(unknown)

[Guest guest]

Hi .

-Marie

[Guest guest]

Welcome to the group dear, I have lots to say after I get some sleep

tonight, I worked till 11pm and now it is almost 1:30 am so I will write

more tomorrow, love

----- Original Message -----

From: <ShihtzusRock@...>

< >

Sent: Wednesday, February 13, 2002 9:08 PM

Subject: (unknown)

> a

> I too am interested in your story & methods of helng.

> I have just started my journey. Implanted w/silicone 1985 Explanted May

> 2001 due to rupture. Now I thin the doc did not entrely remove my

> capsules & am having a hard time just getting the proper test done.

>

>

>

>

>

[Guest guest]

No, but I was just passing it along since there had been a thread here

about the food pyramid. Not much into the food pyramid.

On Thu, 21 Feb 2002 22:40:29 -0600 " The Kepfords " <kepford@...>

writes:

Dear Bianca

You wrote:

Whoops, the picture didn't come through. You will have to link through.

http://www.consciouschoice.com/food/ancestraldiet1403.html

If you click through to the article you will also see

the Ancestral Food Pyramid compared with the

Contemporary Food Pyramid.

That ancestral food pyramid didn't include grain at all...do you see a

problem with that?

Sincerely,

Sonja K.

[Guest guest]

, I can help you with the insurance part of the explant, as I am a RN and have dealt with quite a few insurance companies over the yrs, including my own when they initially refused to pay for my explant. But they did agree finally and all I had to pay was my $100 surgical copay. Please let me know if I can assist you in this way, or any other way as well. I will need to know what you have done thus far with your insurance company in trying to get them to pay for it; I will need the name of your insurance company; and some other information which I can discuss with you later. You can email me privately if you're more comfortable doing that or can reply to . My personal email is e_Rene@.... Sincerely, e, RN, BSN ----- Original Message ----- From: pjzjf Sent: Wednesday, March 06, 2002 11:16 PM Subject: (unknown) Hi again,I've read women have experienced swollen hands due to their implantsbut I was wondering if anyone has had their hands swell and deform?My middle finger is completely stiff and the end joint bends downward.My ring finger is stiff, twice as big around as it should be and myfirst joint has deteriorated and fused together. I've had 2 surgeriesbut the doctors are clueless. If this has been heard of before pleasecontact me.Also, is it true that since I have Mentor implants, since 1992, thereis no way I can recieve anything from them as far as gettingexplanted?And have the women with dissabiities due to implants been able to getSSI-using their implants as the cause? I recently had my dissabilityhearing but did not even mention my implants as I'm so use to peoplenot believing they are the cause. Please let me know.If you all could tell me how to get my insurance co. to pay for theexplant and the cost of a breast lift, I'd appreciate it. Thanks

[Guest guest]

It is very important to obtain written precertification through your surgeon's office prior to surgery. It is often difficult for the patient to obtain this when it really is the surgeon's responsibility. I am the insurance reviewer for two major companies so I understand how the system of precertification works and we get most insurance companies to precert explants unless there is an exclusion in the policy. Please see frequently asked questions on www.plastikos.com. Kolb M.D.

----- Original Message -----

From: e Rene

Sent: Thursday, March 07, 2002 1:44 AM

Subject: Re: (unknown)

,

I can help you with the insurance part of the explant, as I am a RN and have dealt with quite a few insurance companies over the yrs, including my own when they initially refused to pay for my explant. But they did agree finally and all I had to pay was my $100 surgical copay.

Please let me know if I can assist you in this way, or any other way as well. I will need to know what you have done thus far with your insurance company in trying to get them to pay for it; I will need the name of your insurance company; and some other information which I can discuss with you later. You can email me privately if you're more comfortable doing that or can reply to . My personal email is e_Rene@....

Sincerely,

e, RN, BSN

----- Original Message -----

From: pjzjf

Sent: Wednesday, March 06, 2002 11:16 PM

Subject: (unknown)

Hi again,I've read women have experienced swollen hands due to their implantsbut I was wondering if anyone has had their hands swell and deform?My middle finger is completely stiff and the end joint bends downward.My ring finger is stiff, twice as big around as it should be and myfirst joint has deteriorated and fused together. I've had 2 surgeriesbut the doctors are clueless. If this has been heard of before pleasecontact me.Also, is it true that since I have Mentor implants, since 1992, thereis no way I can recieve anything from them as far as gettingexplanted?And have the women with dissabiities due to implants been able to getSSI-using their implants as the cause? I recently had my dissabilityhearing but did not even mention my implants as I'm so use to peoplenot believing they are the cause. Please let me know.If you all could tell me how to get my insurance co. to pay for theexplant and the cost of a breast lift, I'd appreciate it. Thanks

[Guest guest]

Welcome to the group it is good to hear from you, though I wish it were

different circumstances.

I never had joint swelling myself other than one tiny joint on my right ring

finger that is still a little swollen but almost un noticeable. My rheum

almost giggled at me when I even mentioned it a year or so ago like I was

being really silly, but to me it was a concern ya know. He shrugged it off

and said it was age, and osteoarthritis, I am only 37 so thought AGE?

whatever. ANyhow I do know one lady who is a member of this group but never

posts, probably because she still has implants and I think feels

uncomfortable about keeping them, and posting, who was diagnosed with

rheumatoid arthritis and she was telling me that she had a lot of problems

with swelling. Maybe if she reads this she will post something, but at any

rate, I think that all the things you are mentioning are valid and that they

are very likely related to your implants.

Unfortunately I don't know much about getting explants and lifts paid for by

insurance esp if you had saline implants like me and others on this group.

Most of us just paid for the surgery ourselves out of desperation and the

need to get the implants out.

I highly recomend that you try to get the cash together or put it on a

credit card or if you can borrow from someone and try to make the trip to

Ohio to see Dr Feng she is an awesome surgeon and your experience with her

will be so great! I really think that she is the best for doing explants

correctly and I will tell anyone thinking about explant that this should be

the woman to do it if you can get to Cleveland. If not there are some others

that are good too but like I said she really is the best, when it comes to

problems, scar revision etc. No one better at removing implants and helping

you get on the road to being healthy again.

Anyhow if you will let us know more about your situation we will all be glad

to give you advise and help you out, there are women on this group who have

used other surgeons and been happy too, but from some things I have heard it

just seems like in the end, the one who has had the most success stories are

Dr Feng in Cleveland, and maybe Dr Huang in Denver.

Let me know if I can help you with anything else and keep us posted.

Love

----- Original Message -----

From: " pjzjf " <TFarley@...>

< >

Sent: Wednesday, March 06, 2002 9:09 AM

Subject: (unknown)

> Hi again,

> I've read women have experienced swollen hands due to their implants

> but I was wondering if anyone has had their hands swell and deform?

> My middle finger is completely stiff and the end joint bends downward.

> My ring finger is stiff, twice as big around as it should be and my

> first joint has deteriorated and fused together. I've had 2 surgeries

> but the doctors are clueless. If this has been heard of before please

> contact me.

>

> Also, is it true that since I have Mentor implants, since 1992, there

> is no way I can recieve anything from them as far as getting

> explanted?

>

> And have the women with dissabiities due to implants been able to get

> SSI-using their implants as the cause? I recently had my dissability

> hearing but did not even mention my implants as I'm so use to people

> not believing they are the cause. Please let me know.

>

> If you all could tell me how to get my insurance co. to pay for the

> explant and the cost of a breast lift, I'd appreciate it. Thanks

>

>

>

>

[Guest guest]

Thanks for the info I had no idea that you could get explants covered of saline implants! Wow wish I would have known that 15 months ago. Oh well, great news though.

----- Original Message -----

From: Dr. Kolb

Sent: Thursday, March 07, 2002 6:27 AM

Subject: Re: (unknown)

It is very important to obtain written precertification through your surgeon's office prior to surgery. It is often difficult for the patient to obtain this when it really is the surgeon's responsibility. I am the insurance reviewer for two major companies so I understand how the system of precertification works and we get most insurance companies to precert explants unless there is an exclusion in the policy. Please see frequently asked questions on www.plastikos.com. Kolb M.D.

----- Original Message -----

From: e Rene

Sent: Thursday, March 07, 2002 1:44 AM

Subject: Re: (unknown)

,

I can help you with the insurance part of the explant, as I am a RN and have dealt with quite a few insurance companies over the yrs, including my own when they initially refused to pay for my explant. But they did agree finally and all I had to pay was my $100 surgical copay.

Please let me know if I can assist you in this way, or any other way as well. I will need to know what you have done thus far with your insurance company in trying to get them to pay for it; I will need the name of your insurance company; and some other information which I can discuss with you later. You can email me privately if you're more comfortable doing that or can reply to . My personal email is e_Rene@....

Sincerely,

e, RN, BSN

----- Original Message -----

From: pjzjf

Sent: Wednesday, March 06, 2002 11:16 PM

Subject: (unknown)

Hi again,I've read women have experienced swollen hands due to their implantsbut I was wondering if anyone has had their hands swell and deform?My middle finger is completely stiff and the end joint bends downward.My ring finger is stiff, twice as big around as it should be and myfirst joint has deteriorated and fused together. I've had 2 surgeriesbut the doctors are clueless. If this has been heard of before pleasecontact me.Also, is it true that since I have Mentor implants, since 1992, thereis no way I can recieve anything from them as far as gettingexplanted?And have the women with dissabiities due to implants been able to getSSI-using their implants as the cause? I recently had my dissabilityhearing but did not even mention my implants as I'm so use to peoplenot believing they are the cause. Please let me know.If you all could tell me how to get my insurance co. to pay for theexplant and the cost of a breast lift, I'd appreciate it. Thanks

[Guest guest]

>From: Robin Noessel <thor610@...>

> > I was referring to the person who wrote that she

> > found the cow herd

> > confined in a barn during the winter.

>I agree with you. This type of person does not deserve

>to be called a farmer. Perhaps extortionist would be

>more like it.

Perhaps I just wasn't paying enough attention, but when did he engage in

extortion?

>You might consider talking to the humane

>society about such treatment.

Speaking of extortionists...

Berg

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com

[Guest guest]

I have NO experience but have just begun to look into NAET therapy which I found

by searching on the web, using " NAET. "

The Tahoma Clinic ( ) site gets one to some NAET info as well.

Ann

----- Original Message -----

From: crabapplejelly2002 <crabapplejelly2002@...>

<gallstones >

Sent: Thursday, March 28, 2002 5:15 PM

Subject: (unknown)

Has anyone had success with improving eczema, psoriasis or allergies

in general (ie. multiple food sensitivities) by using the liver

cleanse? Would you kindly share your experience. ie. how many

cleanses before you saw some results, the kind of results, how long

lasting. Thanks

Learn more from our experience, more then 200 liver

flush stories: http:///messages/gallstones-testimonials

Liver Cleanse Recipe: http://www.CureZone.com/cleanse/liver/

Liver Flush FAQ: http://curezone.com/forums/forum.asp?ForumID=73

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Have a nice day !

[Guest guest]

At 01:15 29.03.2002 +0000, you wrote:

>Has anyone had success with improving eczema, psoriasis or allergies

>in general (ie. multiple food sensitivities) by using the liver

>cleanse?

read:

http://www.curezone.com/forums/forum.asp?ForumID=50

and

http:///messages/gallstones-testimonials

and

http:///messages/allergies-testimonials

[Guest guest]

according to Cabot, the Liver Cleansing Diet is very good for

clearing this up. She reckons if you do her diet for eight weeks, you will

have quite a dramatic difference...

this is the...

basically, no dairy, no caffeine, no red meat, no preservatives

lots of veges, cold pressed olive oil, a bit of chicken and fish, carrot and

celery and beetroot juice in the morning along with lemon and water drink.

and I forgot to mention before, brown rice, wholemeal pasta, brown homemade

bread (bread maker) or no preservative bread also...

cheers

-----Original Message-----

Has anyone had success with improving eczema, psoriasis or allergies

in general (ie. multiple food sensitivities) by using the liver

cleanse? Would you kindly share your experience. ie. how many

cleanses before you saw some results, the kind of results, how long

lasting. Thanks

[Guest guest]

eI too was constantly being told by my parents how much a

"failure" I was in almost every aspect of my life. I wasn't THAT good of

a piano player; I wasn't "pretty enough" to go out with so so: I had

chosen the "wrong career" would NEVER be able to support myself. Yes

it hurt then it still hurts now. I lost both of my parents at age 29.

I'm now 43.Now my brother, age 60, gives me the same lectures (about

the money). My other brother sister have done well in their careers,

but don't share their money. I, on the other hand, do not have money to

share, but I DO share my time; I run errands for them (they are too busy

to do trivial things like go to the post office or pick up gifts for the

family weddings etc). I let them stay with me at my apt when they are in

town ALWAYS remember their kids b-days, even though I hardly KNOW

their kids(because of the mileage distance between us). MY holidays

(until recently) were spent alone filling in at work for "others" who

had families to go to. Never once did any of them call invite me to

come over. I also went through all my surgeries alone. My family, for

some unknown reason to me, never thought I needed help! I did this from

1988-1999. Do I feel sorry for myself? At times yes. At other times, I

feel as though, I've created my own prison. I've learned a great deal

about myself during this past year. I looked back on how I did it. When

I had my hysterectomy in 1992, my insurance was cancelled days before. A

hospital worker told me that every hospital has "charity" programs. I

got the info from her I wrote my letter 6 months later they wrote

back saying I owed nothing. You might want to try that.My family

doesn't acknowledge I'm even sick now. Just recently, my brother sister made the comment "Are you STILL going thru that? I thought you

had the silicone removed. Why don't you get on with your life." "Why

don't you go out get 2 dogs buy a house--that might make you happy".

That hurt. That's exactly what I want to do. They say to me "What do you

DO with all your money?" Well, I have to pay for my meds doctor visits

etc, I also have a few "other stupid past decision bills" I'm working

on. It's not as much as Dow owes us....but it's enough to keep me in

debt. I don't consider bankruptcy..actually I don't owe even the minimum

for it. But I'll pay it, because like I said, it WAS stupid of me to

spend my money like that.In your case e, medical bankruptcy is

different. A friend of mine did that several years ago now has BETTER

credit than me.Your posts have helped me out a great deal. I want you

to KNOW that. Things happen for a reason..I know that SOUNDS trivial,

but it's true. I cannot answer WHY certain parents treat their kids like

ours did. I STILL wonder to this day what MY parents thought they were

accomplishing by saying THOSE things to me. I always thought, in my

case, it was because my parents came over from Europe were alot older.

But I watch how my sister has carried the "tradition" with her kids. Her

daughter once had the chance, to be in this big "drama" production, the

director approached HER after seeing her in a school play: My sister

told her "not to audition" because "she wasn't good enough" then told me

the reason she did this was because "she didn't want her to fail..go

thru a disappointment of not getting the part." I told her of what

happened when our mom did something similar to me back then how it

hurt; she said "I don't want my daughter growing up to have 'stars' in

her eyes not make something of herself like you." Being the sarcastic

person I can be, I told her "I was a somebody in the centuries of

nobodies."So please realize, on the other end of these emails, there

are "real people", that YOU have helped. Me for one. Peace,

[Guest guest]

Hey e, CONGRATS!!!!!!!!!

-Marie

[Guest guest]

Hi e,

I am glad you found a job it sounds like a good one too, good for you girl. As for your parents, I am sorry to hear about the way things are going, but at least you tried to mend things with them and at least now you have some communication going, it sounds to me like you will be able to get out on your own soon enough and then you can make up your mind as to how much of your life you will spend with them, I think when people get to be a certain age change is hard for them and if they have always been a certain way it is pretty doubtful they will change. I guess I am pretty lucky that I have the parents I do, but I could never live with my mom either, we would butt heads no doubt about many things, religion, life, etc we just don't see eye to eye, I try to keep off the subjects that I know will get her going, and likewise she does the same for me, I do stay with them when I go to visit in CA and it is fine as long as I keep off the things that get us going.

Well, I realize your situation is different. It is tough no doubt, and I won't try to give you advice in this situation, just tell you that I am here for you if you need suport or whatever I can do to help you.

Anyhow I am also so sorry about your insurance issues, man that sucks big time insurance companies are equal to satan in my book, I swear it is sickening, they should have told you ahead of time if you had a pre existing condition, what the hell, it seems to me that you would have a case against them as it is obvious that if you hadn't gotten some kind of approval then your surgeon wouldn't have operated on you, right? Or am I wrong here?

Well anyhow I will include you in my prayers ok? Hope that it will help and that things will work out for you .

I am glad that things seem to be going good for you profesionally as I know how much work means to you, and it sounds like this is really the kind of position you have been waiting and hopeing for.

Good for you girl, keep us posted as to how things go.

Love and hugs

----- Original Message -----

From: e Rene

; SalineInfo

Sent: Saturday, April 06, 2002 8:35 PM

Subject: (unknown)

Hi everyone,

Just wanted to let you all know how things are going with me.

I started a new job this past Wed. I am the Home Infusion Clinical Coordinator for UMC (University Medical Center). I am responsible for the budget, for disciplining my employees (I will be managing 15 RN's, 3 delivery drivers, and 8 CNA's), for dealing with pt complaints, for education, and for preparing my employees for the JCAHO survey (the organization which accredits hospitals, MD offices, clinics, etc) which will occur in August, and for doing marketing. It is strictly managerial, and I will not have to have any physical pt contact--probably just phone contact. I will be one of those people that is never in her office because I'm always at meetings. I will be sitting on several committees at the hospital and will be instituting lots of changes in the home infusion system. They have high expectations of me, and while it is definately going to be challenging, I'm up for the challenge. I'm just so excited to not have to do any pt care and to wear nice clothes to work and to have my own office!!

Living with my parents is not going well. Everything that has happened to us in the past has just been confirmed----I was right to have cut off all contact with them. They are bigots, always think they're right, disagree with EVERYTHING I do and say, and think I'm a failure. We never get along, and argue constantly. My financial situation is a constant source of our arguments. They both think that I used implants as an excuse for all my "so called problems." And they don't trust me. Basically they feel that since I was unable to work for a while when I was so sick prior to my explantation, that I am not reliable and am a hypochondriac. They call me "argumentative." Everyday I'm constantly reminded of what a "failure" I am and how I've disappointed them so much. I cry everyday and am really depressed. I barely have enough energy to get up in the AM and go to work, let alone argue with them incessantly and try to prove my point(s).

Anyway, I've found an apt in the Catalina Mtn foothills and put my deposit down today. Whether they approve it or not is another thing, because my credit is so bad. I'm sure I won't be approved, and then I don't know what I will do. I cannot and will not stay with my parents. So, I guess I will just have to wait and see....

I am out of my cervical collar (almost 2 wks now) and while it was good to get out of that thing, I am having lots of muscle spasms and pain and well, my neck just isn't used to supporting my head. I've started PT (physical therapy) and that has helped some. But I've got a LONG way to go. I have limited range of motion and can only turn my neck to the side a certain amt, then it won't go any further. And I constantly worry about whether my fusion will fail or whether one of the grafts will slip, or whether this entire thing will collapse. My incisions have healed up very nicely, and the one on my neck is pretty much not that visible unless you get up close to me. Sleeping is the worst, because I can't sleep on my stomach, and I can never find a comfortable, pain free position. So, I wake up most mornings stiff and hurting.

On top of that, my insurance company is denying everything until they complete a review of whether this surgery and my bone marrow biopsy were pre-existing. It is frustrating to say the least. I don't know what I will do if they deny everything and I'm stuck with a $35,000 bill. In the meantime, I'm getting letters from the hospital stating that while insurance makes a decision, I'm responsible for the bill. Why do we even have insurance if this is going to happen?????????????

Anyway, that is what is going on in my neck of the woods. While I'd like to say that things will get better, I honestly don't see any light at the end of the tunnel. It all is very disheartening. And everytime I start to feel better emotionally, my parents successfully knock me down again with their rude, hurtful comments. All I want is the chance to start over again, but there are simply too many hurdles that I just cannot jump over.....

Take care everyone,

e

[Guest guest]

Welcome to the group Lee! Rheumatoid Arthritis is a disease that affects the immune system, meaning that the immune systems goes into overdrive & attacks not only the bad things but also your own body mainly the synovial fluid between the joints. MSM & chicken fat may help some but it really cannot do anything to help RA. That is why many people with RA are put on immune suppressant s & dmard(disease modifying anti-rheumatic drugs. Things like anti-inflammatories, msm & gelatin only help to mask the symtoms of people with RA. On the other hand a number of people diagnosed with osteo-arthritis do get relief with msm, gelatin & chicken fat. I would discuss these supplements with your dr first though.

Good Luck & God Bless, Barbara

carrielee1965 <johnandcarrielee@...> wrote:

[Guest guest]

You might ask about Prednisone for temporary relief until you can get something to slow down the joint damage. I don't think Prednisone is all that expensive and usually helps any inflammatory disease. It has bad side effects when used for too long so you would want to get off it when possible. Good luck and God bless.

----- Original Message -----

From: Debby Modis

Rheumatoid Arthritis

Sent: Wednesday, July 02, 2003 8:04 PM

Subject: (unknown)

Hi: I am new to this group. My name is Debby and I am 49 years old. I haven't been diagnosed yet with RA because I am in the process of getting new health insurance and my rheumatologist wants to wait until I am approved for the insurance before he officially diagnoses me and puts me on meds. I have been seeing him for a year for fibromyalgia. Talk about feeling like you have been hit by a Mack truck --- try feeling like the truck not only hit you but backed up over you to make sure he got ya! The doc has finally found meds which work for my aching muscles which is an anti-seizure drug, Neurontin. Unfortunately it is very expensive. It costs me $350 a month for this drug so I take it only at night and once during the day if needed. I started with fibromyalgia after my husband and I separated a year ago. My rheumatologist said that fibromyalgia is usually caused from poor sleep habits, which I definitely had and still have even after being put on meds to help me sleep. He says it is also caused from stress and people with fibromyalgia are more susceptible to RA. I have aching joints in my fingers and feet. My back is also extremely terribly sore but that is probably from the weight I put on recenty with the meds I was on. All my fat is in my belly and that puts more strain on my back. I type for a living, medical transcriptionist, and some days my hands hurt so bad I can't type. So far there has been very little swelling, if any, just lots of pain in the joints on the palm of my hands. My right foot hurts all the time and he has also diagnosed a Morton's neuroma which I denied for a long time however now I can no longer deny that is what I have because I have all the symptoms now. As soon as I get the health insurance approved I will be able to go on meds for the RA and also the Morton's neuroma. If I can just hold on until then. I hope to have it within the next 4 weeks because my next appt with the rheumatologist is August 1. Anyway, I just wanted to say hi and why I joined the group. If anyone has any remedies I can use between now and next month please let me know. I have tried Icy hot, that "blue" stuff, arthritis spray, everything .Warm water does help but I can't type with my hands dunked in water

Debby

Trust, Have Faith, It is Belief that gets us there. God will help us through life.

Help STOP SPAM with the new MSN 8 and get 2 months FREE*

[Guest guest]

Some people are on Prednisone at doses of 30 mg daily or more for years without major problems but most people prefer to get off it because of one side effect or another. In response to another post about side effects I forgot to mention osteoporosis. If you are on Prednisone you probably need extra calcium and Vitamin D to help prevent osteoporosis. On another board I follow a person who posts as Graclyn has MS and once thought she also had RA but a visit to Mayo Clinic said it was likely only MS and that caused the RA-like symptoms. I think there is someone else who has posted on the board with both but I think she was fairly new at it and mostly looking for information. The other board is http://www.arthritisinsight.com/cgi-bin/wsmbb/wsmbb.cgi?SB+KYWRJLLXVS/AKFCLKZQUN+config Graclyn is pretty busy right now and it may take a while to get a response from her.

I'm not up on drug interactions but a pharmacist is likely to be a better source of information than a doctor. Drugs are the whole life for a pharmacist but only a small part of what a doctor is concerned with. Good luck and God bless.

----- Original Message -----

From: JJHamilton

Rheumatoid Arthritis

Sent: Thursday, July 24, 2003 10:27 PM

Subject: (unknown)

Hi everyone. I don't really post much but I do read what everyone has to say. I have posted before stating that I was blessed with not only RA but also with MS. I was doing very well on methotrexate, azulfadine, plaquinel, and relafen until they put me on a medication for the MS. It's an interferon injection called Rebif. It has interferred with the RA meds and I am now back where I started from. Pain so bad I could hardly move. I couldn't get up and down very well. I would say I have a severe case of RA. My rhematologist gave me prednisone and it seems to be helping. This is the 3rd time in 9 months that I have had to go on prednisone. My question is does anyone know how long you can stay on prednisone and what bad side effects does it have? Also, does anyone else here have RA and MS. A woman wrote and told me before that her husband had both and was going to the neuro but I haven't heard from her. Thanks for listening.

Jan in MI

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

On another board I follow (http://www.arthritisinsight.com/cgi-bin/wsmbb/wsmbb.cgi?SB+KYWRJLLXVS/AKFCLKZQUN+config) someone who posts as Graclyn thought she had both RA and MS until a trip to the Mayo Clinic convinced her she only had MS. If you go to the other board and post a message asking for Graclyn in the title she might respond to you. She is no longer a regular on that board but she still checks it on occasion. I think she exchanged messages on that board with someone else who thought they had RA and MS but I don't remember the details. Good luck and God bless.

Harold Van Tuyl (Grandpavan1927)

----- Original Message -----

From: JJHamilton

Rheumatoid Arthritis

Sent: Monday, September 29, 2003 8:05 PM

Subject: (unknown)

I have been reading several posts from others who have RA and other auto immune diseases with it. I don't see anyone with RA and MS. I am trying to balance my medication with these two diseases but they seem to fight against each another. I am presently on a medication for MS to slow down the disease and it is interfering with all of my RA meds. If anyone has MS as well as RA I would love to hear from you and see what you do about this problem.

Thanks

Jan from MI

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[Guest guest]

Welcome to the board and it's too bad you have reason to be here. Here are a couple of links you might be interested in. First, http://www.arthritisinsight.com/medical/disease/ra/ra.html tells a lot about the disease. About halfway through it lists the seven criteria established for diagnosing RA and any four will support a positive diagnosis. Next, http://www.arthritisinsight.com/medical/meds/ describes many of the medications useful in dealing with RA and some of the common complications. The site http://arthritisinsight.com/ from which these links are taken has a lot of additional information or links about RA. They also have a message board that is more active than this one and may be of interest to you. http://www.arthritisinsight.com/cgi-bin/wsmbb/wsmbb.cgi?SB+KYWRJLLXVS/AKFCLKZQUN+config

Most people with RA who receive proper treatment have nothing to worry about. There is likely to be some additional pain at least occasionally and some tasks may take longer sometimes. The key is early and aggressive treatment. It's good that you are going to see a Rheumatologist (RD) and it is important to establish a good relationship with him/her. One of the links from http://www.arthritisinsight.com/medical/new/ describes the first appointment.

If you'd like to e-mail me I'd be glad to respond. I'm a 76 year old man who has had RA for almost two years. Please start an e-mail message title with Grandpavan and I'm not likely to delete it without reading along with the spam. Good luck and God bless.

Harold Van Tuyl (Grandpavan)

hvantuyl@...

----- Original Message -----

From: Carolyn

Rheumatoid Arthritis

Sent: Tuesday, October 14, 2003 9:53 AM

Subject: (unknown)

Hi,Last week based on symptoms and bloodwork my dr. feels I have Rheumatoid Arthritis (and I just thought I was getting old, tired and achey!). He is sending me to a Rheumatologist next week for evaluation. I'm 54, married, and we have a 26 year old severely handicapped (total care - no communication) daughter. I do all her personal and medical care (except bedtime whne my husband is home). He also said I have carpal tunnel in both hands and, as Laurie said in a previous post, he feels it is a result of RA and the way I sleep. I'm still trying to get my brain around all this. I'm having difficulty reconciling RA and my life I have to lead. I don't have time for RA and I don't know what to expect. I was always the one in the family who was healthy as a horse and had excess energy. What's going to happen? I guess I'm scared. I don't know that I have any questions, yet.... just needed to vent, I guess. Don't know anyone with RA to talk too.Carolyn

[Guest guest]

tlproy@... wrote:

> From THE RAW FOOD PRIMER by Chef Suzanne Ferrara

>

> Avocado Heaven

> This rich velvety soup will make you feel extraordinary and will

> compel you to smile continuously for hours. It has a buttery essence

> that can smooth out the rough edges of any winter day.

>

> 1 whole ripe avocado, peeled and pitted

> 2 cloves garlic

> 3 tbsp shoyu

> 1/8 tsp ground cumin

> 1 tsp fresh lime juice

> Warm water

> Sweet red bell pepper

>

> In blender, combine avocado, garlic, shoyu, cumin, and lime juice.

> Blend, adding small amounts of water until the consistency is that of

> thick soup. The amount of water will vary from avocado to avocado but

> generally will be about 1 cup.

>

> Sliver or chop the red bell pepper and scatter atop the soup as a

> garnish. Serves 1.

>

>

===================================

I am definitely going to try this one. It has got to be a keeper for

sure. Drool, drool, drool. Yummmy sounding.

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

Tonya wrote:

> I do have a few questions for the group regarding hebs tinctures and oils

>

> what is a tincture?

> How do you make it?

> what is it used for?

> how long should a tincture hold?

> how long does a finished tincture last?

> can I use a tincture mixed with a carrier oil to make my own oil?

> what are the herb no-no's of tincturing?

> how do I measure herb to liquid ratio?

>

> How do I make my own oils with hebs and flowers?

> what are herb / flower no-no's when making oils?

>

> What kind of herbs can be ingested via capsules?

>

> are there any websites with this info?

>

> Thanks

===============================

Hi Tonya,

A tincture is a mixture of herbs and alcohol (usually but can use apple

cider vinegar). It is usually left to sit for several weeks beginning on

the new moon and then pressed on the full moon.

To make there are several ways. You can place all your selected herbs

into a blender and add the prescribed amount of alcohol and blend, then

bottle and allow to macerate for two weeks or longer then strain. You

can just add the herbs to a jar and cover with alcohol and allow to

macerate for two weeks minimum or you can get really funky and do all of

this in the manner of the old mystics, witches and alchemists.

Tintures are used internally and are used to get the healing properties

of the herbs into the system really quickly. They are much preferred

over capsules and teas in this aspect.

A tincture will, theoretically, last for eternity under perfect

conditions. However, a good tincture will last approximately 10 years.

Herb to liquid ratio is normally 1:5, 1:4, 1:3. This means that you use

1 Part of herbs to 5 or 4 or 3 parts of alcohol. Now you can make this

really potent by replacing the herbs after several months with fresh

herbs and using the same alcohol. Do this three times in succession and

you will have a killer tincture.

To make infused oils with herbs you can use either fresh or dry. With

fresh you have to take especial care as they still contain much water

and will go moldy if you don't make sure you get out all the air

pockets. This is why most people use dry herbs for infused oils. Just

fill a jar 3/4 with the herbs and add in extra virgin cold pressed olive

oil or any cold pressed oil and allow to sit in a warm place for several

weeks beginning on the new moon and pressing on the full. Infused oils

are much better if left for several months (at least from my perspective).

Usually flowers are best used as flower essences like the Bach flower

remedies and others. I know that there are other flowers that can be

used in oil infusions but usually Calendula and St. 's Wort, and

Arnica are the common ones used in oil infusions.

The no-no's with oil infusions is to leave air in the infusion. This

promotes bacterial and mold growth. You always want to make sure you get

all the air out of your oil infusions whether using dried or fresh but

especially with fresh due to the moisture content.

Any herb can be taken in capsule form. Just have to make sure you powder

it up really well.

Hope this answers your questions and if you have any more feel free to

ask. Peace be with you Tonya.

--

Peace, love and light,

Don Quai

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

[Guest guest]

Where did you put the pictures? I can't find them.

I also have a groove under my ring finger...my daughter says it because my ring is too heavy so to fix that I should give her the ring...LOL.

Same thing on the lumps.

Hugs, Jacy

~I don't approve of political jokes: I've seen too many get elected.

jacymail@...www.geocities.com/mtn_rose

Want a signature like this?

----- Original Message -----

From: joterjo412

Rheumatoid Arthritis

Sent: Tuesday, October 12, 2004 10:53

Subject: (unknown)

Hello everyone,I have not yet been diagnosed with rheumatoid arthritis. My orthopedist, from my knee surgery for PVNS, recommended that I get blood work done for RA. My primary doctor is sending the forms by mail. My question is, do most of you have similar problems in multiple areas of the body? From what I've read, if a person is affected in one hand, it generally affects the other hand with similar symptoms.I found a lump in my right hand about a month ago. The lump itself does not hurt, but my knuckles and surrounding area of the mass hurt. I've been taking pictures of my hand on a weekly basis to compare. I've had physical changes to the look and feel of my hand, including an odd groove under my ring finger. But it doesn't look like any photos I've seen on the internet of RA. I put a few photos up here. Does this look familiar to anyone?Thanks,Joanne

[Guest guest]

Hi Randy! That was stunningly beautiful! Thank you for sharing it!Peace and Love,CassieI honor the place within you where

the entire universe resides.

I honor the place within you of love and light,

of peace and truth.

I honor the place within you where

when you are in that place within you,

and I am in that place within me,

there is only one of us.

Namaste

from Honest to God by

Neale Walsch and Brad Blanton

Gather all courage and take a jump. You will still exist, but in such a new way that you cannot connect it with the old. It will be a discontinuity. the old was so tiny, so small, so mean, and the new is so vast. From a small dewdrop you have become the ocean. But even the dewdrop sliping from a lotus leaf trembles for a moment, tries to hang on a little more, because he can see the ocean . . . once he has fallen from the lotus leaf he is gone. Yes, in a way he will not be; as a dewdrop he will be gone. But it is not a loss. He will be oceanic. And all other oceans are limited. The ocean of existence is unlimited.

Thilakshan JeyarajahFrom: Randy <jqpublic_59@...>Subject: [] (unknown) , united_by_hearts , " Gaganis" <cgaganis@...>Date: Tuesday, August 19, 2008, 12:16 PM

Most Perfect Love

Most perfect love,I feel you in the wind.All senses register raptureand evermore.The beckoning sunriseannounces itselfto the horizonwith joyous outstretched armslike a sinner redeemed.

The metaphysical, impossiblebeyond happening happenings,when eyes meet and all stops.All begins.Hummingbirds frozen in time.Night and day united.The birth of soft tranquil light.Our sky to walk through, or into.Bringing soft pastelsto our Van Gogh silhouettesas the universe's prophecyis fulfilled.Most perfect love.The arrival.

Eyes find eyes.Hearts hear hearts.Silent vibrations.Affirmations of yes,dancing back and forth.Angel defined ping pong, between us played.

Immune and void to time.We are time.The eternity.The Heavens and Earthmanifestwithin the moment our two body's embraceand create one soul.Look at the starswhich now fill the skies.Our children.Nursed and nurturedby love. Our version.The supreme inspiration.The supreme aspiration.Most perfect love.

-Randy

[Guest guest]

onelist

Cc:

Date: Mon, 24 Jan 19100 9:8:43 -0800 (PST)

Subject: CMT ????

Hello:

I am new to !!! I was diagnosed with CMT about a year ago . I am a 44

year old male and have had problems walking and keeping my balance since my

teens !!! I have always had high arches and hammer toes !!!

About 14 years ago, I went and saw an Orthopedic Doctor about the way I walk and

my

balance problems !!! He said surgery on my hammer toes would fix my problem with

walking !!! He never tried to figure out what had caused the hammer toes !!! I

had the surgery and have never gotten any better

on walking and made my balance even worse !!!

My legs are very skinny and weak !!! I still get around pretty good for short

distances, but use a cane if I will be on my feet for any length of time !!!

Doctors say I will need ankle braces by my 50th birthday !!! Not if I can help

it !!! I will do what-ever it takes to keep out of braces !!!

They say CMT is hereditery !!! No one on either side of my family (going way

back) has ever had any problems like this !!! I would appreciate and answer any

feed-back !!!

THANKS>>> KIM

http://www.go.com

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