Pain Relief

September 13, 1999

,

I've never had pain on my right side. However, every doctor who has

examined me (and there have been too many) has poked and prodded the liver

area and each has asked me if I had any pain. Most of these same doctors

have commented that there is little if any pain associated with liver

disease, so they must have been checking for inflammation or something

else. None have ever considered that the LUQ pain could be the left lobe

of my liver but they do say that pain there can be caused by other GI

problems like cancer - not a pleasant thought. Since my spleen is always

normal sized they never consider spleen, but the new Internist has now

raised the question about a blood clot. Not inconceivable, but I hope

that's an unlikely possibility. I still think it's muscular though

sometimes the pain is rather sharp which makes me a little anxious.

Take care,

Geri

September 24, 1999

Micki,

I'm glad to hear your mom is feeling a little better today. I'm not a

lot of help with pain relief because I'm a grin-and-bear-it type as I

don't react well to most meds. I do think, though, that your mom would

get more relief from nsaids or ibuprofen (presuming she can " stomach "

them) than she would get from Tylenol. As for natural approaches, I use

rest, alternating heat and ice on flaring joints and I use my dumb

little magnets. I have a pretty high pain threshold so my tough it out

approach isn't for everyone but I find I can handle it as long as I just

rest and really be kind to whatever area is flaring.

a Peden

PRYAH@... wrote:

>

> From: PRYAH@...

>

> Hello everyone!

> Well my mom is doing a little bit better today...shes pretty convinced she was

having a herx...she had a few really bad days. She asked me how long they

usually last and I told her it was different for everyone. She has a very good

attitude about it though and that's in no small part because of all of you. We

feel we know what to expect. She wanted me to ask you guys what you all do for

pain relief she is basically taking a bunch of tylenol and that's it. Right now

her head is what causes her the most pain...and she was never one to get

headaches. Maybe someone knows of some natural way she can get some relief...on

another note...she sees her Dr. tomorrow..I'll write and let you know how she

does.

>

> Thanks to everyone in advance

> Micki

>

September 24, 1999

Micki--

I am a big fan of ice and heat for pain relief. In the summer, I use a lot

if ice, in the winter, moist heat. Times of the year like now, when I can

use both without getting myself too hot or too cold, I use both. For

instance, I might put an ice pack on an achy shoulder for 15 minutes, then

follow it up with moist heat. Two cycles of each is the most helpful--this

takes an hour, but if I'm just watching TV or relaxing, it is a good way to

pass some time. The heat and ice in cycles are especially effective for pain

relief.

If your mom is mostly in bed, you need to be careful with the heat, to avoid

burns. I have used a Bed Buddy, available from Walgreens--it is a long

tube-sock-like tube of fabric, filled with rice. When you microwave them,

the rice gets warm and moist, and it feels great. My mom started making her

own version of the Bed Buddies, so I didn't have to pay $10 for 25 cents

worth of material. She sews up a small, long pillow-shaped piece of fabric,

just like you would make a pillow. She leaves an opening at the corner and

pours the rice in through a funnel. Then she sews the corner up by hand. She

makes up several at a time, and gives them to her sisters and me, and keeps

one for herself!

They are great for cold feet, hands, stiff necks, all sorts of things. Be

sure not to get it too hot--2 1/2 minutes works in my microwave. I think

they are much safer than heating pads, because you don't have to worry about

going to sleep and burning yourself. They just slowly cool off.

Jean

----------

>From: PRYAH@...

>rheumaticonelist

>Subject: rheumatic pain relief

>Date: Thu, Sep 23, 1999, 6:05 PM

>

> From: PRYAH@...

>

> Hello everyone!

> Well my mom is doing a little bit better today...shes pretty convinced she

> was having a herx...she had a few really bad days. She asked me how long

> they usually last and I told her it was different for everyone. She has a

> very good attitude about it though and that's in no small part because of

> all of you. We feel we know what to expect. She wanted me to ask you guys

> what you all do for pain relief she is basically taking a bunch of tylenol

> and that's it. Right now her head is what causes her the most pain...and

> she was never one to get headaches. Maybe someone knows of some natural way

> she can get some relief...on another note...she sees her Dr. tomorrow..I'll

> write and let you know how she does.

>

> Thanks to everyone in advance

> Micki

>

> >

September 24, 1999

rheumatic pain relief

>>Date: Thu, Sep 23, 1999, 6:05 PM

>>

>

>> From: PRYAH@...

>>

>> Hello everyone!

>> Well my mom is doing a little bit better today...shes pretty convinced she

>> was having a herx...she had a few really bad days. She asked me how long

>> they usually last and I told her it was different for everyone. She has a

>> very good attitude about it though and that's in no small part because of

>> all of you. We feel we know what to expect. She wanted me to ask you guys

>> what you all do for pain relief she is basically taking a bunch of tylenol

>> and that's it. Right now her head is what causes her the most pain...and

>> she was never one to get headaches. Maybe someone knows of some natural way

>> she can get some relief...on another note...she sees her Dr. tomorrow..I'll

>> write and let you know how she does.

>>

>> Thanks to everyone in advance

>> Micki

>>

>> >

>

>---------------------------

September 24, 1999

Hi Jean.........I, too, use rice bags for moist heat. Mine are about 6 "

square, (perfect size for my hands).......... anything bigger is too heavy

for me to handle. And, when the rice (eventually) " cooks " , I just open the

bag, throw the rice out, wash the bag, and refill it. Sure does beat what

they ask for it at stores! You can also use cracked corn (like from the feed

store), but I don't care for the smell of that, personally. And, for cold

packs, have you ever tried bags of frozen peas? They contour to all body

parts, and can be refroze and reused again and again...........just thought

I'd add my two cents...........

Hi, .

I never had so much luck with the frozen peas. The brand I got refroze into

a lump. I buy small ice packs for about $3 from Sports Authority. They are

Tru-Fit brand. They also come with a neoprene wrap with velcro, which costs

$15 or so with one ice pack included, but they last a long time. They are

great for my elbows and wrists. I ice often after working all day at the

computer, so just wrapping a pack around the arm and forgetting about it for

a whole is nice.

I tried feed corn, but I have dust and mold allergies. The rice is much less

bothersome in that regard.

I know Dr. Brown recommended Ice for swollen joints for his patients in a

herx. I like heat after they calm down a bit.

Jean

September 24, 1999

A really easy way to make rice bags is to get some 100% cotton men's tube

socks at the store and fill them with rice and tie a knot in the end. I had to

make quit a few as my whole family loves them in the chilly winter. Heat them in

a microwave for about 3 minutes (you will have to experiment with times

depending on how full you make them and how powerful your oven is). Do try them

if you have a microwave, they are so much safer than a heating pad if you are

drowsy--my mom once scorched her mattress by falling asleep with hers on and it

would have probably caught fire soon if my sister hadn't noticed it!

For me, heat in the winter and cold in the summer works best, too. These

joints just don't like extremes! Liz G

October 20, 1999

rheumatic Pain Relief

This may be of interest to those of you who can get no relief from pain:

http://www.medscape.com/adis/CDI/1999/v18.n03/cdi1803.03.glow/cdi1803.03.glow-01\

..html

Mark

Is anyone besides me finding it diffucult to access this sight?

August 11, 2001

I've read that the following relieve pain and have cancer-fighting

properties (CAPITALIZED items are particularly powerful pain

relievers):

Herbs

MAITAKE MUSHROOM (Grifola frondosa)-- alleviated pain in 83% of

patients

mistletoe (Iscador)

tumeric (particularly the curcumin in it), burdock, and ginger

reduce inflammation.

chaparral-- check with a health practitioner on hazards of this

herb before using it

angelica

noni (juice)

Goldenseal root poultices

amygdalin-- Available in the form of ground apricot pits,

found in health food stores. Do NOT exceed maximum recommended oral

dosage. Avoid eating (sweet) almonds while taking amygdalin. Do

NOT take megadoses of Vit. C while taking laetrile/amygdalin, and

do NOT use laetrile/amygdalin at times of fever. Take it with food,

in several small dosages throughout the day (NOT 1 large dosage).

Use a good brand, such as Kemdalin

(www.kemsa.com/english/kemdalindescripcion.htm) from KEM, S.A. or

Apricot Kernels from

www.americanbiologics.com/NoFrames/Products/specialtynf.htm

Miscellaneous

Vitamin B-3 (Niacin)-- 50 mg, up to 6x/day

Vit. C-- 500 mg, up to 6x/day (but I wouldn't even take that

much while taking amygdalin w/o a health practitioner's

recommendation)

CESIUM-- may take up to 3 days to be effective

coffee enemas (Check w/health practitioner before using them.)

magnets-- I would consult a health practitioner knowledgeable about

magnets before using them.

VISUALIZATION/IMAGERY, MEDITATION, & RELAXATION TECHNIQUES

Pain Control and Surgical Support Series audiotapes by Hemi-Sync

(www.hemi-sync.com/catalog)-- I've been told they can be powerfully

pain-relieving.

Alt. Medical Treatments

acupuncture

neural therapy

For healing cancer, it's best (if possible) to avoid chemical

painkillers (except perhaps aspirin).

For more info on cancer pain relief, see www.alkalizeforhealth.org

Let me know if you have any questions about any of the above.

August 11, 2001

call the pain and stress center for a free catalog: 1 800 669 calm or see

painstresscenter.com

Also search articles on Mercola.com

[ ] pain relief

I am looking for information on pain relief for my husband. He is

suffering the most extreme pain in his esophagus from the chemo and

radiation he recieved. It has been almost two weeks and even

morphine can't relieve the burning and inflamation. He can't sleep

or eat anything even water kills him to swallow. Please give me some

advise. Thank all for any information, Sincerely, Georgia

You are digging your grave with your teeth!

Read Hundreds of Collected Cancer Testimonials and learn:

cancer-testimonials/messages/

Learn more about cancer:

http://curezone.com/diseases/cancer/

http://curezone.com/diseases/cancer/faq.asp

You are receiving this email because you elected to subscribe to the

.

August 11, 2001

Dear Georgia,

Go to the natural food store and purchase 's Aloe Vera juice. I

had burning stomach problems, and it has helped. It is not expensive.

Maybe if he just sipped on it ever so slowly, it would promote healing

in the areas that are burning.

Hugs,

queenmama85@... wrote:

>

> I am looking for information on pain relief for my husband. He is

> suffering the most extreme pain in his esophagus from the chemo and

> radiation he recieved. It has been almost two weeks and even

> morphine can't relieve the burning and inflamation. He can't sleep

> or eat anything even water kills him to swallow. Please give me some

> advise. Thank all for any information, Sincerely, Georgia

August 13, 2001

Hi all,

I have read and heard about dried Siitake Mushroom as having anti-Cancer

properties.

My wife who has Stage IV Cancer is taking it. She just started it so I don't

know if it will help.

Does anyone has knowledge about it.

Sincerely,

Sandip

Thanks!

Sandip Bist

201 395 2201(w)

201 395 3201(FAX)

> Re: [ ] pain relief

>

> I've read that the following relieve pain and have cancer-fighting

> properties (CAPITALIZED items are particularly powerful pain

> relievers):

>

> Herbs

> MAITAKE MUSHROOM (Grifola frondosa)-- alleviated pain in 83% of

> patients

> mistletoe (Iscador)

> tumeric (particularly the curcumin in it), burdock, and ginger

> reduce inflammation.

> chaparral-- check with a health practitioner on hazards of this

> herb before using it

> angelica

> noni (juice)

> Goldenseal root poultices

> amygdalin-- Available in the form of ground apricot pits,

> found in health food stores. Do NOT exceed maximum recommended oral

> dosage. Avoid eating (sweet) almonds while taking amygdalin. Do

> NOT take megadoses of Vit. C while taking laetrile/amygdalin, and

> do NOT use laetrile/amygdalin at times of fever. Take it with food,

> in several small dosages throughout the day (NOT 1 large dosage).

> Use a good brand, such as Kemdalin

> (www.kemsa.com/english/kemdalindescripcion.htm) from KEM, S.A. or

> Apricot Kernels from

> www.americanbiologics.com/NoFrames/Products/specialtynf.htm

>

> Miscellaneous

> Vitamin B-3 (Niacin)-- 50 mg, up to 6x/day

> Vit. C-- 500 mg, up to 6x/day (but I wouldn't even take that

> much while taking amygdalin w/o a health practitioner's

> recommendation)

> CESIUM-- may take up to 3 days to be effective

> coffee enemas (Check w/health practitioner before using them.)

>

> magnets-- I would consult a health practitioner knowledgeable about

> magnets before using them.

>

> VISUALIZATION/IMAGERY, MEDITATION, & RELAXATION TECHNIQUES

>

> Pain Control and Surgical Support Series audiotapes by Hemi-Sync

> (www.hemi-sync.com/catalog)-- I've been told they can be powerfully

> pain-relieving.

>

> Alt. Medical Treatments

> acupuncture

> neural therapy

>

> For healing cancer, it's best (if possible) to avoid chemical

> painkillers (except perhaps aspirin).

>

> For more info on cancer pain relief, see www.alkalizeforhealth.org

>

> Let me know if you have any questions about any of the above.

>

> You are digging your grave with your teeth!

> Read Hundreds of Collected Cancer Testimonials and learn:

> cancer-testimonials/messages/

>

> Learn more about cancer:

> http://curezone.com/diseases/cancer/

> http://curezone.com/diseases/cancer/faq.asp

>

> You are receiving this email because you elected to subscribe to the

> .

November 30, 2001

I can't agree more. Abbies doctor is extremely concientious about making sure

that Abbie is in as little pain as possible. He expects us to make him aware

of issues.

Christy

November 30, 2001

So, are most of your (meaning anyone reading this) kids on pain meds

along with meds to counteract the disease?

This makes me feel totally lame, which isn't the first time here,

because I was trying to stay away from the meds that " cover up " the

disease. know what I mean? Instead, trying to use the meds to counteract

the disease and therefore make her pain free or to the greatest extent

by controlling it all. Was that such a bad idea?

So, am I a lame mama?

The naproxen messed with her tummy. She took that for 3 weeks. She can't

even take Tylenol more then a couple of times in a row now and she used

to take that just fine. So I don't know if there is anything she

*should* be taking for pain, but the Rheumy hasn't said so (probably

cause I said no).

After hearing from you all, I am brought to the conclusion that our

Rheumy allows me to make most of the decisions, which I rather

appreciate, but not if it effects the health of my child -- to an

extent. I know that with the power of decision he has given to me, I

need to be informed.

Yet, I am afraid in all the decisions I must make in what meds my dd

takes. I am a very natural choice mother, not even giving Tylenol for a

fever under 102, (dependant on age) cause it is just a simple biological

function in my opinion. Instead I rely on herbs and such for basic

illnesses. This JRA definitely threw me for a loop. She is on mtx. and

folic acid now and is doing fairly well. Was doing really well on the

remicade also. I don't know why I even agreed (at this point anyway) to

get the Enbrel instead. But I suppose it all ends with Enbrel. Which we

finally have an appt for that on the 17th.

Anyhow, I guess I was just rambling. Sorry to do that to your list. Take

care everyone, I read your messages and feel for your children. Every

time I look into my babies eyes, I know that you are there too.

Lorie (mama to Liberty, age 4 poly JRA)

December 1, 2001

Lorie

You are not alone by a long shot. I have one child with JRA and one with epilepsy and BOTH were on meds that required constant blood and urine monitoring to make sure that their internal organs and blood weren't being compromised. I am a person who NEVER takes or give out medication unless absolutely necessary so heavily medicating my children nearly gave me a nervous breakdown. But after much consultation with many parents (including my own sister who has a child with serious auto-immune problems), doctors and researching online, I came to the conclusion that I needed to treat the whole disease including the pain because, as bad as the meds are, experts don't really have any idea of what the stress hormones that they believe are put off when you are in pain, especially chronic pain, do to the body, especially in young bodies, in the long term. I chose to take the action of something that could actually be monitored ie. medication. There is also a theory that I have heard from several parents (corroborated by a few articles that I have read but I don't think it's mainstream) that if you treat the auto-immune disease fully there may be the chance that you can "trick" the body into believing that it has "finished" it's job (attacking itself instead of a "real" enemy) and have remission - short or long-term. So that's how I decided.

I know how agonizing the process is and I wish you the best of luck. My son (he has PA JRA) seems to be in remission now. He was on high doses of ibuprofen, along with Zantac because of stomach problems, for over a year. Should he go back into a flare we know that he will have to move up the meds chain because the Zantac no longer dents the stomach problems from Ibuprofen. I just keep my fingers crossed and pray for "permanent" remission.

December 1, 2001

Lorie Jo.............first off, you are NOT a lame

mama!!!!!

*I* think as parents, we all do what *we* think is

right for our children at any given time.

AND........every decision we make is a difficult one,

JRA related or not.

My ds takes motrin/advil or even OTC naprosyn for his

JA symptoms and does quite well.

Ok...........my dd is not on " pain " meds regularly.

She is taking mtx,folic acid, prednisone, Enbrel, and

Zofran (to counteract the horrible sickness she gets

from the mtx). She unfortunately is allergic to most

of the NSAIDS, and Vioxx as well

So..........for her pain, if it is really unbearable,

I will give her tylenol. I know it's really a low end

drug, but even if it takes away the edge of pain, it's

done it's job.

Yes, my rheumy allows dd/me to take an active role in

her treatment. We come up with

suggestions/possibilities, and then we discuss them at

length.......pros and cons. Sometimes we are not in

agreement, but for the most part we are okay

Have a great day.

Isabel

__________________________________________________

December 1, 2001

hi lorie..i was wondering what happened that your rheumy stopped remicade

and decided to go with enbrel..my daughter Tabitha who is sixteen and has

poly jra..was your daughters age when i found out she had this nasty

disease. She was on enbrel but her doctor thought it was doing that good

when it came to fight the poly jra. So she has been on remicade now for a

year and 1 month...and it is doing well. Her arthritis activity is low for

now..which is good..she still has pain but it isn't as bad as it was..i know

the meds work different in each child.i was just wondering why the remicade

was stopped?

Good luck to you and your child..

karen(tab16..poly)

From: Lorie Jo <loriejo@...>

Reply-

Subject: RE: Pain relief

Date: Fri, 30 Nov 2001 23:13:30 -0600