Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled me for > > AVS and I want to make sure I should do it. I have an adenoma on my right > > adrenal gland and the results of my aldosterol/renin are as follows: A/RA > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have not yet > > been on any meds because I was just diagnosed. Shouldn't we try spiro first? > > > > > > Thanks for any advice! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled me for > > AVS and I want to make sure I should do it. I have an adenoma on my right > > adrenal gland and the results of my aldosterol/renin are as follows: A/RA > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have not yet > > been on any meds because I was just diagnosed. Shouldn't we try spiro first? > > > > > > Thanks for any advice! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 I think if things get better on spiro and you can take it OK that is further evidence that aldo is the problem. There is some small risk to AVS so I delay it till we have decided that if it is + we will do surgery. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 30, 2009, at 10:46 AM, sgalley1@... wrote: > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for AVS and I want to make sure I should do it. I have an > adenoma on my right adrenal gland and the results of my aldosterol/ > renin are as follows: A/RA Ratio Calc: 164.0 Aldosterone 32.8 and > Renin, D irec t .2 I have not yet been on any meds because I was > just diagnosed. Shouldn't we try spiro first? > > Thanks for any advice! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 You need to DASH to get more K. 40 mg is not likely enough. That is about 1,200 mg and you want with DASH 4,000 mg. Diet K is better as well. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 31, 2009, at 8:39 AM, jndaqca2009 wrote: > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > > adrenal gland and the results of my aldosterol/renin are as > follows: A/RA > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 , when you see the endocrinologist, you should plead for him/her to send you to an EXPERIENCED interventional radiologist. If your endo recommends it, I bet you could go up to Mayo to have the AVS. In a private email, I am sending you the Endocrinology Society's PA guidelines + Dr. Grim's paper about. Print them out and study them. Take them to any doctors who have seen you - pronto. They ought not be playing with you for six months. If you have any trouble opening them, write me back. BTW all, is in a socialized medicine situation. He is only allowed to see an interventional radiologist with inferior qualifications. We should be careful what we wish for. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jndaqca2009 Hi. When I did my first AVS last year in October I was on Spironolactone--doctor said it was OK since the blood was comming from my adrenals the medication would not make a difference in my results. I had no ACTH prior and checked to make sure. I asked the intervention radiologist how many of these procedures they have done and they laughed and said " your the lucky second " . That made me feel real secure. I had no idea on what the procedures were and only have the info I can find on the internet for my doctor has no idea what it is either. Only the left side was successful. The only meds I am on now is labetalol 1200mg per day, clonidine .1mg three times a day. Last night the doctor told me I could go back on Lisinopril 40mg once a day until I have more labs because I would have to stop it again 7- 10 days prior to lab work-this was only after I told her I couldn't sleep or stand my punding heartbeat for the past 2 montsh anymore. I had a other various meds before that were working better but on hold until tests are done. My second AVS got canceled and instead they finally referred me to Endo after playing around with me for over 6 months learning. So, now am just waiting to be called after the endo appointment is scheduled and we go from there. I also sent in some paperwork in regards to a clinical trial just in case nothing happens where I am now. The insurance I have is called Iowa Care and it only covers costs at the University of Iowa-stuck there. I also found out last night that the doctor is going by some clinical information on the internet and her associates but don't know which one and what they really know-- I know they have not been talking to any endocrine people on their team only an endocrine surgeon that told me she knows nothing regarding adrenal workups just does surgery--I think that's strange. I will post labs later today after I get them together. I live in Davenport, Iowa and go to the University of Iowa in Iowa City, Iowa. I appreciate all your help and talk soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 , how much sodium are you getting every day? How much potassium? Do you know? Low-sodium V-8 is very good at getting potassium without the sodium. Each little can is 570 mg K. What are your symptoms? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of jndaqca2009 Forgot some meds---along with the previous ones I listed I also take: Zanex 1mg twice daily, Singulair 10mg once a day, and 40meq of potassium daily. Talk again soon.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 I agree with you. I will let you know when I see the endo and express my concerns and frustrations. Thanks for the documents. I appreciate all your help. ________________________________ From: Valarie <val@...> hyperaldosteronism Sent: Saturday, January 31, 2009 12:13:47 PM Subject: RE: Re: Is AVS nesessary? , when you see the endocrinologist, you should plead for him/her to send you to an EXPERIENCED interventional radiologist. If your endo recommends it, I bet you could go up to Mayo to have the AVS. In a private email, I am sending you the Endocrinology Society's PA guidelines + Dr. Grim's paper about. Print them out and study them. Take them to any doctors who have seen you - pronto. They ought not be playing with you for six months. If you have any trouble opening them, write me back. BTW all, is in a socialized medicine situation. He is only allowed to see an interventional radiologist with inferior qualifications. We should be careful what we wish for. Val From: hyperaldosteronism [mailto:hyperaldosteronism] On Behalf Of jndaqca2009 Hi. When I did my first AVS last year in October I was on Spironolactone- -doctor said it was OK since the blood was comming from my adrenals the medication would not make a difference in my results. I had no ACTH prior and checked to make sure. I asked the intervention radiologist how many of these procedures they have done and they laughed and said " your the lucky second " . That made me feel real secure. I had no idea on what the procedures were and only have the info I can find on the internet for my doctor has no idea what it is either. Only the left side was successful. The only meds I am on now is labetalol 1200mg per day, clonidine .1mg three times a day. Last night the doctor told me I could go back on Lisinopril 40mg once a day until I have more labs because I would have to stop it again 7- 10 days prior to lab work-this was only after I told her I couldn't sleep or stand my punding heartbeat for the past 2 montsh anymore. I had a other various meds before that were working better but on hold until tests are done. My second AVS got canceled and instead they finally referred me to Endo after playing around with me for over 6 months learning. So, now am just waiting to be called after the endo appointment is scheduled and we go from there. I also sent in some paperwork in regards to a clinical trial just in case nothing happens where I am now. The insurance I have is called Iowa Care and it only covers costs at the University of Iowa-stuck there. I also found out last night that the doctor is going by some clinical information on the internet and her associates but don't know which one and what they really know-- I know they have not been talking to any endocrine people on their team only an endocrine surgeon that told me she knows nothing regarding adrenal workups just does surgery--I think that's strange. I will post labs later today after I get them together.. I live in Davenport, Iowa and go to the University of Iowa in Iowa City, Iowa. I appreciate all your help and talk soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 If he wants to pay he can go to anyone he wants. Just like in Canada and UK and Australia. If we want to pay taxes enought we can have a system that lets you go to any Dr. you want. It is all a matter of $. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 31, 2009, at 12:13 PM, Valarie wrote: > , when you see the endocrinologist, you should plead for him/ > her to send > you to an EXPERIENCED interventional radiologist. If your endo > recommends > it, I bet you could go up to Mayo to have the AVS. > > In a private email, I am sending you the Endocrinology Society's PA > guidelines + Dr. Grim's paper about. Print them out and study them. > Take > them to any doctors who have seen you - pronto. They ought not be > playing > with you for six months. If you have any trouble opening them, > write me > back. > > BTW all, is in a socialized medicine situation. He is only > allowed to > see an interventional radiologist with inferior qualifications. We > should > be careful what we wish for. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of jndaqca2009 > > Hi. When I did my first AVS last year in October I was on > Spironolactone--doctor said it was OK since the blood was comming > from my adrenals the medication would not make a difference in my > results. I had no ACTH prior and checked to make sure. I asked the > intervention radiologist how many of these procedures they have done > and they laughed and said " your the lucky second " . That made me feel > real secure. I had no idea on what the procedures were and only have > the info I can find on the internet for my doctor has no idea what it > is either. Only the left side was successful. The only meds I am on > now is labetalol 1200mg per day, clonidine .1mg three times a day. > Last night the doctor told me I could go back on Lisinopril 40mg once > a day until I have more labs because I would have to stop it again 7- > 10 days prior to lab work-this was only after I told her I couldn't > sleep or stand my punding heartbeat for the past 2 montsh anymore. I > had a other various meds before that were working better but on hold > until tests are done. My second AVS got canceled and instead they > finally referred me to Endo after playing around with me for over 6 > months learning. So, now am just waiting to be called after the endo > appointment is scheduled and we go from there. I also sent in some > paperwork in regards to a clinical trial just in case nothing happens > where I am now. The insurance I have is called Iowa Care and it only > covers costs at the University of Iowa-stuck there. I also found out > last night that the doctor is going by some clinical information on > the internet and her associates but don't know which one and what > they really know-- I know they have not been talking to any > endocrine people on their team only an endocrine surgeon that told me > she knows nothing regarding adrenal workups just does surgery--I > think that's strange. I will post labs later today after I get them > together. I live in Davenport, Iowa and go to the University of Iowa > in Iowa City, Iowa. I appreciate all your help and talk soon. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 As far as the radiologist--the main doctor started the procedure and stopped at the right adrenal and had his intern or resident complete the procedure. The way he was acting and questions he asked made me feel uneasy. I wish th other guy just would've finished---but it's a teaching hospital. I understand everyone has to learn but this is not a procedure to leave your guy alone in my opinion. I hate not having a choice to go somewhere else when I am unhappy with the services but that's what it is---much reform still ahead in regards to healthcare. Talk again soon and thanks. ________________________________ From: Valarie <val@...> hyperaldosteronism Sent: Saturday, January 31, 2009 12:13:47 PM Subject: RE: Re: Is AVS nesessary? , when you see the endocrinologist, you should plead for him/her to send you to an EXPERIENCED interventional radiologist. If your endo recommends it, I bet you could go up to Mayo to have the AVS. In a private email, I am sending you the Endocrinology Society's PA guidelines + Dr. Grim's paper about. Print them out and study them. Take them to any doctors who have seen you - pronto. They ought not be playing with you for six months. If you have any trouble opening them, write me back. BTW all, is in a socialized medicine situation. He is only allowed to see an interventional radiologist with inferior qualifications. We should be careful what we wish for. Val From: hyperaldosteronism [mailto:hyperaldosteronism] On Behalf Of jndaqca2009 Hi. When I did my first AVS last year in October I was on Spironolactone- -doctor said it was OK since the blood was comming from my adrenals the medication would not make a difference in my results. I had no ACTH prior and checked to make sure. I asked the intervention radiologist how many of these procedures they have done and they laughed and said " your the lucky second " . That made me feel real secure. I had no idea on what the procedures were and only have the info I can find on the internet for my doctor has no idea what it is either. Only the left side was successful. The only meds I am on now is labetalol 1200mg per day, clonidine .1mg three times a day. Last night the doctor told me I could go back on Lisinopril 40mg once a day until I have more labs because I would have to stop it again 7- 10 days prior to lab work-this was only after I told her I couldn't sleep or stand my punding heartbeat for the past 2 montsh anymore. I had a other various meds before that were working better but on hold until tests are done. My second AVS got canceled and instead they finally referred me to Endo after playing around with me for over 6 months learning. So, now am just waiting to be called after the endo appointment is scheduled and we go from there. I also sent in some paperwork in regards to a clinical trial just in case nothing happens where I am now. The insurance I have is called Iowa Care and it only covers costs at the University of Iowa-stuck there. I also found out last night that the doctor is going by some clinical information on the internet and her associates but don't know which one and what they really know-- I know they have not been talking to any endocrine people on their team only an endocrine surgeon that told me she knows nothing regarding adrenal workups just does surgery--I think that's strange. I will post labs later today after I get them together. I live in Davenport, Iowa and go to the University of Iowa in Iowa City, Iowa. I appreciate all your help and talk soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 Send a complaint to the hospital and medical board. You should not be in the room alone with the student intern resident doing stuff without the senior guy there. At least not if the senior guy billed for the compete procedure. However the left side is usually so easy to do anyone can do it. This is because the left adrenal vein comes off the left renal (usually) and it is big. The right is usually supplied by several small veins. That may come off the vena cava ortherenal ors the hepatic veins. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 31, 2009, at 10:03 PM, Jay Man wrote: > As far as the radiologist--the main doctor started the procedure > and stopped at the right adrenal and had his intern or resident > complete the procedure. The way he was acting and questions he > asked made me feel uneasy. I wish th other guy just would've > finished---but it's a teaching hospital. I understand everyone has > to learn but this is not a procedure to leave your guy alone in my > opinion. I hate not having a choice to go somewhere else when I am > unhappy with the services but that's what it is---much reform still > ahead in regards to healthcare. Talk again soon and thanks. > > ________________________________ > From: Valarie <val@...> > hyperaldosteronism > Sent: Saturday, January 31, 2009 12:13:47 PM > Subject: RE: Re: Is AVS nesessary? > > , when you see the endocrinologist, you should plead for him/ > her to send > you to an EXPERIENCED interventional radiologist. If your endo > recommends > it, I bet you could go up to Mayo to have the AVS. > > In a private email, I am sending you the Endocrinology Society's PA > guidelines + Dr. Grim's paper about. Print them out and study them. > Take > them to any doctors who have seen you - pronto. They ought not be > playing > with you for six months. If you have any trouble opening them, > write me > back. > > BTW all, is in a socialized medicine situation. He is only > allowed to > see an interventional radiologist with inferior qualifications. We > should > be careful what we wish for. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism] On Behalf Of jndaqca2009 > > Hi. When I did my first AVS last year in October I was on > Spironolactone- -doctor said it was OK since the blood was comming > from my adrenals the medication would not make a difference in my > results. I had no ACTH prior and checked to make sure. I asked the > intervention radiologist how many of these procedures they have done > and they laughed and said " your the lucky second " . That made me feel > real secure. I had no idea on what the procedures were and only have > the info I can find on the internet for my doctor has no idea what it > is either. Only the left side was successful. The only meds I am on > now is labetalol 1200mg per day, clonidine .1mg three times a day. > Last night the doctor told me I could go back on Lisinopril 40mg once > a day until I have more labs because I would have to stop it again 7- > 10 days prior to lab work-this was only after I told her I couldn't > sleep or stand my punding heartbeat for the past 2 montsh anymore. I > had a other various meds before that were working better but on hold > until tests are done. My second AVS got canceled and instead they > finally referred me to Endo after playing around with me for over 6 > months learning. So, now am just waiting to be called after the endo > appointment is scheduled and we go from there. I also sent in some > paperwork in regards to a clinical trial just in case nothing happens > where I am now. The insurance I have is called Iowa Care and it only > covers costs at the University of Iowa-stuck there. I also found out > last night that the doctor is going by some clinical information on > the internet and her associates but don't know which one and what > they really know-- I know they have not been talking to any > endocrine people on their team only an endocrine surgeon that told me > she knows nothing regarding adrenal workups just does surgery--I > think that's strange. I will post labs later today after I get them > together. I live in Davenport, Iowa and go to the University of Iowa > in Iowa City, Iowa. I appreciate all your help and talk soon. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 I was thinking about doing that---have to find out what the other guy really is---he just was not sure or confident of procedure... ________________________________ From: Clarence Grim <lowerbp2@...> hyperaldosteronism Sent: Saturday, January 31, 2009 10:14:41 PM Subject: Re: Re: Is AVS nesessary? Send a complaint to the hospital and medical board. You should not be in the room alone with the student intern resident doing stuff without the senior guy there. At least not if the senior guy billed for the compete procedure. However the left side is usually so easy to do anyone can do it. This is because the left adrenal vein comes off the left renal (usually) and it is big. The right is usually supplied by several small veins. That may come off the vena cava ortherenal ors the hepatic veins. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc. com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 31, 2009, at 10:03 PM, Jay Man wrote: > As far as the radiologist- -the main doctor started the procedure > and stopped at the right adrenal and had his intern or resident > complete the procedure. The way he was acting and questions he > asked made me feel uneasy. I wish th other guy just would've > finished---but it's a teaching hospital. I understand everyone has > to learn but this is not a procedure to leave your guy alone in my > opinion. I hate not having a choice to go somewhere else when I am > unhappy with the services but that's what it is---much reform still > ahead in regards to healthcare. Talk again soon and thanks. > > ____________ _________ _________ __ > From: Valarie <val@...> > hyperaldosteronism > Sent: Saturday, January 31, 2009 12:13:47 PM > Subject: RE: [hyperaldosteronism ] Re: Is AVS nesessary? > > , when you see the endocrinologist, you should plead for him/ > her to send > you to an EXPERIENCED interventional radiologist. If your endo > recommends > it, I bet you could go up to Mayo to have the AVS. > > In a private email, I am sending you the Endocrinology Society's PA > guidelines + Dr. Grim's paper about. Print them out and study them. > Take > them to any doctors who have seen you - pronto. They ought not be > playing > with you for six months. If you have any trouble opening them, > write me > back. > > BTW all, is in a socialized medicine situation. He is only > allowed to > see an interventional radiologist with inferior qualifications. We > should > be careful what we wish for. > > Val > > From: hyperaldosteronism > [mailto:hyperaldost eronism] On Behalf Of jndaqca2009 > > Hi. When I did my first AVS last year in October I was on > Spironolactone- -doctor said it was OK since the blood was comming > from my adrenals the medication would not make a difference in my > results. I had no ACTH prior and checked to make sure. I asked the > intervention radiologist how many of these procedures they have done > and they laughed and said " your the lucky second " . That made me feel > real secure. I had no idea on what the procedures were and only have > the info I can find on the internet for my doctor has no idea what it > is either. Only the left side was successful. The only meds I am on > now is labetalol 1200mg per day, clonidine .1mg three times a day. > Last night the doctor told me I could go back on Lisinopril 40mg once > a day until I have more labs because I would have to stop it again 7- > 10 days prior to lab work-this was only after I told her I couldn't > sleep or stand my punding heartbeat for the past 2 montsh anymore. I > had a other various meds before that were working better but on hold > until tests are done. My second AVS got canceled and instead they > finally referred me to Endo after playing around with me for over 6 > months learning. So, now am just waiting to be called after the endo > appointment is scheduled and we go from there. I also sent in some > paperwork in regards to a clinical trial just in case nothing happens > where I am now. The insurance I have is called Iowa Care and it only > covers costs at the University of Iowa-stuck there. I also found out > last night that the doctor is going by some clinical information on > the internet and her associates but don't know which one and what > they really know-- I know they have not been talking to any > endocrine people on their team only an endocrine surgeon that told me > she knows nothing regarding adrenal workups just does surgery--I > think that's strange. I will post labs later today after I get them > together. I live in Davenport, Iowa and go to the University of Iowa > in Iowa City, Iowa. I appreciate all your help and talk soon. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Ok thanks for the info. I asked about ACTH and he does. The only medications I am taking are birth control ( seasonale ) and my potassium pill. I am in Salt Lake City, UT and I am having the AVS done at IMC . I will post my results as soon as I get them. Someone else asked about symptoms and if I was DASHing . I have had high blood pressure, heart palpitations, low potassium, and migraines. I just found out about the DASH diet from this site. Althought I eat heathly and run 4 times a week I will give it a try. I do have a couple more questions. I had advanced adenomas removed from my colon how do these relate to my adenoma on my adenal gland? Where else can they grow?  Thanks again to all of you for your help.  Re: [ hyperaldosteronism ] Is AVS nesessary ? To do an AVS , you want to be off spironolactone for 6 to 8 weeks. So if you haven't started, its best to do the AVS first. It is important to ask the team of radiologists if they are administering ACTH 30 minutes before the procedure. If not, demand that they do or don't do the AVS until they give you the ACTH. I did my first AVS at UCSF and the doctors already had given me the medication and I asked if they were administering the ACTH. They asked if I would do the procedure without it and I said that I would not. So we had to stop everything, even though shortly after I was sleep for 2 hours. Came back 4 days later and started on the procedure with ACTH, although the radiologist still messed up and could not get the right side, the endo surgeon told me that he had been doing this for years and years and it was for the first time he learned the difference it made in the lab results to administer the ACTH. The right side is hard to get to for most people. As a result most radiologists either mess up and take a sample of the Vena Cava and think they went in the right adrenal gland, or else they just won't get any samples from the right side. So, you may want to make sure that the team of doctors who are doing the AVS have done a few before attempting to become experts on you. Also, make sure that these doctors know where to send the samples once they take the samples. Most importantly, always get a copy of ALL your lab results and post them here. Dr. Grim and few others can read those lab results for you much better than any other doctor who may have only dealt with one or two patients in his/her career as a doctor. Dr. Grim on our group will give you more info but it will help him very much if you list your medications list if you are taking any kind of medication at this time. Also, let him know where you are. Such as State, City, hospital, etc. Also let us know if you eat licorice or any type, vitamins, meds , etc. In the meantime also google the DASH diet(Dietary Approaches to Stop Hypertension) and educate yourself on the difference that the food you eat will make on your health. Best of Health to you, Farah On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > I'm new to this so bear with me. My endocrinologist has scheduled me for > AVS and I want to make sure I should do it. I have an adenoma on my right > adrenal gland and the results of my aldosterol / renin are as follows: A/RA > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have not yet > been on any meds because I was just diagnosed. Shouldn't we try spiro first? > > > Thanks for any advice! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 As far as we know they are not related Do we have your detailed story yet? Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Feb 2, 2009, at 12:08 PM, sgalley1@... wrote: > > > Ok thanks for the info. I asked about ACTH and he does. The only > medications I am taking are birth control ( seasonale ) and my > potassium pill. I am in Salt Lake City, UT and I am having the AVS > done at IMC . I will post my results as soon as I get them. Someone > else asked about symptoms and if I was DASHing . I have had high > blood pressure, heart palpitations, low potassium, and migraines. I > just found out about the DASH diet from this site. Althought I eat > heathly and run 4 times a week I will give it a try. I do have a > couple more questions. I had advanced adenomas removed from my colon > how do these relate to my adenoma on my adenal gland? Where else can > they grow? Thanks again to all of you for your help. > > > Re: [ hyperaldosteronism ] Is AVS nesessary ? > > To do an AVS , you want to be off spironolactone for 6 to 8 weeks. > So if you > haven't started, its best to do the AVS first. It is important to > ask the > team of radiologists if they are administering ACTH 30 minutes > before the > procedure. If not, demand that they do or don't do the AVS until > they give > you the ACTH. > I did my first AVS at UCSF and the doctors already had given me the > medication and I asked if they were administering the ACTH. They > asked if I > would do the procedure without it and I said that I would not. So we > had to > stop everything, even though shortly after I was sleep for 2 hours. > Came > back 4 days later and started on the procedure with ACTH, although the > radiologist still messed up and could not get the right side, the endo > surgeon told me that he had been doing this for years and years and > it was > for the first time he learned the difference it made in the lab > results to > administer the ACTH. > The right side is hard to get to for most people. As a result most > radiologists either mess up and take a sample of the Vena Cava and > think > they went in the right adrenal gland, or else they just won't get any > samples from the right side. So, you may want to make sure that the > team of > doctors who are doing the AVS have done a few before attempting to > become > experts on you. Also, make sure that these doctors know where to > send the > samples once they take the samples. Most importantly, always get a > copy of > ALL your lab results and post them here. Dr. Grim and few others can > read > those lab results for you much better than any other doctor who may > have > only dealt with one or two patients in his/her career as a doctor. > > Dr. Grim on our group will give you more info but it will help him > very much > if you list your medications list if you are taking any kind of > medication > at this time. Also, let him know where you are. Such as State, City, > hospital, etc. > > Also let us know if you eat licorice or any type, vitamins, meds , > etc. > > In the meantime also google the DASH diet(Dietary Approaches to Stop > Hypertension) and educate yourself on the difference that the food > you eat > will make on your health. > > Best of Health to you, > > Farah > On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > adrenal gland and the results of my aldosterol / renin are as > follows: A/RA > > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have > not yet > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > Thanks for any advice! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 BCP will increase BP in some Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Feb 2, 2009, at 12:08 PM, sgalley1@... wrote: > > > Ok thanks for the info. I asked about ACTH and he does. The only > medications I am taking are birth control ( seasonale ) and my > potassium pill. I am in Salt Lake City, UT and I am having the AVS > done at IMC . I will post my results as soon as I get them. Someone > else asked about symptoms and if I was DASHing . I have had high > blood pressure, heart palpitations, low potassium, and migraines. I > just found out about the DASH diet from this site. Althought I eat > heathly and run 4 times a week I will give it a try. I do have a > couple more questions. I had advanced adenomas removed from my colon > how do these relate to my adenoma on my adenal gland? Where else can > they grow? Thanks again to all of you for your help. > > > Re: [ hyperaldosteronism ] Is AVS nesessary ? > > To do an AVS , you want to be off spironolactone for 6 to 8 weeks. > So if you > haven't started, its best to do the AVS first. It is important to > ask the > team of radiologists if they are administering ACTH 30 minutes > before the > procedure. If not, demand that they do or don't do the AVS until > they give > you the ACTH. > I did my first AVS at UCSF and the doctors already had given me the > medication and I asked if they were administering the ACTH. They > asked if I > would do the procedure without it and I said that I would not. So we > had to > stop everything, even though shortly after I was sleep for 2 hours. > Came > back 4 days later and started on the procedure with ACTH, although the > radiologist still messed up and could not get the right side, the endo > surgeon told me that he had been doing this for years and years and > it was > for the first time he learned the difference it made in the lab > results to > administer the ACTH. > The right side is hard to get to for most people. As a result most > radiologists either mess up and take a sample of the Vena Cava and > think > they went in the right adrenal gland, or else they just won't get any > samples from the right side. So, you may want to make sure that the > team of > doctors who are doing the AVS have done a few before attempting to > become > experts on you. Also, make sure that these doctors know where to > send the > samples once they take the samples. Most importantly, always get a > copy of > ALL your lab results and post them here. Dr. Grim and few others can > read > those lab results for you much better than any other doctor who may > have > only dealt with one or two patients in his/her career as a doctor. > > Dr. Grim on our group will give you more info but it will help him > very much > if you list your medications list if you are taking any kind of > medication > at this time. Also, let him know where you are. Such as State, City, > hospital, etc. > > Also let us know if you eat licorice or any type, vitamins, meds , > etc. > > In the meantime also google the DASH diet(Dietary Approaches to Stop > Hypertension) and educate yourself on the difference that the food > you eat > will make on your health. > > Best of Health to you, > > Farah > On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > adrenal gland and the results of my aldosterol / renin are as > follows: A/RA > > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have > not yet > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > Thanks for any advice! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Sorry I'm new. What details do you want to know? Re: [ hyperaldosteronism ] Is AVS nesessary ? > > To do an AVS , you want to be off spironolactone for 6 to 8 weeks. > So if you > haven't started, its best to do the AVS first. It is important to > ask the > team of radiologists if they are administering ACTH 30 minutes > before the > procedure. If not, demand that they do or don't do the AVS until > they give > you the ACTH. > I did my first AVS at UCSF and the doctors already had given me the > medication and I asked if they were administering the ACTH. They > asked if I > would do the procedure without it and I said that I would not. So we > had to > stop everything, even though shortly after I was sleep for 2 hours. > Came > back 4 days later and started on the procedure with ACTH, although the > radiologist still messed up and could not get the right side, the endo > surgeon told me that he had been doing this for years and years and > it was > for the first time he learned the difference it made in the lab > results to > administer the ACTH. > The right side is hard to get to for most people. As a result most > radiologists either mess up and take a sample of the Vena Cava and > think > they went in the right adrenal gland, or else they just won't get any > samples from the right side. So, you may want to make sure that the > team of > doctors who are doing the AVS have done a few before attempting to > become > experts on you. Also, make sure that these doctors know where to > send the > samples once they take the samples. Most importantly, always get a > copy of > ALL your lab results and post them here. Dr. Grim and few others can > read > those lab results for you much better than any other doctor who may > have > only dealt with one or two patients in his/her career as a doctor. > > Dr. Grim on our group will give you more info but it will help him > very much > if you list your medications list if you are taking any kind of > medication > at this time. Also, let him know where you are. Such as State, City, > hospital, etc. > > Also let us know if you eat licorice or any type, vitamins, meds , > etc. > > In the meantime also google the DASH diet(Dietary Approaches to Stop > Hypertension) and educate yourself on the difference that the food > you eat > will make on your health. > > Best of Health to you, > > Farah > On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > adrenal gland and the results of my aldosterol / renin are as > follows: A/RA > > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have > not yet > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > Thanks for any advice! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Call it Galley's story Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Feb 2, 2009, at 9:49 PM, sgalley1@... wrote: > Sorry I'm new. What details do you want to know? > Re: [ hyperaldosteronism ] Is AVS nesessary ? > > > > To do an AVS , you want to be off spironolactone for 6 to 8 weeks. > > So if you > > haven't started, its best to do the AVS first. It is important to > > ask the > > team of radiologists if they are administering ACTH 30 minutes > > before the > > procedure. If not, demand that they do or don't do the AVS until > > they give > > you the ACTH. > > I did my first AVS at UCSF and the doctors already had given me the > > medication and I asked if they were administering the ACTH. They > > asked if I > > would do the procedure without it and I said that I would not. So we > > had to > > stop everything, even though shortly after I was sleep for 2 hours. > > Came > > back 4 days later and started on the procedure with ACTH, although > the > > radiologist still messed up and could not get the right side, the > endo > > surgeon told me that he had been doing this for years and years and > > it was > > for the first time he learned the difference it made in the lab > > results to > > administer the ACTH. > > The right side is hard to get to for most people. As a result most > > radiologists either mess up and take a sample of the Vena Cava and > > think > > they went in the right adrenal gland, or else they just won't get > any > > samples from the right side. So, you may want to make sure that the > > team of > > doctors who are doing the AVS have done a few before attempting to > > become > > experts on you. Also, make sure that these doctors know where to > > send the > > samples once they take the samples. Most importantly, always get a > > copy of > > ALL your lab results and post them here. Dr. Grim and few others can > > read > > those lab results for you much better than any other doctor who may > > have > > only dealt with one or two patients in his/her career as a doctor. > > > > Dr. Grim on our group will give you more info but it will help him > > very much > > if you list your medications list if you are taking any kind of > > medication > > at this time. Also, let him know where you are. Such as State, City, > > hospital, etc. > > > > Also let us know if you eat licorice or any type, vitamins, meds , > > etc. > > > > In the meantime also google the DASH diet(Dietary Approaches to Stop > > Hypertension) and educate yourself on the difference that the food > > you eat > > will make on your health. > > > > Best of Health to you, > > > > Farah > > On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > > my right > > > adrenal gland and the results of my aldosterol / renin are as > > follows: A/RA > > > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have > > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 Go to our files and look at the Conn's storys as examples And then give us your own story. You can't Give us too much detail Tiped sad Send form mi iPhone ;-) May your pressure be low! CE Grim MD Specializing in Difficult Hypertension On Feb 2, 2009, at 9:49 PM, sgalley1@... wrote: > Sorry I'm new. What details do you want to know? > Re: [ hyperaldosteronism ] Is AVS nesessary ? > > > > To do an AVS , you want to be off spironolactone for 6 to 8 weeks. > > So if you > > haven't started, its best to do the AVS first. It is important to > > ask the > > team of radiologists if they are administering ACTH 30 minutes > > before the > > procedure. If not, demand that they do or don't do the AVS until > > they give > > you the ACTH. > > I did my first AVS at UCSF and the doctors already had given me the > > medication and I asked if they were administering the ACTH. They > > asked if I > > would do the procedure without it and I said that I would not. So we > > had to > > stop everything, even though shortly after I was sleep for 2 hours. > > Came > > back 4 days later and started on the procedure with ACTH, although > the > > radiologist still messed up and could not get the right side, the > endo > > surgeon told me that he had been doing this for years and years and > > it was > > for the first time he learned the difference it made in the lab > > results to > > administer the ACTH. > > The right side is hard to get to for most people. As a result most > > radiologists either mess up and take a sample of the Vena Cava and > > think > > they went in the right adrenal gland, or else they just won't get > any > > samples from the right side. So, you may want to make sure that the > > team of > > doctors who are doing the AVS have done a few before attempting to > > become > > experts on you. Also, make sure that these doctors know where to > > send the > > samples once they take the samples. Most importantly, always get a > > copy of > > ALL your lab results and post them here. Dr. Grim and few others can > > read > > those lab results for you much better than any other doctor who may > > have > > only dealt with one or two patients in his/her career as a doctor. > > > > Dr. Grim on our group will give you more info but it will help him > > very much > > if you list your medications list if you are taking any kind of > > medication > > at this time. Also, let him know where you are. Such as State, City, > > hospital, etc. > > > > Also let us know if you eat licorice or any type, vitamins, meds , > > etc. > > > > In the meantime also google the DASH diet(Dietary Approaches to Stop > > Hypertension) and educate yourself on the difference that the food > > you eat > > will make on your health. > > > > Best of Health to you, > > > > Farah > > On Fri, Jan 30, 2009 at 10:46 AM, < sgalley1@... > wrote: > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > > my right > > > adrenal gland and the results of my aldosterol / renin are as > > follows: A/RA > > > Ratio Calc : 164.0 Aldosterone 32.8 and Renin , D irec t .2 I have > > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 I guess you have not taken them my paper which points out that BB (labetalol), ACEs and ARBs will not work well in PA. Esp last 2 will not work at all. I would do spiro myself. Read my paper and take (send it to them). Ask them to join our site if they really want to learn. May your pressure be low!  CE Grim BS, MS, MD High Blood Pressure Consulting Senior Consultant to Shared Care Research and Education Consulting Inc.(sharedcareinc.com) Clinical Professor of Internal Medicine Medical and Cardiology Medical College of Wisconsin Board certified in Internal Med, Geriatrics and Hypertension. Interests: 1. Difficult to control high blood pressure. 2. The effect of recent evolutionary forces on high blood pressure in human populations. 3. Improving blood pressure measurement in the office and out. On Jan 31, 2009, at 7:58 AM, jndaqca2009 wrote: > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > > adrenal gland and the results of my aldosterol/renin are as > follows: A/RA > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Hi. I told them not to switch me to the labetalol for it did not work in the past--but she insisted in order to do blood work and try to improve my BP. When my BP started rising again then clonidine was added--and that just drys out my mouth nothing else. We had an arguement on the phone today and I asked to have another doctor take over my case. I called her and told her my BP was now at 190/130 and asked what was the game plan---she told me I could just go back to my old medication now and that she never said I had to stay off old meds but only for one test. Then she turns around again and says if the Endo wants blood work or related I would have to stay off the meds again for six weeks---Then I hung up the phone on her. I have gone through a lot of articles--which one in particular are u talking about? I am still waiting to see the new endo. Thanks for your continued support. > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > > adrenal gland and the results of my aldosterol/renin are as > follows: A/RA > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 , By all means-- CHANGE DOCTORS!!! I had similar experiences in the past regarding doctors and their 'favorite' medications. At one point, I was taking 13 pills a day and still had bp similar to yours. It was the genius of a cardiologist (and endocrinologist) who prescribed a completely new regimen of bp meds that I credit with getting me to a current bp of 126/78. Some doctors are unfamiliar with Conn's and think that throwing more of the same medication at the condition will work. It took a change of doctors and medications to help me. It seems like recent med school grads are more familiar with Conn's than older doctors in my part of the country. Arguing with your doctor won't work. Just get a new doctor and save your time and frustrations! -------------------------------------------------------------------- > > > > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > > me for > > > > AVS and I want to make sure I should do it. I have an adenoma on > > my right > > > > adrenal gland and the results of my aldosterol/renin are as > > follows: A/RA > > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > > not yet > > > > been on any meds because I was just diagnosed. Shouldn't we try > > spiro first? > > > > > > > > > > > > Thanks for any advice! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Hi. I have been very patient and it does not seems to work. My doctor is a resident or whataver it is called but has one year left and works under someone---she does not listen when I tell her about meds I have already taken and symptoms I have or had. I hate to " stir the pot " but if you dont't make some kind of noise sometimes you never get heard. I just want to get this under control and taken care of before I get a stroke or something. The next doctor will be number 6 or so I believe since 2004. It seems like they think your lying about symptoms. Oh well, we will see what the next endo guy says--he is supposed to be the top guy at the University of Iowa. I just want my life back. Thanks for your comment and talk again soon. From: kappi98 <kappi98a@...> Subject: Re: Is AVS nesessary? hyperaldosteronism Date: Wednesday, February 4, 2009, 5:07 AM , By all means-- CHANGE DOCTORS!!! I had similar experiences in the past regarding doctors and their 'favorite' medications. At one point, I was taking 13 pills a day and still had bp similar to yours. It was the genius of a cardiologist (and endocrinologist) who prescribed a completely new regimen of bp meds that I credit with getting me to a current bp of 126/78. Some doctors are unfamiliar with Conn's and think that throwing more of the same medication at the condition will work. It took a change of doctors and medications to help me. It seems like recent med school grads are more familiar with Conn's than older doctors in my part of the country. Arguing with your doctor won't work. Just get a new doctor and save your time and frustrations! ------------ --------- --------- --------- --------- --------- - > > > > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > > me for > > > > AVS and I want to make sure I should do it. I have an adenoma on > > my right > > > > adrenal gland and the results of my aldosterol/renin are as > > follows: A/RA > > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > > not yet > > > > been on any meds because I was just diagnosed. Shouldn't we try > > spiro first? > > > > > > > > > > > > Thanks for any advice! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi. Thanks for the suggestions. I usually bring my entire history and what has happened/reaction everytime I see a doctor..........but the look at it and turn the pages without reading it. Before I leave the appointment they then ask me if I need it back---funny as hell I have to say. I called them this morning to see which doctor I can re-schedule with and they tried to give me a first year fellow and I said no more of this so now am waiting for them to call me back. I had a first year fellow finish my adrenal veing sampling with no success. I don't want them to practice on me and I don't think it's too much to ask especially when someone has no experience on my problem. Anyway, I will update you and hope everyone has a great day. From: jwwright <jwwright@...> Subject: Re: Re: Is AVS nesessary? hyperaldosteronism Date: Wednesday, February 4, 2009, 4:51 PM My suggestion is put it on paper. Make a presentation of 3 or 4 pages - in LARGE PRINT. Put what you take now on one page, and the results. History on a second page. Prescribed medicines you've tried and results on a third. And when I walk in the door I say I had to put it on paper to clear my head - so you don't offend some sensitive person. Works for me, especially when seeing a new Doc. Regards Re: [hyperaldosteronism ] Re: Is AVS nesessary? Hi. I have been very patient and it does not seems to work. My doctor is a resident or whataver it is called but has one year left and works under someone---she does not listen when I tell her about meds I have already taken and symptoms I have or had. I hate to " stir the pot " but if you dont't make some kind of noise sometimes you never get heard. I just want to get this under control and taken care of before I get a stroke or something. The next doctor will be number 6 or so I believe since 2004. It seems like they think your lying about symptoms. Oh well, we will see what the next endo guy says--he is supposed to be the top guy at the University of Iowa. I just want my life back. Thanks for your comment and talk again soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi. Thanks for the suggestions. I usually bring my entire history and what has happened/reaction everytime I see a doctor..........but the look at it and turn the pages without reading it. Before I leave the appointment they then ask me if I need it back---funny as hell I have to say. I called them this morning to see which doctor I can re-schedule with and they tried to give me a first year fellow and I said no more of this so now am waiting for them to call me back. I had a first year fellow finish my adrenal veing sampling with no success. I don't want them to practice on me and I don't think it's too much to ask especially when someone has no experience on my problem. Anyway, I will update you and hope everyone has a great day. From: jwwright <jwwright@...> Subject: Re: Re: Is AVS nesessary? hyperaldosteronism Date: Wednesday, February 4, 2009, 4:51 PM My suggestion is put it on paper. Make a presentation of 3 or 4 pages - in LARGE PRINT. Put what you take now on one page, and the results. History on a second page. Prescribed medicines you've tried and results on a third. And when I walk in the door I say I had to put it on paper to clear my head - so you don't offend some sensitive person. Works for me, especially when seeing a new Doc. Regards Re: [hyperaldosteronism ] Re: Is AVS nesessary? Hi. I have been very patient and it does not seems to work. My doctor is a resident or whataver it is called but has one year left and works under someone---she does not listen when I tell her about meds I have already taken and symptoms I have or had. I hate to " stir the pot " but if you dont't make some kind of noise sometimes you never get heard. I just want to get this under control and taken care of before I get a stroke or something. The next doctor will be number 6 or so I believe since 2004. It seems like they think your lying about symptoms. Oh well, we will see what the next endo guy says--he is supposed to be the top guy at the University of Iowa. I just want my life back. Thanks for your comment and talk again soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Hi again---I read the paper last night. Will update you when I get a new nymph doctor and finally see my endo. I requested a new nymph doctor and we will see what happens. I went back to my other med that was working better carvedilol 25mg twice a day with the 40mg of lisinopril--(minus the norvasc) only problem with that is my feet and legs with balloon up and without the Spiro nothing will fix it because I cannot take a regular water pill for it dehydrates me and makes me feel worse. That combo gave me by averages of high 140's over 90's with those spikes of plus 10-20 on both readings but thats better then what I have now.  Talk soon and thanks. > > > > > > > > > > > > I'm new to this so bear with me. My endocrinologist has scheduled > me for > > > AVS and I want to make sure I should do it. I have an adenoma on > my right > > > adrenal gland and the results of my aldosterol/renin are as > follows: A/RA > > > Ratio Calc: 164.0 Aldosterone 32.8 and Renin, D irec t .2 I have > not yet > > > been on any meds because I was just diagnosed. Shouldn't we try > spiro first? > > > > > > > > > Thanks for any advice! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 My suggestion is put it on paper. Make a presentation of 3 or 4 pages - in LARGE PRINT. Put what you take now on one page, and the results. History on a second page. Prescribed medicines you've tried and results on a third. And when I walk in the door I say I had to put it on paper to clear my head - so you don't offend some sensitive person. Works for me, especially when seeing a new Doc. Regards Re: Re: Is AVS nesessary? Hi. I have been very patient and it does not seems to work. My doctor is a resident or whataver it is called but has one year left and works under someone---she does not listen when I tell her about meds I have already taken and symptoms I have or had. I hate to " stir the pot " but if you dont't make some kind of noise sometimes you never get heard. I just want to get this under control and taken care of before I get a stroke or something. The next doctor will be number 6 or so I believe since 2004. It seems like they think your lying about symptoms. Oh well, we will see what the next endo guy says--he is supposed to be the top guy at the University of Iowa. I just want my life back. Thanks for your comment and talk again soon. Quote Link to comment Share on other sites More sharing options...
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