Re: CPS AND REGIONAL CENTER COME TOGETHER

[Guest guest]

Wow Betty! What a strange twist in this saga.

Did you ever get through to someone at Protection and Advocacy? I

know when I call they have to get back to you within so many days.

What other organizations have you contacted?

I know that we apply to the Regional center for services. Is it a

possibility that you can sever that connection? Do you have one of

their books available to see if that is an option? I will look at

ours and see if this is mentioned or covered? I would think since we

request that we can refuse them? Is this too late for you?

This just tops it all, to have the Regional center worker in the same

car as the CPSS worker?

I would call the emergency number to Reg Ctr, well maybe not, if you

have not already done so please also post about this on the AutismCA

group. I am at the home page and in another email acct so cannot

access my email at the moment.

Have you contacted your local autism chapter, what about the

coalition? Did you ever join the Autism Safety group? NOW IS THE

TIME TO DO SO!!!!!!! Also the Law enforcement group.

I will get links in a minute and post for you.

This is unbelievable. I feel like cursing on your behalf......

Please keep us aprised of this ordeal.

Bonnie

==============

> Did I say that I thought everything was ok with the CPS? How stupid

can a

> person get? Never mind, please, do not answer that question.

Everyone that

> knows me knows how naive I am. I had just started dinner when

someone showed

> up on our door step. hollered that it was my niece with

someone with

> her and the Hmong CPS worker asked him if she looked like our

niece. The

> CPS worker came back because of someone's concern about all our

pets.

> Would/could/did Evan eat their feces?

[Guest guest]

-Betty:

Here are those two that would be beneficial to you in

this dilemma:

Autism-Risk-Safety

TheLawEnforcementAwarenessNetwork

Also I wonder if it would work for some of us parents to call either

this RCenter or the CPSS place and tell them that our kids are

similar and that this is nonsense! Or something like that! Get some

phone support!!!

Also what about contacting your local newspaper? Write a letter to

them letting them know about this. I say contact the news media and

you need the support of the autism community at this time. Get this

posted on the main autism list like autism-awareness-action and get

people educated on this occurence and have them rally around your

family for support and validation with calls and letters.

I am just coming up with ideas at the top of my head here and now got

to get kids to sleep. Let me know if you would like me to post at

any of these groups with your email address for them to contact you,

or let me know how I can help.

I do not blame these kids one bit for feeling as they do. Do you

know of any non profit organizations that offer family counseling? I

had someone come here for four years giving me free therapy and when

CPS came one time they wrote a letter on my behalf.

Also we get a volunteer through a Jewish Organization that works with

med students at colleges. It would help if there were some other

services in place like Special olympics to show another side of him

and how he can cope in these instances and not eat things.

Maybe IHSS can help or the Union, because they know about protective

supervision.

People need to be as outraged as this as they get when the vaccine

posts swarm these lists about that British Dr and asking for our

help. Here you are a family within the community and I remember

seeing the new group The National Autism something with a place for

families in need to get help and apply. I have to research and see

who they are and the website to pass along.

BONNIE

[Guest guest]

Betty:

Here are a few more links that are more geared to the CPS and others

who have been in the same shoes and also a dcfs handbook glossary I

found:

http://dcfs.co.la.ca.us/Policy/Hndbook%20CWS/1300/1300-000-CWSH%

20GLOSSARYfinito.doc

http://www.familyrightsassociation.com/members/california/

http://www.familyrightsassociation.com/members/california/info.html

I had a couple of pages freeze up on me and now it is nine pm and

have a show to watch. Will check back during commerical to see if

you have posted with more details.

BONNIE

=======

[Guest guest]

Bonnie, I want to sever all contacts with the Regional Center because of

this but Evan gets his telemedicine through them. I could care less about

the Respite. I used Bob as my repite when my niece became unavailable to do

it. At least he is realiable. Now they are wanting someone to go through

CPR. Bob has bad knees so that is not going to be an option for him and I

doubt my nieces would bother to get the training. Now they are saying he is

not suppose to do the respite since he is the guardian. Evan's last worker

said it was ok for grandpa. Well, they could keep their respite but they

KEEP bringing it up at each and every meeting like it is really important

that I get it. Then they started asking about IHSS and wanting to know how

many hours I get there! Do they want this money or something. Bob has this

weird idea that they are after Evan's survivor benefits but I told him that

I think it would cost them more than his benefits if he were placed in a

home. Protection and Advocacy told me to call the main boss at Fresno which

is where the head office for CVRC but I never got a return call. Actually,

the head at Merced never called me back, I had to call her again until I

finally caught up with her.

I will start the phone calls again tomorrow. I am just broken hearted that

it is not over like I thought when the CPS worker first came out. Tomorrow i

am going to start asking just WHY they want our grandson and WHY they think

he needs to be out of our home. I may tell CPS to contact Evan's school and

previous teachers if they think we are not doing the best any parents can in

our situtation. Alright so I gave up on Intensive Behavior Intervention but

the school is the ones who tested him and said that would not be appropriate

for him years back. The Regional Center sent two behaviorist out to our home

and the very first one asked ME what to do. Gee, I thought that was suppose

to be his job! Then he charged the Center for times he called me sick.

I think it is cruel to suggest that the other two boys have to get rid of

their pets when they are not posing any threat to Evan nor him to the pets.

Just as most autistic kids have trouble making friends so do most bipolar

and these pets help make up for a tiny bit of that loss.

While I would not put an animal over one of the children, some of these

animals are almost like kids and I would hate to have them put down just

because of some woman with an agenda.

BETTY ANN-62 yo, possibly undx'd Bipolar

grandma and guardian to

ANDREW - 12 yo-- Bipolar/ADHD, Homeschooled

EVAN - 9 yo-- nonverbal autism

DAVID 7 yo Bipolar/ADHD

and mother to ANDREA -33 yo, their mom -Bipolar/ADHD

wife to BOB - 72 yo, a very tired grandpa