Guest guest Posted February 12, 2006 Report Posted February 12, 2006 Does anyone know of a Dr that treats mold at the Mayo clinic? Bobbie Quote
Guest guest Posted October 15, 2007 Report Posted October 15, 2007 , what kind of things did the Mayo clinic help you with , meaning with your CMT. Because I'm in WI also, and if they can help me with my CMT I'm there. Have car will travel, lol. B Quote
Guest guest Posted October 16, 2007 Report Posted October 16, 2007 , they didn't really do anything to help me with CMT, because as you know, there is no cure yet. What they did do is extensive testing to come up with a proper diagnosis. The team of neurologists there is amazing, and they spent a lot of time with me to help me plan for a healthy future and for maintaining a productive lifestyle. K. Quote
Guest guest Posted October 17, 2007 Report Posted October 17, 2007 Hello, my name is Joyce I have CMT and I am 62 years old, I went thru Mayo in AZ. I spent three days doing tests I had five years ago, all they could confirm was CMT 1A, no new treatment, to continue the pain meds I have been taking exercise and Capcasion cream <excuse the spelling> for the burning sensation in my hands, it is made from chili peppers. They were very nice but offered nothing more then Barrows Neurological. Maybe you will have better luck than I did. It was costly but I would have been elated if they could have suggested any new treatment or advise for future reference. How did you feel with the information you received? lol Quote
Guest guest Posted October 17, 2007 Report Posted October 17, 2007 Here's their website - skip to 'treatment', 'self-care' and 'coping' (yes, not much there we don't already know) http://www.mayoclinic.com/health/charcot-marie-tooth-disease/DS00557/DSECTION=1 It will be a few years until all the Ascorbic Acid research comes together in hopes of helping 1A. At least now we have the I-net and can connect with others worldwide at . In reading the article about " 's World " , the author * states " how fed up she was with medicine - and this goes back to the early 20th century - the article describes how docs would make her stand while they encircled her for 10 minutes and left. 2 docs were called to see her at home, due to some burns she had as a result of stoking the fire (heat) One doc she fired right away, the other one, she refused to follow the advice. " The author * states " unfortunately the therapy for this disorder (CMT) and similiar conditions is essentially no better today than it was in her lifetime. " lived 1893 - 1968) In a letter she wrote to her mother, from Boston City Hospital, states 'they told Fred (a brother) that the only thing for me to do was to just go on living as I have always done, to eat all the nourishing food possible, and to live outdoors as much as I could and it would do me more good than any medicinen or treatment of any kind " . * * from Dr. 's recent article Quote
Guest guest Posted March 11, 2008 Report Posted March 11, 2008 Are you talking about the Nasal anti-fungal that are Dr's are all ready using?? Mayo clinic announced a while ago that they were coming out with this for Chronic sinus infections because they know that 95 % of those are fungal and not bacteria. Whats funny is they act like there inventing the wheel and this is all new news. K UnitedStatesVet <unitedstatesvet@...> wrote: Ok, The medicine I spoke of at the Mayo Clinic is designed to kill the organism that are produceing the tricothacines. Once that is done, at that point you would introduce CSM to flush out the tricothacines. UnitedStatesVet <unitedstatesvet@...> wrote: I am glad to see this message again. Speaking with Dr. Hooper, he informed me (my mom)that Dr. Dennis in Atlanta told him (he said she said..LOL) the Mayo Clinic may or does have a new medicine that will pull the tricothecines out of your system. I will get this confirmed and respond again to be sure but this is pleasant news although I think that is what CSM is supose to do? I am still a little confused on the issue but am in the middle of this exact situation minus the steroid part. SHARON, congradulations. That is great news. I wish you the best. Chris.. Quote
Guest guest Posted March 11, 2008 Report Posted March 11, 2008 Honestly I am not certain of the exact medication yet. I will find out though. I did not know that about sinus infections though. a Townsend <kmtown2003@...> wrote: Are you talking about the Nasal anti-fungal that are Dr's are all ready using?? Mayo clinic announced a while ago that they were coming out with this for Chronic sinus infections because they know that 95 % of those are fungal and not bacteria. Whats funny is they act like there inventing the wheel and this is all new news. K UnitedStatesVet <unitedstatesvet@...> wrote: Ok, The medicine I spoke of at the Mayo Clinic is designed to kill the organism that are produceing the tricothacines. Once that is done, at that point you would introduce CSM to flush out the tricothacines. UnitedStatesVet <unitedstatesvet@...> wrote: I am glad to see this message again. Speaking with Dr. Hooper, he informed me (my mom)that Dr. Dennis in Atlanta told him (he said she said..LOL) the Mayo Clinic may or does have a new medicine that will pull the tricothecines out of your system. I will get this confirmed and respond again to be sure but this is pleasant news although I think that is what CSM is supose to do? I am still a little confused on the issue but am in the middle of this exact situation minus the steroid part. SHARON, congradulations. That is great news. I wish you the best. Chris.. --------------------------------- Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote
Guest guest Posted December 27, 2008 Report Posted December 27, 2008 I guess Hopkins is better. llaci So I've heard. Quote
Guest guest Posted December 28, 2008 Report Posted December 28, 2008 On second thought, do you feel it is out of line looking into mold sicknesses? > From: kl_clayton <kl_clayton@...> > Subject: [] Re: mayo clinic > > Date: Sunday, December 28, 2008, 12:02 PM > > > > > I used to think the mayo clinic was good, relibale > > > They are in minnesota, you know, and here the state medical > board is > out to get anyone that steps out of line...... Quote
Guest guest Posted December 28, 2008 Report Posted December 28, 2008 " It is highly unlikely that you could inhale enough mold in your home or office to receive a toxic dose " . They are really generalizing when they say that. For the most part it's probably true...but for those of us with allergies to mold, it is not.... llaci Quote
Guest guest Posted December 28, 2008 Report Posted December 28, 2008 I have been told by many sources that MAYO in MN is better, but I contacted them and they do not treat environmental problems. > From: kl_clayton <kl_clayton@...> > Subject: [] Re: mayo clinic > > Date: Sunday, December 28, 2008, 5:51 PM > Well, as happens to many of us, I was told I was not REALLY > sick, it > was all in my head, that it is impossible that mold can > cause.... etc > etc ad nauseum, possible due to those criminals that put > out the false > Quote
Guest guest Posted December 28, 2008 Report Posted December 28, 2008 I believe that, but working for s Hopkins, I doubt if they would stick their neck out and treat a mold exposure patient and acknowledge that is what caused the problems. > > From: semco_semco_semco <semco_semco_semco@...> > Subject: [] Re: mayo clinic > > Date: Sunday, December 28, 2008, 7:04 PM > > > > > > > Here ya go. I hope all you are is asthmatic. > > " s Hopkins Hospital recently released a set of > guidelines based on a well researched > review entitled 'The medical effects of mold > exposure'. One assertion made was > > " It is highly unlikely that you could inhale enough > mold in your home or office to receive a > toxic dose " . " > > Here is a link that will show you the paper and the > opinions of other. > > http://aspergillusb log.blogspot. com/2008_ 06_01_archive. > html > > > > > > s Hopkins released a statement that basically says > they don't believe mold causes > sickness at all. > > > > > > > > > > > > > > > > > > > > Quote
Guest guest Posted December 28, 2008 Report Posted December 28, 2008 As many of us have learned, you don't have to be allergic to mold to get sick from the toxins. Some of these mycotoxins are classified as biological weapons which has nothing to do with allergies. ________________________________ From: llaci2003 <jjaksic@...> Sent: Sunday, December 28, 2008 6:16:59 PM Subject: [] Re: mayo clinic " It is highly unlikely that you could inhale enough mold in your home or office to receive a toxic dose " . They are really generalizing when they say that. For the most part it's probably true...but for those of us with allergies to mold, it is not.... llaci Quote
Guest guest Posted December 30, 2008 Report Posted December 30, 2008 No, I didn't misunderstand it. I was just confirming that the allergist at MAYO I saw was not good at all. In fact, he was horrible. You would think that MAYO would have a decent allergist, but their's is a joke. > From: jackiebreeze <jackiebreeze@...> > Subject: [] Re: mayo clinic > > Date: Tuesday, December 30, 2008, 7:59 AM > You misunderstood the context of my message. I was agreeing > that the > quote was wrong and I was basically stating that a good > allergist, > like mine, knows mold can be toxic on an allergic > individual. I never > referred to Mayo allergist because I had no experience with > them. Quote
Guest guest Posted December 31, 2008 Report Posted December 31, 2008 The allergist I saw at the mayo clinic marked on my report that summer was my best time of the year for felling better, when actually it's my worst. > > > From: jackiebreeze <jackiebreeze@...> > > Subject: [] Re: mayo clinic > > > > Date: Tuesday, December 30, 2008, 7:59 AM > > You misunderstood the context of my message. I was agreeing > > that the > > quote was wrong and I was basically stating that a good > > allergist, > > like mine, knows mold can be toxic on an allergic > > individual. I never > > referred to Mayo allergist because I had no experience with > > them. > Quote
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