Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 , do you also have CFS? I was talking with the head of a non-profit company which funds research and I was asking her if she thought a treatment for CFS would also help my mold and MCS. Both of her children had CFS and now also have problems with mold and MCS. She believes that a treatment for CFS would also lessen the mold and MCS. Have you experienced any times lately which you felt more normal? I know I did when I was in the desert. I am almost ready to put my moldy mobile up for sale and getting out and hoping to feel better. Are you still in a place which has mold and gives you symptoms? I agree about being able to be put to sleep. I know the medical term for that but not how to spell it. It seems we care more about our animals that humans. Remember Dr Kervorkian? The doctor was gave assisted suicide? Two of his people who he assisited had CFS and just couldn't go on anymore. I know that for me, I felt last year that if I got any worse that I would take my life. Well it got worse, in fact much worse but the many times I put a gun to my head, I just could not go through with it. I had two reasons. Once I realized that I was not going to be able to take my own life, I think started thinking of how I could survive. I did not know it was mold making my CFS worse. I am fortunate enough to draw a decent income from SSDI and from my company. I would leave and go somewhere and rent a place for about a month and return to my place. Of course I would become ill again and leave after about three weeks. This went on until I finally found the mold under my mobile home. I then thought about trying living in a tent and it did work but it got way too cold and windy and I decided to return to sell my place and then decided how to survive somewhere in a tent either warmer or maybe try Mexico as I have felt better there. I tell you this just to see if anything I have been through can be of use to you. If you live in an " unsafe area " , I wished I had my idea of trying to create a " safe place " ready but not even close. I have lived in three different apartments in Mexico over the past two years and ffelt okay in both. I am open to taking people with me to Mexico if they want to try living there. I would enjoy the company. I once rented a large three-bedroom home in a city where many americans live, for $730/month. It was about 3,000 sq feet and I could see many of us living there. Some on the floor in sleeping blankets and such. I have always been experimental in trying to find ways to live where I feel better. Feel free to back-channel me for more information. has known me through CFS for a little over five years. Bob ldelp84227 <ldelp84227@...> wrote: I just finished Dr. Shoemaker's book the other day. It was very comforting to read that there is a doctor that understands this horrible illness. I feel like meeting him and crying and hugging him. I am afraid I am probably one of the ones that it is too late to help. I have had this for too long. I have suspected many of the things that he talks about regarding the white blood cells working overtime, the imflamation, blod clotting, etc. Then to read what this Dr. Croft has to say about the stages. Everything to me looks like I am in stage 3. Many times I have thought perhaps I should get a lawyer and see if I can eventually be put to sleep like they do animals. This illness is like being tortured and to know that our government is so uncaring and corrupt is the hardest thing to accept. How could they leave so many to suffer what with all the ill from mold and mcs. I hate to be negative-- but how much do we have to take. FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2006 Report Share Posted January 4, 2006 --- ldelp84227 <ldelp84227@...> wrote: > I just finished Dr. Shoemaker's book the other day. .. . . . >I > hate to be > negative-- but how much do we have to take. > I don't know why the government doesn't care, or why so many people in the medical community don't understand and don't want to be bothered with people like us. All I know is, it's okay to be scared, really scared, but it's NOT okay to even think about giving up, no matter how bad you may feel. I know what it's like, to have to " fight, " just to make it through the day, but I intend to keep on " fighting, " and I hope you will do the same, because " where there's life, there's hope, " and who knows, maybe tomorrow, or next week, or next month, or even next year, they will find a cure for this dreadful illness, and I intend to be around when they do. Some individuals may say I'm just dreaming, or being unrealistic, to think a cure can be found, but I don't think I am, because just look at all the medical breakthroughs that have happened in our lifetime so far. Anything is possible, so please hang in there, and don't waste your energy trying to figure out why the government is so uncaring and corrupt. Use your energy to help yourself, and take comfort in knowing, there are plenty of great people in this group that do care, and who will be there for you. Please take care. Barb E. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 In a message dated 1/5/2006 8:29:39 AM Pacific Standard Time, meggs11@... writes: There is hope and also remember that there are plenty of people that have healed they are just to busy enjoying there live to reply to these posts... You will be one soon !!!!!!! This is a good thing to remember. Without sharing names, I can tell a few success stories. A gentleman in Ohio. They had even called in hospice. He was able to then bring in one of our doctors who know how treat mycotic disease. He has now gotten on with his life. Even adopted a new baby! A woman whose blood pressure kept dropping dangerously low - along with other grave symptoms. Hospitalized numerous times with infectious disease doctors being brought in. They consulted with one of our doctors. She is still sensitive, but able to live life. Many of the CIH's, who now work within the industry trying to make a change, came into this issue from the perspective of a sick mold victim. Some, who lobby on national and state levels, came into to this issue as victims. Legitmate research is making it's way into US regulations. I know many times it feels like no one is listening or no one is helping. Trust me. That is simply not the case. There are many people who are in your corner. Hang in there!!! Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Barbara are you currently living in Florida? I had a mold exposure in Colorado and moved to Florida to recover and my body was primed for a major pesticide exposure... if you are considering moving to Florida I will fill you in on what has happend to me! --- Barbara <floridabound03200@...> wrote: > --- ldelp84227 <ldelp84227@...> wrote: > > > I just finished Dr. Shoemaker's book the other > day. > . . . . > >I > > hate to be > > negative-- but how much do we have to take. > > > > > > > I don't know why the government doesn't care, or why > so many people in the medical community don't > understand and don't want to be bothered with people > like us. > > All I know is, it's okay to be scared, really > scared, > but it's NOT okay to even think about giving up, no > matter how bad you may feel. > > I know what it's like, to have to " fight, " just to > make it through the day, but I intend to keep on > " fighting, " and I hope you will do the same, > because > " where there's life, there's hope, " and who knows, > maybe tomorrow, or next week, or next month, or even > next year, they will find a cure for this dreadful > illness, and I intend to be around when they do. > > Some individuals may say I'm just dreaming, or being > unrealistic, to think a cure can be found, but I > don't > think I am, because just look at all the medical > breakthroughs that have happened in our lifetime so > far. > > Anything is possible, so please hang in there, and > don't waste your energy trying to figure out why the > government is so uncaring and corrupt. Use your > energy > to help yourself, and take comfort in knowing, there > are plenty of great people in this group that do > care, > and who will be there for you. > > Please take care. > > Barb E. > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 I hate to hear that you are at level but I will be honest I am there too Everyday! I am trying to get to Dr. Rea's or Dr. Lieberman's ASAP I am currenty seeing Dr. Schaller who co wrote the book Mold Warriers... He is wild and can really see through the dillusion of other Dr.s thoughts... There is hope and also remember that there are plenty of people that have healed they are just to busy enjoying there live to reply to these posts... You will be one soon !!!!!!! Ciao --- ldelp84227 <ldelp84227@...> wrote: > I just finished Dr. Shoemaker's book the other day. > It was very > comforting to read that there is a doctor that > understands this > horrible illness. I feel like meeting him and > crying and hugging him. > I am afraid I am probably one of the ones that it is > too late to help. > I have had this for too long. I have suspected > many of the things > that he talks about regarding the white blood cells > working overtime, > the imflamation, blod clotting, etc. Then to read > what this Dr. Croft > has to say about the stages. Everything to me looks > like I am in stage > 3. > > Many times I have thought perhaps I should get a > lawyer and see if I > can eventually be put to sleep like they do animals. > This illness is > like being tortured and to know that our government > is so uncaring and > corrupt is the hardest thing to accept. How could > they leave so many > to suffer what with all the ill from mold and mcs. I > hate to be > negative-- but how much do we have to take. > > > > > > __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 & Members, I would like to clear something up once and for all. I don't mean any disrespect to Dr.Schaller concerning his treatment, all the patients that he helps and all the time and money that he puts into this, but he DID NOT co-author " Mold Warriors " . He helped edit it. This is according to Dr.Shoemaker who wrote the book. KC > > > I just finished Dr. Shoemaker's book the other day. > > It was very > > comforting to read that there is a doctor that > > understands this > > horrible illness. I feel like meeting him and > > crying and hugging him. > > I am afraid I am probably one of the ones that it is > > too late to help. > > I have had this for too long. I have suspected > > many of the things > > that he talks about regarding the white blood cells > > working overtime, > > the imflamation, blod clotting, etc. Then to read > > what this Dr. Croft > > has to say about the stages. Everything to me looks > > like I am in stage > > 3. > > > > Many times I have thought perhaps I should get a > > lawyer and see if I > > can eventually be put to sleep like they do animals. > > This illness is > > like being tortured and to know that our government > > is so uncaring and > > corrupt is the hardest thing to accept. How could > > they leave so many > > to suffer what with all the ill from mold and mcs. I > > hate to be > > negative-- but how much do we have to take. > > > > > > > > > > > > > > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
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