Re: Connecting with others who can relate;;FROM;;DORT

[Guest guest]

Hi Dort...

Thank you for your post and your understanding. I felt awful for you that you are dragging through the hours at night just to have to start the day pretty much the same way. When I was diagnosed with CFS, I had the fatigue really bad back then... before I got into any treatment. There are plenty of nights I just don't even want to go to sleep knowing I have to start the ritual again the next day or go through the same challenges. Other times it's easier.. there's no telling.

We've had a very long span of dry warm weather now getting some rain.. so I'll hope along with you that the your weather cooperates to give you some relief. Thank goodness for the PC right?????gentle hugs to you... Ariadne

Message: 3 Date: Wed, 2 Jun 2004 12:05:02 -0400 (Eastern Daylight Time) From: "peterson.dorothy" <peterson.dorothy@...>Subject: Re: Re: Connecting with others who can relate;;FROM;;DORTHELEN ;;I COULD NOT HAVE SAID ALL OF THIS TO ARI MYSELF AS WELL;; ONLY YOU ;VERY WELL ALL PUT;; ARI;; IF I MAY CALL YOU THAT;; ALL OF US HERE LIVE WITHSOMETHING;; THAT IS WHY WE ARE ALL HERE FOR EACH OTHER; SOMETIMES SOME OF USCANT BE ON HERE FOR AWHILE DUE TO A SET BACK BUT THERE ALWAYS SEEMS TO BESOMEONE AT THAT TIME TO POST ; IM JUST PRAYING HERE FOR SOME DRY WARMWEATHER;; TO HOPEFULLY MAKE THE FIBRO FLARES & ARTHRITUS TO GET BETTER AGAIN; LATELY I SEE EVERY HOUR AT NIGHT; SO DONT FEEL RESTED WHEN I GET UP;; IALSO HAVE TO FORCE MYSAELF THEN TO GET UP;; BUT HAVE TO OR WOULD NOT BE ABLETO;;WOULD BE TOO SORE & STIFF;;YOU ALL TAKE CAREHEALING HUGSDORT-------Original Message-------

[Guest guest]

Sorry Helen;;but glad that the Plaqunil is helping some;; Im dumb;; Is that a pain med or an antidepressant??? iF i woke up some day with no pain I would think that I had died & went to Heaven;;We learn to have it a part of our lives & like you said is normal for us;; It is just when the bad pain comes like my neck was ; where I coulnt move is when it is bad;; My top teeth are gone now ;; so getting used to the temp plate;; is going better then I thot it would;; not real swollen either;; & didnt hardly bleed which surprized me as I usually am a bleeder;;Just have to get used to the feel of the plate in roof of mouth;;I did get a pain med but havent hardly needed it;;Neck is better then it was ;not all but better;; I can handle this;;The pain patches do help some;;Take care;;

Painless Hugs

Dort

-- Re: Re: Connecting with others who can relate

Hi Ariadne,,,

I don't have a day without whole body pain anymore... I can't remember the last time I was free of pain ( But I'm so use to it that to me that is normal... The sharp pains only come once in a while now, as my Dr. put me on Plaqunil... They give it to me when my SLE is out of remission, but it does Wonders for the fibromyalgia, that it allows me to be able to go through the day without the tears going down my face when hurting so bad... When my Grand daughters see the tears going down my face, (as sometimes I really don't realize it) They'll ask, "Why you crying Mama" I just tell them that I Love them so much that its Happy Tears!!! It satifies them ) Its hard for me to distinguish one illness from another anymore, they all seem to go together... I suffer with:

1-Fibromyalgia--F.M.S.

2-Chronic Fatigue Syndrome--C.F.S

3-Systematic Lupus Erthematosis--S.L.E.

4-Mitral Valve Prolapse--M.V.P.

5-Hypothyroidism

6-Hyatal Hernia

7-Acid Reflux--(Gerd)

8-Migrains

9-Poly Neuropathy

10-Osteoporosis

11-Osteoarthritis

12-Hypertention

13-Degenerative Arthritis in head,neck, shoulders,

spinal column, arms

14-Restless Leg Syndrome

15-Hypoglycymia

16-Irritable Bowel Syndrome--I.B.S.

17-Arrthymia's-P.B.C’s--P.A.C’s--Ventricular Tachycardia-One

other I don’t remember the name of, I'm told I

have an electrical problem )

18-Emphysema

19-Myofacial Pain Syndrome--M.P.S.

20-Polymyalgia

21-T.M.J.

WHAT HAS HAPPENED:

Blind in Left Eye--eye accident-age 3

Rheumatic Fever--almost died-age 17

Pericarditis--almost died-age 17

Light Stroke-age 27

Goiter Bad--almost died-age 28

Full Hysterectomy-age 40

Gall Bladder out Diseased--almost died-age 48

Anemic twice real bad

Its not crazy in my book that your kitty's keep you going ) Animals are such a comfort t so many, me included, to help us through the bad times... They are Always there for us and don't talk back to us, telling us to Get Over It!!! They take us for what we are!

Glad your doing somewhat better... How are you today???

((( SneezeFree Hugs )))

Helen

Hi Helen...

First of all I'm so sorry you're in such agony. Who would think that getting a nights decent rest would be such a luxury...but I do understand for different reasons. My heart goes out to you for enduring that suffering. Yes,. I agree and that's what I was hoping for.. that others would tell me what they are dealing with. It helps to get my mind off of my own situation and realize and to interact with people also putting up the good fight. When my fibromyalgia was very bad I was in agony also. There was no peace from that pain. My case was different because of my chemical injury resulting in chemical sensitivities. My pain was triggered by the need to have a more "healthy house".. and nutritional changes. As crazy as it may sound my cats keep me going. I used to do rescue work so I really need to have some felines in the house. Sometimes I feel lacking in being as good a cat caregiver-ha.. but I adore them and they keep me sane. But when I get really sick like this past week or so.. it gets scary and is depressing because not only is it h*** but also going downhill in your health is upsetting. I haven't had the asthma for 6 years and all of sudden this past month wham! But with the hot, dry weather and getting so run down taking care of every else needs I really went into some kind of denial about the necessity of taking care of myself. Today my breathing was better so consequently I am in a better mood. Thank you for writing and caring. Wishing you a feather bed kind of comfy rest somehow wirh pain free Hugs... Ariadne

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[Guest guest]

You are so welcome Ariadne; & Thanks to you also for caring about me;; We have had two days of sun now & dry for a change so that helps some;; Yes Thank good ness for the Puter ; when we are able to sit at it huh??? You take care too ;;

Gentle Hugs to you also

Dort

-- Re: Re: Connecting with others who can relate;;FROM;;DORTHELEN ;;I COULD NOT HAVE SAID ALL OF THIS TO ARI MYSELF AS WELL;; ONLY YOU ;VERY WELL ALL PUT;; ARI;; IF I MAY CALL YOU THAT;; ALL OF US HERE LIVE WITHSOMETHING;; THAT IS WHY WE ARE ALL HERE FOR EACH OTHER; SOMETIMES SOME OF USCANT BE ON HERE FOR AWHILE DUE TO A SET BACK BUT THERE ALWAYS SEEMS TO BESOMEONE AT THAT TIME TO POST ; IM JUST PRAYING HERE FOR SOME DRY WARMWEATHER;; TO HOPEFULLY MAKE THE FIBRO FLARES & ARTHRITUS TO GET BETTER AGAIN; LATELY I SEE EVERY HOUR AT NIGHT; SO DONT FEEL RESTED WHEN I GET UP;; IALSO HAVE TO FORCE MYSAELF THEN TO GET UP;; BUT HAVE TO OR WOULD NOT BE ABLETO;;WOULD BE TOO SORE & STIFF;;YOU ALL TAKE CAREHEALING HUGSDORT-------Original Message-------

~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives-/messagesChat:- Scheduled Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

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