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Re:]ReThis is a fast quick start to my builder letter (reply)(REPLY

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In a message dated 01/31/2006 10:22:39 PM US Mountain Standard Time,

erikmoldwarrior@... writes:

> Perhaps, but Bob described going back to his trailer and experiencing

> the intensification reaction in a manner that was identical to my own

> post evacuation response and experience.

>

****I agree with you , but as you are aware of Lyme makes Moldies more

sensitive and it would make sense that he would react as he did. Once

neuro-lyme is so deep, MOLD exposure would only make things worse and make

Moldies much more sensative. I'm starting to see more and more Lymies that

also are extremely sensitive to MOLD, and Moldies not realizing they have Lyme,

are blaming it all on MOLD when in fact they are dual infected.

*****I have read on this list folks who do everything they can to clean up

their environment and it appears they have done everything right, yet they are

still sick and not getting better. This makes me believe that if they also

addressed the Lyme (some Moldies don't know they also are infected with lyme)

that they would then get better. Put them in a bubble and they are still

sick.....Could it be Lyme?

Keep a smile on your face, love in your heart and walk with the angels,

holding hands in the " chain of love " .....

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> *****I have read on this list folks who do everything they can to

clean up

> their environment and it appears they have done everything right,

yet

they are

> still sick and not getting better. This makes me believe that if

they also

> addressed the Lyme (some Moldies don't know they also are infected

with lyme)

> that they would then get better. Put them in a bubble and they are

still

> sick.....Could it be Lyme?

That's because A) most remediation efforts leave a whole lot to be

desired; B)Mycotoxins don't disappear from your body just because a

building is " cleaned up " ; C) Even assuming a remediation was letter-

perfect and the mycotoxin levels in the body had gone way down, there

could still be problems other than an acute exposure that prevent

recovery. Pfiesteria, low MSH, methecillin-resistant staph

infections, MCS, Lyme, or a host of other medical problems.

One of the worst pieces of misunderstanding out there is that people

who get sick from mold will necessarily recover just because they stay away from

a sick building. That's at least as bad as the assumption that you can always

knock Lyme out in a couple of weeks, and the consequences of either view are

virtually the same - you don't get treated, and you don't get well. Both ideas

are promoted by

government agencies and trade organizations that, as you know,

haven't got a clue what we're all dealing with.

Staying out of a moldy building doesn't prove much of anything.

People with allergies or irritation will get better. People who lack

the genetic problem with offloading the mycotoxins will get better.

People with a fungal infection carry it with them when they go.

People with the genetic susceptibility for mycotoxicosis carry it

with them whenever they go AND wherever they go, just like Lymies.

So, all removal from the building does is stop the continued

exposure. It's absolutely essential to do it, but it's not reasonable

proof of anything.

That's what all the medical testing is for - to remove the

assumptions and guesswork from the whole equation once and for all.

To be able to finally do this is nothing short of a truly remarkable

medical breakthrough. We've moved from the point where the best you

could usually hope for after time had passed was a (Hopefully correct) clinical

diagnosis, to a means of eliminating whole ranges

of possibilities from suspicion for good. I come up with equivocal

Lyme tests, repeatedly. I've been bitten more than 100 times. So

you'd think....but no. And we don't have to argue about how many

bands it takes. I lack the genetics for Chronic Lyme. Those are

on/off switches. They don't equivocate. We get to cross that one off

the list for good. I can get Lyme like anyone else, but I won't go

chronic. Without that one genetic test, I'd probably have been

treated for Lyme forever, instead of for the real problems. I'd

probably be walking around all worried about the effects I might have

on others, instead of paying attention to the effects my environment

can have on me. Wrong diagnosis, wrong management techniques on my

part, probable outcome - not so hot.

Flip it around, and we really don't know how many people are thinking

they've got this incurable case of Chronic Lyme and are therefore not

seeking other causes when they should be. So, it can go both ways.

We all knew Lyme was underdiagnosed like mad, and still is. But now,

the Lyme community needs to catch up with this newer diagnostic

technology. We can not only include Lyme as a suspicion, we can also

eliminate it as a suspicion. That's some very, very cool stuff there.

You can potentially eliminate years of wrong treatment and cumulative

damage if you know for sure what you're dealing with. And that's why

we keep encouraging people to get the HLA testing.

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>>On Behalf Of LymeAngl@...

This makes me believe that if they also addressed the Lyme (some Moldies

don't know they also are infected with lyme) that they would then get

better. Put them in a bubble and they are still sick.....Could it be

Lyme?>>

Hi and thanks for your response. Put me into a " bubble " and I'm

normal, no symptoms and fully functioning. Expose me to toxic mold or some

chemicals and I react. What I have noticed I recover much faster after an

exposure than originally and am not as reactive as I was in 2002. I don't

risk my health; don't enter buildings and homes that I know are

contaminated.

Having a safe home and safe bedroom is critical. I know if I had to live in

a contaminated home I would be very ill continuously.

Rosie

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