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Hello all,

This is an update on (turned 6 in December).

Chelation: we had 6 months on Buttar protocol TD-DMPS, slow, steady

gains. When I changed the protocol to low, frequent dosing, he went

to pieces. Same with DMSA oral low fequent dosing. Our hands are

fairly tied as far as riding out regressive behaviour is concerned

because school is not very tolerant of these glitches, and we are

hoping to phase out the shadow this year, both for his sake and

because the cost is beyond the joke. So no consistent chelation

since end August.

LDN: The last time I posted an update, I think, was after we had

started LDN at 1/5 of full dose and what we were seeing was nothing

short of miraculous - to the extent that I was convinced that this

was his 'magic bullet'. There was little to distinguish him from any

happy bright NT kid his age. This was, alas, a honeymoon period, but

worthwhile nonetheless as it provided a very welcome glimpse of 'the

other side'.

We are now on LDN full dose on McC's recommendation and is

coming down with bronchitis on a regular basis. Just back on the

aerolin, again.Why this is interesting is because when he was a

baby, he was hospitalised for a month with acute bronchitis and had

a number of relapses after that, none of which was severe, however.

When he regressed at 2 yrs, his repsiratory tract problems vanished

and he was rarely unwell. Now they seem to be coming back, always

the same thing - mild bronchitis. It's almost as though his immune

system is picking up where it left off?

VALTREX: During the Christmas break, I started N on valtrex, because

of his obvious post chicken pox freefall into autism and his

repeated attacks of mouth ulcers [controlled by Lysine]. He has

no 'hard signs' per Kurtz.

Ist 10 days: 2 x 500 mg - much calmer, happier, more talkative.More

with us. Here's an illustration:

loves the itunes programme, and makes his own compilations,

imports songs, and burns his own cd's etc. My mother asked him to

make her a Mp3, which he dutifully did. He brought it to me when it

was ready and said " Here's grandma's MP3. Put it in an envelope. " I

did and handed it to her. He intercepted it and said " Can I give it

to grandma, Mummy? " Ahhhh.

He had a big regression when we went up to full dose - 3 x 250 -

started wandering around with his tongue hanging out, very vacant-

looking and irascible, stimming on videos.

This only lasted 3 days, thankfully.

Back to school and wonderful - independent, responsive, doing all

his work without excessive prodding. School has agreed to do without

shadow 1x per week and we'll take it from there.He's had four such

days and he's been fine and so has his teacher. And when his shadow

is at school, she is rarely needed. They are putting him into a

higher year for maths - this had always been mooted but the teachers

in question were resistant. Now we have a volunteer! He no longer

tries to bolt at playtime and his piano teacher is very pleased

with his progress and says it's amazing to see a child that age able

to play and sing at the same time, because young kids can't focus on

both activities simultaneously.

He is opening up to the other kids much more - playing snakes and

ladders - ball games etc, and even got annoyed when he didn't get a

response out of a boy he greeted. Slight improvement re eye contact -

always a BIG problem. Made a Valentine's card unprompted for a

little girl in his class this morning. Makes up jokes, puns etc.

alternate lyrics to songs, eg. REM's 'Wake up bomb' goes form

saying 'I look good in a glass pack' to 'I look good in the

sandpit'!! Lots of happiness coming through, lots of overtures to

play, read to and sing with him. Even made cookies together

yesterday.

Another change is that I have reduced his billion supplements to

basic vitamins, b12 shots, minerals, amino acids, and fish oils with

no problems. Added Houston Enzymes about 6 weeks ago - had been

using Kirkman prior to that.

We had a livid red rash on the front of the knee last week - exactly

like the 2nd degree burn type rashes that we experienced when we

started td-dmps. ????? detox???

All in all we are very optimisitc at this point. Of course, in my

usual scientific way, I can't tell whether it's the valtrex or the

LDN or a combination of the two that is doing this!

We'll be starting the nasal spray when our shots run out, and keep

you posted. We are also seeing Dr Heard for the first time on March

8th.

Also we're having his annual WISC assesment doen this week - if he's

well enough - and will post results in terms of progress from this

time last year.

Slightly unsure how to proceed chelation wise. Lead, more than

mercury being the problem.

Anne-Marie