Guest guest Posted February 13, 2006 Report Posted February 13, 2006 To my knowledge, microbial infection can cause this. The most common is Yersinia infection which will respond to Flagyl. Jay tigerpaw2c <tigerpaw2c@...> wrote: , Thank goodness for your persistance girl, good going. You know if you didn't continue with the determination that you have, not only for yourself, but mainly for your children, the next diagnosis you would have had from these doctors would be " hypochondriac " or worse because the doctor wasn't diligent enough to continue his examination. I can understand this diagnosis for some of us, because they don't understand and they don't have the answers for more than 3 symptoms, but I can't understand this when it comes to children. How and why would they be making this stuff up? I did a little bit of research myself last nite , even though I didn't get back with you (late) I am so sorry you are having to deal with this now too, but at least you have an answer and that's half the battle. This illness acute mesenteric adenitis there is definately one thing that I do not understand, why does this seem to occur after a battle or two of upper respiratory infections, according to research, several that I had read. This just seems to be very odd and since many of us are dealing with inflammation of the lymph nodes everywhere else, why not in that location also. I was looking at some x-rays last night on just this and these type of pains seem like they could be misdiagnosed in females for these reason (and I'm not only speaking of your daughter , but many others that have had pain in that area) adhesions, ovaries, of course appendix, gall bladder, but what they did show was about 5 swollen lymph nodes that were retaining fluid. As far as milk thistle, with the positive results that many have had on this board, again it is great for the liver and kidneys, I don't know if it would help this or these pains. But as well as it works, it surely couldn't hurt. , please keep us informed. KC > > Hi All, > I am a bit aware of what this is. Just not familiar with it. My daughter (10) was once again taken to ER a couple of weeks ago. She had been getting sick again. This time though it brought back horrible memories for all of us, from when we were in our sick home. But, I could tell it wasn't the same. As after 5 years I have figured out what her symptoms are after being exposed again. > So, after much arguing with the attending doctor to get a CAT scan done on her stomach area-I had finally succeeded after 7 years. We would see if there was something wrong with her appendix. (that's what I was afraid was wrong & didn't want to wait for a miss diagnosis) Well anyway, the results came back and she has this mesenteric adenitis. (swollen and enlarged lymph nodes around her internal organs in her belly area) That is what is causing her problems with her stomach. > So, I figured maybe some others were diagnosed with this after exposure. Her diet has been extremely modified. (by me-because I know what makes her sick) So, now we have to go see this specialist (surgeon) to monitor the condition. I want to know as much as I can. The feeling I have is kind of like when we found out we had mold. NOT A CLUE!!!! I feel like I have to know everything about it, before taking her there. So, I figured maybe some you had been diagnosed with this, or maybe knew someone who had. Just so I would have extra knowledge before going in blind about it as I am now. > I know what the first thougt from many of you will be, as it was mine too. She is not being exposed to mold at school, home, or grandmas house. Which is where she spends 95% of her time. We know these are safe. > Also, I have been hearing alot about milk thistle from all of you. I have to research it more. But, wondered if it might help. They have the tea at health food store, and she loves tea. (can't take pills) > It is hard to give her much of anything, as it all makes her sick. We finally got her a multi-vitamin with enzymes in it,(liquid) which she has taken for 3 days now, and she has not gotten sick. This after about 15 different vitamins. > Thank you all for your time. > > > > Quote
Guest guest Posted February 13, 2006 Report Posted February 13, 2006 Yes Jay, I was able to find this out also. Re: [] Re: acute mesenteric adenitis > To my knowledge, microbial infection can cause this. The most common is > Yersinia infection which will respond to Flagyl. > > Jay > > tigerpaw2c <tigerpaw2c@...> wrote: > , > > Thank goodness for your persistance girl, good going. You know if > you didn't continue with the determination that you have, not only > for yourself, but mainly for your children, the next diagnosis you > would have had from these doctors would be " hypochondriac " or worse > because the doctor wasn't diligent enough to continue his > examination. I can understand this diagnosis for some of us, because > they don't understand and they don't have the answers for more than > 3 symptoms, but I can't understand this when it comes to children. > How and why would they be making this stuff up? > > I did a little bit of research myself last nite , even though I > didn't get back with you (late) I am so sorry you are having to deal > with this now too, but at least you have an answer and that's half > the battle. This illness acute mesenteric adenitis there is > definately one thing that I do not understand, why does this seem to > occur after a battle or two of upper respiratory infections, > according to research, several that I had read. This just seems to > be very odd and since many of us are dealing with inflammation of > the lymph nodes everywhere else, why not in that location also. I > was looking at some x-rays last night on just this and these type of > pains seem like they could be misdiagnosed in females for these > reason (and I'm not only speaking of your daughter , but many > others that have had pain in that area) adhesions, ovaries, of > course appendix, gall bladder, but what they did show was about 5 > swollen lymph nodes that were retaining fluid. > > As far as milk thistle, with the positive results that many have had > on this board, again it is great for the liver and kidneys, I don't > know if it would help this or these pains. But as well as it works, > it surely couldn't hurt. > > , please keep us informed. > > KC > > >> >> Hi All, >> I am a bit aware of what this is. Just not familiar with it. My > daughter (10) was once again taken to ER a couple of weeks ago. She > had been getting sick again. This time though it brought back > horrible memories for all of us, from when we were in our sick > home. But, I could tell it wasn't the same. As after 5 years I > have figured out what her symptoms are after being exposed again. >> So, after much arguing with the attending doctor to get a CAT scan > done on her stomach area-I had finally succeeded after 7 years. We > would see if there was something wrong with her appendix. (that's > what I was afraid was wrong & didn't want to wait for a miss > diagnosis) Well anyway, the results came back and she has this > mesenteric adenitis. (swollen and enlarged lymph nodes around her > internal organs in her belly area) That is what is causing her > problems with her stomach. >> So, I figured maybe some others were diagnosed with this after > exposure. Her diet has been extremely modified. (by me-because I > know what makes her sick) So, now we have to go see this specialist > (surgeon) to monitor the condition. I want to know as much as I > can. The feeling I have is kind of like when we found out we had > mold. NOT A CLUE!!!! I feel like I have to know everything about > it, before taking her there. So, I figured maybe some you had been > diagnosed with this, or maybe knew someone who had. Just so I would > have extra knowledge before going in blind about it as I am now. >> I know what the first thougt from many of you will be, as it was > mine too. She is not being exposed to mold at school, home, or > grandmas house. Which is where she spends 95% of her time. We know > these are safe. >> Also, I have been hearing alot about milk thistle from all of > you. I have to research it more. But, wondered if it might help. > They have the tea at health food store, and she loves tea. (can't > take pills) >> It is hard to give her much of anything, as it all makes her sick. > We finally got her a multi-vitamin with enzymes in it,(liquid) which > she has taken for 3 days now, and she has not gotten sick. This > after about 15 different vitamins. >> Thank you all for your time. >> >> >> >> Quote
Guest guest Posted February 13, 2006 Report Posted February 13, 2006 KC, It is a shame that they don't use all the testing available to them. She is in alot of pain when she gets an onset of this. Not to mention the vomiting, diarrhea, and other symptoms she gets and has everyday. It seems to me that if you have been to the ER several times for the same thing, and severe pain in the appendix area, that it would be common to do a CAT scan. But, guess not. It was like I wanted to subject her to radiation or something. Like I was a bad parent for wanting it done. Funny I had to tell the doctor what needed to be done. Then we had the diagnosis. You have to go to the hospital and doctors office equipped for a battle, just save ourselves and our children. You mention upper respitory, and I found that too. However, she had not had any upper resp. infection, or a cold for that matter. They had done x-rays the last few times we had been in, but they did not pick this up for some reason. I can't understand it all either. All I know is with the help of all of you and myself hopefully we can make her better. She will see the doctor today at 4:15. We'll see what he has to say. Thank you all for your help and kind words. I have not been able to tell my parents yet, as my father was admitted to ER last week with extremely high blood pressure, and they are concerned he will have a stroke if it is not kept down. Because of his love for my children, I need to wait to tell him, until he is better-so that his blood pressure will not sky rocket. I am soooooo happy I have all of you. Thank you from the bottom of my heart. [] Re: acute mesenteric adenitis > , > > Thank goodness for your persistance girl, good going. You know if > you didn't continue with the determination that you have, not only > for yourself, but mainly for your children, the next diagnosis you > would have had from these doctors would be " hypochondriac " or worse > because the doctor wasn't diligent enough to continue his > examination. I can understand this diagnosis for some of us, because > they don't understand and they don't have the answers for more than > 3 symptoms, but I can't understand this when it comes to children. > How and why would they be making this stuff up? > > I did a little bit of research myself last nite , even though I > didn't get back with you (late) I am so sorry you are having to deal > with this now too, but at least you have an answer and that's half > the battle. This illness acute mesenteric adenitis there is > definately one thing that I do not understand, why does this seem to > occur after a battle or two of upper respiratory infections, > according to research, several that I had read. This just seems to > be very odd and since many of us are dealing with inflammation of > the lymph nodes everywhere else, why not in that location also. I > was looking at some x-rays last night on just this and these type of > pains seem like they could be misdiagnosed in females for these > reason (and I'm not only speaking of your daughter , but many > others that have had pain in that area) adhesions, ovaries, of > course appendix, gall bladder, but what they did show was about 5 > swollen lymph nodes that were retaining fluid. > > As far as milk thistle, with the positive results that many have had > on this board, again it is great for the liver and kidneys, I don't > know if it would help this or these pains. But as well as it works, > it surely couldn't hurt. > > , please keep us informed. > > KC > > >> >> Hi All, >> I am a bit aware of what this is. Just not familiar with it. My > daughter (10) was once again taken to ER a couple of weeks ago. She > had been getting sick again. This time though it brought back > horrible memories for all of us, from when we were in our sick > home. But, I could tell it wasn't the same. As after 5 years I > have figured out what her symptoms are after being exposed again. >> So, after much arguing with the attending doctor to get a CAT scan > done on her stomach area-I had finally succeeded after 7 years. We > would see if there was something wrong with her appendix. (that's > what I was afraid was wrong & didn't want to wait for a miss > diagnosis) Well anyway, the results came back and she has this > mesenteric adenitis. (swollen and enlarged lymph nodes around her > internal organs in her belly area) That is what is causing her > problems with her stomach. >> So, I figured maybe some others were diagnosed with this after > exposure. Her diet has been extremely modified. (by me-because I > know what makes her sick) So, now we have to go see this specialist > (surgeon) to monitor the condition. I want to know as much as I > can. The feeling I have is kind of like when we found out we had > mold. NOT A CLUE!!!! I feel like I have to know everything about > it, before taking her there. So, I figured maybe some you had been > diagnosed with this, or maybe knew someone who had. Just so I would > have extra knowledge before going in blind about it as I am now. >> I know what the first thougt from many of you will be, as it was > mine too. She is not being exposed to mold at school, home, or > grandmas house. Which is where she spends 95% of her time. We know > these are safe. >> Also, I have been hearing alot about milk thistle from all of > you. I have to research it more. But, wondered if it might help. > They have the tea at health food store, and she loves tea. (can't > take pills) >> It is hard to give her much of anything, as it all makes her sick. > We finally got her a multi-vitamin with enzymes in it,(liquid) which > she has taken for 3 days now, and she has not gotten sick. This > after about 15 different vitamins. >> Thank you all for your time. >> >> >> >> Quote
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