Re: Speech at long last??? - Long

[Guest guest]

In a message dated 18/05/2005 06:50:29 GMT Daylight Time, Desperate4DPMSEurope@... writes:

Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.

Oh my gosh, this is exciting! Fingers and all my bits crossed for you.

Sam has said MumMEEEEEEEE once (2001) when he was very angry and BYE (2003?)once to appropriatlly when he got on the school bus - we live in hope!

Mandi in Dorset

[Guest guest]

Really amazing and wonderful!!!!! All fingers crossed this will lead on to many good things ;-)

Abigail

Speech at long last??? - Long

Hi Everyone,Not being able to sleep much / at all last night (no real changethere), but couldn't wait to post what happened in The Lodge householdyesterday evening...I was upstairs (on the Net - downloading all the Spring 2005 DANwebcast files) and was just sitting to watch & listen to DrNeubrander's presentation with the headphones on....Jo was upstairs folding up some ironing...Callum and Ellie-Mae were downstairs in the front room very happily"playing" & watching TV...All of a sudden, without any pre-warning Ellie-Mae (3.5 years old, NT)came to the bottom of the stairs shouting up at Jo and me (again, nota very uncommon experience, but...), that Callum (6.5 years old, ASD -Non Verbal) had spoken to her and told her to, "GET OFF"!!!Apparently he was sitting on some of her jigsaw pieces (whilst calmingand appropriately watching the TV) and wouldn't move - so she decidedto push him out of the way (see's quite aggressive like that) and hetold her to, "Get off"!!!I know that Ellie-Mae is very clever for her age and well advanced,but I can't / don't believe that she made up such a complete anddetailed story to deliberately decieve us (???) or for our reaction.She knows that Callum cannot speak (although doesn't understand why).She knows that I took him over to Chicago, USA to see Dr. Usman inFebruary 2005 to "try to help him to talk", but knows that he isn'ttalking yet.As you may know we've being doing a variety of interventions: ABA,vit & mins, enzymes, IgG2000, pro-biotics and MB-12 (MB-12 for 10 weeks- with a intro period of 5 or 6 weeks (start of March to mid April)without changing anything bio-med & non-bio-med) - as per Dr.Neubrander's recommendation.On the MB-12 front we've noticed improved focus, non-discriminateverbalisation / stimming, socialisation:In mid-April Callum woke up at midnight :-( and I offered him a drinkwhich he took (half asleep / half awake) a small drink, then pushed itback at me. I then asked him, "Do you want some more?" and he plainly/ although quietly said, "No" - Yippeee!!!Last Bank holiday (May Day 2005) - Callum non-verbally expressed hewanted to play outside with his sister & "friends" who were playingoutside in next door's garden (even though he was in Ellie-Mae'sbedroom bouncing on her bed looking out of the window). We went nextdoor and he played on the swings & garden toys with them for about 30-45 minutes, then went inside to watch videos - I / we we're thrilled!!On the downside - with MB-12 we've got lots of mouthing & chewing (hadto buy Callum a number of plastic teething rings (some of which he'sdestroyed in less than an hour :-( - because he's destroying all theplastic toys in the house - no real change there (Callum's alwayschewed plastic toys), but lots of intensity & lots of dribling.Callum is also exploring his mouth & body (he's a boy) - as if thesensations are returning???Callum is waking up and getting up at 2am, 3am, 4am, 5am... in themorning and not going back to sleep at all - we're doing sleep relaysbetween Jo an me :-(Immediate increase in non-discriminatory verbal stim / high pitchedscreaming & some more intense self-injurous (especially hand biting & some slapping & hitting others) - Though this is / has decreased overrecent weeks :-)Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.Yours expectantly,Steve, Joanne, Callum & Ellie-MaeBarnsley, UK- XXXX -

[Guest guest]

Wow Steve and Jo

What brilliant news - typical of siblings to be able to provoke rsponses where us parents can't!

Just crack the sleeping and things will be really motoring along that road.

TinaSteve Lodge <Desperate4DPMSEurope@...> wrote:

Hi Everyone,Not being able to sleep much / at all last night (no real changethere), but couldn't wait to post what happened in The Lodge householdyesterday evening...I was upstairs (on the Net - downloading all the Spring 2005 DANwebcast files) and was just sitting to watch & listen to DrNeubrander's presentation with the headphones on....Jo was upstairs folding up some ironing...Callum and Ellie-Mae were downstairs in the front room very happily"playing" & watching TV...All of a sudden, without any pre-warning Ellie-Mae (3.5 years old, NT)came to the bottom of the stairs shouting up at Jo and me (again, nota very uncommon experience, but...), that Callum (6.5 years old, ASD -Non Verbal) had spoken to her and told her to, "GET OFF"!!!Apparently he was sitting on some of her jigsaw pieces (whilst

calmingand appropriately watching the TV) and wouldn't move - so she decidedto push him out of the way (see's quite aggressive like that) and hetold her to, "Get off"!!!I know that Ellie-Mae is very clever for her age and well advanced,but I can't / don't believe that she made up such a complete anddetailed story to deliberately decieve us (???) or for our reaction.She knows that Callum cannot speak (although doesn't understand why).She knows that I took him over to Chicago, USA to see Dr. Usman inFebruary 2005 to "try to help him to talk", but knows that he isn'ttalking yet.As you may know we've being doing a variety of interventions: ABA,vit & mins, enzymes, IgG2000, pro-biotics and MB-12 (MB-12 for 10 weeks- with a intro period of 5 or 6 weeks (start of March to mid April)without changing anything bio-med & non-bio-med) - as per Dr.Neubrander's recommendation.On the MB-12 front we've noticed

improved focus, non-discriminateverbalisation / stimming, socialisation:In mid-April Callum woke up at midnight :-( and I offered him a drinkwhich he took (half asleep / half awake) a small drink, then pushed itback at me. I then asked him, "Do you want some more?" and he plainly/ although quietly said, "No" - Yippeee!!!Last Bank holiday (May Day 2005) - Callum non-verbally expressed hewanted to play outside with his sister & "friends" who were playingoutside in next door's garden (even though he was in Ellie-Mae'sbedroom bouncing on her bed looking out of the window). We went nextdoor and he played on the swings & garden toys with them for about 30-45 minutes, then went inside to watch videos - I / we we're thrilled!!On the downside - with MB-12 we've got lots of mouthing & chewing (hadto buy Callum a number of plastic teething rings (some of which he'sdestroyed in less than an hour :-( - because he's

destroying all theplastic toys in the house - no real change there (Callum's alwayschewed plastic toys), but lots of intensity & lots of dribling.Callum is also exploring his mouth & body (he's a boy) - as if thesensations are returning???Callum is waking up and getting up at 2am, 3am, 4am, 5am... in themorning and not going back to sleep at all - we're doing sleep relaysbetween Jo an me :-(Immediate increase in non-discriminatory verbal stim / high pitchedscreaming & some more intense self-injurous (especially hand biting & some slapping & hitting others) - Though this is / has decreased overrecent weeks :-)Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.Yours expectantly,Steve, Joanne, Callum & Ellie-MaeBarnsley, UK- XXXX

-

[Guest guest]

Wow! This is a wonderful, wonderful, start to my day, Mandi, he's learned language is for communication. Keep the faith, he's on his way. My first email of the day just before little un gets up for Breakfast. What a joy for you.

Thrilled for you.

Love,

Eileen and xxMum231ASD@... wrote:

In a message dated 18/05/2005 06:50:29 GMT Daylight Time, Desperate4DPMSEurope@... writes:

Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.

Oh my gosh, this is exciting! Fingers and all my bits crossed for you.

Sam has said MumMEEEEEEEE once (2001) when he was very angry and BYE (2003?)once to appropriatlly when he got on the school bus - we live in hope!

Mandi in Dorset__________________________________________________

[Guest guest]

Sorry all not awake yet! But this is wonderful news but I mixed it all up.

Love

Eileen and Steve Lodge <Desperate4DPMSEurope@...> wrote:

Hi Everyone,Not being able to sleep much / at all last night (no real changethere), but couldn't wait to post what happened in The Lodge householdyesterday evening...I was upstairs (on the Net - downloading all the Spring 2005 DANwebcast files) and was just sitting to watch & listen to DrNeubrander's presentation with the headphones on....Jo was upstairs folding up some ironing...Callum and Ellie-Mae were downstairs in the front room very happily"playing" & watching TV...All of a sudden, without any pre-warning Ellie-Mae (3.5 years old, NT)came to the bottom of the stairs shouting up at Jo and me (again, nota very uncommon experience, but...), that Callum (6.5 years old, ASD -Non Verbal) had spoken to her and told her to, "GET OFF"!!!Apparently he was sitting on some of her jigsaw pieces

(whilst calmingand appropriately watching the TV) and wouldn't move - so she decidedto push him out of the way (see's quite aggressive like that) and hetold her to, "Get off"!!!I know that Ellie-Mae is very clever for her age and well advanced,but I can't / don't believe that she made up such a complete anddetailed story to deliberately decieve us (???) or for our reaction.She knows that Callum cannot speak (although doesn't understand why).She knows that I took him over to Chicago, USA to see Dr. Usman inFebruary 2005 to "try to help him to talk", but knows that he isn'ttalking yet.As you may know we've being doing a variety of interventions: ABA,vit & mins, enzymes, IgG2000, pro-biotics and MB-12 (MB-12 for 10 weeks- with a intro period of 5 or 6 weeks (start of March to mid April)without changing anything bio-med & non-bio-med) - as per Dr.Neubrander's recommendation.On the MB-12 front

we've noticed improved focus, non-discriminateverbalisation / stimming, socialisation:In mid-April Callum woke up at midnight :-( and I offered him a drinkwhich he took (half asleep / half awake) a small drink, then pushed itback at me. I then asked him, "Do you want some more?" and he plainly/ although quietly said, "No" - Yippeee!!!Last Bank holiday (May Day 2005) - Callum non-verbally expressed hewanted to play outside with his sister & "friends" who were playingoutside in next door's garden (even though he was in Ellie-Mae'sbedroom bouncing on her bed looking out of the window). We went nextdoor and he played on the swings & garden toys with them for about 30-45 minutes, then went inside to watch videos - I / we we're thrilled!!On the downside - with MB-12 we've got lots of mouthing & chewing (hadto buy Callum a number of plastic teething rings (some of which he'sdestroyed in less than an

hour :-( - because he's destroying all theplastic toys in the house - no real change there (Callum's alwayschewed plastic toys), but lots of intensity & lots of dribling.Callum is also exploring his mouth & body (he's a boy) - as if thesensations are returning???Callum is waking up and getting up at 2am, 3am, 4am, 5am... in themorning and not going back to sleep at all - we're doing sleep relaysbetween Jo an me :-(Immediate increase in non-discriminatory verbal stim / high pitchedscreaming & some more intense self-injurous (especially hand biting & some slapping & hitting others) - Though this is / has decreased overrecent weeks :-)Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.Yours expectantly,Steve, Joanne, Callum & Ellie-MaeBarnsley, UK-

XXXX -__________________________________________________

[Guest guest]

Hi Steve & Jo and kiddiewinks :-)

Havent had a chance to read anybody else s posts yet as just got back from our wee trip but just had to say brill news hope it all continues sounds like there is definatly things going on. Keep us posted - really exciting stuff.

BFN

Caroline

x

[Guest guest]

Hi that's really nice indeed- Have your tried melatonine for the

sleep? It can help with the B12.

Also can you tell me what is Ig2000?

Lorene

On 18 May 05, at 7:26, SIMON WOOD wrote:

> Wow Steve and Jo

>

> What brilliant news - typical of siblings to be able to provoke rsponses where

us parents can't!

>

> Just crack the sleeping and things will be really motoring along that road.

>

> Tina

>

> Steve Lodge <Desperate4DPMSEurope@...> wrote:

> Hi Everyone,

>

> Not being able to sleep much / at all last night (no real change

> there), but couldn't wait to post what happened in The Lodge household

> yesterday evening...

>

> I was upstairs (on the Net - downloading all the Spring 2005 DAN

> webcast files) and was just sitting to watch & listen to Dr

> Neubrander's presentation with the headphones on....

>

> Jo was upstairs folding up some ironing...

>

> Callum and Ellie-Mae were downstairs in the front room very happily

> " playing " & watching TV...

>

> All of a sudden, without any pre-warning Ellie-Mae (3.5 years old, NT)

> came to the bottom of the stairs shouting up at Jo and me (again, not

> a very uncommon experience, but...), that Callum (6.5 years old, ASD -

> Non Verbal) had spoken to her and told her to, " GET OFF " !!!

>

> Apparently he was sitting on some of her jigsaw pieces (whilst calming

> and appropriately watching the TV) and wouldn't move - so she decided

> to push him out of the way (see's quite aggressive like that) and he

> told her to, " Get off " !!!

>

> I know that Ellie-Mae is very clever for her age and well advanced,

> but I can't / don't believe that she made up such a complete and

> detailed story to deliberately decieve us (???) or for our reaction.

>

> She knows that Callum cannot speak (although doesn't understand why).

> She knows that I took him over to Chicago, USA to see Dr. Usman in

> February 2005 to " try to help him to talk " , but knows that he isn't

> talking yet.

>

> As you may know we've being doing a variety of interventions: ABA,

> vit & mins, enzymes, IgG2000, pro-biotics and MB-12 (MB-12 for 10 weeks

> - with a intro period of 5 or 6 weeks (start of March to mid April)

> without changing anything bio-med & non-bio-med) - as per Dr.

> Neubrander's recommendation.

>

> On the MB-12 front we've noticed improved focus, non-discriminate

> verbalisation / stimming, socialisation:

>

> In mid-April Callum woke up at midnight :-( and I offered him a drink

> which he took (half asleep / half awake) a small drink, then pushed it

> back at me. I then asked him, " Do you want some more? " and he plainly

> / although quietly said, " No " - Yippeee!!!

>

> Last Bank holiday (May Day 2005) - Callum non-verbally expressed he

> wanted to play outside with his sister & " friends " who were playing

> outside in next door's garden (even though he was in Ellie-Mae's

> bedroom bouncing on her bed looking out of the window). We went next

> door and he played on the swings & garden toys with them for about

> 30-45 minutes, then went inside to watch videos - I / we we're thrilled!!

>

> On the downside - with MB-12 we've got lots of mouthing & chewing (had

> to buy Callum a number of plastic teething rings (some of which he's

> destroyed in less than an hour :-( - because he's destroying all the

> plastic toys in the house - no real change there (Callum's always

> chewed plastic toys), but lots of intensity & lots of dribling.

>

> Callum is also exploring his mouth & body (he's a boy) - as if the

> sensations are returning???

>

> Callum is waking up and getting up at 2am, 3am, 4am, 5am... in the

> morning and not going back to sleep at all - we're doing sleep relays

> between Jo an me :-(

>

> Immediate increase in non-discriminatory verbal stim / high pitched

> screaming & some more intense self-injurous (especially hand biting &

> some slapping & hitting others) - Though this is / has decreased over

> recent weeks :-)

>

> Well thanks for reading - obviously we're cautiously excited - having

> not heard him say " Get off " yesterday, but hoping he'll repeat and

> expand his vocab....very, very soon.

>

> Yours expectantly,

>

> Steve, Joanne, Callum & Ellie-Mae

> Barnsley, UK

> - XXXX -

>

>

>

>

>

>

>

>

>

[Guest guest]

Steve,

Fantastic

news!!:-)

Look

forward to hearing more.

Elaine

Steve Lodge

<Desperate4DPMSEurope@...> wrote:

Hi

Everyone,

Not being able to sleep much / at all last night

(no real change

there), but couldn't wait to post what happened in

The Lodge household

yesterday evening...

I was upstairs (on the Net - downloading all the

Spring 2005 DAN

webcast files) and was just sitting to watch &

listen to Dr

Neubrander's presentation with the headphones

on....

Jo was upstairs folding up some ironing...

Callum and Ellie-Mae were downstairs in the front

room very happily

" playing " & watching TV...

All of a sudden, without any pre-warning Ellie-Mae

(3.5 years old, NT)

came to the bottom of the stairs shouting up at Jo

and me (again, not

a very uncommon experience, but...), that Callum

(6.5 years old, ASD -

Non Verbal) had spoken to her and told her to,

" GET OFF " !!!

Apparently he was sitting on some of her jigsaw

piec! es (whilst calming

and appropriately watching the TV) and wouldn't

move - so she decided

to push him out of the way (see's quite aggressive

like that) and he

told her to, " Get off " !!!

I know that Ellie-Mae is very clever for her age

and well advanced,

but I can't / don't believe that she made up such

a complete and

detailed story to deliberately decieve us (???) or

for our reaction.

She knows that Callum cannot speak (although

doesn't understand why).

She knows that I took him over to Chicago, USA to see Dr. Usman in

February 2005 to " try to help him to

talk " , but knows that he isn't

talking yet.

As you may know we've being doing a variety of

interventions: ABA,

vit & mins, enzymes, IgG2000, pro-biotics and

MB-12 (MB-12 for 10 weeks

- with a intro period of 5 or 6 weeks (start

of March to mid April)

without changing anything bio-med &

non-bio-med) - as per Dr.

Neubrander's recommendation.

On the MB-12 ! front we've noticed improved focus,

non-discriminate

verbalisation / stimming, socialisation:

In mid-April Callum woke up at midnight :-( and I offered him

a drink

which he took (half asleep / half awake) a small

drink, then pushed it

back at me. I then asked him, " Do you

want some more? " and he plainly

/ although quietly said, " No " -

Yippeee!!!

Last Bank holiday (May Day 2005) - Callum

non-verbally expressed he

wanted to play outside with his sister &

" friends " who were playing

outside in next door's garden (even though he was

in Ellie-Mae's

bedroom bouncing on her bed looking out of the

window). We went next

door and he played on the swings & garden toys

with them for about

30-45 minutes, then went inside to watch videos -

I / we we're thrilled!!

On the downside - with MB-12 we've got lots of

mouthing & chewing (had

to buy Callum a number of plastic teething rings

(some of which he's

destroyed in les! s than an hour :-( - because

he's destroying all the

plastic toys in the house - no real change there

(Callum's always

chewed plastic toys), but lots of intensity &

lots of dribling.

Callum is also exploring his mouth & body

(he's a boy) - as if the

sensations are returning???

Callum is waking up and getting up at 2am, 3am,

4am, 5am... in the

morning and not going back to sleep at all - we're

doing sleep relays

between Jo an me :-(

Immediate increase in non-discriminatory verbal

stim / high pitched

screaming & some more intense self-injurous

(especially hand biting &

some slapping & hitting others) - Though this

is / has decreased over

recent weeks :-)

Well thanks for reading - obviously we're

cautiously excited - having

not heard him say " Get off " yesterday,

but hoping he'll repeat and

expand his vocab....very, very soon.

Yours expectantly,

Steve, Joanne, Callum & Ellie-Mae

Barnsley, U! K

- XXXX -

__________________________________________________

[Guest guest]

Great news Steve!!!!

Speech at long last??? - Long

Hi Everyone,Not being able to sleep much / at all last night (no real changethere), but couldn't wait to post what happened in The Lodge householdyesterday evening...I was upstairs (on the Net - downloading all the Spring 2005 DANwebcast files) and was just sitting to watch & listen to DrNeubrander's presentation with the headphones on....Jo was upstairs folding up some ironing...Callum and Ellie-Mae were downstairs in the front room very happily"playing" & watching TV...All of a sudden, without any pre-warning Ellie-Mae (3.5 years old, NT)came to the bottom of the stairs shouting up at Jo and me (again, nota very uncommon experience, but...), that Callum (6.5 years old, ASD -Non Verbal) had spoken to her and told her to, "GET OFF"!!!Apparently he was sitting on some of her jigsaw pieces (whilst calmingand appropriately watching the TV) and wouldn't move - so she decidedto push him out of the way (see's quite aggressive like that) and hetold her to, "Get off"!!!I know that Ellie-Mae is very clever for her age and well advanced,but I can't / don't believe that she made up such a complete anddetailed story to deliberately decieve us (???) or for our reaction.She knows that Callum cannot speak (although doesn't understand why).She knows that I took him over to Chicago, USA to see Dr. Usman inFebruary 2005 to "try to help him to talk", but knows that he isn'ttalking yet.As you may know we've being doing a variety of interventions: ABA,vit & mins, enzymes, IgG2000, pro-biotics and MB-12 (MB-12 for 10 weeks- with a intro period of 5 or 6 weeks (start of March to mid April)without changing anything bio-med & non-bio-med) - as per Dr.Neubrander's recommendation.On the MB-12 front we've noticed improved focus, non-discriminateverbalisation / stimming, socialisation:In mid-April Callum woke up at midnight :-( and I offered him a drinkwhich he took (half asleep / half awake) a small drink, then pushed itback at me. I then asked him, "Do you want some more?" and he plainly/ although quietly said, "No" - Yippeee!!!Last Bank holiday (May Day 2005) - Callum non-verbally expressed hewanted to play outside with his sister & "friends" who were playingoutside in next door's garden (even though he was in Ellie-Mae'sbedroom bouncing on her bed looking out of the window). We went nextdoor and he played on the swings & garden toys with them for about 30-45 minutes, then went inside to watch videos - I / we we're thrilled!!On the downside - with MB-12 we've got lots of mouthing & chewing (hadto buy Callum a number of plastic teething rings (some of which he'sdestroyed in less than an hour :-( - because he's destroying all theplastic toys in the house - no real change there (Callum's alwayschewed plastic toys), but lots of intensity & lots of dribling.Callum is also exploring his mouth & body (he's a boy) - as if thesensations are returning???Callum is waking up and getting up at 2am, 3am, 4am, 5am... in themorning and not going back to sleep at all - we're doing sleep relaysbetween Jo an me :-(Immediate increase in non-discriminatory verbal stim / high pitchedscreaming & some more intense self-injurous (especially hand biting & some slapping & hitting others) - Though this is / has decreased overrecent weeks :-)Well thanks for reading - obviously we're cautiously excited - havingnot heard him say "Get off" yesterday, but hoping he'll repeat andexpand his vocab....very, very soon.Yours expectantly,Steve, Joanne, Callum & Ellie-MaeBarnsley, UK- XXXX -