Re: Update: Dr. Wood and the CranioCap

[Guest guest]

Oh !!!

This is SO disappointing to hear!!! You have been treated horribly!

If you decide to ditch the CranioCap and move onto a DOC Band, I would highly suggest talking to your insurance company about getting the CranioCap people to reimburse whatever was paid out to them. You should NOT have to pay for a service that you are A) unhappy with, and have been treated so poorly. You may not have paid the lump sum up front, but you have certainly paid more than that in monthly premiums to your insurance, not to mention the emotional stress! Your 4 MONTH old daughter should NOT have to get the bum-wrap!

Please let us know what you decide. I'm sorry you had such a crappy day! (

kendra

Update: Dr. Wood and the CranioCap

Hello to all:Well, I just got off the phone with Dr. Wood. I told him that I was concerned about Rhiannon's head as she now has a verticle "dent" where the seams of the helmet come on her head. The response? Well, that really wasn't his forte, and that I would have to take that up with the orthotist. I explained that I had been having difficulties communicating from the start with the orthotist that I have. I was told that she is the best and, essentially, if I didn't like how the helmet fit I could always stop using it. Just like that. I cannot tell you all how p.o'd. I am. It seems that every time I have been in a situation that has required an MD or other health "professional" I get the same result. If the problem isn't convenient, then it's my fault, (or in this case my 4 month old daughter's.). So, bottom line is they will NOT make a new cap (after all, out of 400 patients, they have only had trouble with 3 or 4 of them, yet if you add it up my baby is a 1-30,000 baby, so it tells me that those that really need the help are denied.) Yet, I'm sure they will take their entire $2,300 from our insurance, which we pay for with our monthly premiums. I called the PT and told her that we would be discontinuing treatment. I will just continue on with the folks with whom I am getting results. I don't have to go to PT 1x per week to be told she's fine. I can see that on my own.I have spoken with someone in Madison, WI with the DOC band, and they are very supportive. I will see 2 people there, and they will access Rhia, and if need be have the neurosurgeon give her a script for the DOC band. I am feeling very betrayed, let down, and ripped-off right now. We will be seeing another orthotist tomorrow, but I already know the outcome based on the past. He or she will "fall into line" and say the same things. In the meantime, a baby is not getting the treatment that her mommy and daddy have ALREADY PAID FOR. What a tragedy.Well, I'd better go.I hope you all had better days than I did.Kind regards,, Rhiannon's momFor more plagio info

[Guest guest]

:

I am soooooooo very sorry to hear of the poor treatment you & little

innocent Rhia have received. Unfortunately, I have been there also,

so I know just how you feel. I want to tell you though, what a great

mom you are for addressing your concerns & not backing down from

these people. You knew things weren't right for some time now, you

gave it your best shot & realized it is time to stop. I am really

sorry! Being as alert as you, you probably stopped any further

damage being done to Rhia's pretty head, good for you.

Isn't Dr. Wood the creator of the CranioCap??? I'm not sure. So any

problems that you're having with the cap, isn't his forte???? WHAT?

Not good!

Trust me when I tell you, you'll be thrilled with the people at

Cranial Technologies. I also switched my daughter's treatment after

a not so good experience with her STARband to a DOCband. They really

are experts there. They are very kind, caring & educated. Rhia's

head will improve in no time once she's in her DOCband, esp. still

being so young! You'll be happy.

As for the money, talk to your insurance & explain to them what

happened. I am sure they will fight to get their money back. I was

refunded money for my faulty product. You should be too (or your

ins.).

Will ins. cover the DOCband now?

Well, hang in there. Again, I am really sorry to hear of your

struggles.

Abby's calling (more Barney!). Don't you have an appt w/CT already?

When if so?

Debbie Abby's mom DOCGrad

MI

> Update: Dr. Wood and the CranioCap

>

>

> Hello to all:

>

> Well, I just got off the phone with Dr. Wood. I told him that I

was

> concerned about Rhiannon's head as she now has a verticle " dent "

> where the seams of the helmet come on her head. The response?

Well,

> that really wasn't his forte, and that I would have to take that

up

> with the orthotist. I explained that I had been having

difficulties

> communicating from the start with the orthotist that I have. I

was

> told that she is the best and, essentially, if I didn't like how

the

> helmet fit I could always stop using it. Just like that.

>

> I cannot tell you all how p.o'd. I am. It seems that every time

I

> have been in a situation that has required an MD or other

> health " professional " I get the same result. If the problem

isn't

> convenient, then it's my fault, (or in this case my 4 month old

> daughter's.).

>

> So, bottom line is they will NOT make a new cap (after all, out

of

> 400 patients, they have only had trouble with 3 or 4 of them, yet

if

> you add it up my baby is a 1-30,000 baby, so it tells me that

those

> that really need the help are denied.) Yet, I'm sure they will

take

> their entire $2,300 from our insurance, which we pay for with our

> monthly premiums.

>

> I called the PT and told her that we would be discontinuing

> treatment. I will just continue on with the folks with whom I am

> getting results. I don't have to go to PT 1x per week to be told

> she's fine. I can see that on my own.

>

> I have spoken with someone in Madison, WI with the DOC band, and

they

> are very supportive. I will see 2 people there, and they will

> access Rhia, and if need be have the neurosurgeon give her a

script

> for the DOC band.

>

> I am feeling very betrayed, let down, and ripped-off right now.

We

> will be seeing another orthotist tomorrow, but I already know the

> outcome based on the past. He or she will " fall into line " and

say

> the same things. In the meantime, a baby is not getting the

> treatment that her mommy and daddy have ALREADY PAID FOR. What a

> tragedy.

>

> Well, I'd better go.

>

> I hope you all had better days than I did.

>

> Kind regards,

> , Rhiannon's mom

>

>

>

>

>

[Guest guest]

,

Jeez - what a total mess. I am POd for you right now too!!! I think you are

doing the right thing by getting the heck away from Dr. Wood and company. I'm

sorry that your time and money was wasted and I would pretty much insist on

getting my money back from those goobers. You may not get it, but you should

at least try. I think you will be very satisfied with CT - they make an

excellent product.

Good luck and let us know how things progress!!

Marci (Mom to )

Oklahoma

[Guest guest]

,

I agree with the bunch- you got a faulty product and you should alert your

ins. company not to pay (I'm sure they'd love that!). Good for you for

checking into alternatives for Rhia, I hope your road goes smoother this

time! Please keep us posted.

' Mom

[Guest guest]

Hi :

I did call my insurance today and will be writing up appeals, asking

for exemptions, etc. next week. The person that I spoke with at the

insurance (Preferred One) was very helpful. It looks like the DOC

band will be covered after all (which is not what my new ped. told

me, but oh well, this is why I make my own calls.)

I just want to state for the record that Dr. Wood is a plastic

surgeon, and from what I have seen (kids that have had cranio

surgery) and from what I have heard about kids with cleft palate,

that he is EXCELLENT when it comes to those issues. I myself have

seen a little guy just a few weeks post-op for cranio surgery, and

his scars looked like little scratches. This is excellent! I do not

want insult his surgical abilities whatsoever. I am only saying that

my experience has not been good with the CranioCap, and in my

experience I feel that when the orthotist and I were not seeing eye-

to-eye the referring doctor (Dr. Wood) could have stepped in and

tried to resolve the issue. Instead, we were told that we didn't

have to wear the helmet - after only 2 weeks, and after the helmet

was already paid for. I feel more effort could and and should have

been made to have a helmet that fit properly. Instead, we were

dismissed. Again, all for the record.

Thanks again for your info, and if I need more info on appeals, or

how some of you got the first helmet folks to pay for the second

helmet, I may ask next week.

With kind regards, and wishing you all a great weekend,

, Rhiannon's mom

> ,

> I agree with the bunch- you got a faulty product and you should

alert your

> ins. company not to pay (I'm sure they'd love that!). Good for you

for

> checking into alternatives for Rhia, I hope your road goes smoother

this

> time! Please keep us posted.

>

> ' Mom