Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Bob, *TAKING THAT MUCH NIACIN CAN DESTROY YOUR LIVER...* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Yes, when I was less ill, I did all sorts of physical things. It's a real challenge now, because it's so easy to do too much, and then takes just about forever to recover any strength. This situation makes it just about impossible to recover any stamina at all. I've lost more and more, every time I've gotten knocked down for a while. Maintaining is pretty easy when you can stay active. Recovering is not. What I've found so far is that any time I hyperextend anything at all, the inflammation response is just about overwhelming - lasts for days and days and is a lot more painful than it should be, and so I never really achieve any improvement. About all I have been able to to is maintain flexibility, since stretching ligaments and tendons in an already-established range of motion doesn't seem to cause anything unusual to happen. And I've found I can still develop muscle memory, as long as I stay within my endurance limits - lots of single reps, spaced out, with somebody reminding me what the motions are. That is, my brain won't remember a complex new set of motions, but my body will, after about 100 reps. Like driving a car - physically, I can drive just fine. The problem is more about remembering where I'm going and paying attention to the road. Whatever is messed up in my brain about remembering doesn't seem to translate to muscle memory problems, anyway. I can still do isometric work within limits, but not aerobic work. I haven't tried strength training at all, although I'd really like to, because I'm losing muscle strength at a rate that really alarms me at times. I'm not sure if it can be done. I kind of think that perhaps it could, if I went very, very slowly with it and didn't really push it. I have a good coach, and I intend to discuss this with him, probably tomorrow. He may have some ideas I haven't really considered yet. Sometimes, very obese people have to work like this, so maybe it could work for me. Bob <blue74730@...> wrote: --- In , SERENA EDWARDS <pushcrash@y...> wrote: > Question - how the heck would you expect get away with doing the runs with CFS? Before I read his full program, I use to have the same thought. I think there could be a posssibly that what he does before the program and before getting mold, I use to play golf each week and job. Serena, not all people with CFS are in bed all day yet some are also bed bound. I could have done this program 3-4 years ago. the amount of running and sauna can be cut down to start with, it would just take longer. The mold has actually bothered my energy levels more than the CFS did. That is why it should not be called " Fatigue " for one. Really CFS could also be Lyme and Gulf War Illness is sometimes referred to as CFS. I have had more neurological problems. BTW, when I first discovered it was mold making me ill, I had been talking with and I told him it smelled like burnt fireworks but I cannot smell that odor for mold anymore. It is more of an acrid odor. Has other people had a change in how mold smells to them? Bob FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Despite the fact that Ron Hubbard was a very bright guy with some good ideas about this and that, and despite seeing some very good results from his detox, I would never consider taking his statistics literally. One of his finest talents was marketing. There was a time when if you did nothing more than take a quick course or buy a book, they had you sign a receipt that said you were a Scientologist. You can just imagine how many Scientologists there were, all of a sudden! I had a brother-in-law who had been in the Sea Org. Not everything there was all that rosy. Those guys slept 2 hours a night for years on end. What I did see, was a number of people who were otherwise major screw-ups in life, get their act together very quickly. I just remembered a renter I had who had been through that Drug Rundown and a bunch of other stuff. He was clean, but he was still a major jerk, so there was at least one failure. IIRC, they made him go back and repeat everything since he didn't turn out right the first time. But on the whole, I do respect the results I saw. Serena There is no such thing as an anomaly. Recheck your original premise. ...Ayn Rand, paraphrased --------------------------------- Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Bob, I'm not even considering doing that program at this point. I'm low on ADH and have enough problems with the water content in my body and the sweats. I'm a travelling one-woman sauna as it is. (No, I don't see that as my body trying to intelligently dump toxins through my skin. It's the endocrine disruption caused by the toxins themselves. No temperature control, no diuretic control.) I'm perfectly willing to honestly state what I saw with that program. But until or unless one of my docs want to go that way and think it's a benefit, I won't be doing it myself. I'm looking at some other things, though, and will report any results, good or bad, if you like. Bob <blue74730@...> wrote: --- In , " Carl E. Grimes " <grimes@h...> wrote: > > Bob, > One man had chlordane poisoning and couldn't run for 30 minutes. He > could only walk 4 minutes. He was incredibly ill when he entered and > got worse as the treatment progressed - because it forces the stored > toxins back into the bloodstream for elimination through sweat, urine > and bowel, most sweat. While in the bloodstream you are being exposed > just as you were originally, except this time it's all at once! One > woman who had a lifelong drug addiction experienced them as a > flashback all at the one time. The chlordane victim started a week > after I did and was outrunning me by the time I left. Serena, maybe this is how people with CFS could do his program. It Takes a lot more than jsut running and saunaing though. I first thought when I read about it last year that I could do it by myself but I realize the vitamins and minerals needed in the exact ratio and increased at the program progresses that I could never find the right ratio of vitamins and minerals. If anyone took the time to read the link which Carl supplied, they know that the church is doing the purification program completely outside of any church. I can see from what I read about Hubbard's knowledge of vitamins and minerals that he was a genius in that area and that is the only area which concerns me. Thanks Carl for having the guts so say you went through this program. BTW, did you ever get to 5,000MG's of niacin? If you did, did it destroy your liver? Bob FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 The program did not advise above 5,000 and warned against it. However, I started at their recommended 200 - which was a strong flush at that time - and gradually increased to 7,000 by the time I was done. I later did more sork on my own and pushed it to 11,000 which was pretty intense! I wouldn't recommend any of this without appropriate supervision. Also, they claimed that at their intense level, there was little release for 7-10 days and that it would continue for 2-3 weeks after it was stopped. So doing a little each week will take much, much longer and some have benefited. Again, as I always remind, everything has its pluses and its minuses. Be aware of them so you can make an informed decision. That is much more successful and less stressful than later suing someone. Carl Grimes Healthy Habitats LLC ----- > Thanks Carl for having the guts so say you went through this program. > BTW, did you ever get to 5,000MG's of niacin? If you did, did it > destroy your liver? > > Bob > > > > > > > > > FAIR USE NOTICE: > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Serena, I'm assuming by 'ADH' you mean vasopressin (anti-diuretic hormone) Have you tried using vasopressin or desmopressin (synthetic vasopressin) nasal spray? I am wondering if it would help mt short-term memory loss.. (many have said it helps with that, in addition to helping you get a healthy nights sleep because you don't keep having to pee..) On 1/10/06, SERENA EDWARDS <pushcrash@...> wrote: > Bob, I'm not even considering doing that program at this point. I'm low on ADH and have enough problems with the water content in my body and the sweats. I'm a travelling one-woman sauna as it is. (No, I don't see that as my body trying to intelligently dump toxins through my skin. It's the endocrine disruption caused by the toxins themselves. No temperature control, no diuretic control.) > > I'm perfectly willing to honestly state what I saw with that program. But until or unless one of my docs want to go that way and think it's a benefit, I won't be doing it myself. I'm looking at some other things, though, and will report any results, good or bad, if you like. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I think I'd be concerned about this for a person who was very sick from mycotoxicosis. Thing is, it was originally designed for other purposes not specifically related to this illness. Can you remind me? Did you say were sick at the time, but that was before acute mold exposure? I'm not sure I'm recalling correctly. " Carl E. Grimes " <grimes@...> wrote: The program did not advise above 5,000 and warned against it. Serena There is no such thing as an anomaly. Recheck your original premise. ...Ayn Rand, paraphrased --------------------------------- Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Serena, I didn't have a single, identifiable mold exposure. I grew up in massive exposures of mold, pollen, animal dander, solvents, DDT, heavy metals, etc on a farm. The intent of the sauna protocol that I did was to mobilize fat soluable substances and any others that accumulate in the oil-based structures of the body. When mobilized they are picked up by the blood stream and carried to the various elimination organs of the body. The skin is the largest organ and the sweat is the primary pathway. The body fat isn't just the beer belly kind of fat but also the nerve sheath and the cell membranes, which is where much of the " communication " takes place. Whatever is water soluable - blood, water, fluids - is contained inside a non-soluable " container " such as blood vessels, organ surfaces, cell membranes. If they were not oil based (not soluable in water) they would wash away and be eliminated. Our whole body would be reduced to a puddle of " water. " I don't know if mycotoxins are water soluable or oil soluable so I can't answer the question of whether or not the sauna would help mold victims. I also don't know how re-exposure from inside the body would affect people or how those combinations of interactions would occur. Carl Grimes Healthy Habitats LLC ----- > I think I'd be concerned about this for a person who was very sick > from mycotoxicosis. Thing is, it was originally designed for other > purposes not specifically related to this illness. Can you remind me? > Did you say were sick at the time, but that was before acute mold > exposure? I'm not sure I'm recalling correctly. > > " Carl E. Grimes " <grimes@...> wrote: The program did not > advise above 5,000 and warned against it. > > > Serena > > There is no such thing as an anomaly. Recheck your original premise. > ...Ayn Rand, paraphrased > > > > > --------------------------------- > Photos > Got holiday prints? See all the ways to get quality prints in your > hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 In a message dated 1/11/2006 12:44:48 AM Eastern Standard Time, blue74730@... writes: Shoemaker will take medicare but he sent me papers last time I called and I couldn't fill them out...lol Bob Ask his office to send you the papers over the internet, then fill them out on your computer. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I saw the Cal-Mag which is for the detox but I didn't see the other things. I went to the second link and didn't see anything there. What am I doing wrong? I would probably try this program if I could get the vitamins and minerals in the correct ratio. I just took some Tri- Salts with apple-cider vinegar as I read that calcium needs acidity to be absorbed. Bob Bob, I guess my question is why would you want to do a drug detox program? Maybe it is hugely successful for that, but its not a CFS program and has no history of helping cfs patients, does it? Just seems to me the money would be so much better spent with someone that actually knew something about cfs. Just because its the best drug/addiction detox program doesn't mean it would do a thing for other conditions. I think you need to target your goal. What are you trying to detox? If its drugs go to them and do it. If its mold, go to Richie Shoemaker, if it is metals, do the autism program guidelines like many of us are doing and seeing some results with. But you can't do a program that cures aids or parkinsons or something else and expect it to cure 'cfs', no matter how successful it might be (for what its designed for). If I had that kind of money to put into something, I'd be seeing Cheney or Enlander, or or somebody with some knowledge and history of our illness. Course what you do of course is your own business, but you did ask our opinions on the list, so dont' be upset if you get them, LOL. Personally I would not want to 'donate to their cause' because its not my beleif system, and I'm sure their church and their medical program go hand in hand, the one would not exist w/o the other so they are not different entities at the roots. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 Worked great for a friend of mine with mold illness. Everyone is different. LOni SERENA EDWARDS <pushcrash@...> wrote: I think I'd be concerned about this for a person who was very sick from mycotoxicosis. Thing is, it was originally designed for other purposes not specifically related to this illness. Can you remind me? Did you say were sick at the time, but that was before acute mold exposure? I'm not sure I'm recalling correctly. " Carl E. Grimes " <grimes@...> wrote: The program did not advise above 5,000 and warned against it. Serena There is no such thing as an anomaly. Recheck your original premise. ...Ayn Rand, paraphrased --------------------------------- Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 No it doesn't make me mad. IF you read the book, you would know that stuff for operations, Ilived close to White Sands, NM from '52-'57 during testing, yes I did take LSD, pot, I became ill in aug and being single that summer. I lived at the pool and I believe Hubbard when he says that sunshine gives off a form of radiation. If we did not have so many toxins, drugs and radation in our tissues, our immune system would have killed any pathogen. Did you know that all drugs, alcohol and such deplete vitamins and minerals, particulary B one? I was drinking heavily before becoming ill, I was in the sun all of the time and I had gas from dentist work just before becoming ill. I am beginning to believe that detoxing all of the drugs, toxins and radiation out, plus get on his vitamin/mineral plan will cause my body to kill lyme or whatever. Okay, what do you think about what I just said? it still seems like a long shot to me that this program will 'target' detoxing the right thing for you, because we dont' know what that 'thing' is essentially. Its a crapshoot at best. Even completely discounting the assn with his church etc. Its not been proven that doing this type of detoxing is going to cure or help cfs has it? I just don't want to see you waste money and be disappointed. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 I know it hasn't been shown to cure CFS but who do you know who has tried it. It detoxes everything. did you see the post where Tom Cruise took the program to NYC and detoxed the fireman and they are well now? *** I did see part of that. But those firemen were healthy before that exposure, didn't have long term health issues.... People from Chernobyl were sent to him for detoxification. Marica, I don't know that I will do it. If I could find someplace that sold vitamins/minerals in his protocol, in exactly the right ratio, I might try it by myself. That might be a cheaper way to go if you can. Marcia, I am not sure you read something I posted about his protocol, didn't I post that his program worked for my son's drug addiction after he had been a addict for five years? that was why I looked into it last year to see what good it might do for me. May I say though that neither my ex or I became members of the church nor were we ever asked to, It was like a rehab center. I would drop him off and pick him up later. How can I not believe in the program? Now whether it has any relevancy for CFS, who knows Yes, I did read about your son, but that was kinda 'my point' was do we know it can help at all with cfs? but aren't we always trying to detox? Wasn't that Jim's theory when he sold us the FIR's? I believe in it then. Yes, AND remember how much sicker I got on that program and from the FIR and now knowing how low my glutathione was, it probably was no surprise. I also got better after doing higher doses of vite D, that helped bring my pain back to baseline after it got so much worse from the FIR> also, you have no idea of how hard it is for me with the mold to keep going. If it was not for my faith... I am much sicker than I have ever been in my 30 years. I need to get out of here but nowhere to go. So maybe I am also thinking that maybe his program would detox this mold. that part is true but I think its the HOUSE that needs the detox more than you, LOL. You just seemed doomed to feel worse as long as you stay in that house, are you still thinking of renting it out? Shoemaker says that cholestryamine will and I will get some. there is an great environmental Dr in Dallas, william Rea, but he wants his money up front. Shoemaker will take medicare but he sent me papers last time I called and I couldn't fill them out...lol I did try cholestyramine from my regular Dr, it was at 1/2 the doses Shoe uses, it was the regular dose for hi cholesterol which is why my Dr humored me and wrote the script. It didn't do anything for me one way or another tho, good or bad. Thanks for being open-minded and just looking at the detox program and nothing else. the bible says that God will use evil people to do good things. You ever know a church to turn down a huge donation because it came from the mafia...haha! Well, I'm a believer too, but not gonna touch this question with a 10' pole and I'm sure we'd have 'off topic' complaints we coudln't argue with either! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 It makes sense that the Scientologists might try to recruit for Scientology within the mold victim community as one of their main causes for a long time has been a campaign to spread the idea that medication should not be used to treat ADD/ADHD. Does the connection from that crusade to a potential future or present one within the growing mold victims groups seem obvious? To me it does.. Just as they probably see ADDers as future 'customers' of Scientology (or whatever they call the low level uninitiated followers) - they probably see mold victims.. They are both sufferers who might be more willing than most to pay huge amounts of money to them - Scientology - in an attempt to 'get clear'. (see http://www.xenu.net/ for some ex-scientologists expose of what they really are all about. Its bizarre.) The promotion of Scientology here makes me curious.. I have always been surprised at how successful groups like them are (and there are many, some masquerade as churches, political parties.. even nations) in recruiting the gullible.. Perhaps its a symptom of the spiritual implosion and atomisation of our (global) culture that even as our old institutions are disintegrating and losing their meaning, we spend so much time trying to prevent viable new ones from springing up. My theory is that its because vested interests are *profoundly* afraid that their stranglehold on parts of our society would be lost if people had more options.. And they are probably right on that. But you can't hold back progress.. Or knowledge, forever. Just my $0.02. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2006 Report Share Posted January 11, 2006 In a message dated 1/11/2006 3:15:18 AM Eastern Standard Time, blue74730@... writes: They wanted to know every little detail and I would start getting a headache and have to stop, you know what I mean? I had to think too much to fill out his papers so I just gave up. when I was better, I didn't want a wife but now that I am a broken down 58 year old man, I need one...lol Help me fill out paperwork and drive. Bob Bob I know the scenario only too well. Any depth thinking is beyond me. It took me a couple of months to fill out a medical history earlier this year. I call it Scrambled Brain Syndrome. About five years ago, to protect my late son, I developed a four page document Page 1 - medical history inclding a current issues section Page 2 - summary and conclusions of neuropsych testing Page 3 - medicines and diet including pharmaceuticals and supplements and prescribing doc Page 4 - personal identification, insurance information, doctors info, medical case numbers His photo was on each page. Kept a copy in the car, one in his crisis kit and three inmy purse. First went to EMT, next to ER or whatever new doc we were seeing. Regular docs got an update sheet of his condition and meds. If I could not find it in one place, there were two other places. I keep starting on mine...... mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 His theory was that the body hung on to bad fats with toxins in them. If you give the body good fats to replace the old, the body would release the bads ones with toxins. I bought a bunch of the vitamins and minerals today and I saunad a little using my two FIR's heaters but didn't sweat much. I will starting pouring with sweat by the third or fourth one. Bob Keep in mind that if ones gluathione is very low, mobilizing toxins you dont' have resources to remove could make you a lot sicker. (been there). Marcia Quote Link to comment Share on other sites More sharing options...
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