Re: Digest Number 239

April 11, 2000

Gretchen,

My son was just at the physical therapist last month to work on flexibility

to get his foot to neutral for AFO'S....and she found it 'curious' that when

he laid down, his legs weren't even, and eventually figured out that he

didn't have one shorter than the other, just a pulled up hip on one side

because of the gait......Martha

April 11, 2000

Hi all

The past couple of nights i have had trouble sleeping because of the

" fireworks " going off in my right foot......it really bugs me and it

feels like my feet have something tied real tight around them all the

way up to my shins....does anyone else have this feeling?

CSCluv**

http://community.webtv.net/cat926/CATHYSCOOLCATCORNER

April 12, 2000

Hi !

I, too, have had " fireworks in my feet " . I had this happen a few years back;

for some reason it doesn't happen anymore. I believe that feeling extremely

cold in the legs exacerbates the condition, since I used to live in an

apartment without much heat during the winter. My feet hurt so much some

nights that I could not sleep at all when this was happening. I guess it has

something to do with the CMT, and I know it is worse if I feel cold...Kathleen

April 16, 2000

In a message dated 4/11/00 7:23:04 AM Pacific Daylight Time, cat926@...

writes:

<< it feels like my feet have something tied real tight around them all the

way up to my shins....does anyone else have this feeling? >>

*************

yes, my feet do the same. And it just gets tighter and tighter. My hubby

found something that helps me with it..... he pulls on my toes. Sometimes

that really hurts because he forgets how little pressure I can handle. But,

it usually works.

If you try it - I hope it works for you also.

Jeanie (from Oregon)

Moonglow21@...

Jeanie421@...

come and visit <A

HREF= " Charcot-Marie-Toothonlinechat " >CMT chat

room</A>

Charcot-Marie-Toothonlinechat

June 26, 2000

Ah yes, the fit from hell! I remember it well! Tim chose to throw his

after the wake for my sister in law. He has really come a long way this

past year. Saturday we went to a parade complete with lots of sirens. He

LOVED IT!!!! We also went to a little carnival thing and stayed 3 hours and

he was happy almost the whole time. A man had used his riding lawn mower

and old metal barrels to made the cutest little train. He rode it a few

times and when he couldn't ride it he followed it all over. To top it off we

went to " Relay for Life " a cancer fund raiser. He actually was wonderful

there ,Too! It was in front of my family!! My brother (the one who wants

me to drop him off at the pound) even said he was really good. I hope that

as Ashton gets older her fits from hell become less frequent.

>picnic there......ashton throws a fit from hell, tries to bite me and hit

>me,

Gee, my brother always thought I should be tougher on him. " If you spanked

once he wouldn't do that anymore. "

>cousin says so brightly " YOU REALLY SHOULD TREAT HER NICER AND STOP ABUSING

>HER " " SHE REALLY DOESNT UNDERSTAND " well needless to say i lost it

Happy Anniversery to all who have them. I have enough trouble sorting out

which kid is whose and their ages and gender. And a very merry un-iversery

to those of us who do this job alone. And damn adversity, full spped

ahead!!! Sharon

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August 1, 2000

Dear Claudine:

Between the two of us I think we have gotten into just about every

possible article, or issue, as it becomes known. Maybe we should start a

library referral service!??? Marty

August 2, 2000

--- 2byteme@... wrote:

> Dear Claudine:

> Between the two of us I think we have gotten

> into just about every

> possible article, or issue, as it becomes known.

> Maybe we should start a

> library referral service!??? Marty

Being an information junkie has it's uses!

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

March 9, 2001

Dear ,

Thanks for the translation! I want to include a method of asking local

people what they think keeps/makes them healthy and what threatens their

health as part of the project in Stonehouse and I now have some accessible

underpinning theory!

Gill Newell

Digest Number 239

March 10, 2001

Dear Gill Newell,

Where is Stonehouse? and what sort of research are you doing? Maybe we can

share info?

Ruth Grant

Gill Newell wrote:

> Dear ,

>

> Thanks for the translation! I want to include a method of asking local

> people what they think keeps/makes them healthy and what threatens their

> health as part of the project in Stonehouse and I now have some accessible

> underpinning theory!

>

> Gill Newell

> Digest Number 239

>

November 17, 2004

Not yet, and I tried ambien, and mscontin and dilaudid,... next step is ER

my dr says... he doesn't know how stubborn I am.

You?

Teri

Re: Digest Number 238

>

> ANY SLEEP

>>

>> LUCKY ME WELL,IT'S BEEN ANOTHER ONE OF THOSE NIGHTS WITHOUT ANY SLEEP.

>> I'VE TRIED SEVERAL TIMES TO TRY AND GO TO SLEEP WITHOUT ANY SUCCESS.I

>> THINK THAT SOME OF THE MEDICINE THAT I HAVE TO TAKE IS KEEPING ME AWAKE.

>> I'M REALLY TIRED OF NOT BEING ABLE TO GO TO SLEEP WHEN I GO TO BED. THIS

>> HAPPENS ABOUT 4 0R 5 TIMES A WEEK, SO IT IS NOTHING NEW TO ME. IT IS

>> JUST

>> A BIG PAIN TO HAVE TO DEAL WITH IT. IT SURE MAKES IT HARD TO GET ANYTHING

>> DONE DURING THE DAY WHEN YOU HAVE TO SLEEP DURING THE DAY INSTEAD OF AT

>> NIGHT.

>> I JUST BET THAT THERE ARE SEVERAL OF YOU GUYS OUT THERE THAT HAVE THE

>> SAME

>> PROBLEM. I WOULDN'T MIND IT SO MUCH IF MY NECK WASN'T HURTING SO BAD.

>> WELL IT ISN'T TOO BAD,I GUESS. I MEAN IT'S NOT LIKE I HAVE A JOB TO GO

>> TO

>> OR ANYTHING LIKE THAT. LOL

>> MAN,I HAVEN'T WORKED IN SO LONG THAT I'VE FORGOTTEN WHAT IT'S LIKE TO

>> HAVE

>> A JOB TO GO TO EVERY DAY.

>> IT SURE WOULD BE NICE TO BE ABLE TO WORK INSTEAD OF JUST SIT AT HOME ALL

>> DAY LONG AND NOT BE ABLE TO DO ANYTHING.

>> I'M WAITING TO GO BEFORE THE ADMINISTRATIVE LAW JUDGE AT SOCIAL SECURITY

>> TO SEE IF I WILL BE ABLE TO GET MY DISABILITY OR NOT.

>> I TALKED TO A STAFF MEMBER AT THE HEARING OFFICE HERE WHERE I LIVE AND

>> WAS TOLD THAT IT WILL BE 6 MONTHS TO A YEAR BEFORE I'M ABLE TO GET A

>> HEARING DATE BECAUSE OF A 4,000 CASE BACKLOG.

>> TYPICAL GOVERNMENT,HURRY UP AND WAIT. YOU HAVE TO HURRY AND THEN YOU GET

>> TO WAIT. LOL

>> WELL,I GUESS THAT I HAVE BEEN A LITTLE BIT TOO LONG,SO,I'LL STOP FOR NOW.

>> MAY YOU ALL HAVE A BETTER DAY TODAY THAN YESTERDAY AND NOT AS GOOD A DAY

>> AS TOMORROW.

>> EVERYBODY TAKE AS BEST CARE AS YOU CAN AND BE SAFE.

>>

> Boy can I understand that. My body after the night before like you, and

> most of last night with no sleep... well about 4 am I must have just shut

> down. My phone rang at 6:15 am, and I swear I didn't even know it wa smy

> mom. She was making sure I was up to get my son ready for school. 2

> hours... Yehaw... it's enough to go for 2 days right? I must admit about

> half of it isn't back related... I have female problems. But my upper back

> pain is in a BAD attack, and my female pain is killing me. I just don't

> know how much longer I can live like this. I'm taking my morphine, eating

> JUST enough to keep my sugars balanced. Drinkng literally JUST enough to

> be

> hydrated, so I don't have to get up to pee often. I'm starting to get my

> I

> haven't slept enogh migraine. And they are hell on earth. One of these

> days one of these cycles will take me home to my sweet Jesus.

>

> Teri

>

> ________________________________________________________________________

>

> ------------------------------------------------------------------------

>

November 17, 2004