Guest guest Posted May 3, 2008 Report Posted May 3, 2008 Dear a, Thanks for the heads up on he potassium issue. I hope you are doing well, this is not the first time that you have reached out to me with wonderful information. Love, > > > > Dear friends, > > Hello everyone. My name is and I am 31 years old and > have > > two sons, a 2 year old and a 4 year old. I was diagnosed on July, > 2007 > > and have been on 400mg of Gleevec since that time. I am treated at > NY > > Hospital by Dr. Schuster. I have posted on the Asian support group > so > > some of you already know me. Thank you for welcoming me into this > > group and I hope to get to know you guys and be part of your web of > > support. I have been suffering from edema of the lower legs, > ankles, > > and feet. > > > > I was > > wondering if some of you who have experienced these side effects > could > > tell me how you were treating this and if it > > went away or not. The doctor gave me Lasix to take as needed and I > > took a pill last night before I went to bed. I don't think it helped > > much aside from making me get up all night to urinate. Also, I had > bad > > cramps in my thigh in the morning and had to drink some Gatorade to > > replenish electrolytes. I'm not sure I want to keep taking the > > diuretics. Maybe I am not giving them enough time to work... I would > > appreciate some feedback on this from anyone who has had edema in > their > > lower legs. I see a lot of postings about the edema around the eyes > > but not that much about it in the legs. I hope everyone is feeling > > well and staying healthy. > > > > Thank you, > > > > NYC > > > > > > > > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > 04/29/08 - XL228 Trial/ U.of Michigan > > > > Quote
Guest guest Posted May 3, 2008 Report Posted May 3, 2008 Hi , always glad to help. In 8 years I have been on Gleevec, Arsenic, Zarnestra, Sprycel and now XL228, so anything I can help out with, it's a pleasure. And , by the way, did I thank you for posting the information on Lottie and Jimmy on the Asian site? That was very nice of you, thanks a million, when I called Lottie that night, I read her your email. Blessings, Bobby <icynena@...> wrote: Dear a, Thanks for the heads up on he potassium issue. I hope you are doing well, this is not the first time that you have reached out to me with wonderful information. Love, > > > > Dear friends, > > Hello everyone. My name is and I am 31 years old and > have > > two sons, a 2 year old and a 4 year old. I was diagnosed on July, > 2007 > > and have been on 400mg of Gleevec since that time. I am treated at > NY > > Hospital by Dr. Schuster. I have posted on the Asian support group > so > > some of you already know me. Thank you for welcoming me into this > > group and I hope to get to know you guys and be part of your web of > > support. I have been suffering from edema of the lower legs, > ankles, > > and feet. > > > > I was > > wondering if some of you who have experienced these side effects > could > > tell me how you were treating this and if it > > went away or not. The doctor gave me Lasix to take as needed and I > > took a pill last night before I went to bed. I don't think it helped > > much aside from making me get up all night to urinate. Also, I had > bad > > cramps in my thigh in the morning and had to drink some Gatorade to > > replenish electrolytes. I'm not sure I want to keep taking the > > diuretics. Maybe I am not giving them enough time to work... I would > > appreciate some feedback on this from anyone who has had edema in > their > > lower legs. I see a lot of postings about the edema around the eyes > > but not that much about it in the legs. I hope everyone is feeling > > well and staying healthy. > > > > Thank you, > > > > NYC > > > > > > > > > a (Bobby) Doyle > Brecksville, Ohio, USA > DX 05/1995 > 02/2000 - Gleevec Trial/OHSU > 06/2002 - Gleevec/Trisenox Trial/OHSU > 06/2003 - Gleevec/Zarnestra Trial/OHSU > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > #840 - Zavie's Zero Club > 09/2006 - out of CCR > 04/29/08 - XL228 Trial/ U.of Michigan > > > > Quote
Guest guest Posted May 3, 2008 Report Posted May 3, 2008 Dear a, It was my pleasure. Lottie is a lovely human being and she has been wonderful to me, emailing me privately throughout this past year to inquire about how I was doing physically and mentally since diagnosis. I know a lot of people appreciate her as much as I do so I figured I would just spread the word. Love, > > > > > > Dear friends, > > > Hello everyone. My name is and I am 31 years old and > > have > > > two sons, a 2 year old and a 4 year old. I was diagnosed on July, > > 2007 > > > and have been on 400mg of Gleevec since that time. I am treated > at > > NY > > > Hospital by Dr. Schuster. I have posted on the Asian support > group > > so > > > some of you already know me. Thank you for welcoming me into this > > > group and I hope to get to know you guys and be part of your web > of > > > support. I have been suffering from edema of the lower legs, > > ankles, > > > and feet. > > > > > > I was > > > wondering if some of you who have experienced these side effects > > could > > > tell me how you were treating this and if it > > > went away or not. The doctor gave me Lasix to take as needed and I > > > took a pill last night before I went to bed. I don't think it > helped > > > much aside from making me get up all night to urinate. Also, I > had > > bad > > > cramps in my thigh in the morning and had to drink some Gatorade > to > > > replenish electrolytes. I'm not sure I want to keep taking the > > > diuretics. Maybe I am not giving them enough time to work... I > would > > > appreciate some feedback on this from anyone who has had edema in > > their > > > lower legs. I see a lot of postings about the edema around the > eyes > > > but not that much about it in the legs. I hope everyone is feeling > > > well and staying healthy. > > > > > > Thank you, > > > > > > NYC > > > > > > > > > > > > > > > > > a (Bobby) Doyle > > Brecksville, Ohio, USA > > DX 05/1995 > > 02/2000 - Gleevec Trial/OHSU > > 06/2002 - Gleevec/Trisenox Trial/OHSU > > 06/2003 - Gleevec/Zarnestra Trial/OHSU > > 04/2004 - Sprycel Trial/MDACC, CCR in 10 months > > #840 - Zavie's Zero Club > > 09/2006 - out of CCR > > 04/29/08 - XL228 Trial/ U.of Michigan > > > > > > > > Quote
Guest guest Posted May 4, 2008 Report Posted May 4, 2008 Dear Bobby, Boy I hope Lottie doesn't see this message from . Her head will be bigger than a basketball!!!!!!! Bob , Granger, Indiana > > Dear a, > It was my pleasure. Lottie is a lovely human being and she has > been wonderful to me, emailing me privately throughout this past year > to inquire about how I was doing physically and mentally since > diagnosis. I know a lot of people appreciate her as much as I do so > I figured I would just spread the word. > > Love, > Quote
Guest guest Posted May 4, 2008 Report Posted May 4, 2008 That's OK Bob, she could probably use a good blast to her ego right now...but if I know Jimmy he is already making her laugh, him running down the hall with his hospital gown flapping in the breeze! Bobby <bob-stewart@...> wrote: Dear Bobby, Boy I hope Lottie doesn't see this message from . Her head will be bigger than a basketball!!!!!!! Bob , Granger, Indiana > > Dear a, > It was my pleasure. Lottie is a lovely human being and she has > been wonderful to me, emailing me privately throughout this past year > to inquire about how I was doing physically and mentally since > diagnosis. I know a lot of people appreciate her as much as I do so > I figured I would just spread the word. > > Love, > a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan Quote
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