New Member

[Guest guest]

Hey Kendra,

My name is s, Im 20 also, live in FL, and have SMA Type 2. I just had

my spinal fusion in Jan of this yr, it really improved my life and I recovered

rather quickly! I started college in May, and so far I love it! I started

w/ one class for both summer terms, but in the fall I'll take two classes. My

major is psychology but i'll probably change my major eventually. Do u have

aol or messenger? Well if u'de like, u can email me off list.

Sincerely,

s, the Unique Princess.

[Guest guest]

Hi Kendra,

Welcome to the list! This is a pretty neat bunch of folk. I'm 37 with

SMA2. I live in Berkeley and am about to finish my senior year at Mills

College (dropped out 10 yrs. ago) studying English/Creative Writing.

Because of you interest in disability rights, I'd like to recommend the

book " No Pity " by ph Shapiro if you haven't already read it.

Cheers!

Alana

At 10:50 PM 7/16/03 -0400, you wrote:

>Hello everyone! I'm new to SMA Friends. My name is Kendra. I'll be 20 this

>coming Monday. I have SMA type II and have used an electric wheelchair

>since age 8. However, I walked until my spinal fusion at age 14. I'm

>currently a senior in college in New York. I'm studying history and

>political science, with hopes to go on to law school. I haven't chosen a

>concentration, although I am interested in civil and Constitutional law

>for disability rights and also business law.

>

>I'm looking forward to meeting new people, especially those around my age,

>with whom I can share experiences with.

>

>Good luck and much love!

> ~Kendra

[Guest guest]

Lana, welcome; I have a 10 year old autistic grandson that I have been

working with every day for over 7 years. Tell me about your boys. Pat K

[Guest guest]

my son is almost 9 and has the worst self infl. behavior when he doesnt get

his way..pinching is chest and pushing on his molars and screaming like a

banshee...jen

[Guest guest]

Welcome Lana!!! I'm Robin. My daughter,Whitney, is 9 and she was just dxed

with autism in april, so I'm still new to all this. I realized when I saw your

e-mail that I haven't received any from this group in a while. I know my e-mail

is messing up, so I guess I'll go to the archives and see if I've missed

anything. I'm in Ms. where are you'll at? It must be rough having2 kids with

autism, are they hfa? Whitney is hfa though her comprehension and social skills

are

awful. I took her to a genetist last week and hes checking her for

-Megenis syndrome, because one of the symptems for it is always wanting to

touch

and hug people. Does that tell you how many hugs the Dr. got? Anyway welcome to

the group

Robin

[Guest guest]

Ou CB does the same thing with the volume and repetition .We fixed the pc so

he cant turn the volume up, maybe someone can figure out how to do it with the

tv too.

Somebody said the repetition is due to " broken " pieces of

information.Remember Willy Wonka, the kid that got to become part of theTV, all

the pieces

had to float cross the room . So since Our kids are enjoying that part of the

video , they repeat to get the whole thing ! A big Plus is that they also

mimic the speech,so I just tell him Granny is getting a headache, turn it down

LOL.

CB's Granny

[Guest guest]

In a message dated 8/4/2003 8:17:00 PM Eastern Standard Time, Lbagarozy writes:

Subj: new member

Date: 8/4/2003 8:17:00 PM Eastern Standard Time

From: Lbagarozy

-owner

Hello- I am writing as a new member of your nutrition group. I am also new to bariatric nutrition and am searching to educate myself on everything nutrition related about the field of bariatric medicine. I have been asked by a physician to lead the nutrition aspect of his new practice in bariatric medicine. He will soon be board certified in this area. If the members could lead me in the direction of self education, I would be most grateful. Also, if anyone could advise me on appropriate fee for service as the registered dietitian in a practice which will not be involved with health insurance reimbursementat all. Rather, the client will be paying all costs out of pocket! My name is lee and I've been an RD since 1986.

Hello- I am writing as a new member of your nutrition group. I am also new to bariatric nutrition and am searching to educate myself on everything nutrition related about the field of bariatric medicine. I have been asked by a physician to lead the nutrition aspect of his new practice in bariatric medicine. He will soon be board certified in this area. If the members could lead me in the direction of self education, I would be most grateful. Also, if anyone could advise me on appropriate fee for service as the registered dietitian in a practice which will not be involved with health insurance reimbursementat all. Rather, the client will be paying all costs out of pocket! My name is lee and I've been an RD since 1986.

[Guest guest]

Hi lee,

If you'd like to learn more about bariatric nutrition and weight management I'd recommend that you receive your Certificate in Training in Adult Weight Management. This is an ADA course of study that involves prework, a pretest, a 3 day seminar and a post test. If you pass the post test you receive your certificate. All aspects of weight management are covered in the program including bariatric surgery, medications, behavior mod, meal replacements, goal setting with patients,etc. It's a great program to help you become an expert in obesity and bariatric nutrition.

Ann

[Guest guest]

-

Glad to have you Lana, This group have a lot of great people that

share everything that they have try'd with thier kids. I am the

mother of a 9 year old Autistic /Verbal boy. He too screams and hits

when he dosen't get his way. Everyday I am after him to turn down the

T.V. He has his own T.V. VCR in his Bedroom because he was wearing

out our expensive one in the living room and my husband was really

getting mad that he kept fast forward and reversing the tapes and

putting thd Television up to blow out our ears. It's amazing that

Autistic Kids all seem to turn up the T.V.'s to loud. Maybe there's

a reason, I just can't seem to fiqure out what!! Again Welcome

Peace Jeanne

-- In autism , BiloxiRobin2@a... wrote:

> Welcome Lana!!! I'm Robin. My daughter,Whitney, is 9 and she was

just dxed

> with autism in april, so I'm still new to all this. I realized when

I saw your

> e-mail that I haven't received any from this group in a while. I

know my e-mail

> is messing up, so I guess I'll go to the archives and see if I've

missed

> anything. I'm in Ms. where are you'll at? It must be rough having2

kids with

> autism, are they hfa? Whitney is hfa though her comprehension and

social skills are

> awful. I took her to a genetist last week and hes checking her for

> -Megenis syndrome, because one of the symptems for it is

always wanting to touch

> and hug people. Does that tell you how many hugs the Dr. got?

Anyway welcome to

> the group

> Robin

>

>

>

[Guest guest]

Most kids with autism have sensory integration dysfunction, as well. One of

the types of SID is auditory. This can mean being over-sensitive or

under-sensitive to sounds.

Pam

Mommy to a 4.3 year old son, , with HFA and SID

Re: new member

-

Glad to have you Lana, This group have a lot of great people that

share everything that they have try'd with thier kids. I am the

mother of a 9 year old Autistic /Verbal boy. He too screams and hits

when he dosen't get his way. Everyday I am after him to turn down the

T.V. He has his own T.V. VCR in his Bedroom because he was wearing

out our expensive one in the living room and my husband was really

getting mad that he kept fast forward and reversing the tapes and

putting thd Television up to blow out our ears. It's amazing that

Autistic Kids all seem to turn up the T.V.'s to loud. Maybe there's

a reason, I just can't seem to fiqure out what!! Again Welcome

Peace Jeanne

-- In autism , BiloxiRobin2@a... wrote:

> Welcome Lana!!! I'm Robin. My daughter,Whitney, is 9 and she was

just dxed

> with autism in april, so I'm still new to all this. I realized when

I saw your

> e-mail that I haven't received any from this group in a while. I

know my e-mail

> is messing up, so I guess I'll go to the archives and see if I've

missed

> anything. I'm in Ms. where are you'll at? It must be rough having2

kids with

> autism, are they hfa? Whitney is hfa though her comprehension and

social skills are

> awful. I took her to a genetist last week and hes checking her for

> -Megenis syndrome, because one of the symptems for it is

always wanting to touch

> and hug people. Does that tell you how many hugs the Dr. got?

Anyway welcome to

> the group

> Robin

>

>

>

[Guest guest]

--- You wrote:

Hello- I am writing as a new member of your nutrition group. I am also new

to bariatric nutrition and am searching to educate myself on everything

nutrition related about the field of bariatric medicine. I have been asked by a

physician to lead the nutrition aspect of his new practice in bariatric

medicine.

He will soon be board certified in this area. If the members could lead me

in the direction of self education, I would be most grateful. Also, if anyone

could advise me on appropriate fee for service as the registered dietitian in

a practice which will not be involved with health insurance reimbursementat

all. Rather, the client will be paying all costs out of pocket! My name is

lee and I've been an RD since 1986.

--- end of quote ---

Hi lee,

In this months ADA journal the Dietetic in Practice flyer has a list of some

resources regarding gastric bypass and nutrition. This would be a great

starting place.

[Guest guest]

How do we find out when & where this program is offered? cost, etc? Also,

how much of the program is actually aimed at WLS? Thanks.

> Hi lee,

> If you'd like to learn more about bariatric nutrition and weight

> management

> I'd recommend that you receive your Certificate in Training in Adult

> Weight

> Management. This is an ADA course of study that involves prework, a

> pretest, a 3

> day seminar and a post test. If you pass the post test you receive your

> certificate. All aspects of weight management are covered in the program

> including bariatric surgery, medications, behavior mod, meal replacements,

> goal

> setting with patients,etc. It's a great program to help you become an

> expert in

> obesity and bariatric nutrition.

> Ann

>

>

[Guest guest]

Welcome Penny - I'm fairly new to the list too and I sit back and read

and learn -

Take care

Lois

http://www.healthyforalifetime.com - Helping families get toxins out of

their home - We offer Fabulous Vitamins and nutritional products too -

all with a money back guarantee

Let us show you how to save money with SAFER items that won't poison your

children.

http://www.tinybottoms.com - cloth diapers, blankets and more!

http://www.sweetappreciations.com - Aprons, kitchen towels, Patriotic

items

[Guest guest]

Welcome Penny. Your in for a whole lot of info and Fun!

Fiona

[Guest guest]

Welcome!

Glad to have you here. I have learned so much and continue to learn

every day!

Congrats on completing 10 weeks, make those last two strong.

Brett in Idaho

> Hi All!

>

> I just joined this group a couple of days ago and have found myself

> bombarded with all the group e-mails! How cool, though, to see how

> encouraging you all are with each other, and so far, polite, too!

So

> I've decided to join in the fun!

>

> Anyhow - I'm in week 10 of my first BFL challenge, and am trying to

> get back on track after really screwing up weeks 6-9. I had to

> travel quite a bit during that time and couldn't/didn't work out

much

> at all. Last week I had a great workout week, but the eating still

> hasn't gotten back on track totally yet. I do fine up until mid-

> afternoon, when I get tired. I'd love to take a nap, but the 1-1/2

> year old and 4-1/2 year old I have at home don't normally let that

> happen!

>

> I love all the e-mails about cottage cheese - what a hot topic that

> is! I like fat free just fine and I have become accustomed to

eating

> it with strawberries and a sprinkle of Splenda. Another one of my

> favorite snacks was suggested to me by a woman I met through the

BFL

> website guestbook - peanutbutter and apples. I could eat that all

> day long! And I've also fallen in love with Smuckers All Natural

> peanut butter - made with no trans-fatty acids.

>

> One more thing. Although I haven't lost much scale weight per se

> (only about 7 pounds), I got my BF % checked today and it was

18.7%.

> Supposedly in Mid-July it was 30.9%, but in talking with the

trainer

> who took my measurements today (not the same one as last time) she

> thinks that one of the first measurements was off, because dropping

> that much BF % is highly unlikely. Still, though, I was extremely

> pleased at where I'm at right now.

>

> If I ever have any issues - I know where to come!

>

> Oh - another thing I wanted to mention. Have any of you joined the

> BFLTracker.com site? I did, got real excited about it, posted

> progress pictures and measurements and everything, then ended up

> getting an obscene phone call referring to my picture on that

site.

> The guy posed as an EAS customer service rep doing a " follow-up " on

> my progress for the BFL challenge. He asked relevant questions to

> the program, asked if I had any questions - really pulled the wool

> over my eyes. Boy I felt like a fool when, at the end of the

> conversation he made reference to what he'd like to do to a certain

> part(s) of my body! Anyhow - I deleted my profile and I hope

nobody

> else ever has to experience that!

>

> Ok - I'm done now!

>

> D.

[Guest guest]

We are glad you are here and that phone call experience is terrible.

Afternoon is when I would always lose it too!!! Now I plan my shake

for that time and I make it with about 12 icecubes so it isreally

thick and big and I eat it like ice cream. It is my 4:00 ish meal

Bridgette

> Hi All!

>

> I just joined this group a couple of days ago and have found myself

> bombarded with all the group e-mails! How cool, though, to see how

> encouraging you all are with each other, and so far, polite, too!

So

> I've decided to join in the fun!

>

> Anyhow - I'm in week 10 of my first BFL challenge, and am trying to

> get back on track after really screwing up weeks 6-9. I had to

> travel quite a bit during that time and couldn't/didn't work out

much

> at all. Last week I had a great workout week, but the eating still

> hasn't gotten back on track totally yet. I do fine up until mid-

> afternoon, when I get tired. I'd love to take a nap, but the 1-1/2

> year old and 4-1/2 year old I have at home don't normally let that

> happen!

>

> I love all the e-mails about cottage cheese - what a hot topic that

> is! I like fat free just fine and I have become accustomed to

eating

> it with strawberries and a sprinkle of Splenda. Another one of my

> favorite snacks was suggested to me by a woman I met through the

BFL

> website guestbook - peanutbutter and apples. I could eat that all

> day long! And I've also fallen in love with Smuckers All Natural

> peanut butter - made with no trans-fatty acids.

>

> One more thing. Although I haven't lost much scale weight per se

> (only about 7 pounds), I got my BF % checked today and it was

18.7%.

> Supposedly in Mid-July it was 30.9%, but in talking with the

trainer

> who took my measurements today (not the same one as last time) she

> thinks that one of the first measurements was off, because dropping

> that much BF % is highly unlikely. Still, though, I was extremely

> pleased at where I'm at right now.

>

> If I ever have any issues - I know where to come!

>

> Oh - another thing I wanted to mention. Have any of you joined the

> BFLTracker.com site? I did, got real excited about it, posted

> progress pictures and measurements and everything, then ended up

> getting an obscene phone call referring to my picture on that

site.

> The guy posed as an EAS customer service rep doing a " follow-up " on

> my progress for the BFL challenge. He asked relevant questions to

> the program, asked if I had any questions - really pulled the wool

> over my eyes. Boy I felt like a fool when, at the end of the

> conversation he made reference to what he'd like to do to a certain

> part(s) of my body! Anyhow - I deleted my profile and I hope

nobody

> else ever has to experience that!

>

> Ok - I'm done now!

>

> D.

[Guest guest]

Did you report this to EAS?? I would. That is something they should be

aware of.

Cheree

[Guest guest]

I haven't, but I think I will today. Thanks for reminding me!

http://qwesteferral.com/r.jsp?a=Fmu9DBSgHpRfVU541Lz2HA$$ & x

Re: New Member

Did you report this to EAS?? I would. That is something they should be

aware of.

Cheree

[Guest guest]

EEK! , so sorry you had to go through that! I'm very hesitant

to post pics of me on the internet for just that reason...who knows

what kooks are out there!

Sue J.

[Guest guest]

Amy--

I don't have any references to share. But I agree with your approach on

avoiding the label of good/bad foods. At the facility I work at we do

focus on protein, fat gram range,etc. We see the patients about 4 times

during the year, so the amount of actual time counseling is limited. I

do encourage the person to eat 4-6 times per day, get adequate fluids(many

of the patients are poor water drinkers), and increase activity to at least

30 minutes/day or more. Many of the patients have poor self-esteem and need

the positive encouragement to change their behavior to food. It is amazing

the myths/ bad nutrition information that is out there and it seems to be

getting worse.

> Greetings!

>

> I'm a new member...nice to " meet " you all--thankful you are here! I

> didn't know this existed.

>

> I am involved with our gastric bypass program (open surgery) which has

> grown from 1 surgeon to 4 with the possibility of a 5th surgeon in one

> year. The post-op diet currently in use has been used for many years

> prior to my joining. It is proving to be a challenge to blend the

> various types of diets that each surgeon already uses and what the

> patients are reading on the internet.

>

> I am interested in locating a list of references that lead to specific

> diet recommendations based on research--if anyone has such a list and

> wouldn't mind sharing, it would be much appreciated! This would be very

> helpful for me in presenting any changes or improvements to our current

> diet in an objective manner.

>

> Also, please give me your thoughts about this....I am not interested in

> helping these patients have a list of " Good " and " Bad " foods; " Foods to

> Have " and " Foods to Avoid. " I realize some foods may have an adverse

> affect (i.e. excessive concentrated sweets), but I am not interested in

> setting them up for failure again or continuing to foster disorderd eating

> with a list of rules that they begin to break and " cheat. " My desire and

> approach is to help them acheive a balanced intake, understanding which

> foods are the best choices and which foods should be eaten in moderation.

> I appreciate any comments....

>

> Thank you in advance,

>

> Amy M. , RD, LD/N

> Nutrition Services

> Baptist Hospital

> 1000 W. Moreno

> Pensacola, FL 32501

> office: (850)-469-5004

> pager: (850)-494-8545

> email: amy.hughes@...

>

>

>

> -----------------------------------------

> All electronic mail communications originating from or transmitted to Baptist

> Health Care, Inc. are subject to monitoring. This message and the information

> contained in it, which may consist of electronic data attachments, are the

> confidential and proprietary communications of Baptist Health Care and are

> intended to be received only by the individual or individuals to whom the

> message has been addressed. If the reader of this message is not the intended

> recipient, please take notice that any use, copying, printing, forwarding or

> distribution of this message, in any form, is strictly prohibited. If you

have

> received this message in error, please immediately notify the Baptist Health

> Care Privacy Officer at (850) 434-4472 and/or forward the message to

hipaa@... and delete or destroy all copies of this message.

[Guest guest]

Please let me know if you find any specifc studies with guidelines. The

only specifics I have found are 1.5 g pro per kg. And I found one study

that had calorie levels with each " phase " on PubMed Surgery 1997 Nov; 122

(5):943-9. Changes in measured resting expenditure after Roux-en-Y gastric

bypass for clinically severe obesity. Then I based carb levels at an

approximate 40% of calories, because in my opinion this population is more

glucose sensitive and I have not seen evidence recommending any lower level

than that long term. I would love to hear what you find.

J. Sams MS RD/LD

>From: amy.hughes@...

>Reply-

>

>Subject: New Member

>Date: Mon, 8 Sep 2003 18:08:51 -0500

>

>Greetings!

>

>I'm a new member...nice to " meet " you all--thankful you are here! I

>didn't know this existed.

>

>I am involved with our gastric bypass program (open surgery) which has

>grown from 1 surgeon to 4 with the possibility of a 5th surgeon in one

>year. The post-op diet currently in use has been used for many years

>prior to my joining. It is proving to be a challenge to blend the

>various types of diets that each surgeon already uses and what the

>patients are reading on the internet.

>

>I am interested in locating a list of references that lead to specific

>diet recommendations based on research--if anyone has such a list and

>wouldn't mind sharing, it would be much appreciated! This would be very

>helpful for me in presenting any changes or improvements to our current

>diet in an objective manner.

>

>Also, please give me your thoughts about this....I am not interested in

>helping these patients have a list of " Good " and " Bad " foods; " Foods to

>Have " and " Foods to Avoid. " I realize some foods may have an adverse

>affect (i.e. excessive concentrated sweets), but I am not interested in

>setting them up for failure again or continuing to foster disorderd eating

>with a list of rules that they begin to break and " cheat. " My desire and

>approach is to help them acheive a balanced intake, understanding which

>foods are the best choices and which foods should be eaten in moderation.

>I appreciate any comments....

>

>Thank you in advance,

>

>Amy M. , RD, LD/N

>Nutrition Services

>Baptist Hospital

>1000 W. Moreno

>Pensacola, FL 32501

>office: (850)-469-5004

>pager: (850)-494-8545

>email: amy.hughes@...

>

>

>

>-----------------------------------------

>All electronic mail communications originating from or transmitted to

>Baptist Health Care, Inc. are subject to monitoring. This message and the

>information contained in it, which may consist of electronic data

>attachments, are the confidential and proprietary communications of Baptist

>Health Care and are intended to be received only by the individual or

>individuals to whom the message has been addressed. If the reader of this

>message is not the intended recipient, please take notice that any use,

>copying, printing, forwarding or distribution of this message, in any form,

>is strictly prohibited. If you have received this message in error, please

>immediately notify the Baptist Health Care Privacy Officer at (850)

>434-4472 and/or forward the message to hipaa@... and delete or

>destroy all copies of this message.

_________________________________________________________________

Express yourself with MSN Messenger 6.0 -- download now!

http://www.msnmessenger-download.com/tracking/reach_general

[Guest guest]

http://www.plasmafire.com/

This is Dr. Saul Pressmans site for his ozone sauna's and generaters. He is

also a member of this list. In my opinion they are the best.

Laurie

New Member

Hi

I am new to the group but have been lurking for a while trying to get an

understanding of ozone issues

I am thinking of buying an ozone generator but don't know wether to opt for

a steam tent or a body bag for bagging???

Can anyone tell me which is the better.

Also what are the benefits of saunas/bagging over insufflation methods

Thank you

[Guest guest]

http://www.plasmafire.com/

This is Dr. Saul Pressmans site for his ozone sauna's and generaters. He is

also a member of this list. In my opinion they are the best.

Laurie

New Member

Hi

I am new to the group but have been lurking for a while trying to get an

understanding of ozone issues

I am thinking of buying an ozone generator but don't know wether to opt for

a steam tent or a body bag for bagging???

Can anyone tell me which is the better.

Also what are the benefits of saunas/bagging over insufflation methods

Thank you

[Guest guest]

BJ:

We have poop issues here, too, although not quite to the extent you're seeing.

Have you tried cognitive behavior therapy with your daughter? Are you near any pediatric psychologists who could work with you on this? FBA's at school are usually worthless -- they're afraid to document things for fear they'll be viewed as "mistakes." If you're not satisfied with school's FBA, ask for an IEE. That was very helpful for us.

Your daughter is definitely a candidate for specific social skills training. She's figuring things out on her own (i.e. the throwing up on people), but she needs to be taught more appropriate ways to get someone's attention. We've been through that, too. Our daughter wouldn't express her feelings. When she started saying, "I'm angry," we were all elated and she got the response/recognition she wanted over a situation. After a while, we weren't as animated in our response, so one day she was angry and said she was going to take a knife and cut her big sister (she was about 8 at the time). Well, that got the same reaction from us that she got when she first started saying, "I'm angry." What she wanted was for us to take her seriously and attend to what was making her angry.

Has school collected any ABC data re: the tantrums (antecedent, behavior, consequence)? Does school have behavior specialists on staff? If not, ask them to retain one to help develop a behavior plan to decrease negative behaviors and increase positive behaviors. Keeping her out of school isn't a good idea -- it's denying her educational benefit because school isn't doing their job properly. (I'm a parent advocate -- can you tell?)

I hope this has helped.

Missy

-----Original Message-----From: Bj Artworks [mailto:bjartworks@...] Sent: Friday, December 19, 2003 3:44 AMautism Subject: new member

Hi all,

I found your list a couple days ago, and hope that someone has some ideas for us. I have a 12 yo daughter with autism...some say "moderate", some say "severe". Right now, her behavior is causing problems not only in our home, but school. She has a history of attention-getting behaviors (in an attempt to socialize with others)...including throwing, kicking, slapping and spitting and throwing up at other people to see their reaction or to be able to interact with them (saying "I'm sorry"). We asked for a functional behavioral analysis at school last year, and the result was vague...other than social attention, the only other thing that was consistent was that she "acted out" more at a certain time during the day, resulting in an assumption that she needed extra food (a snack) in the mornings. The addition of a morning snack at school resulted in a reduction of behaviors.

During this past summer, we began putting her on a strict diet...gluten, casein and sugar free...and when going back to school in September, she was fairly calm...no aggression towards other kids...the only thing now was food obsessions. She grabbed other kids food, and then started grabbing stuff off the ground that she found. A DAN Dr. suggested herbal treatment for fungus and cleansing the bowels. She began to have poop accidents at school as the stools began to soften up. A few weeks ago we decided to do some further testing...we decided to test her stools for fungus overgrowth since she tends to have a bloated stomach and constipation most of the time. The guidelines for the Great Plains Lab test stated to take her off any herbal or medication treatments for a week before collecting the stool samples. Finally, last week we were able to collect a sample. In the meantime, she has begun to have screaming tantrums and has begun to pick poop out of herself...and share it with others around her. I have decided to keep her out of school for a while because there was also an incident at school. Even though we have put her back on the herbs to soften the stools, she is still picking herself, and has adopted this new behavior.

I've gone through some of the "positive behavior management techniques" training, and understand that ignoring behaviors is one of the best ways to end or diminish/fade these behaviors...but it is not working well especially since this seems to be the last straw for my husband and older kids. Ok...and I am a bit stressed too.

Anyone else gone through this before? any ideas?

Thanks,

Bj

[Guest guest]

BJ:

We have poop issues here, too, although not quite to the extent you're seeing.

Have you tried cognitive behavior therapy with your daughter? Are you near any pediatric psychologists who could work with you on this? FBA's at school are usually worthless -- they're afraid to document things for fear they'll be viewed as "mistakes." If you're not satisfied with school's FBA, ask for an IEE. That was very helpful for us.

Your daughter is definitely a candidate for specific social skills training. She's figuring things out on her own (i.e. the throwing up on people), but she needs to be taught more appropriate ways to get someone's attention. We've been through that, too. Our daughter wouldn't express her feelings. When she started saying, "I'm angry," we were all elated and she got the response/recognition she wanted over a situation. After a while, we weren't as animated in our response, so one day she was angry and said she was going to take a knife and cut her big sister (she was about 8 at the time). Well, that got the same reaction from us that she got when she first started saying, "I'm angry." What she wanted was for us to take her seriously and attend to what was making her angry.

Has school collected any ABC data re: the tantrums (antecedent, behavior, consequence)? Does school have behavior specialists on staff? If not, ask them to retain one to help develop a behavior plan to decrease negative behaviors and increase positive behaviors. Keeping her out of school isn't a good idea -- it's denying her educational benefit because school isn't doing their job properly. (I'm a parent advocate -- can you tell?)

I hope this has helped.

Missy

-----Original Message-----From: Bj Artworks [mailto:bjartworks@...] Sent: Friday, December 19, 2003 3:44 AMautism Subject: new member

Hi all,

I found your list a couple days ago, and hope that someone has some ideas for us. I have a 12 yo daughter with autism...some say "moderate", some say "severe". Right now, her behavior is causing problems not only in our home, but school. She has a history of attention-getting behaviors (in an attempt to socialize with others)...including throwing, kicking, slapping and spitting and throwing up at other people to see their reaction or to be able to interact with them (saying "I'm sorry"). We asked for a functional behavioral analysis at school last year, and the result was vague...other than social attention, the only other thing that was consistent was that she "acted out" more at a certain time during the day, resulting in an assumption that she needed extra food (a snack) in the mornings. The addition of a morning snack at school resulted in a reduction of behaviors.

During this past summer, we began putting her on a strict diet...gluten, casein and sugar free...and when going back to school in September, she was fairly calm...no aggression towards other kids...the only thing now was food obsessions. She grabbed other kids food, and then started grabbing stuff off the ground that she found. A DAN Dr. suggested herbal treatment for fungus and cleansing the bowels. She began to have poop accidents at school as the stools began to soften up. A few weeks ago we decided to do some further testing...we decided to test her stools for fungus overgrowth since she tends to have a bloated stomach and constipation most of the time. The guidelines for the Great Plains Lab test stated to take her off any herbal or medication treatments for a week before collecting the stool samples. Finally, last week we were able to collect a sample. In the meantime, she has begun to have screaming tantrums and has begun to pick poop out of herself...and share it with others around her. I have decided to keep her out of school for a while because there was also an incident at school. Even though we have put her back on the herbs to soften the stools, she is still picking herself, and has adopted this new behavior.

I've gone through some of the "positive behavior management techniques" training, and understand that ignoring behaviors is one of the best ways to end or diminish/fade these behaviors...but it is not working well especially since this seems to be the last straw for my husband and older kids. Ok...and I am a bit stressed too.

Anyone else gone through this before? any ideas?

Thanks,

Bj