Guest guest Posted August 4, 2008 Report Posted August 4, 2008 > > sorry I forgot to say--I am on 600mg Tasigna now ---and I am doing > great. no side effects except weight gain. > sharon T Help! I have been waiting forever for my latest results and Dr Cortes just sends me a one liner...... " the results look good there are no philadelphia chromozones present and your BCR/ABL is 6.9 " great but what does it mean????????? Donna x> > _____ > > From: [mailto: ] On Behalf Of > nchando@... > Sent: Monday, August 04, 2008 11:20 AM > > Subject: [ ] Re: Gleevec side efffects > > > > I have been reading about Gleevec side effects that some people have on this > > list. I was on Gleevec for 4 1/2 yrs. and had several side effects. I > haven't read about anyone losing some of their taste sensation, however. Now > > that I was taken off Gleevec, I realize that my taste buds are back to > normal. > At first, I didn't realize I wasn't tasting some of my favorite foods. Then, > > I noticed I wasn't eating certain things that I used to like. I always > loved peanut butter for example, but it didn't appeal to me when I was on > Gleevec. Now, I crave it again. There are some other foods that I'm seeing > the > same thing with. When I was on Gleevec, the taste was not really there for > certain foods. Now, I notice the strength of the taste back again. It's a > minor > thing, but interesting. There are so many side effects with everything we > take. I'm on Tasigna, 800 mg., and I feel like I never know what side > effects > the future could bring. Right now, I'm ok with it. Does anyone else see a > loss of taste sensation on Gleevec? > in NY > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos. > <http://autos.aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000 > 017> aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000017 ) > > Quote
Guest guest Posted August 5, 2008 Report Posted August 5, 2008 Hi Sharon, Going from 11.10 to 6.9 is going in the right direction but it seems to me that it's less than a 2 log reduction. Usually a patient needs at least a 2 log reduction to be completely zero on a cytogenetics test (the test they do using the marrow) so I would ask for a copy of your PCR to be sure the numbers are right. PCR's can often be misleading though so I would trust the BMB cytogenetic report first. If your BMB truly is zero (no Philadelphia Chromosomes) then you're doing great and qualify for one of Zavie's Zero Club numbers. Tracey > > > > > > I would make sure the person doing the BMB does tons and has > > experience, And must be good experience. > > > I have been fortunate enough to be one person's first time. Before > > I new what questions to ask, Oh boy was that a lasting memory. > > > Good luck > > > Anita > > > > > > > > > > > > [ ] Many thanks and BMB question > > > > > > > > > Hello, > > > First I would like to thank everyone for the positive feedback from > > > my update.I also have a BMB quetion. > > > What can I expect with my 1st BMB? My DR. said nothing by mouth 8 > > > hours prior to BMB.I will be knocked out but no tube.It will take > > about > > > 15 minutes.Does this sound right? Anything else I should be > > concerned > > > with? > > > Thank You > > > SharonS > > > > > > > > > > > > > > > > > > > > > Quote
Guest guest Posted August 5, 2008 Report Posted August 5, 2008 Ooops, I meant Hi Donna, sorry about that. > > > > > > > > I would make sure the person doing the BMB does tons and has > > > experience, And must be good experience. > > > > I have been fortunate enough to be one person's first time. > Before > > > I new what questions to ask, Oh boy was that a lasting memory. > > > > Good luck > > > > Anita > > > > > > > > > > > > > > > > [ ] Many thanks and BMB question > > > > > > > > > > > > Hello, > > > > First I would like to thank everyone for the positive feedback > from > > > > my update.I also have a BMB quetion. > > > > What can I expect with my 1st BMB? My DR. said nothing by mouth > 8 > > > > hours prior to BMB.I will be knocked out but no tube.It will > take > > > about > > > > 15 minutes.Does this sound right? Anything else I should be > > > concerned > > > > with? > > > > Thank You > > > > SharonS > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote
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