask the group to contribute questions to the PA > survey that's being developed. Nobody here has questions they're > curious about regarding PA? Nobody has questions that they wish > their physician had asked them when they were searching for a > diagnosis? > > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 How low is to low k If the one lab has 3.5 as the cut off and other labs have 3.7 witch one is right. My understanding is the labs come up with there range is they test many people and if 95 % of the test are between a range then that is normal. Then they take 5 % of other people and if they have no symtoms they use this in there range as well. My question is what if you are near one end of the range and have symtoms are you normal? ----- Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 How low is to low k If the one lab has 3.5 as the cut off and other labs have 3.7 witch one is right. My understanding is the labs come up with there range is they test many people and if 95 % of the test are between a range then that is normal. Then they take 5 % of other people and if they have no symtoms they use this in there range as well. My question is what if you are near one end of the range and have symtoms are you normal? ----- Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I always wonder the same thing. And perhaps I have missed this, but - my ks have been between 3.4 and 3.7 for the past five years. Is this considered symptomatic as related to PA?? My mds have said this is just normal low.... Sent via BlackBerry from T-Mobile Re: PA Survey Questions How low is to low k If the one lab has 3.5 as the cut off and other labs have 3.7 witch one is right. My understanding is the labs come up with there range is they test many people and if 95 % of the test are between a range then that is normal. Then they take 5 % of other people and if they have no symtoms they use this in there range as well. My question is what if you are near one end of the range and have symtoms are you normal? ----- Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I always wonder the same thing. And perhaps I have missed this, but - my ks have been between 3.4 and 3.7 for the past five years. Is this considered symptomatic as related to PA?? My mds have said this is just normal low.... Sent via BlackBerry from T-Mobile Re: PA Survey Questions How low is to low k If the one lab has 3.5 as the cut off and other labs have 3.7 witch one is right. My understanding is the labs come up with there range is they test many people and if 95 % of the test are between a range then that is normal. Then they take 5 % of other people and if they have no symtoms they use this in there range as well. My question is what if you are near one end of the range and have symtoms are you normal? ----- Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 I added a folder called web links for adenoma If you look at the web site you will find just how little is know about Conn's ----- Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 If no one takes and assembles the data, you'll never get anywhere. Regards Re: PA Survey Questions > hyperaldosteronism > Date: Friday, March 27, 2009, 8:00 PM > > These are all excellent questions, but they're based on the > assumption that the doctor would know about PA and be open to the > possibility that the patient could have it. And then, if the patient > has never heard about PA, and the doctor who is asking the questions > doesn't know diddly about PA, then the answers would mean nothing. You > see, it's like the blind leading the blind. > > For example, I had never heard of PA, didn't even know where my > adrenal gland was or what it did. For six years, I was treated by the > same doctor for HBP. I told her about the low K, but she ignored it. > She kept wanting me to go on a diuretic and I kept telling her that I > peed enough as it is. She never asked the followup question, " How many > times a day or night do you pee? " And I put down the excessive > urination as a perimenopausal symptom. I didn't realize it, but I was > sending her huge signals about what was wrong with me, which she > didn't know what to do with. So, I guess my question is, how do you > envision this survey being put to use? Will it be circulated to > primary care doctors? Sorry if I missed the explanation on the purpose > of this survey. I think it's a great idea to gather all of this > information together, but not sure what the plan is? What are we going > to do with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 I think the range is determined from their average data, since they are responsible for that area. Regards Re: PA Survey Questions Date: Sat, 28 Mar 2009 11:20:53 +1000 Symptoms such as weak muscles, especially in legs, muscle pain and soreness, muscle cramping...fatigue generally Clarence Grim wrote: > > There are a number of ways that drawing and handling blood that can > falsely increase true low K to normal or even high K and these are > detailed in one of our files. Read these and take to your health care > team. > > What Sx are u talking about? > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Mar 26, 2009, at 8:33 PM, Carol Christie <carolch@... > <mailto:carolch%40gil.com.au>> wrote: > > > Hi a > > I'm very pleased you and others are taking these initiatives. > > Congratulations to all concerned! > > > > General questions > > 1. Can a person have low potassium levels sufficient to cause ill > > effects, even when the blood analysis indicates " within normal range " , > > and the blood has been taken according to the proper guidelines? > > 2. Are there any known links between PA and bowel polyposis? > > 3. Are there any known links between PA and spinal pain? > > 4.Are there any known links between PA and brain functioning? > > 5. Why is it that in some countries, doctors are wary of prescribing > > more than 50mg per day of spiro? > > > > Survey questions > > 1. Where you may have BP under control and potassium normalised > > through > > the use of spiro, what symptoms persist? > > 2. Have you had bowel polyps? > > 3. Do you have weakness in the back and legs such that unsupported > > walking is difficult? > > 4. Do you suffer from mental confusion/ foggy brain? > > 5. What dosage of spiro has proved most beneficial to you? > > 6. Have you ever been able to say, " At last, I'm feeling better " ? > > > > Carol > > > > a Hall wrote: > > > > > > > > > Again, I'd like to ask the group to contribute questions to the PA > > > survey that's being developed. Nobody here has questions they're > > > curious about regarding PA? Nobody has questions that they wish > > their > > > physician had asked them when they were searching for a diagnosis? > > > > > > a > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Once we get the questionaire I can do the data analysis. Would Google docs be a better way to do ? Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Mar 28, 2009, at 11:55 AM, jwwright <jwwright@...> wrote: > If no one takes and assembles the data, you'll never > get anywhere. > Regards > > Re: PA Survey Questions > > hyperaldosteronism > > Date: Friday, March 27, 2009, 8:00 PM > > > > These are all excellent questions, but they're based > on the > > assumption that the doctor would know about PA and be > open to the > > possibility that the patient could have it. And then, > if the patient > > has never heard about PA, and the doctor who is > asking the questions > > doesn't know diddly about PA, then the answers would > mean nothing. You > > see, it's like the blind leading the blind. > > > > For example, I had never heard of PA, didn't even > know where my > > adrenal gland was or what it did. For six years, I > was treated by the > > same doctor for HBP. I told her about the low K, but > she ignored it. > > She kept wanting me to go on a diuretic and I kept > telling her that I > > peed enough as it is. She never asked the followup > question, " How many > > times a day or night do you pee? " And I put down the > excessive > > urination as a perimenopausal symptom. I didn't > realize it, but I was > > sending her huge signals about what was wrong with > me, which she > > didn't know what to do with. So, I guess my question > is, how do you > > envision this survey being put to use? Will it be > circulated to > > primary care doctors? Sorry if I missed the > explanation on the purpose > > of this survey. I think it's a great idea to gather > all of this > > information together, but not sure what the plan is? > What are we going > > to do with it? > > > > > div#ygrp-mlmsg #ygrp-msg p a span.yshortcuts { font-family: Verdana; > font-size: 10px; font-weight: normal; } #ygrp-msg p a { font-family: > Verdana; font-size: 10px; } #ygrp-mlmsg a { color: #1E66AE; } > div.attach-table div div a { text-decoration: none; } div.attach- > table { width: 400px; } --> l> Quote Link to comment Share on other sites More sharing options...
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