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Absolutely. Check for hypothyroidism at a minimum of 1 x per year. We

talked extensively about this on the list back in the spring. (don't know

if archives are accessible.....what do you say, ?)

One of my friends was unaware of the issue, and her son sufferred additional

damage to his cognitive abilities. Not all doctors are aware.

Get a specialist.

As a mom of 7 year olds.....who has lived and learned.....

Jean

n and Danny's (ds) mom age 7

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Sounds like my twins senario. Tara{Ds} and . They are 21 months now.

has a good " head " on her, and weight as well. is in 24

months/2T size clothes, while Tara is wearing 18 months, and sometimes

the shirt sleeves are still too long, but the torso fits good. But I

have to mention, that my two older children, that were single babies

were both bigger than is right now. So, this could be a twin thing,

maybe? Also my husband and I are the shortest among our siblings. He is

5'11 " and I'm 5'5 " ...........still no answers..........

Gail,,,,,,Bobby 6 3/4, Jillian 4 1/2, and Tara{Ds} 21 months

>

> How do you know whether or not to suspect hypothyroidism? is

> certainly small (just hit 16 pounds/27.5 " at 14 months), but has maintained a

> constant 30-35% on the Down Syndrome growth chart since she was born.

> Our doctor is terrific, but a family practice doc, who sees all 3 of us and

> has been my doctor for 10 years. I really like her and hope she can continue

> to be 's doctor. We have discussed whether or not should

> have a pediatrician, but decided that it wasn't necessary at this time since

> her heath is so good and there don't seem to be any health issues specific to

> her Down Syndrome. Still, sometimes I wonder about how small she is.

> Everyone assures me that she is " just perfect " but she seems so tiny,

> especially compared to , who is now almost 6 pounds heavier and 3

> inches taller. What would be the signs of thyroid trouble? My doctor is

> very open to suggestions and checking out things I'm concerned about. Would

> any of you recommend a routine screening? Which one? Your input would be

> appreciated. Thanks.

>

> Casey, mom to (DS) and , 13 mo.

>

>

> http://DSyndrome.com/Multiples

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Gail

Dont forget its also a BOY/girl thing

Mason wears size 2T or 3T (built like a brick s*i* house)lol

& was born at 3pds 5ounces

Skylar(ds) wears 24months or 2T(built like a little ballerina)lol

& was 3pds 12ounces

They will be two in Jan

Amber...your other reg.delivery/c-section twin one w/ ds & one w/out on two different days mom!!! : )

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Rudy has been checked for hypothyroidism several times always with negative

results. Up until he was about 7 or 8, he was not only shorter but weighed

less than (he weighed more than her at birth). Now he is about a

foot shorter than her but weighs about 20-30 pounds more!!

mom to Rudy (ds) & 14, & TJ 17

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There you are Amber, you're right about the boy/girl thing too!

Happy new year to you, your family and everyone else here! We are

terribly snowed in here in northern New Jersey, still coming down,

expecting at least 14 inches! YIKES, guess I have no excuse but to clean

the house today! Bobby is around the corner playing, Jillian {not

feeling well}will take a afternoon nap when I put the twins down too!

Guess I'll get to the bathrooms after all!!

Gail snowed in, in NJ

>

> Gail

> Dont forget its also a BOY/girl thing

> Mason wears size 2T or 3T (built like a brick s*i* house)lol

> & was born at 3pds 5ounces

> Skylar(ds) wears 24months or 2T(built like a little ballerina)lol

> & was 3pds 12ounces

> They will be two in Jan

> Amber...your other reg.delivery/c-section twin one w/ ds & one w/out

> on two

> different days mom!!! : )

> eGroups Sponsor

> [Click Here!]

>

> http://DSyndrome.com/Multiples

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MeanNasty1@... wrote:

>

> Gail

> Dont forget its also a BOY/girl thing

> Mason wears size 2T or 3T (built like a brick s*i* house)lol

> & was born at 3pds 5ounces

> Skylar(ds) wears 24months or 2T(built like a little ballerina)lol

> & was 3pds 12ounces

> They will be two in Jan

Sounds like your twins are still bigger than mine, and they are only 2

months older than and Tara! Still worried about Tara's size though.

was 6lbs, 7oz and Tara was 6lbs, 12ozs at birth, at 39 weeks.

Gail

> Amber...your other reg.delivery/c-section twin one w/ ds & one w/out

> on two

> different days mom!!! : )

> eGroups Sponsor

> [Click Here!]

>

> http://DSyndrome.com/Multiples

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Casey, Sounds like your little one is doing fine. It

is hard to tell with our children if they have a

thyroid problem or not. Yes, I would recommend a

Thyroid panel being done yearly. But like I have said

before, unless you have a doctor who knows how to read

them properly then sometimes that doesn't help.

Whenever you have the test done just make sure you

always get a copy for your self and read them. The TSH

#'s result should be on the lower end of normal. For

example, Normal ranges at my lab are 0.4 to 6. For a

long time while being treated with synthroid, my tsh

was around 3. I was always told I was fine and

whatever symptoms I was having was caused from

somethingelse. After many unnessary test and many

doctors, I have found that if my tsh stays around 1 or

less, I feel better. Some doctors say this is too low

but most people feel better there. The last time mine

was checked it was .77. I am still not feeling perfect

but I am getting there.

Anyway( I tend to get off the subject alot, sorry), My

girls have their thyroid tested every year and I think

theis is standard for all DS children. I hope this

helps and Happy New Year,

Pam mom to Hannah and age 5

--- stephaniesmom200@... wrote:

> How do you know whether or not to suspect

> hypothyroidism? is

> certainly small (just hit 16 pounds/27.5 " at 14

> months), but has maintained a

> constant 30-35% on the Down Syndrome growth chart

> since she was born.

> Our doctor is terrific, but a family practice doc,

> who sees all 3 of us and

> has been my doctor for 10 years. I really like her

> and hope she can continue

> to be 's doctor. We have discussed

> whether or not should

> have a pediatrician, but decided that it wasn't

> necessary at this time since

> her heath is so good and there don't seem to be any

> health issues specific to

> her Down Syndrome. Still, sometimes I wonder about

> how small she is.

> Everyone assures me that she is " just perfect " but

> she seems so tiny,

> especially compared to , who is now almost 6

> pounds heavier and 3

> inches taller. What would be the signs of thyroid

> trouble? My doctor is

> very open to suggestions and checking out things I'm

> concerned about. Would

> any of you recommend a routine screening? Which

> one? Your input would be

> appreciated. Thanks.

>

> Casey, mom to (DS) and , 13 mo.

>

> -------------------------- eGroups Sponsor

>

> http://DSyndrome.com/Multiples

>

__________________________________________________

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In a message dated 2/1/02 11:46:09 PM Pacific Standard Time,

writes:

> But anyway, here's my question. If he does have hypothyroidism, would that

> throw his system off enough that the other meds would stop being useful?

> We've seen a boost in oppositionality and he's still very sneaky. His

> punishment today is to be with me in whatever room I'm in. I told him to

> pick some puzzles, because I'm sewing today - and the sewing machine is in

> the dining room.

>

> Loriann AKA Flitter the Christian clown

> Wife to Dewight

> Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease.

> , 2.5 years and Strong Willed and Celiac Disease

>

>

Loriann,

Hypothyroid made my very tactily defensive (more so than usual)

probably due to the dry skin. He was also sleeping less at night and more

tired during the day. More irritable (sleep related?) Anyway, looking at my

's symptoms the dr. thought he might actually have an over-active

thyroid, but no. His wasn't even real bad when we caught it.

I know an adult with ds that started ripping his clothes and increased in

obstinance when his thyroid was underactive.

So yes, you can see and increase in behaviors.

Karyn

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Loriann,

Yes, behaviors are definitely effected by hypothyroidism. Maddie was

dx'd with it one month after her 3rd birthday (she sure followed the books on

that one) and has been on synthroid since.

donna

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, my mother-in-law has it, and I noticed a book she had at her house

one day, and I took it home and read it. It has so much info in it, and

you probably can get it at the library.

* Living Well with Hypothyroidism: What Your Doctor Doesn't Tell You...

That You Need to Know by J. Shomon

Hope this helps...

Pam

--- lisaindutch <lisaindutch@...> wrote:

> Hi everyone,

> C1W4D3........I still don't " see " any changes, but I just " feel " SO

> MUCH BETTER. I was having a lot of digestion " issues " . Those are

> gone now. I just re-read the posts in the FILES section, regarding

> women who did not see much results until the last four weeks of

> their challenges, so I'm re-motivated and I'm gonna stay with it.

>

> I am wondering if anyone " out there " has Hypothyroidism and if you

> can tell me about your experience with that and BFL. I was

> diagnosed this past spring, but I've not yet pursued any hormone

> therapy. Ugh! I just really don't want to! My thought is that I

> would try to lose 40 pounds and get back into better cardio and

> physical shape.....then see what the blood tests reveal. But, now

> I'm a little concerned that maybe my sucess with BFL may be less

> than great, if my thyroid is working against me.

>

> I'd LOVE it if I could hear about some others' experiences. I live

> in a remote location that only has a very small clinic - no

> specialists. I will have to fly to town to see a specialist when

> I'm ready to start any kind of on-going medication. Not that I'm

> unwilling to do this, but I want to hear from some other women first.

>

> Thanks!

>

>

>

>

>

__________________________________

Music Unlimited

Access over 1 million songs. Try it free.

http://music./unlimited/

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Thanks! I'll look it up on Amazon, right now " o)

>

> > Hi everyone,

> > C1W4D3........I still don't " see " any changes, but I just " feel "

SO

> > MUCH BETTER. I was having a lot of digestion " issues " . Those

are

> > gone now. I just re-read the posts in the FILES section,

regarding

> > women who did not see much results until the last four weeks of

> > their challenges, so I'm re-motivated and I'm gonna stay with

it.

> >

> > I am wondering if anyone " out there " has Hypothyroidism and if

you

> > can tell me about your experience with that and BFL. I was

> > diagnosed this past spring, but I've not yet pursued any hormone

> > therapy. Ugh! I just really don't want to! My thought is that

I

> > would try to lose 40 pounds and get back into better cardio and

> > physical shape.....then see what the blood tests reveal. But,

now

> > I'm a little concerned that maybe my sucess with BFL may be less

> > than great, if my thyroid is working against me.

> >

> > I'd LOVE it if I could hear about some others' experiences. I

live

> > in a remote location that only has a very small clinic - no

> > specialists. I will have to fly to town to see a specialist

when

> > I'm ready to start any kind of on-going medication. Not that

I'm

> > unwilling to do this, but I want to hear from some other women

first.

> >

> > Thanks!

> >

> >

> >

> >

> >

>

>

>

>

> __________________________________

> Music Unlimited

> Access over 1 million songs. Try it free.

> http://music./unlimited/

>

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Hi ,

In addition to getting the book Pamela mentioned, you can also go to

the about.com site on thyroids run by Shoman.

http://thyroid.about.com/cs/basics_starthere/a/thyroid101.htm

After 8 years of being misdiagnosed with a myriad of diseases, the

chief among them being Rheumatoid Arthritis, I was diagnosed with

hypothyroidism. It was a huge relief, both physically and mentally,

to finally get the right diagnosis.

I started out, 8 years ago, with pain in my knees when I ran. My

youngest child had just turned 1 year old and I wanted to lose the

last of the baby weight -about 10-15 pounds. My doctor told me to

stop running. I did, and walked instead. I lost only 5 pounds or so

and the rest of the weight just wouldn't come off. The knee pain went

away, but it would come back the moment I worked out hard. I also

found it hard (although I thought I was just lazy at the time) to work

out. I

would be very achy. I would tell myself it was normal, and to suck it

up, but workouts left me feeling depleted, not energized. Then,

several months later the knee pain came back all on its own. I wasn't

working out at the time as I had given it up - again, viciously

blaming myself for laziness. I was also gaining weight, which I

attributed to not workint out, and being a fat, lazy, useless slob,

etc.. Oh, if anyone could hear my inner soundtrack during those

times! Yikes.

Thus started a vicious cycle of feeling relatively normal and getting

fired up to get in shape again, starting to work out regularly, then

getting hit with a bout of pain, stopping working out, gaining

weight... oh it was awful. Then the pain spread to my elbows and

ankles and feet and shoulders, but not all at once, and not all the

time, and not always the same joints. During this time I kept seeing

doctors and specialists and being put on anti-inflammatories and being

told that I had RA and would eventually end up crippled and in a

wheelchair. And I would

feel awful and eat more (but without pleasure in the eating) and gain

more weight and my skin was awful and my hair was awful and I was

tired beyond belief during the 'RA flares'. I was also, believe it or

not, told by several specialists that I didn't have RA and that this

was 'all in my head' and that I was 'getting older and aches and pains

come along with that'. I was in my thirties!!!! I also had the not

too disguised intimation that I was drug seeking and/or attention

seeking. Um, yeah. Who gets high on anti-inflammatories?!? And who

wants to sit in doctor's waiting rooms for hours on end, only to have

a ten minute appointment?!?

It was all very depressing -- and I often felt depressed which, I was

alternately told, depending on the doctor, was due to being in pain

and thus I was depressed, OR I was depressed and thus magnifying all

the other symptons and I really WASN'T in much pain. There, there,

dear, it's all in your head.

Meanwhile, I was cold, I was tired, my hair was falling out, I hurt in

every joint of my body, so much so that I would sit at the bottom of

the stairs with a load of laundry and cry because I couldn't face

hauling myself up the stairs, never mind the basket. I had gained 45

pounds in 8 years - despite desperately dieting and working out every

time I felt normal. And so it went, and so it went. Not until I

started falling asleep for SIXTEEN HOURS A DAY, did I get put on

thyroid meds for hypothyroidism. Oh, and my thyroid tests at that

time were in the 'normal' range. Just barely, but they WERE in the

normal range.

Okay, enough of that. I get too vehement about it as I honestly feel

I lost 8 years of my life to this disease. I got diagnosed in May of

this year, treated, and starting staying awake all day again. I can

get out bed and have actual energy! My skin and hair has improved. I

don't get cold anymore unless it actually IS cold. I sleep better. I

have virtually no joint pain. I have lost about 15 pounds.

Now, having said that, my meds aren't adjusted quite right yet. I

actually have a doctor's appt. today about trying out a T3/T4 combo

because I don't think the T4 drug alone has got me 100%. I am about

80% though, and I can't even begin to tell you the difference in how I

am now as to what I was in May.

My advice is not to let yourself go untreated for this disease. By

virtue of the wrong diagnosis I was left untreated and I just got

worse and worse as time passed. The first few years weren't anywhere

near as bad as the last few. In the early years I kept thinking it

(whatever 'it' was) would go away on its own because I did have weeks

and months where I was perfectly fine. But the disease was taking

its toll, even during those those 'normal' periods.

Go to the thyroid site and read, read, read. Learn all you can before

you go see a doctor so that you can ask intelligent and well informed

questions.

Hope this helps, and sorry for the length!

Scout

>

> Hi everyone,

> C1W4D3........I still don't " see " any changes, but I just " feel " SO

> MUCH BETTER. I was having a lot of digestion " issues " . Those are

> gone now. I just re-read the posts in the FILES section, regarding

> women who did not see much results until the last four weeks of

> their challenges, so I'm re-motivated and I'm gonna stay with it.

>

> I am wondering if anyone " out there " has Hypothyroidism and if you

> can tell me about your experience with that and BFL. I was

> diagnosed this past spring, but I've not yet pursued any hormone

> therapy. Ugh! I just really don't want to! My thought is that I

> would try to lose 40 pounds and get back into better cardio and

> physical shape.....then see what the blood tests reveal. But, now

> I'm a little concerned that maybe my sucess with BFL may be less

> than great, if my thyroid is working against me.

>

> I'd LOVE it if I could hear about some others' experiences. I live

> in a remote location that only has a very small clinic - no

> specialists. I will have to fly to town to see a specialist when

> I'm ready to start any kind of on-going medication. Not that I'm

> unwilling to do this, but I want to hear from some other women first.

>

> Thanks!

>

>

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p.s. Are you a smoker? If so, some symptons of hypothyroidism may be

masked. There is some evidence that smoking artificially supports the

malfunctioning thyroid and thus masks some of the symptons. Not that

this means you can smoke - smoking slowly destroys the thyroid even

while it's propping it up.

When I quit smoking two years ago all my symptons intensified

dramatically (and it was horribly, horribly hard to quit), and I

gained weight like crazy. I didn't find out about the smokng/thyroid

conenction until recently, which is a shame because I might have been

able to avoid most of that weight gain had I been treated for the

hypothyroid when I quit.

Scout.

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I was diagnosed with hypothyroidism when I was pregnant about 3 years

ago. And I did NOT want to take any medicine but the doctor said I had

to as it was a cause of miscarriage (I had trouble getting pregnant and

already had a miscarriage). She also said it regulates your heart and

other functions of the body and was very detrimental to not take the

medicine. I now have another doctor monitoring my thyroid as he is more

an expert on the subject but he pretty much agreed with her on all

issues. So I would really fly to town and find a specialist. I can

tell when my thyroid is wacked and I function and feel so much better

when it is right on target.

Michele T.

On Wed, 12 Oct 2005 09:28:18 -0000 " lisaindutch " <lisaindutch@...>

writes:

> Hi everyone,

> C1W4D3........I still don't " see " any changes, but I just " feel " SO

>

> MUCH BETTER. I was having a lot of digestion " issues " . Those are

> gone now. I just re-read the posts in the FILES section, regarding

>

> women who did not see much results until the last four weeks of

> their challenges, so I'm re-motivated and I'm gonna stay with it.

>

> I am wondering if anyone " out there " has Hypothyroidism and if you

> can tell me about your experience with that and BFL. I was

> diagnosed this past spring, but I've not yet pursued any hormone

> therapy. Ugh! I just really don't want to! My thought is that I

> would try to lose 40 pounds and get back into better cardio and

> physical shape.....then see what the blood tests reveal. But, now

> I'm a little concerned that maybe my sucess with BFL may be less

> than great, if my thyroid is working against me.

>

> I'd LOVE it if I could hear about some others' experiences. I live

>

> in a remote location that only has a very small clinic - no

> specialists. I will have to fly to town to see a specialist when

> I'm ready to start any kind of on-going medication. Not that I'm

> unwilling to do this, but I want to hear from some other women

> first.

>

> Thanks!

>

>

>

>

>

>

>

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Thank you, thank you!!

This is all VERY helpful to me!

I did smoke for about 15 years, but when I was about 31-32, I quit.

I had four children in a little over 5 years, from age 32 to 38. I

am now about to turn 44 next month, so the last 6 years or so, I

just thought that my " issues " were due to being overweight, getting

older and all that jazz.

In fact, I was just telling my husband the other day that by now,

(week 4 of the program) I thought I would be starting to feel

energized, but rather I've been feeling a LOT of hip joint pain,

lower back pain, and achey in general and VERY tired - almost like

I'm enemic or something. I guess I better not put off this pursuit

of meds. I REALLY want to have success with this BFL program.

Do you know if the supplements, like CLA, and Thermodynamics will

negatively effect my thyroid? I haven't started taking them yet,

but I'm just curious.

I will go to the site and learn everything I can.

Thanks again!

>

> p.s. Are you a smoker? If so, some symptons of hypothyroidism

may be

> masked. There is some evidence that smoking artificially supports

the

> malfunctioning thyroid and thus masks some of the symptons. Not

that

> this means you can smoke - smoking slowly destroys the thyroid even

> while it's propping it up.

>

> When I quit smoking two years ago all my symptons intensified

> dramatically (and it was horribly, horribly hard to quit), and I

> gained weight like crazy. I didn't find out about the

smokng/thyroid

> conenction until recently, which is a shame because I might have

been

> able to avoid most of that weight gain had I been treated for the

> hypothyroid when I quit.

>

> Scout.

>

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I should mention that the extreme joint pain I had with the thyroid

problem is not usual with hypothyroidism, hence the misdiagnois as RA

for many years. Mild to moderate joint pain is associated with hypo,

but not the extreme sort of thing I was going through. However,

everyone is different and I didn't manifest some of the other more

common symptons until I was years into the disease. I think that's

one of the problems with diagnosing hypothyroidism - there is is such

a laundry list of symptons and some people have *this* sympton while

others have *that*sympton, and both of *those* symptons are also

common to other conditions/illnesses.

As for CLA... I tried it myself but it gave me stomach upset after a

week or so. I know an easy half-dozen people who have tried it for

weeks and months even without any significant fat loss. YMMV of

course, but I personally don't think it's worth the $$. As far as I

know it has no interaction with the thyroid.

I know nothing about Thermodynamics I'm afraid. Perhaps a separate

post about it specifically might elicit more answers.

For supplements in general, I'd say avoid soy. It's been suggested

that soy does act upon the thyroid in a negative manner.

You'll find a TON of reading material at the website I mentioned

earlier. Good luck!

Scout

-- In , " lisaindutch "

<lisaindutch@y...> wrote:

>

> Thank you, thank you!!

> This is all VERY helpful to me!

> I did smoke for about 15 years, but when I was about 31-32, I quit.

> I had four children in a little over 5 years, from age 32 to 38. I

> am now about to turn 44 next month, so the last 6 years or so, I

> just thought that my " issues " were due to being overweight, getting

> older and all that jazz.

>

> In fact, I was just telling my husband the other day that by now,

> (week 4 of the program) I thought I would be starting to feel

> energized, but rather I've been feeling a LOT of hip joint pain,

> lower back pain, and achey in general and VERY tired - almost like

> I'm enemic or something. I guess I better not put off this pursuit

> of meds. I REALLY want to have success with this BFL program.

>

> Do you know if the supplements, like CLA, and Thermodynamics will

> negatively effect my thyroid? I haven't started taking them yet,

> but I'm just curious.

>

> I will go to the site and learn everything I can.

>

> Thanks again!

>

>

>

>

>

>

>

> >

> > p.s. Are you a smoker? If so, some symptons of hypothyroidism

> may be

> > masked. There is some evidence that smoking artificially supports

> the

> > malfunctioning thyroid and thus masks some of the symptons. Not

> that

> > this means you can smoke - smoking slowly destroys the thyroid even

> > while it's propping it up.

> >

> > When I quit smoking two years ago all my symptons intensified

> > dramatically (and it was horribly, horribly hard to quit), and I

> > gained weight like crazy. I didn't find out about the

> smokng/thyroid

> > conenction until recently, which is a shame because I might have

> been

> > able to avoid most of that weight gain had I been treated for the

> > hypothyroid when I quit.

> >

> > Scout.

> >

>

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I've had questions about this. My thyroid tests have shown that I'm

2-3 points higher than the " normal " range. The doctors say it's not

enough to require meds, but I swear, I have to work so hard to

muster up extra energy, and I've had other symptoms of hypothyroid

as well(digestive, dry skin, ect ect). I've chosen to eat right,

exercise, take my UDO's oil, and do everything to the best of my

ability for the next year, and if I have the same problems next

year, I'll push the issue. I just want to be sure before even

thinking about meds.

>

> Hi everyone,

> C1W4D3........I still don't " see " any changes, but I just " feel "

SO

> MUCH BETTER. I was having a lot of digestion " issues " . Those are

> gone now. I just re-read the posts in the FILES section,

regarding

> women who did not see much results until the last four weeks of

> their challenges, so I'm re-motivated and I'm gonna stay with it.

>

> I am wondering if anyone " out there " has Hypothyroidism and if you

> can tell me about your experience with that and BFL. I was

> diagnosed this past spring, but I've not yet pursued any hormone

> therapy. Ugh! I just really don't want to! My thought is that I

> would try to lose 40 pounds and get back into better cardio and

> physical shape.....then see what the blood tests reveal. But, now

> I'm a little concerned that maybe my sucess with BFL may be less

> than great, if my thyroid is working against me.

>

> I'd LOVE it if I could hear about some others' experiences. I

live

> in a remote location that only has a very small clinic - no

> specialists. I will have to fly to town to see a specialist when

> I'm ready to start any kind of on-going medication. Not that I'm

> unwilling to do this, but I want to hear from some other women

first.

>

> Thanks!

>

>

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>

> I've had questions about this. My thyroid tests have shown that I'm

> 2-3 points higher than the " normal " range. The doctors say it's not

> enough to require meds, but I swear, I have to work so hard to

> muster up extra energy, and I've had other symptoms of hypothyroid

> as well(digestive, dry skin, ect ect).

In Dobes, we would call that low normal and treat if there were visible

symptoms. And if there were no symptoms, then not treat. Bear with me,

as my only experience with low thyroid is dogs :)

Colleen

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i'm absolutely convinced that i have some sort of thyroid/hormone thing going on

as well.

for the last, oh, 8 months or so--i've been gaining weight/having to work

insanely hard to even maintain, tired/out of it all the time, irritable,

sluggish, freezing cold, muscle stiffness, reoccuring infections of all

kinds...and just the general " blahs " ...my blood tests are " perfect " and i've

been being bounced from doctor to doctor, none of them giving me any answers or

willing to do more than a round of simple tests. i've scheduled a visit to an

endocrinologist (outside of the " system " that i'm trapped in) and am really

hoping that they'll be able to give me some answers. the most frustrating part i

find is that all the people i've seen so far want to just treat one or two

symptoms (let's change your birth control, maybe that'll help with the hormone

swings...have you considered anti-depressants? [the answer of which is no,

absolutely not, i'm against them and i'm not depressed]) instead of trying to

find the source of the problem.

i'm sort of at my wits end...feeling like my body is never going to cooperate

with me and i'll just never get to where i want to be. so, i feel your

frustration...i hope you can find some answers!

*~sarah

Re: Hypothyroidism

I was diagnosed with hypothyroidism when I was pregnant about 3 years

ago. And I did NOT want to take any medicine but the doctor said I had

to as it was a cause of miscarriage (I had trouble getting pregnant and

already had a miscarriage). She also said it regulates your heart and

other functions of the body and was very detrimental to not take the

medicine. I now have another doctor monitoring my thyroid as he is more

an expert on the subject but he pretty much agreed with her on all

issues. So I would really fly to town and find a specialist. I can

tell when my thyroid is wacked and I function and feel so much better

when it is right on target.

Michele T.

On Wed, 12 Oct 2005 09:28:18 -0000 " lisaindutch " <lisaindutch@...>

writes:

> Hi everyone,

> C1W4D3........I still don't " see " any changes, but I just " feel " SO

>

> MUCH BETTER. I was having a lot of digestion " issues " . Those are

> gone now. I just re-read the posts in the FILES section, regarding

>

> women who did not see much results until the last four weeks of

> their challenges, so I'm re-motivated and I'm gonna stay with it.

>

> I am wondering if anyone " out there " has Hypothyroidism and if you

> can tell me about your experience with that and BFL. I was

> diagnosed this past spring, but I've not yet pursued any hormone

> therapy. Ugh! I just really don't want to! My thought is that I

> would try to lose 40 pounds and get back into better cardio and

> physical shape.....then see what the blood tests reveal. But, now

> I'm a little concerned that maybe my sucess with BFL may be less

> than great, if my thyroid is working against me.

>

> I'd LOVE it if I could hear about some others' experiences. I live

>

> in a remote location that only has a very small clinic - no

> specialists. I will have to fly to town to see a specialist when

> I'm ready to start any kind of on-going medication. Not that I'm

> unwilling to do this, but I want to hear from some other women

> first.

>

> Thanks!

>

>

>

>

>

>

>

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oh yeah-the other thing about the " perfect " blood tests...what i keep asking

them is if my body is so " perfect " then why am i have all of these symptoms??!

it's hard to stay sane when you clearly feel something and people are basically

telling you there's no reason for it. arg.

*~sarah

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Hi! As someone who has had thyroid problems forever, I would encourage

you to find another doctor. I finally have an endocrinologist who not

only looks at labs, she looks at how I feel. I went through a long

period where I was gaining wt for no reason and was very fatigued - my

internal med doc said I was within a normal range for my TSH.

Well, " normal " for me can be different than " normal " for you. I feel

so much better now....listen to your body. I am now 38 weeks pregnant

and can't wait to get back to BFL - my body needs major work!

Terri

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I tested a few point higher that 'normal' for years and was always

told that I was a 'little high' but not high enough to treat. It

wasn't until my GP went to a lecture by an endocrinologist who is up

on the latest standards of treatments (the 'normal' ranges are

changing now) that I got treatment, and my TSH at that point WAS in

the normal range. The normal ranges for most labs range from .5 to

5.0 TSH, and I was at 4.57 TSH. The 'new normal' range for TSH is now

considered to be .3 to 3.0 TSH, with most women feeling best or most

normal (heh, 'most normal'- love that phrase) around 1.0 TSH, which

is what got my GP all excited about treating me since I was higher

than the 'new normal'..

But hypothryoidism is a HIGHLY INDIVIDUAL disease, and it's also a

variable thing like all hormones are. Your TSH values can and will

change day to day, hour to hour even. You really do have to take into

account not just the blood test values, but every other sympton you

may have, and evaluate on that basis.

I was very resistant to they idea of taking a pill for the rest of my

life, but that was because I had all sorts of things foisted on my

during the last eight years for treatment of Rheumatoid Arthritis. I

didn't want to be taking a pill for something that (I thought) wasn't

even bothering me - I wanted the RA to be cured. It's ironic that

only upon treating the thing I thought didn't bother me revealed that

I don't have RA after all!

Um, one other clue. My Mum was diagnosed with hypothryoidism

(Hashimoto's) years and years ago. It should have been a clue to me

(and my doctors!) as it tends to run in families. You might want to

look at your family history, i.e. not only your Mum, but aunts,

sisters, cousins as well. If anyone of them are hypo it increases the

odds for you.

Laslty, although I would never urge anyone to take meds unnecessarily,

I want to make it really clear that hypothyroidism is a disease that

does need treatment. It's not just a minor matter of bad skin and

inability to lose weight - it's got very serious consequences if left

untreated.

And, oh, if you are hypo and you get treatment, the quality of life on

treatment is astonishingly, astoundingly, resoundingly better.

Scout

> >

> > Hi everyone,

> > C1W4D3........I still don't " see " any changes, but I just " feel "

> SO

> > MUCH BETTER. I was having a lot of digestion " issues " . Those are

> > gone now. I just re-read the posts in the FILES section,

> regarding

> > women who did not see much results until the last four weeks of

> > their challenges, so I'm re-motivated and I'm gonna stay with it.

> >

> > I am wondering if anyone " out there " has Hypothyroidism and if you

> > can tell me about your experience with that and BFL. I was

> > diagnosed this past spring, but I've not yet pursued any hormone

> > therapy. Ugh! I just really don't want to! My thought is that I

> > would try to lose 40 pounds and get back into better cardio and

> > physical shape.....then see what the blood tests reveal. But, now

> > I'm a little concerned that maybe my sucess with BFL may be less

> > than great, if my thyroid is working against me.

> >

> > I'd LOVE it if I could hear about some others' experiences. I

> live

> > in a remote location that only has a very small clinic - no

> > specialists. I will have to fly to town to see a specialist when

> > I'm ready to start any kind of on-going medication. Not that I'm

> > unwilling to do this, but I want to hear from some other women

> first.

> >

> > Thanks!

> >

> >

>

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I wrote a post a little higher up on what is considered the 'new

normal' for the blood tests - you might want to read it and see if the

'perfect' blood test you had was in the old normal or the new normal

range. It might be an explanation for you.

Good luck!

Scout

>

> oh yeah-the other thing about the " perfect " blood tests...what i

keep asking them is if my body is so " perfect " then why am i have all

of these symptoms??! it's hard to stay sane when you clearly feel

something and people are basically telling you there's no reason for

it. arg.

> *~sarah

>

>

>

>

>

>

>

>

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You guys are the best! Thanks so much for all the feedback and by the

way I LOVE long posts! " o)

Given this great advice, I've decided that I really do need to deal

with this now. I'm flying to Arizona next month and will be at my

mother's for about 2 weeks. I'm gonna make an appointment with an

Endocrinologist TODAY. I just hope that I'll be able to " get

somewhere " with the appointment before I fly back to my remote home.

But, I said that I was not going to let anything stop me from sucess

this time.......so I guess if I need meds, then I need meds.

Also, I too appreciated the positive attitude of n, who is

staying positive while not yet " seeing " changes. I'm only mid-way

through week 4 and really don't notice any changes yet either, but I

sure don't miss my digestion problems. I'm stayin' the course, too!

Hope everyone has a great day and a good workout!

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Good luck, , and I hope you find a good doctor. Let us know the

outcome!

Scout

p.s. I live on a farm and I'm always b & tching about needing to drive

3 towns away to see my doctor. Guess I must stop that as I don't have

to FLY to a doctor like you do! LOL You really must be in a remote area!

>

> You guys are the best! Thanks so much for all the feedback and by the

> way I LOVE long posts! " o)

>

> Given this great advice, I've decided that I really do need to deal

> with this now. I'm flying to Arizona next month and will be at my

> mother's for about 2 weeks. I'm gonna make an appointment with an

> Endocrinologist TODAY. I just hope that I'll be able to " get

> somewhere " with the appointment before I fly back to my remote home.

> But, I said that I was not going to let anything stop me from sucess

> this time.......so I guess if I need meds, then I need meds.

>

> Also, I too appreciated the positive attitude of n, who is

> staying positive while not yet " seeing " changes. I'm only mid-way

> through week 4 and really don't notice any changes yet either, but I

> sure don't miss my digestion problems. I'm stayin' the course, too!

>

> Hope everyone has a great day and a good workout!

>

>

>

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