new to group

October 25, 2006

Have you tried the Autism Society of America Greater GA? I don't remember

the telephone number but their web address is www.asaga.com

New to group

My name is . I have a wonderful, beautiful 19 year old daughter

with a cortical vision impairment and autism spectrum disorder

resulting from brain damage present at birth. She also has extremely

mild CP, and has a shunt for hydrocephalus. She is an energetic,

personable, loving person with a desire to learn on her own terms.

Throughout the years we have run into many obstacles including

professionals that didn't believe in her ability to learn. We have

continued pursuing learning and even these last two year, she is making

amazing progress learning to read Braille after being told since she

was seven (and for many years after) that she would never read.

My daughter has a very strong desire to have a job post high school.

She has her sights set on being a caregiver of some kind. She loves

'taking care of' sick, injured, or sad people. Our school system does

not have a good transition program, but I have administration and

teachers interested in improving it. This is what has lead me to your

group.

I am seeking info about improving the transition program in my

community, and making more opportunities available for the children

coming through. Parent and/or teacher resources are welcome. Any

help, advice would be great.

Thank You.

__________________________________________________

October 25, 2006

contact the Ga dept of labor. they have programs to help transition

disabled teens into the work field. her spec ed director can make

the referral or you/her can. hugs she sounds like she has a

wonderful human spirit!!!

>

> My name is . I have a wonderful, beautiful 19 year old

daughter

> with a cortical vision impairment and autism spectrum disorder

> resulting from brain damage present at birth. She also has

extremely

> mild CP, and has a shunt for hydrocephalus. She is an energetic,

> personable, loving person with a desire to learn on her own terms.

> Throughout the years we have run into many obstacles including

> professionals that didn't believe in her ability to learn. We have

> continued pursuing learning and even these last two year, she is

making

> amazing progress learning to read Braille after being told since she

> was seven (and for many years after) that she would never read.

>

> My daughter has a very strong desire to have a job post high

school.

> She has her sights set on being a caregiver of some kind. She loves

> 'taking care of' sick, injured, or sad people. Our school system

does

> not have a good transition program, but I have administration and

> teachers interested in improving it. This is what has lead me to

your

> group.

>

> I am seeking info about improving the transition program in my

> community, and making more opportunities available for the children

> coming through. Parent and/or teacher resources are welcome. Any

> help, advice would be great.

>

> Thank You.

>

> __________________________________________________

>

October 25, 2006

contact the Ga dept of labor. they have programs to help transition

disabled teens into the work field. her spec ed director can make

the referral or you/her can. hugs she sounds like she has a

wonderful human spirit!!!

>

> My name is . I have a wonderful, beautiful 19 year old

daughter

> with a cortical vision impairment and autism spectrum disorder

> resulting from brain damage present at birth. She also has

extremely

> mild CP, and has a shunt for hydrocephalus. She is an energetic,

> personable, loving person with a desire to learn on her own terms.

> Throughout the years we have run into many obstacles including

> professionals that didn't believe in her ability to learn. We have

> continued pursuing learning and even these last two year, she is

making

> amazing progress learning to read Braille after being told since she

> was seven (and for many years after) that she would never read.

>

> My daughter has a very strong desire to have a job post high

school.

> She has her sights set on being a caregiver of some kind. She loves

> 'taking care of' sick, injured, or sad people. Our school system

does

> not have a good transition program, but I have administration and

> teachers interested in improving it. This is what has lead me to

your

> group.

>

> I am seeking info about improving the transition program in my

> community, and making more opportunities available for the children

> coming through. Parent and/or teacher resources are welcome. Any

> help, advice would be great.

>

> Thank You.

>

> __________________________________________________

>

October 25, 2006

Thank you for the suggestion. It is a good place to start. She does

have a wonderful spirit and adds joy to all who come in contact with

her.

--- tatumcrew <tatumcrew@...> wrote:

> contact the Ga dept of labor. they have programs to help transition

> disabled teens into the work field. her spec ed director can make

> the referral or you/her can. hugs she sounds like she has a

> wonderful human spirit!!!

>

> >

> > My name is . I have a wonderful, beautiful 19 year old

> daughter

> > with a cortical vision impairment and autism spectrum disorder

> > resulting from brain damage present at birth. She also has

> extremely

> > mild CP, and has a shunt for hydrocephalus. She is an energetic,

> > personable, loving person with a desire to learn on her own terms.

> > Throughout the years we have run into many obstacles including

> > professionals that didn't believe in her ability to learn. We have

> > continued pursuing learning and even these last two year, she is

> making

> > amazing progress learning to read Braille after being told since

> she

> > was seven (and for many years after) that she would never read.

> >

> > My daughter has a very strong desire to have a job post high

> school.

> > She has her sights set on being a caregiver of some kind. She

> loves

> > 'taking care of' sick, injured, or sad people. Our school system

> does

> > not have a good transition program, but I have administration and

> > teachers interested in improving it. This is what has lead me to

> your

> > group.

> >

> > I am seeking info about improving the transition program in my

> > community, and making more opportunities available for the children

> > coming through. Parent and/or teacher resources are welcome. Any

> > help, advice would be great.

> >

> > Thank You.

> >

> > __________________________________________________

> >

October 25, 2006

Thank you for the suggestion. It is a good place to start. She does

have a wonderful spirit and adds joy to all who come in contact with

her.

--- tatumcrew <tatumcrew@...> wrote:

> contact the Ga dept of labor. they have programs to help transition

> disabled teens into the work field. her spec ed director can make

> the referral or you/her can. hugs she sounds like she has a

> wonderful human spirit!!!

>

> >

> > My name is . I have a wonderful, beautiful 19 year old

> daughter

> > with a cortical vision impairment and autism spectrum disorder

> > resulting from brain damage present at birth. She also has

> extremely

> > mild CP, and has a shunt for hydrocephalus. She is an energetic,

> > personable, loving person with a desire to learn on her own terms.

> > Throughout the years we have run into many obstacles including

> > professionals that didn't believe in her ability to learn. We have

> > continued pursuing learning and even these last two year, she is

> making

> > amazing progress learning to read Braille after being told since

> she

> > was seven (and for many years after) that she would never read.

> >

> > My daughter has a very strong desire to have a job post high

> school.

> > She has her sights set on being a caregiver of some kind. She

> loves

> > 'taking care of' sick, injured, or sad people. Our school system

> does

> > not have a good transition program, but I have administration and

> > teachers interested in improving it. This is what has lead me to

> your

> > group.

> >

> > I am seeking info about improving the transition program in my

> > community, and making more opportunities available for the children

> > coming through. Parent and/or teacher resources are welcome. Any

> > help, advice would be great.

> >

> > Thank You.

> >

> > __________________________________________________

> >

November 2, 2006

Hello and welcome to the group. Hello !! I'm Derik !! haha Guess

there rest of the people will tell us apart by you being the young one and me

being the old one. I dont get on here much but was about to fill out the

" acceptance questions " when your message popped up. Hope we can chat sometime.

Derik

November 3, 2006

Thanks, Derik! and I live in the Indianapolis, Indiana area. So

just how " old " are you? Be happy to chat with you anytime.

>From: Derik786@...

>Reply-

>

>Subject: Re: New to Group

>Date: Fri, 3 Nov 2006 07:36:47 EST

>

>Hello and welcome to the group. Hello !! I'm Derik !! haha Guess

>there rest of the people will tell us apart by you being the young one and

>me

>being the old one. I dont get on here much but was about to fill out the

> " acceptance questions " when your message popped up. Hope we can chat

>sometime. Derik

>

November 3, 2006

Hi and , and welcome to the group! I'm Tom, I'm 36 and have type 3,

diagnosed when I was 15. SMA seems to affect everyone a little differently and

it can be very challenging adapting to changes in our bodies and abilities. I'm

sure you will get a lot from this group, just ask if you have any questions!

Tom

-------------- Original message --------------

From: " KAREN HUNT " <huntkb@...>

> I have been on this site for only like a week, but was still saddened by the

> passing of the moderator just after I'd been approved. I am glad to have

> joined and have found it interesting to listen to others talk about SMA and

> how it affects their life, as well as how you can find ways to NOT let it

> hinder your life. I thought it was time I participated and told you

> something about why I'm here.

>

> My son, , who is now 25, was diagnosed with 'a form of SMA' when he was

> 19. I don't know if he has type III or what. He has gone from being a

> 'healthy boy', to a young adult who had girlfriends and a car and a job, to

> walking with a cane, then a walker and he is now pretty much in the chair

> most of the time. He is such a trooper, but we are also struggling with

> watching his life go through many changes, and let's be real here, not all

> good ones. Last year, he was moved into a group home so that he can try to

> work and learn to live away from his mother and become more

> independent...who knows how long I'll be on this earth. His father and I are

> divorced, but his father is still involved in his life, which is good.

>

> How does he deal with his disability? One day at a time. is

> considered borderline mentally handicapped as well, so he struggles in other

> ways besides his legs. I do what I can for him, to accomodate his wishes.

> I was hoping to connect with others and maybe have an avenue for both me and

> my son to talk to others with a similar situation. His laptop is currently

> broken (again!), but I pick him up every Saturday and he spends the day and

> night at 'home', so we'll be online this weekend. I haven't yet told him

> about this group...wanted to see what it was all about.

>

> Thanks for listening and thanks for all the good networking about articles

> on SMA/disabilities and medical issues and discussions.

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

November 14, 2006

Hello Rose

nice to see you here. I am intrigued..how do you find variety and enjoyment f

rom a vegan diet.. I always assume vegans rely on soya..which I have read is

not really that healthy in any appreciable amounts for humans.

hope you get lots of good info here..I am sure you will.

anne uk

November 14, 2006

Hello, Anne. Variety is the one thing I enjoy about the vegan diet, but it's

variety that I have to search for. So, I peruse the vegan cookbooks, open

myself and my palate to new experiences, and I end up with a wider repertoire

than when I was an omnivore.

For instance, Sunday I had eggplant crouquettes, yesterday's supper was a

linguine with shiitake mushrooms, baked tofu cubes, and walnuts; today, I'll be

making a lentil-tomato loaf.

I'm not sure where the negative spin on soya comes from, but I think you'd have

to have a good deal of it. In other words, you'd probably have to have it

everyday, 3x/day. But then again, nothing is necessarily good for one if it's

the only think one eats.

I think we probably have soy, in the form of tofu, almost everyday, but in the

case of that pasta dish, it was barely a handful of baked and marinated tofu

bits between us.

But there's plenty of variety. Oh, yes, sometime last week I made a pizza with

carmelized onions and peppers. Mmmm mmmm mmm!

Now, I'm looking for more live food. Not that I want to go raw, but I think the

freshness and living quality of sprouts is great.

Rose

November 14, 2006

Anne, I don't know about Rose, but I've been a whole foods vegan for 8 years and

have been going in the direction of Raw Whole Foods Vegan in the past year. I'm

63 years old and have no health problems and take no meds of any kind--not even

aspirin. However, I did have high blood pressure, IBS, lots of bladder

infections, an extra 20 lbs, many premenopausal problems and constant headaches

and frequent migranes before we changed our diet. Those are ALL things of the

past!! My husband had also had a heart attack and was told by his doctors that

he could never get off his meds. He also, now, takes no meds of any kind and has

no health problems.

So, even if we didn't have variety, we would probably continue to eat this way

for the shear fact that we feel so much better AND younger. But the wonderful

thing is that we DO have plenty of variety--even when we eat mostly raw. We also

don't do much soy. There is a wonderful veggie dip that I make with boxed Mori

Nu Soy Tofu, but other than that I rarely use soy or any processed food.

If you are really interested in a vegan diet for health reasons, I also HIGHLY

RECOMMEND that you eliminate all refined products (white, flour, sugar, white

rice, etc) and additives and preservatives, and cut back on caffeine and

alcohol.

So, where do you get good recipes. Well, for raw foods, the absolutely best

cookbook is Alissa Cohen's book, " Living on Live Food. " The recipies are easy

and fantastic. The Date Nut Tort takes 5 minutes to make and is my favorite

dessert for guests! Yes, we get guests! Some of the actually come more for the

food than to visit us!! My favorite vegan cookbooks are Robbins book, " May

All Be Fed " which in addition to a lot of good information, has wonderful

recipes and Lair's cookbook, " Feeding the Whole Family. " Of course a

Google search will find you more recipes than you can imagine.

And last, but not lease, I'll give you my favorite fast & easy spouts meal... I

buy Ezekial Sprouted Frain Tortillas at Whole Foods and spread on my raw hummus

made with sprouted garbanzo beans and LOTS of fresh sprouts. Wrap it up and

enjoy!! I make my own custom mix of sprouts with lots of radish and mustard seed

for zing and use them any place you would use lettuce or other greens. They are

our only greens in the winter.

Happy sprouting!

Bonnie

vanadeux <vanadeux@...> wrote: Hello

Rose

nice to see you here. I am intrigued..how do you find variety and enjoyment f

rom a vegan diet.. I always assume vegans rely on soya..which I have read is

not really that healthy in any appreciable amounts for humans.

hope you get lots of good info here..I am sure you will.

anne uk

November 14, 2006

I'd have to say pretty much the same thing as Bonnie, especially about the whole

foods. Fred and I eat mostly whole foods, very few processed foods, and of

those, they are not what I consider highly processed, like some of those

packaged foods that are supposed to resemble non-vegan meals.

We eat nuts and grains, fruits and vegetables, tofu. I try not to overcook, I

stay away from heavy frying. We do stir-fry once in a while. We don't worry

about calories.

My big concern is low blood sugar, so I have to make sure that I'm having

protein with a meal that has fruit in it. I'm off sugar, except for the 2

tablespoons that I put in my two-loaf whole wheat bread recipe. (Speaking of

bread recipes, the sprouted breads is one of the reasons I'm thinking about

sprouts).

I've also found that the longer I'm on this diet, the more my " intuition " speaks

to me. I start listening to my body. Lately, I've found, that I have no

appetite for bread, not that I have a lot to begin with, but that feeling of

avoidance tells me my body doesn't want it.

I notice also that my desire for coffee has decreased tremendously.

All in all, the vegan diet works for me. Of course, everything is organic or

certified organic. I won't buy anything that isn't one of those two.

I have found that when I went off the vegan diet, my health changed almost

immediately. Even if I had butter on toast, everything began to change. The

first thing to change was my appetite. It became uncontrollable - and that's

with no meat, just dairy. If I ate meat, like a steak, my desire for sugar

skyrocketed. So, the non-vegan diet definitely wreaks havoc. I've learned,

though, that the reason I had gone off the vegan diets before was because I

wasn't paying attention to the blood sugar. I thought that as long as I was

eating vegan, whole foods, raw foods, etc., I was OK. But my breakfast

contained a bowl full of fruit and some nuts. That blast of sugar was a no-no

and began to take its toll after a while. The toll was not only physical, but

psychological and emotional.

Well, I'll stop, otherwise this will turn into a blog!

Rose

November 14, 2006

--- Rose Lieberman <lapis@...> wrote:

I'm not sure where the negative spin on soya comes

> from, but I think you'd have to have a good deal of

> it.

Hi all,

I suggest looking up " soy and phytic acid " online.

The soy plant contains a high amount of phytic acid to

such a degree that it inhibits the body's absorption

of vitamins and minerals to a very unhealthy level.

If you do look it up, you'll probably run across Dr.

ph Mercola's site; I found his site nice.

Sprouted and fermented forms of soy are cool to eat

because their phtyic acid is deactivated.

As is a common note on this list, the FDA has

certainly chosen the dollar over the man, in this

instance, to market the soybean.

So keep up the Food For Life tortilla dishes (they

have sprouted soy) because they're yummy

Lotsa Luv & Luck, Zia

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November 14, 2006

Rose, it sounds like you are at about the same place I am. I have a wonderful

bread recipe that uses lots of raw seeds (sunflower, sesame, poppy, and flax), a

little raw honey and no other sweetener, and everyone loves it. However, I now

only ever make it for company because the only bread I really enjoy anymore is

the Ezekeil. It is so good I haven't bothered to make my own sprouted bread

since it is a lot of work and I haven't been happy with the flavor of mine.

I also have a blood sugar problem and if I do any sugar or refined flour at all

when we are out somewhere, the next thing you know I am hungry all the time! I

have found that chia seeds seem to help. I mix them 8:1 with water and add the

resulting " chia gel " to watered down orange juice (full strength is too sweet

for me) or in fruit smoothies I make in my Vita Mix. The chia seeds are so

loaded with Omega 3 that even if you don't think it helps your blood

sugar/craving problem, it is certainly the best source of Omega 3 around. For

anyone not knowing about chia seeds, click HERE or if that doesn't work, type in

this website address...

http://www.menu4life.com/magic_of_chia.htm

BTW, chia seeds are very bitter sprouted, so the best way is just the soaking

for 1/2 hour and storing in the fridge. There is no rinsing because with 8 parts

water and 1 part chia seeds, all the water is absorbed into a gel-like

consistency. The only taste is that of the water you use--hopefully none!!

Bonnie

Rose Lieberman <lapis@...> wrote:

I'd have to say pretty much the same thing as Bonnie, especially about the whole

foods. Fred and I eat mostly whole foods, very few processed foods, and of

those, they are not what I consider highly processed, like some of those

packaged foods that are supposed to resemble non-vegan meals.

We eat nuts and grains, fruits and vegetables, tofu. I try not to overcook, I

stay away from heavy frying. We do stir-fry once in a while. We don't worry

about calories.

My big concern is low blood sugar, so I have to make sure that I'm having

protein with a meal that has fruit in it. I'm off sugar, except for the 2

tablespoons that I put in my two-loaf whole wheat bread recipe. (Speaking of

bread recipes, the sprouted breads is one of the reasons I'm thinking about

sprouts).

I've also found that the longer I'm on this diet, the more my " intuition "

speaks to me. I start listening to my body. Lately, I've found, that I have no